Re: I'm a new member!

[Guest guest]

Welcome ! Glad you found us. You will find a lot of information here.....welcome!

debby AIH 7/01

[ ] I'm a new member!

Hi, my name is ! I'm 19, almost 20 and from Iowa. I am currently a freshman at the University of Iowa. My story is: I was born w/a liver disease called Bilaria Atresia and had a transplant when I was 8 yrs. old, I was doing great except for a minor rejection in 6th grade, then in 11th grade, so I was almost 18, I was diagnosed w/Auto Immune Hepatitis, I was in and out of the hospital about 7 times in one year and switched my main anti rejection drug twice. I am doing alright..but they are keeping a close watch on me. I sorta stumbled across this support group while doing research and decided to join...I'm not familar w/these online groups..so forgive me if i seem very new to this. Thanks for listening! I'm glad I am here!

[Guest guest]

Hi !

Welcome to our group. Here you will meet a wonderful bunch a new friends. Hope everything is going well. God Bless

TONY

[Guest guest]

there is a variety of us. Some have AIH, some have had transplants, some are families with AIH, some have other liver diseases. We are a support group to help answer questions and just vent sometimes. Welcome to the group and hope any information that you get is helpful to you. Ann CT [ ] I'm a new member! Hi, my name is ! I'm 19, almost 20 and from Iowa. I amcurrently a freshman at the University of Iowa. My story is: I wasborn w/a liver disease called Bilaria Atresia and had a transplantwhen I was 8 yrs. old, I was doing great except for a minor rejectionin 6th grade, then in 11th grade, so I was almost 18, I was diagnosedw/Auto Immune Hepatitis, I was in and out of the hospital about 7times in one year and switched my main anti rejection drug twice. Iam doing alright..but they are keeping a close watch on me. I sortastumbled across this support group while doing research and decidedto join...I'm not familar w/these online groups..so forgive me if iseem very new to this. Thanks for listening! I'm glad I am here!

[Guest guest]

> there is a variety of us. Some have AIH, some have

had transplants, some are families with AIH, some have other

liver diseases. . .

>

> Ann CT

,

As Ann has told you, we are a diverse group. The members are

from around the world: the UK, USA, Australia, New Zealand,

Canada, and many other places. You will find a lot of knowledge,

experience, and support here. Welcome and feel free to post any

time about anything.

(Wyoming)

[Guest guest]

hi clappjm-

Thanks for the welcome!! i can understand with the whole not knowing

thing, back when i was diagnosed w/Auto Immune Hepatitis, it took

them 3 weeks to figure it out and it was killing me everyday i didn't

know. they thought at first it was rejection b/c like i mentioned

before i have already had one liver disease and have had a

transplant. when they finally found out, it was like the huge weight

had been lifted. I also can identify w/you on the drinking thing,

cept you just found out, I have known from day one that I would never

be able to drink, but alot of people don't understand why i don't

like to go to parties, its just dumb cuz i am the ONLY one not

drinking and i feel stupid. I also understand how you want to be

involved, even though it makes you tired, you want to live a normal

life, so that your just like everyone else, but its hard b/c your

disease is always getting in the way. and I wouldn't worry about the

biopsy, they aren't bad at all, I have had like 7 in the last two

years, but i'm on a good streak right now, I haven't had one since

this summer, so I am hoping to keep that going. I am sure that the

biopsy will shed some light on what is going on w/you and I'm sure

the doctors will be able to help you.

Hope you have a good day!!

[Guest guest]

--- Ann Rita <seafarer52@...> wrote:

> there is a variety of us. Some have AIH,

> some have had transplants, some are families with

> AIH, some have other liver diseases. We are a

> support group to help answer questions and just vent

> sometimes. Welcome to the group and hope any

> information that you get is helpful to you.

>

> Ann CT

>

> [ ] I'm a new member!

