Re: Been reading a while....new update...

[Guest guest]

Sorry, .

What type of damage did the x-rays reveal?

Is this the only rheumatologist you have seen?

Not an MD

On Tue, Jun 16, 2009 at 8:32 AM, franticteacher

<franticteacher@...> wrote:

>

>

> I was diagnosed with fibromyalgia on 6-6-09. The rheumatologist says that I

have arthritis in my hands, but since all my lab work was mostly normal, I do

not have rheumatoid arthritis. (Or so he says....x-rays show arthritis damamge

to my hands though.) He then just said I had fibromyalgia and left. The pain is

enough to kill me and the mornings and evenings are the worst. Just looking for

some support and help from others who are going through this as well. I feel

that he is wrong. To prove my point I have half a mind to go off my meds for a

month before my next rheumy appointment to have him see me before all the meds.

And I just might, its just the the pain is so intense then. Anyhow, thanks for

reading.

>

>

[Guest guest]

I didn't think to ask. He just said that the damage in my hands shows

arthirtis, but since all labs come back clear that....didn't hear everything

after that. He then said it was Fibromyalgia and left. I was very frustrated

with him. I can only see him right now as there are only 4 rheumy's in my small

place and they are all at the same clinic. They don't allow you to switch

doctor's there.

> >

> >

> > I was diagnosed with fibromyalgia on 6-6-09. The rheumatologist says that I

have arthritis in my hands, but since all my lab work was mostly normal, I do

not have rheumatoid arthritis. (Or so he says....x-rays show arthritis damamge

to my hands though.) He then just said I had fibromyalgia and left. The pain is

enough to kill me and the mornings and evenings are the worst. Just looking for

some support and help from others who are going through this as well. I feel

that he is wrong. To prove my point I have half a mind to go off my meds for a

month before my next rheumy appointment to have him see me before all the meds.

And I just might, its just the the pain is so intense then. Anyhow, thanks for

reading.

> >

> >

>

[Guest guest]

Hi - I'm sorry you are having to go through all of this. Sounds like you

need a new Rheumy. My RA doesn't show up in blood tests either. They call that

sero-negative RA. I also have fibromyalgia. Some days I don't know which one it

is that's giving me a fit. I wouldn't stop the meds you are taking if they're

helping. You need one that is kind and understanding. Keep us posted. We care.

Praying for pain free days.....Doreen

I was diagnosed with fibromyalgia on 6-6-09. The rheumatologist says that I

have arthritis in my hands, but since all my lab work was mostly normal, I do

not have rheumatoid arthritis. (Or so he says....x-rays show arthritis damamge

to my hands though.) He then just said I had fibromyalgia and left. The pain is

enough to kill me and the mornings and evenings are the worst. Just looking for

some support and help from others who are going through this as well. I feel

that he is wrong. To prove my point I have half a mind to go off my meds for a

month before my next rheumy appointment to have him see me before all the meds.

And I just might, its just the the pain is so intense then. Anyhow, thanks for

reading.

[Guest guest]

i am new to the group and not exactly techno savvy so i hope this works.

i am a 54yrs old woman with RA about 5 years now. doing pretty decent

on mtx and pred when needed. i have load of 1mg tablets of those and do

not seem to need any more then 3mg at a time. i just wanted to say how

important a good relationship with your doctor is. i do not think i

would be doing as well without it. losing a bit of weight has helped

along with loving the heck out of swimming. i moved into this apt

complex i am in primarily becuz they had 2 heated pools.... enjoy the

day all....bernie

>

> Hi - I'm sorry you are having to go through all of this. Sounds

like you need a new Rheumy. My RA doesn't show up in blood tests either.

They call that sero-negative RA. I also have fibromyalgia. Some days I

don't know which one it is that's giving me a fit. I wouldn't stop the

meds you are taking if they're helping. You need one that is kind and

understanding. Keep us posted. We care.

