Re: Rheumatic Fever Anyone else?

[Guest guest]

Last year my rheumy detected a heart murmur and sent me for an echo.

It turned out to be aortic valve regurgitation. I did not have

rheumatic fever as a child. My rheumy said that RA doesn't usually

cause valve problems.

Sue

On Feb 14, 2009, at 5:19 PM, blondewbrains1971 wrote:

>

> Anyone else have valvular heart damage from their RF? Ie aortic, or

> mitral regurgitation and or stenosis? Often just referred to as

> a " heart murmur " ?

>

>

[Guest guest]

Hi all,

I had a bad episode of something when I was little and I am now

wondering if it was rheumatic fever. My mother told me to tell the

rheumy on my first appt that I was sick when I was little and they

thought it was RA, but she did not call it rheumatic fever. I just

remember I had chronic strep several times a year my whole

childhood. In this episode as a kid, swelled up like a balloon and

my fever was so high I slept for days. What is another name for

rheumatic fever used in the 1970's? Other recollection was plastic

bags on my feet but wonder if that was fever hallucinations.

> > Just reading some interesting information on Lupus at the

> Hopkins

> > site.

> >

> > KD

> >

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

Scarlet Fever is another result of tonsilitis that's left untreated.

It causes the skin to peel off the feet, maybe it's that?

I don't know any other names for RF in total. Some of the symptoms of

RF have names like Sydnehams Chorea is sometimes referred to as St

Vitrus's dance. I had mine in the early 70's too - it was pretty

rare by then once penicillin became widely available to treat the

Strep.

> > > Just reading some interesting information on Lupus at the

> > Hopkins

> > > site.

> > >

> > > KD

> > >

> > >

> > >

> > > ------------------------------------

> > >

> > >

[Guest guest]

Hi Sue

It would definately pay you to find out if you have a bicuspid aortic

valve ( an aortic valve with only 2 leaflets instead of 3) if not you

may well have had RF as a child. It's not uncommon if the carditis is

the only Rheumatic Fever symptom for a child to have what is referred

to asymptomatic Rheumatic Fever ie where it does not actually cause any

noticable symptoms. My mum had this and had her valve replaced last

year although she'd been aware of the murmur for quite some years.

Usually the regurgitation from RF in the later years will be

accompanied by aortic stenosis but this can also just be from age etc.

I hope you don't mind me saying but I hope you're now scheduled to have

regular echos, depending on the grade of the regurgitation etc it could

be every 1-3 years, to keep a check on this and assume they all advised

you about surgery, dental work etc and prophyllaxis antibiotics before

any procedures because of it?

>

> Last year my rheumy detected a heart murmur and sent me for an echo.

> It turned out to be aortic valve regurgitation. I did not have

> rheumatic fever as a child. My rheumy said that RA doesn't usually

> cause valve problems.

>

> Sue

[Guest guest]

I had Scarletina as a child (mild case) then again as an adult. I also had mono

at 13. Makes you wonder about the connections....

 

Betsy

[Guest guest]

Not sure if this will help any, when I was 18 was diagnosed with chronic

bronchitis and chronic tonsilitis. I was on antibotic therapy for both until I

was around 21. Since then had lots of issues with my tonsels and recently had

them taken out in November. My son who just got over scarlet fever had it so

severe that the ER doc told me if I would have let it go for more then a day

more it would have turned into rheumatic Fever. I asked her if there was any

connection between RF and RA and she told me not that she was aware of.

[ ] Rheumatic Fever Anyone else?

Hi Joy

Wow this is interesting about your Rhuematic Fever. I've heard this

is quite high in RA, & connective tissue disease etc patients. Me

too - I had it at age 8 then recurrances as an adult (which were

initial misdiagnosed that's why it's plural!).

Curious to hear from anyone else who had Rhuematic Fever - or their

RA or other disease started from Streptoccocus A (Tonsilitis) and

which symptoms they had?

I had the whole range of symptoms from arthritis, fever, carditis and

chorea (which as an adult was ballistic and finally gave me my

correct diagnoses).

Anyone else have valvular heart damage from their RF? Ie aortic, or

mitral regurgitation and or stenosis? Often just referred to as

a " heart murmur " ?