>

> Hi, my name is ! I'm 19, almost 20 and from

> Iowa. I am

> currently a freshman at the University of Iowa. My

> story is: I was

> born w/a liver disease called Bilaria Atresia and

> had a transplant

> when I was 8 yrs. old, I was doing great except for

> a minor rejection

> in 6th grade, then in 11th grade, so I was almost

> 18, I was diagnosed

> w/Auto Immune Hepatitis, I was in and out of the

> hospital about 7

> times in one year and switched my main anti

> rejection drug twice. I

> am doing alright..but they are keeping a close watch

> on me. I sorta

> stumbled across this support group while doing

> research and decided

> to join...I'm not familar w/these online groups..so

> forgive me if i

> seem very new to this. Thanks for listening! I'm

> glad I am here!

>

>

>

>

>

>

[Guest guest]

At 02:36 PM 2/23/2006, you wrote:

>Dear All,

>

> I've just joined yesterday and having read all your emails, I'm

> honoured being a part of this group. The members know a

> lot! Enfleurage, solvent extraction, I am very impressed! It's also a

> great feeling knowing that I am not the only one who's crazy about perfume!

Hi phine.

You found the right place. NP is taking off in popularity and practice.

>

> Please allow me to introduce myself, my name is phine Lam. I just

> moved here in California-East Bay last September from New Jersey. I used

> to work in Berje Inc. a small chemical firm, as a lab manager. We dealt

> with all types of oils (both natural and synthetic). We do compounding,

> evaluation and conduct stability tests, if necessary.

Welcome, and I'm sure your expertise will be greatly appreciated here,

especially from the scientificaly-challenged (me!)

>

> I took a short course on Perfumery at the Fashion Institute of

> Technology in New York City where they invited Perfumers from the " Big

> Boys " as instructors. This is how my passion for perfumery started. We

> studied the Carles method and was introduced to fragrance

> creation. I thought at that time, I want to create my own fragrance! I

> was running the lab, and although I understand the materials, I never had

> the chance to make my own perfume.

I'm self-taught on the Carles method, following the systematic charts for

over 30 years now, using more exotic oils and absolutes than he listed

originally. A great foundation on how to observe how aromatics interact.

> Following are my objectives in joining this group and I hope you will

> help me on this...

> 1. Share my passion for perfumery with people who loves it as much as

> I do.

> 2. Network with people especially in the East Bay - California area.

> 3. Hopefully, help others address their perfumery issues.

> 4. Understand natural perfumery

> 5. I would really like to learn how to make solid perfume but do not

> know where to start, where to get materials, etc.

> 6. Maybe, as a team we could hold a nationwide conference, expo on

> natural perfumery similar to Perfumery Congress held in Grasse.

> 7. Convert this burning passion to a profitable business.

Whew. That's a lot to answer one-by-one. It can be done, in bits. #1 is

easy. You're here. #2 there are a lot of members here from East Bay and

NoCal. 3. Issues. Science. Yup. 4 NP is easy to understand - use natural

aromatics ;-) and practice, study, observe. 5. Get Mandy Aftel's Essence

and Alchemy and Scentabilities (sp?) 6. A conference is, I'm sure, in the

future. 7. We're working on it, some have already achieved it.

Anya

http://.com

The premier site on the Web to discover the beauty of Natural Perfume

/

Join to study natural perfumery

[Guest guest]

>

>

>

> Following are my objectives in joining this group and I hope you

will help me on this...

> 1. Share my passion for perfumery with people who loves it as

much >as I do.

> 2. Network with people especially in the East Bay - California >area.

hi josephine!

i have a small shop in Santa Cruz, Ca. called The Perfumer's

Apprentice. It's probably only about 1 hour away from you. you could

come in and make solid perfumes, oil blends, alcohol blends; you name

it, you can do it here! i'd really love to talk with you and share

some knowledge. i now have over 500 oils, absolutes, etc. for you to

sniff. i would love to chat with you about your background and

experiences.

