Guest guest Posted January 29, 2010 Report Share Posted January 29, 2010 ---------- Forwarded message ---------- Date: Thu, Jan 28, 2010 at 9:05 AM Subject: Re: Yahoo! Groups: Welcome to mscured. Visit today! To: mscured Moderator <mscured-owner > Hi My name is Michele and I am the mother of Ella (aged 30) who is quite severely affected by MS probably SPMS but still relapsing remitting to a certain extent every three months or so. My daughter has never taken DMDs, partly because she did not want to but also because of the part of the country in which she lived. I am also one of the founder members of MS-CCSVI-UK (www.ms-ccsvi-uk.org ), a Facebook pressure group asking the government to take a good look as CCSVI as a possible cause of MS. CCSVI (chronic cerebro spinal venous insufficiency) was two days ago designated by 49 vascular specialist from around the world as a genetic defect, this designation brings us one step closed to associating CCSVI to MS. A majority of MS sufferers have been diagnosed with CCSVI. I want to be part of as many groups prepared to look at MS in a different way to the establishment so that we can try and find a solution to this darned disease. Michele mscured Quote Link to comment Share on other sites More sharing options...
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