Tawny

[Guest guest]

tawny stay strong. you can get through this too. i liked the thought about it

being a new beginning. you need to listen to the chicago tune " feelin

stronger everyday " . helps me get through many days. we are here for you. kathy

in il

[Guest guest]

Judi,....You have had your rough share too, haven't you? I am doing

the best that I can, in the situation that I'm in. Maybe I need a

pain doctor, I could check in to that. Have you ever went to a pain

management doctor? I have got to do something,....

You take care of yourself, and my prayers are always with you, T

>

> Hey lady,

>

> I can't speak as an expert on RA, only on Dercum's (and not too

good

> at that either!) but what I have learned is not to let the pain

> define you. You are so many other things other than pain, and it's

> hard to see that when you hurt so bad. Believe me, I do my share

of

> crying, because so far there really hasn't been a treatment found

> that does more than slightly dull the pain. One " iffy " treatment

> that 2 people are trying that is very expensive and most insurance

> won't cover it, and they still don't know the outcome.

>

> I know you are limited by finances and insurance, but what

says

> is true--sounds like you need to find another doctor, one who will

> take your pain and concerns seriously. Take it one day at a time,

> and try to look outside the pain for something good, even if it is

> for a brief moment. It's the hand we've been dealt, and sometimes

it

> sucks (ok, MOST of the time it sucks!) but we've got to play it the

> best we can. I'll keep you in my prayers,

>

> Judi

[Guest guest]

Hi,

I spoke to Tawny on the phone Tues and she is doing okay. Her phone

was turned off as was her internet - she is now getting cable

internet. The cable company turned her phone back on but she hasn't

been able to get the internet connected. She is in lots of

pain...her leg is bothering her- making it difficult to walk. She

has been running a fever and has a consistant cough every evening.

She said she goes all day with out coughing but then evening comes

and she can't stop.

Hopefully, she will get her internet connected today and be on here

to tell you herself how she is doing. If not, I will call her this

evening and tell her you are thinking of her.

God bless,

Althea

-- In , " bandit5125 " <bandit5125@y...>

wrote:

>

> Has anyone heard from Tawny? Am getting worried about her.

[Guest guest]

Thanks for letting us know Althea. That nightime coughing sounds like

bronchitis.

I used to get constant bouts of bronchitis and at night when I lay down is

when it bothered me the most.

Hopefully she will be back with us shortly.

a

>

> Hi,

> I spoke to Tawny on the phone Tues and she is doing okay. Her phone

> was turned off as was her internet - she is now getting cable

> internet. The cable company turned her phone back on but she hasn't

> been able to get the internet connected. She is in lots of

> pain...her leg is bothering her- making it difficult to walk. She

> has been running a fever and has a consistant cough every evening.

> She said she goes all day with out coughing but then evening comes

> and she can't stop.

> Hopefully, she will get her internet connected today and be on here

> to tell you herself how she is doing. If not, I will call her this

> evening and tell her you are thinking of her.

>

> God bless,

> Althea

> -- In , " bandit5125 " <bandit5125@y...>

> wrote:

>> >

>> > Has anyone heard from Tawny? Am getting worried about her.

>

>

>

>

>

>

[Guest guest]

Hey LouAnn, I have been off line for awhile, back on this evening.

Wow, so many posts, and new people!

I am having quite a time right now, but always hangin' in here. I'm

starting the MTX again, along with the Humira. So, I'm not looking

forward to it, but maybe I will get better soon. I'm not able to

walk on my left leg right now, and just having terrible problems.

I hope that your doing alright, drop me a line, when you get the

chance, T

>

> Has anyone heard from Tawny? Am getting worried about her.

[Guest guest]

Hi Tawny

I was offline for about a week-I know you've been out of commission and feeling

awful. Just wondered if you are feeling any better? I'm thinking of you.

Cary

[Guest guest]

Cary, I'm not doing real good right now. I started the MTX yesterday,

hope that helps me. I am still having problems with my lungs, and I

know that wasn't a great idea to start the MTX, but I have to get

back walking,.....