I do hope you can come down and visit!

-linda

The Perfumer's Apprentice

www.perfumersapprentice.com

[Guest guest]

(flipped to correct topposting -- Jo, we're bottomposters here ;-)

s <lindaan@...> wrote:

hi josephine!

i have a small shop in Santa Cruz, Ca. called The Perfumer's

Apprentice. It's probably only about 1 hour away from you. you could

come in and make solid perfumes, oil blends, alcohol blends; you name

it, you can do it here! i'd really love to talk with you and share

some knowledge. i now have over 500 oils, absolutes, etc. for you to

sniff. i would love to chat with you about your background and

experiences.

I do hope you can come down and visit!

-linda

The Perfumer's Apprentice

www.perfumersapprentice.com

Thank you, !

That's very sweet of you. I'm excited! Anya was right, I will meet some

friendly souls here. Let's schedule one weekend as I'm attending Financial and

Accounting courses during the weekdays. I would love to sniff and evaluate

again!

Regards,

phine

[Guest guest]

Hi Tonia.  Boy, what a 40th birthday present you got , RA and Lupus.  That

sure is a lot to digest.  It is very hard to deal with auto-immune diseases,

let alone 2 at the same time.

 

You have come to the right place for information, love, caring, understanding,

and a place to vent all your pent up anger.  I am so sorry you got hit so

hard.  I have had RA for almost 6 years now, and am in a medicine induced

remission.  There is light at the end of the tunnel.  We are all here for

you.  We ALL understand what you are trying to deal with each and everyday. 

Only the people who have RA or Lupus or any other auto-immune diseases know what

you are going through.  No family members, friends, co=workers have any idea

what pain we have day in and day out.  I thank God I found our wonderful

group.  You will see how much you learn here, the compassion, understanding and

love from all our members.  You have done such a good thing for yourself by

joining us.

 

I wish you pain free days ahead.

 

Hugs,

 

Barbara

From: t_conley1969 <t_conley1969@...>

Subject: [ ] I'm a new member!

Date: Thursday, March 11, 2010, 12:11 AM

 

Hi my name is Tonia, one month before I made 40 years old. I was told by my

doctor that I have RA and Lupus. For a year in a half I was fading away and

didn't know what was happening to me. It started with alittle pain here and

there. within the year I couldn't dress myself, bath or even drive. I thank God

for my husband and boys. my doctor just sent me to a RA doctor where they are

doing more blood work and did xrays of all my joints. the meds is helping so

much that I can get myself dressed in the morning and drive to work. All of this

is new to me and I just needed someone to talk to.

Thank

tconley

[Guest guest]

Tonia,

I got my RA diagnosis at the age of 32, and then came UCTD, and crohns.  It is

so true what Barbara said, that other people around you, unless they have dealt

personally with their body betraying them, can have sympathy, but not empathy. 

My family thought that I was a hypochondriac, and all I could say, but when i go

to the doc they find something......thank goodness you have a supportive husband

and kids.  It sounds like things have started to turn around for you with the

meds, which is fabulous.  I have learned that I have my good days and bad days,

and unfortunatly, it can always get better, and worse.  So, I am thankful for

that.

 Debra

________________________________

From: t_conley1969 <t_conley1969>

Subject: [ ] I'm a new member!

@gro ups.com

Date: Thursday, March 11, 2010, 12:11 AM

 

Hi my name is Tonia, one month before I made 40 years old. I was told by my

doctor that I have RA and Lupus. For a year in a half I was fading away and

didn't know what was happening to me. It started with alittle pain here and

there. within the year I couldn't dress myself, bath or even drive. I thank God

for my husband and boys. my doctor just sent me to a RA doctor where they are

doing more blood work and did xrays of all my joints. the meds is helping so

much that I can get myself dressed in the morning and drive to work. All of this

is new to me and I just needed someone to talk to.

Thank

tconley

[