> Just reading some interesting information on Lupus at the

Hopkins

> site.

>

> KD

>

>

>

> ------------------------------------

>

>

[Guest guest]

Thanks ,

Will have to find out what it was so I have my facts straight for my

1st rheumy appt in March.

Sorry to hear we all had these kids.

KD

> > > > Just reading some interesting information on Lupus at the

>

> > > Hopkins

> > > > site.

> > > >

> > > > KD

> > > >

> > > >

> > > >

> > > > ------------------------------------

> > > >

> > > >

[Guest guest]

Hi ,

My rheumy is only the second doctor to detect a heart murmur. The

other one was my radiation oncologist, and this was in 2002. So I

don't know if I've always had it and it hasn't been detected, or it's

something that just developed. My endocrinologist can still not detect

it.

My aortic valve regurgitation was said to be very mild. My rheumy said

that he would send me for another echo in the future to see if it had

gotten worse.

Nobody said anything about antibiotics before surgery dental work,

etc. I'll ask my rheumy about this when I see him next month.

Thanks.

Sue

On Feb 15, 2009, at 7:20 AM, blondewbrains1971 wrote:

>

> Hi Sue

>

> It would definately pay you to find out if you have a bicuspid aortic

> valve ( an aortic valve with only 2 leaflets instead of 3) if not you

> may well have had RF as a child. It's not uncommon if the carditis is

> the only Rheumatic Fever symptom for a child to have what is referred

> to asymptomatic Rheumatic Fever ie where it does not actually cause

> any

> noticable symptoms. My mum had this and had her valve replaced last

> year although she'd been aware of the murmur for quite some years.

>

> Usually the regurgitation from RF in the later years will be

> accompanied by aortic stenosis but this can also just be from age etc.

>

> I hope you don't mind me saying but I hope you're now scheduled to

> have

> regular echos, depending on the grade of the regurgitation etc it

> could

> be every 1-3 years, to keep a check on this and assume they all

> advised

> you about surgery, dental work etc and prophyllaxis antibiotics before

> any procedures because of it?

>

>

>

>

>

>

>

>

>>

>> Last year my rheumy detected a heart murmur and sent me for an echo.

>> It turned out to be aortic valve regurgitation. I did not have

>> rheumatic fever as a child. My rheumy said that RA doesn't usually

>> cause valve problems.

>>

>> Sue

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

Hi,

I just remember that I had a fever, sore throat...not actually high and

terrible pain in all my joints. The doc wanted me to be hospitalized but my

parents said they would

care for me at home. They carried me every where I needed to go. I actually

had

it twice. once at 4 yrs. and once at 6 yrs.

I do have Mitral Valve Prolapse now and have to take antibiotics before dental

work

or surgeries.

I also had Mono but that was when I was in my early 20's.

I never really feel like I have a lot of energy and always feel like I am

moving slower

and doing things slower than other people. I get tired out easily.

Found out about the YA in my early 40's but probably have had it since the

birth of

my daughter in my early 30's.

Funny when I asked the doc if the rheumatic fever and RA were linked she said

no ...

Joy

> >

> >

> > > > Just reading some interesting information on Lupus at the

>

> > > Hopkins

> > > > site.

> > > >

> > > > KD

> > > >

> > > >

> > > >

> > > > ------------------------------------

> > > >

> > > >

[Guest guest]

Joy,

A link between rheumatic fever and rheumatoid arthritis has not been

established.

Not an MD

On Sun, Feb 15, 2009 at 3:45 PM, Joy <jhoorm01@...> wrote:

>

> Hi,

> I just remember that I had a fever, sore throat...not actually high and

> terrible pain in all my joints. The doc wanted me to be hospitalized but my

> parents said they would

> care for me at home. They carried me every where I needed to go. I actually

> had

> it twice. once at 4 yrs. and once at 6 yrs.

> I do have Mitral Valve Prolapse now and have to take antibiotics before

> dental work

> or surgeries.

> I also had Mono but that was when I was in my early 20's.

> I never really feel like I have a lot of energy and always feel like I am

> moving slower

> and doing things slower than other people. I get tired out easily.

> Found out about the YA in my early 40's but probably have had it since the

> birth of

> my daughter in my early 30's.

