Guest guest Posted February 26, 2010 Report Share Posted February 26, 2010 Hello Group! I am a new member so this is my first post. I have read breifly some other posts and noted that one person said that most of the people in this group take no meds for MS. This caught my attention because I am on Avonex and am having a terrible time with it. I am 29 years old, married with two daughters ages 5 and 4. I was diagnosed with RRMS in July 2009. I spent several months in a wheelchair and not able to care for myself. Thankfully, my wheelchair time is a lot less these days but I still have other MS issues. I was put on Avonex after my first major relapse. I take one injection once a week. First of all, I am very hard-pressed to take any meds, even asprin, so this was very new for me. For the next 24-48 hrs after my injection, I feel as though I have the flu. I get chills, body aches, the most horrible headache possible, weakness is worse, fatigue is unbearable and brain fog is at the max. It has helped to calm my MS symptoms but when I tried to take my self off of it, I started to relapse again and had to go back on. I want to be off MS meds completely. I have made several changes in my life. One being the food I eat. I now stay away from MSG, High Frutcose Corn Syrup, etc and I eat all organic and natural foods. I have even taken this to the exent that I am raising my own chickens for the meat and eggs. Back in Jan of 09, I lost quite a bit of my hair. I went to see a naturalist and she gave me a huge amount of herbs to take. I was on Colloidial Silver, Oragon Grape, Cloraphylle, Super Orac, Bifidopholis, Flax seed oil, and other stuff I cant think of right now. My question is... Are these okay to take as a suppliment for Avonex? What can I take to suppliment the Avonex and is all natural or organic? Also, when I take things to " boost my immune system " my MS gets worse. Why are people telling me to boost my immune system when my overactive immune system is my problem? I dont understand this. Something that I have noticed is when I am emotionally distraught or going through a hard time, the MS symptoms are at an all time high. Why is that? and how can I prevent it from happening? I'm sorry this was so long, but thanks for all the advise. from Texas Quote Link to comment Share on other sites More sharing options...
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