> Hi Tawny

>

> I was offline for about a week-I know you've been out of commission

and feeling awful. Just wondered if you are feeling any better?

I'm thinking of you. Cary

[Guest guest]

Oh Tawny

I'm so sorry to hear you're still so sick. I'll be thinking of you-I've said

this before, but I always wish you lived closer so I could come over and help

you out. How about some lunch and picking up the house and some dumb jokes?

hee hee

See what I have to offer?! Take care, Cary

[Guest guest]

LouAnn, I haven't been online for a few days, but I'm still here. I

just have been down not feeling well, but thanks for thinking about

me. I will be looking for your package, thanks so much Tawny

>

> Tawny!!! Where are you? are you ok? Haven't heard from you in a

> while and am worried about you. I mailed you a package today, so

> hopefully you will get it in the next couple of days. I hope you

are

> well. Love yas! LouAnn

[Guest guest]

Hi Tawny, glad you posted, I was worried about you. If I don't see

you in a couple of days I know something is up, and want you to knwo

I am thinking of you, even when I don't get a chance to actually

talk to you. You are in my prayers girlfriend! love yas! Hope you

are feeling better soon!

Love yas! LouAnn

> >

> > Tawny!!! Where are you? are you ok? Haven't heard from you in a

> > while and am worried about you. I mailed you a package today, so

> > hopefully you will get it in the next couple of days. I hope you

> are

> > well. Love yas! LouAnn

[Guest guest]

Tawny,

I can relate.....I am fighting it myself every minute of everyday and

unfortunately cannot take ANY anti-depressant meds due to akathesia.

If I can be of any help and you want to talk.. I will send you my email and

phone....

Joanne

[Guest guest]

Hi Joanne,.....sorry to hear there is no meds you can take for your

depression. It's hard to cope with sometimes,especially when there

is no change in your condition.

Are you having family for the holiday? I will keep you in my prayers.

You can email me, would love to hear from you, I'm here for you, T

>

> Tawny,

>

> I can relate.....I am fighting it myself every minute of everyday

and unfortunately cannot take ANY anti-depressant meds due to

akathesia.

>

> If I can be of any help and you want to talk.. I will send you my

email and phone....

> Joanne

[Guest guest]

Tawny:

Just wanted to let you know the invitation is here for you in Arizona also if

you should decide to come this way. I have plenty of room.

This area is supposed to be one of the fastest growing areas of the U.S. and I

am out west of Phoenix where it seems like country yet has everything to offer

that a city does without having to put up with congestion. The cost of living

can't be beat! Jobs seem to be plentiful also.

I have grown to love it in just the few months I have been here since June...

It is also better for me for the FMS and arthritis.

At any rate, Tawny...wherever or what ever you do, you do know my prayers and

positive thoughts are with you.

Jan in AZ (formerly CA) =^..^=

~ " We all take different paths in life, but no matter where we go, we take a

little of each other everywhere. " ~ ~ " If I could reach up and hold a star for

every time you've made me smile, the entire evening sky would be in the palm of

my hand. " ~

[Guest guest]

Jan, you are such a dear lady to make this offer.

Hugs

June

----------

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Checked by AVG Anti-Virus.

Version: 7.0.298 / Virus Database: 265.6.9 - Release Date: 1/6/2005

[Guest guest]

((((((Jan))))))you are such a wonderful lady. Thanks so much for the

invite, I might just make a trip down one day, and see you. I have

heard that AZ is good for us, I could sure use a change in the

weather. I'm so glad that you like your new home. It's a lovely

place, and I have thought about moving there before.

I know that you are always here, and it's so nice to know. Thanks

for being such a friend to me, love Tawny

> Tawny:

> Just wanted to let you know the invitation is here for you in

Arizona also if you should decide to come this way. I have plenty of

room.

> This area is supposed to be one of the fastest growing areas of the

U.S. and I am out west of Phoenix where it seems like country yet has

everything to offer that a city does without having to put up with

congestion. The cost of living can't be beat! Jobs seem to be

plentiful also.

> I have grown to love it in just the few months I have been here

since June... It is also better for me for the FMS and arthritis.