>

> Praying for pain free days.....Doreen

>

> --- In , " franticteacher " franticteacher@

wrote:

>

> I was diagnosed with fibromyalgia on 6-6-09. The rheumatologist says

that I have arthritis in my hands, but since all my lab work was mostly

normal, I do not have rheumatoid arthritis. (Or so he says....x-rays

show arthritis damamge to my hands though.) He then just said I had

fibromyalgia and left. The pain is enough to kill me and the mornings

and evenings are the worst. Just looking for some support and help from

others who are going through this as well. I feel that he is wrong. To

prove my point I have half a mind to go off my meds for a month before

my next rheumy appointment to have him see me before all the meds. And

I just might, its just the the pain is so intense then. Anyhow, thanks

for reading.

>

>

>

>

[Guest guest]

Thanks for the reply...unfortunately I am stuck with him for now. There are 4

rheumys in my small city and they are all at one clinic. They don't allow you

to switch doctors. Its in the paper work that I had to sign. I guess its so

they aren't taking away from their partners and what not. Anyhow, I will be

bringing in a list of daily symptoms as well on my next visit. He just isn't

getting it. I don't know how to make him understand. Anyhow, thanks again. I

better go.

>

> Hi - I'm sorry you are having to go through all of this. Sounds like

you need a new Rheumy. My RA doesn't show up in blood tests either. They call

that sero-negative RA. I also have fibromyalgia. Some days I don't know which

one it is that's giving me a fit. I wouldn't stop the meds you are taking if

they're helping. You need one that is kind and understanding. Keep us posted. We

care.

>

> Praying for pain free days.....Doreen

[Guest guest]

Hey (my daughter's name too )! Don't underestimate the debilitating

power and pain of Fibromyalgia. It can also cause joint pain as well. I have

positive rheumatoid factor and I can tell you that Fibro is just as painful at

times. And yes when you have more than one autoimmunity it is very confusing to

say the least. I take Lyrica for the leg pain I experience (it feels like

electricity- neuropathy) and works GREAT!!! As far as the Rneumy goes~ this

will be the toughest fight of your life so you want to share it with a doctor

who is compassionate. Having troubles in the morning is a RA characteristic, in

fact, mine lasts until about 12:00ish at least. Please don't go off your meds

it will just set you back! Although I certainly understand your frustation!!

Good luck to you!! MicheleBB

>

> Hi - I'm sorry you are having to go through all of this. Sounds like

you need a new Rheumy. My RA doesn't show up in blood tests either. They call

that sero-negative RA. I also have fibromyalgia. Some days I don't know which

one it is that's giving me a fit. I wouldn't stop the meds you are taking if

they're helping. You need one that is kind and understanding. Keep us posted. We

care.

>

> Praying for pain free days.....Doreen

[Guest guest]

Hey , The doctor world is soooo small!! You are in a bind because the only

way to get a new Rheumy is to go to another office that's in competition with

yours hehehehehehehe How stupid is the health care industry?? When will they

figure out that they work for US????? heehee Good luck! MicheleBB

> >

> > Hi - I'm sorry you are having to go through all of this. Sounds like

you need a new Rheumy. My RA doesn't show up in blood tests either. They call

that sero-negative RA. I also have fibromyalgia. Some days I don't know which

one it is that's giving me a fit. I wouldn't stop the meds you are taking if

they're helping. You need one that is kind and understanding. Keep us posted. We

care.

> >

> > Praying for pain free days.....Doreen

>

[Guest guest]

Sorry to hear you sound " stuck " - the list is a good idea, though. All

you can do is try to get him to listen to what you're saying. I'd be half

tempted to cancel my " membership " with him and wait a specified amount of time

before going to one of the others that have been known to have a better

disposition and listening skills. You would think the others in his practice

would want to know if a patient is dissatisfied. Someone has to be " running the

ship " . Good luck to you.....Doreen

Thanks for the reply...unfortunately I am stuck with him for now. There are 4

rheumys in my small city and they are all at one clinic. They don't allow you

to switch doctors. Its in the paper work that I had to sign. I guess its so

they aren't taking away from their partners and what not. Anyhow, I will be

bringing in a list of daily symptoms as well on my next visit. He just isn't

getting it. I don't know how to make him understand. Anyhow, thanks again. I

better go.