> Funny when I asked the doc if the rheumatic fever and RA were linked she

> said no ...

>

> Joy

[Guest guest]

I didnt have rheumatic fever..my mother had it and ended up with

murmer..I google american autoimmune diseases and ened up with a list

of them..youd be supprised to find the ones that are on it..rhuematic

fever is one of them..So. I heard if you have one you tend to pick up

others...

diane in ohio

[Guest guest]

Hi:

Yes, I have had Rheumatic Fever at age 4. Also had a T & A at age 2.

Hugs,

Barbara

> > Just reading some interesting information on Lupus at the

> Hopkins

> > site.

> >

> > KD

> >

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

I had a very bad case of German Measles with a very high fever around age 9.

Needed glasses after that. Not sure if German Measles is any relation to RF?

> From: Barbara <bcreedon@...>

> Subject: [ ] Re: Rheumatic Fever Anyone else?

>

> Date: Tuesday, February 17, 2009, 11:23 AM

> Hi:

>

> Yes, I have had Rheumatic Fever at age 4. Also had a T

> & A at age 2.

>

> Hugs,

>

> Barbara

>

> > > Just reading some interesting information on

> Lupus at the

> > Hopkins

> > > site.

> > >

> > > KD

> > >

> > >

> > >

> > > ------------------------------------

> > >

> > >

[Guest guest]

Hello, I was diagnosed with mitral valve regurge about 5 years at that

time the cardiologist said I must have had rheumatic fever when I was

small. I know I was a very sick kid at times, but my mother never told

me anything about rheumatic fever and now that she is gone I really

don't have anyone to ask.

I also have severe RA.

I know my mom had scarlett fever when she was a child and almost died

from it, that was in the 1940's

She had Lupus and passed away from complications due to the Lupus.

I guess I got her bad genes.

Thanks for listening..Sandy in PA

[Guest guest]

Just to clarify what I actually meant, especially to and Joy.

There is no link between Rheumatic Fever itself and RA however there

is a link between Streptoccocus A (Strep A) - which causes both

Rheumatic Fever and Scarlet Fever and Reactive Arthritis.

There is a known form of arthritis caused by Strep A (tonsilitis)

called Post Streptoccoal Reactive Arthritis. It differs from

Rheumatic Fever as the arthritis unlike in RF remains for years and

is ongoing, and often starts sooner than RF after the intital

infection. Arthritis in RF usually disappears in a few months and is

non errosive and starts 4-6 weeks after the initial Strep A infection.

What I was referring to was not only the above but also what I have

personally noticed when reading these posts and others in chat group

situations such as this. To my surprise and interest there seems an

inconsistently high number of people who have had both RF and who

have RA or another form of connective tissue disease, considering

that RF is now an extremely rare disease - especially within

particular cultural populations -ie it is still quite high in India

and amongst the Aborignals in Australia but rare in the States, the

rest of Australia and Europe etc

> > > Just reading some interesting information on Lupus at the

> > Hopkins

> > > site.

> > >

> > > KD

> > >

> > >

> > >

> > > ------------------------------------

> > >

> > >

[Guest guest]

No, not rheumatic fever, i do have rheumatoid arthritis and Lupus and fibro, but

i may be moving to Ohio were my daughter lives, in Canton and was just wondering

if you knew any good rheumatologists that take medicare? Thanks you, Diane if

you could help me with that.

Kris

[Guest guest]

kris. I am from youngstown, ohio.. about 45min from canton...I know some others

live around the canton and akron area.maybe they can of help.I have heard about

the crystal arthritis clinic in akron..I went to the cleveland clinic when I was

frist diagnosed..I seen a docter chatterjee..he was wonderful.

diane in ohio

________________________________

From: Kris Allan <aradiamoon2006@...>

Sent: Thursday, February 26, 2009 8:46:02 AM

Subject: [ ] Re: Rheumatic Fever Anyone else?

No, not rheumatic fever, i do have rheumatoid arthritis and Lupus and fibro, but

i may be moving to Ohio were my daughter lives, in Canton and was just wondering

if you knew any good rheumatologists that take medicare? Thanks you, Diane if

you could help me with that.

Kris