> At any rate, Tawny...wherever or what ever you do, you do know my

prayers and positive thoughts are with you.

> Jan in AZ (formerly CA) =^..^=

>

>

>

> ~ " We all take different paths in life, but no matter where we go,

we take a little of each other everywhere. " ~ ~ " If I could reach up

and hold a star for every time you've made me smile, the entire

evening sky would be in the palm of my hand. " ~

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

thanks Tess:)

> Dearest Tawny...

>

> ((((((((((((((((Tawny))))))))))))

>

> ((((((((((((((((Tawny))))))))))))

>

> ((((((((((((((((Tawny))))))))))))

>

> All my love...

>

> Tess

[Guest guest]

Hi Clare,

Your so welcome Clare, that's what friends are for. I know it's very

hard for you right now, and I just want you to know that I'm here.

My fingers are doing much better. I'm having problems with fatique

myself. I just don't feel like doing anything anymore. It's all I

can do to get up, take a shower, and hobble around the house all

day. Thank God, I don't have to work, I couldn't make it.

I take Humira,methotrexate,lodine, folic acid. I went off the

flexeril for now. I know that the methotrexate plays a big role in

the fatique.

My rheumy tells me the RA i

s very aggressive, and we just can't get it in control. I have so

much pain every day, there are no really good days anymore. It's all

I can do to get to the store anymore for groceries. But, I push

myself, to much responsibility, can't lay down.

I'm glad that a nurse came by, and explained things. That was really

nice. You have a long road ahead of you, just know that I'm always

here if you need a shoulder. Your going to have to just rest a whole

lot, and get yourself better. Gosh, were always fatiqued by the RA,

I can't imagine even more:( Is there anything you can take to help

the hair loss? I know with the methotrexate, we can take folic acid

to help the hair loss. Have you thought maybe a nice wig? They have

some really beautiful ones. I have thought about it myself. I use

to have long thick hair, and have lost most of it.

Are you not taking any meds right now for the RA? It's important to

take something to stop the progression of the disease. Are you able

to take them, or do you have to stop them completly while on the

chemo? You know the methotrexate is a chemo med, but used in a lower

dose for the RA.

I am always here, Clare. You can email me privately anytime, I would

love to hear from you. I live in Oklahoma, have been here all my

life. I have traveled out of the US, and love to travel.

big hugs,

Tawny

> > >

> > >

> > > Dear All,

> > >

> > > Have been reading and not posting of late due to bad hands etc

> but

> > > wanted to say hi again and thanks for being such a kind, caring

> > > group. That may sound corny but during days over the last week

> or

> > so

> > > when sitting a the pc is all i could muster, it gave me comfort

> and

> > a

> > > feeling of support by just reading the messages. I can identify

> so

> > > much with so many of you and my heart goes out to you for all

the

> > > suffering you endure every day. Despite this i feel that we

keep

> > our

> > > sense of humour, cherise the good days and vent our frustration

> at

> > > the bad ones. I've found it very interesting to compare the

way

> in

> > > which we are treated on different sides of the Atlantic, the UK

> has

> > > the NHS and i am very lucky to have a good rheumy (hadn't heard

a

> > > rheumy doc get called that before! Much better than saying and

> > > spelling the whole thing!! Thank you!)doctor and consultant but

> > > although our healthcare is free (we pay through national

> > > contributions when we work, tax basically) not very many people

> in

> > my

> > > area in Cornwall (South-West England) were allowed Remicade or

> > Enbrel

> > > because of a funding crisis (they say it's costs £10K per year

> each)

> > > which is crazy in this day and age. Is it the same in the US

with

> > > insurance companies paying depending on what they cover? Nobody

> > > should have to suffer because some big-wig in a suit decides

it's

> > not

> > > covered, maybe they would like to spend a week in a flare-

> up....no

> > i

> > > doubt it either. I've been reading the posts about insurance

> issues

> > > and wonder how some of you don't go out of your minds with

worry.

