Guest guest Posted October 10, 2003 Report Share Posted October 10, 2003 Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2003 Report Share Posted October 10, 2003 Jeanmarie, Sorry, I accidentally hit the send key with nothing on it. Welcome to the group, honey, and feel free to whine here. We offer cheese with that whine, you know. LOL We know how it is to be afraid to really let go in front of family and friends, because they just can't KNOW how it is to live with this constant threat, pain, and never ending roller coaster ride of symptoms. It's a real bearcat isn't it, not knowing from day to day how we are going to feel, what we will be able to do, and, perhaps, worst of all, who to tell all about it. Well, we will listen, encourage, advise, kid, joke, and whine right with you, any old time. We have over 400members around the world, and someone is almost always online. We don't have many chats because by the time we set up a common time, most of the interested members are asleep, sick, or having brain fog and forget what time to get on. So, we do a lot of Im'ing, amailing, and such between each other, and the main board. So, post away and don't spare the horses. Again, welcome. Hugs, MM aka: Mike, one of the moderators Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2008 Report Share Posted March 11, 2008 Hello Everyone: I have been reading some of your post for quite some time now. I must say, that I was diagnosed on 1/28/08 and some of the things that I have read are very scary. I had never heard of PF and neither had anyone in my family. I had been having a very bad cough for the last few years, but my primary said that it was probably due to sinus infection or a cold, or flu. I trusted his diagnosis. I thought I was having a heart attack on the way home from work and brought myself to the emergency room. they sent me home, but I went to a specialist, to make a long story short, no heart problems. I need to know where I can get information about several things ie. insurance (pre-existing conditions), disability, etc. This is all very new to me and I would appreciate any help. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2008 Report Share Posted March 11, 2008 > > Hello Everyone: > > I have been reading some of your post for quite some time now. I must > say, that I was diagnosed on 1/28/08 and some of the things that I have > read are very scary. I had never heard of PF and neither had anyone in > my family. I had been having a very bad cough for the last few years, > but my primary said that it was probably due to sinus infection or a > cold, or flu. I trusted his diagnosis. I thought I was having a heart > attack on the way home from work and brought myself to the emergency > room. they sent me home, but I went to a specialist, to make a long > story short, no heart problems. I need to know where I can get > information about several things ie. insurance (pre-existing > conditions), disability, etc. > > This is all very new to me and I would appreciate any help. > DEAR CRADLE: THIS IS " MARY LOU " HERE. THE FIRST THING YOU SHOULD DO IS FIND A GOOD PUMONOLOGIST AND TAKE A PFT TEST. LET THE PROFESSIONAL PULMONOLOGIST GET YOU THE NEEDS YOU MUST HAVE RIGHT NOW. USUALLY DOCTORS DON'T EVEN THINK OF PULMONOLOGISTS. BUT YOU SHOULD BE CHECKED OUT THOROUGHLY BY ONE " NOW " . LET US KNOW WHAT HAPPENS. WE LOVE YOU FOR COMING HERE. LOVE, MARY LOU UIP 03 Quote Link to comment Share on other sites More sharing options...
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