> > >

> > > Also read posts about the British tv programme " Keeping Up

> > > Appearances " ! They still show it here too and although i've

> > probably

> > > seen them all i just love that show......and yes there really

are

> > > ladies like that here!!

> > >

> > > Had my first treatment of chemotherapy for lymphoma last

Thursday

> > and

> > > doc's gave me 5 days of steroids at 75mg per day, along with

the

> > > Rituximab, Chyclophosphamide (could well have too many letters

> > there,

> > > not sure!!) and Vincristin. It was ok and side-effects

managable

> > > too. The steroids have knocked the RA out for a minute and i

am

> > > relishing the energy and pain-free days! Took my puppy Ky for

a

> > good

> > > long walk (well long for me, round the whole field!!)in the

> winter

> > > sunshine this morning, something i've missed doing of late, and

> > felt

> > > really positive for the first time since i was diagniosed just

> > before

> > > Christmas. Maybe the steroids but decided that life is for

> living

> > > now, somethings i do may not be good for my RA (like ice-

skating

> > with

> > > my daughter for her birthday recently, half killed me but boy

was

> > it

> > > fun!!) but are good for my soul and well-being. We're all so

> much

> > > more than just our diseases, that obvious when you read the

> > messages

> > > here and i'm glad i have found a place to come and write what i

> > feel

> > > amongst friends who understand. Thank you again.

> > >

> > > Best go to bed now, it's 1 in the morning over here and i just

> came

> > > down for a read and hot chocolate!!

[Guest guest]

> > > >

> > > >

> > > > Dear All,

> > > >

> > > > Have been reading and not posting of late due to bad hands

etc

> > but

> > > > wanted to say hi again and thanks for being such a kind,

caring

> > > > group. That may sound corny but during days over the last

week

> > or

> > > so

> > > > when sitting a the pc is all i could muster, it gave me

comfort

> > and

> > > a

> > > > feeling of support by just reading the messages. I can

identify

> > so

> > > > much with so many of you and my heart goes out to you for all

> the

> > > > suffering you endure every day. Despite this i feel that we

> keep

> > > our

> > > > sense of humour, cherise the good days and vent our

frustration

> > at

> > > > the bad ones. I've found it very interesting to compare the

> way

> > in

> > > > which we are treated on different sides of the Atlantic, the

UK

> > has

> > > > the NHS and i am very lucky to have a good rheumy (hadn't

heard

> a

> > > > rheumy doc get called that before! Much better than saying

and

> > > > spelling the whole thing!! Thank you!)doctor and consultant

but

> > > > although our healthcare is free (we pay through national

> > > > contributions when we work, tax basically) not very many

people

> > in

> > > my

> > > > area in Cornwall (South-West England) were allowed Remicade

or

> > > Enbrel

> > > > because of a funding crisis (they say it's costs £10K per

year

> > each)

> > > > which is crazy in this day and age. Is it the same in the US

> with

> > > > insurance companies paying depending on what they cover?

Nobody

> > > > should have to suffer because some big-wig in a suit decides

> it's

> > > not

> > > > covered, maybe they would like to spend a week in a flare-

> > up....no

> > > i

> > > > doubt it either. I've been reading the posts about insurance

> > issues

> > > > and wonder how some of you don't go out of your minds with

> worry.

> > > >

> > > > Also read posts about the British tv programme " Keeping Up

> > > > Appearances " ! They still show it here too and although i've

> > > probably

> > > > seen them all i just love that show......and yes there really

> are

> > > > ladies like that here!!

> > > >

> > > > Had my first treatment of chemotherapy for lymphoma last

> Thursday

> > > and

> > > > doc's gave me 5 days of steroids at 75mg per day, along with

> the

> > > > Rituximab, Chyclophosphamide (could well have too many

letters

> > > there,

> > > > not sure!!) and Vincristin. It was ok and side-effects

> managable

> > > > too. The steroids have knocked the RA out for a minute and i

> am

> > > > relishing the energy and pain-free days! Took my puppy Ky

for

> a

> > > good

> > > > long walk (well long for me, round the whole field!!)in the

> > winter

> > > > sunshine this morning, something i've missed doing of late,

and

> > > felt

> > > > really positive for the first time since i was diagniosed

just

> > > before

> > > > Christmas. Maybe the steroids but decided that life is for

> > living

> > > > now, somethings i do may not be good for my RA (like ice-

> skating

> > > with

> > > > my daughter for her birthday recently, half killed me but boy

> was

> > > it

> > > > fun!!) but are good for my soul and well-being. We're all so

> > much

> > > > more than just our diseases, that obvious when you read the

> > > messages

> > > > here and i'm glad i have found a place to come and write what

i

> > > feel

> > > > amongst friends who understand. Thank you again.

> > > >

> > > > Best go to bed now, it's 1 in the morning over here and i

just

> > came

> > > > down for a read and hot chocolate!!

[Guest guest]

Thank you so much for the update on our precious girl. She and her

family will be in all our thoughts and prayers, and is terribly

missed. Going on the road is tough for healthy folks much less

someone in the middle of a flare. God bless her.

jane

> Hello everyone,

>

> I got a " real " letter from Tawny today. She is at least alive. I

> was so worried. She really needs your prayers though now. The

> house fell through and she had to live in a motel briefly and go on

> the road with her truck driver husband briefly. She finally found

> another rent in ee, OK which she will do for at least the next

> school year. She was finally officially diagnosed with lupus along

> with her RA. She has been very depressed without us all to support

> her and is hoping to get online soon. She misses everyone and says

> hello to all, a special hello to Lou Ann and Jane (you know who you

> are) she says. She has had a terrible time with one of her

> daughters so really needs our prayers. She had to give up her

> Humira in all the chaos and is on Plaquenil now. She had a major

> flare after the road trip with her hubby which is not surprising

> that must have been so hard for her. Well, if you want to write to

> her the old fashioned or regular way please email me at

> tracierae@u... and I will give you her mailing address.

> She could use some cards and good wishes I expect.

>

> Here is a direct quote from her form the letter " Tell them I love

> them (the RA group) and miss them all very much. "

>

> So, please pray for Tawny to get her life back on track and her

> health in order and hopefully she will get that internet going soon

> since she is finally moved into a more permanent home. She was

> practically homeless the poor baby! Geez, I wish I lived closer

and

> could have helped her more. Again, email me if you want to send

her

> cards or anything.

>

> Thanks to all of you!

>

> Tracie in Maine

[Guest guest]

Hi Tawny,

I am a new member since you have been gone but have seen

the concern about you written here. I can't imagine the stress

you are managing, all you are going through plus the worry

over your daughter. I will add you and your family to my prayer

list and look for updates.

Nice to meet you.

Hugs,

Pat (Kansas)

Message: 5

Date: Sat, 04 Jun 2005 19:58:19 -0000

From: " tdianaok " <tdianaok@...>

Subject: I'm so glad to be back!

It's been a rocky road, but finally back online. I just got my PC

out of the shop today, and so glad it's working. I have dial up, but

it's better then nothing.

I have missed everyone so much. Thanks to all the wonderful friends

that sent me letters and cards, I needed them so very much. I know

how tough it is to take the time to write, and your just so

appreciated.

At the last moment we found out that the home we were buying fell

through. So, we were in a motel for awhile, also was on the road

for awhile with hubby, and you can imagine how that was.

We did find a rental home, and so that is where I will plant my butt

for awhile.

Also, my oldest daughter(23) has been missing since March 31. So,

you can imagine what I have been going through. I have done

everything in my power to find her. I just stay close to the phone,

and wait for any news at all. She was suppose to report for her

military training in May, but she never showed. She is now

considered AWOL, she has been in the military 6yrs, and had a year

left.

I went to my new rheumy, and was diagnosed with Lupus. He took me

off the Humira, and now on Plaquenil. I hope it starts working

soon. I go back this month to have my right hip x-rayed, and lab

work. I've been having problems with the hip, and my blood work is

totally out of wack.

Thanks Tracie for getting the word out, and thanks to all the

support. Welcome to all the new members, and hope to hear from

everybody. I will keep everyone in my prayers.

Tawny

[Guest guest]

Hi Pat in Kansas,

Welcome to the group! Thanks so much for your kindness, and your

prayers. I just keep praying, and wait for the safe return of my

daughter. This is a wonderful group, and so I hope you stay.

Hugs, Tawny

> Hi Tawny,

>

> I am a new member since you have been gone but have seen

> the concern about you written here. I can't imagine the stress

> you are managing, all you are going through plus the worry

> over your daughter. I will add you and your family to my prayer

> list and look for updates.

>

> Nice to meet you.

>

> Hugs,

> Pat (Kansas)

>

> Message: 5

> Date: Sat, 04 Jun 2005 19:58:19 -0000

> From: " tdianaok " <tdianaok@y...>

> Subject: I'm so glad to be back!

>

> It's been a rocky road, but finally back online. I just got my PC

> out of the shop today, and so glad it's working. I have dial up,

but

> it's better then nothing.

> I have missed everyone so much. Thanks to all the wonderful

friends

> that sent me letters and cards, I needed them so very much. I know

> how tough it is to take the time to write, and your just so

> appreciated.

> At the last moment we found out that the home we were buying fell

> through. So, we were in a motel for awhile, also was on the road

> for awhile with hubby, and you can imagine how that was.

> We did find a rental home, and so that is where I will plant my

butt

> for awhile.

> Also, my oldest daughter(23) has been missing since March 31. So,

> you can imagine what I have been going through. I have done

> everything in my power to find her. I just stay close to the

phone,

> and wait for any news at all. She was suppose to report for her

> military training in May, but she never showed. She is now

> considered AWOL, she has been in the military 6yrs, and had a year

> left.

> I went to my new rheumy, and was diagnosed with Lupus. He took me

> off the Humira, and now on Plaquenil. I hope it starts working

> soon. I go back this month to have my right hip x-rayed, and lab

> work. I've been having problems with the hip, and my blood work

is

> totally out of wack.

> Thanks Tracie for getting the word out, and thanks to all the

> support. Welcome to all the new members, and hope to hear from

> everybody. I will keep everyone in my prayers.

> Tawny

[Guest guest]

Thanks, it's so good to be back.

> good to see you!

[Guest guest]

Thanks Joan,

I will call them tomorrow. hugs, T

>

> > Would anyone know of an assistance program for Lidoderm 5%

patches,

> > the company is Endo Pharmaceutical? I really need these patches,

but

> > can't afford $180 for 30, with no prescription insurance.

> > I don't feel well now, so don't spend much time on the computer.

If

> > anyone can help me search, I would be so grateful.

> > Thanks Tawny

> >

> >

>

>

>

[Guest guest]

You are more than welcome, Tawny.

Joan

tdianaok wrote:

> Thanks Joan,

> I will call them tomorrow. hugs, T

>

>

>

>

>

> >

> > > Would anyone know of an assistance program for Lidoderm 5%

> patches,

> > > the company is Endo Pharmaceutical? I really need these patches,

> but

> > > can't afford $180 for 30, with no prescription insurance.

> > > I don't feel well now, so don't spend much time on the computer.

> If

> > > anyone can help me search, I would be so grateful.

> > > Thanks Tawny

[Guest guest]

tawny

hi girl i have missed you so much please drop me a

line okay? I want to know how you are, your daughter

and how your liking your new place...i love you and

you have been such a great friend..

jan in bama...

--- tdianaok <tdianaok@...> wrote:

> Thanks Joan,

> I will call them tomorrow. hugs, T

>

>

>

>

>

> >

> > > Would anyone know of an assistance program for

> Lidoderm 5%

> patches,

> > > the company is Endo Pharmaceutical? I really

> need these patches,

> but

> > > can't afford $180 for 30, with no prescription

> insurance.

> > > I don't feel well now, so don't spend much time

> on the computer.

> If

> > > anyone can help me search, I would be so

> grateful.

> > > Thanks Tawny

> > >

> > >

> >

> >

> > [Non-text portions of this message have been

> removed]

>

>

>

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