Guest guest Posted July 11, 2009 Report Share Posted July 11, 2009 Clora, thank you for you input. I will be talking to my rheumy in a few weeks. I really need to get this ra under control and like you i can't take Methotrexate and other meds have failed. > > I have Pulmonary Arterial Hypertention and Asthma and emphazemia. and bronchitis. I am sure I didnt spell that right but I think everyone gets the idea. I don't know if I have anything close to granulomous. and hope I don't . I took Humirra for almost a year, it wasnt helping so she just put me on Ebrell a couple weeks ago. I cant take plaguenil,methotrexate and a lot others because I am allergic. What does your Rhuemy say about it? I am curious. Good luck and God bless. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2009 Report Share Posted July 11, 2009 Clora, It really is hard to find a good doctor to help with pain. I'm glad you were able to find one understanding, and could see what you were going through. I also have a pill container, I take so many meds, I would be double dosing too. Take care, and have a nice weekend, Tawny > > , Weaver, Tanwy, , > > , I sometimes am concerned I would build a tolerance to my meds to . But there are so many pain meds out there I am sure we can get something else, I hope so anyway. what is MS contin?, Don't know if I had that. Need to know what it is first. My family thinks I am addicted. I just don't tell them what I take. My husband knows I hurt from the crys of pain. I am one not to cry but I have went over my limit with this pain. > > Tawny, I got pain meds so easy from this one rhuemy. He was great. At the time I had no medical insurance and I was laid off. All I had to pay was my 45 dollar doctor visit. He gave me what ever I wanted. I think he had a second sence for people in pain. I always took the meds as recommended. Or I would have gotten addicted is what I believe. I am very careful to not take more than I am suppose too. One time I took all my meds twice by accident. I forgot I had already took them an hour ago. I called the poison center right away. After that my daughter bought me a pill container for a week with 4 doses on each day. I was ok after I double took my meds, but I felt awful till they wore off. > > Weaver, I don't let anyone worry me about what pills I take. It took me a while to do this. No one knows our pain, untill they walk a mile in our shoes. My daughter remarked one time how her mother n law didn take her RA pain as bad as I did. Her mom n law had RA too.I was so hurt from that remark at first. This group explained a lot to me about that. I don't share what pills I take to anyone but my husband and my reg doctor. I came from a family of alcholism and drug addicts. I think that maybe they over did it. I don't know why, I am glad Im not. Talk to your doctor about not being able to sleep. Your regular doctor. I went through 4 times before he got it right for me. > > I went to my primary doc and said I couldnt sleep he gave me some pills (were not addictive). It didnt help so I called my doc and said I still cant sleep. I slept about 2 hours and woke up wide awake. The nurse said doctor said to take 2 instead of one. I did that night and I still didn't sleep but 2 hours. I called back, said I can't sleep still. Nurse said to take 3 that night. I did and slept good for the first time in a long time. It is hard to sleep when one is in so much pain and thats not unusual. We are suppose to complain here. So don't worry about being a complainer. You're not a complainer. > > > I have Pulmonary Arterial Hypertention and Asthma and emphazemia. and bronchitis. I am sure I didnt spell that right but I think everyone gets the idea. I don't know if I have anything close to granulomous. and hope I don't . I took Humirra for almost a year, it wasnt helping so she just put me on Ebrell a couple weeks ago. I cant take plaguenil,methotrexate and a lot others because I am allergic. What does your Rhuemy say about it? I am curious. Good luck and God bless. > > Everyone; I had rhamatic fever when I was 5. I think I read somewhere you can get RA from that. Also I hear you can get it from an infection. I know depression can cause a lot of problems and worsen lot of illnesses. I started depression at 15. I don't think depression was invented then lol. I got help at 22 and was given medicine. I have taken depression medicine off and on for 30 years. I seem to have all kinds of medical problems., I don't want to blame anyone. I believe depression could be in our genes, from a lost loved one, or just in the chemicals in our brains. Depression is not recognised by a lot of people as an illness. My church thinks it from demons. haaaaaaa. I don't think so. Many people won't get help for depression cause of the ramifacations of it. All you have to do is. DON'T TELL ANYONE!!!!. Thats what I do. I know its there and I can't fight it anymore. I just take the meds and thats my secret. I love every one and pray for a cure for RA. God bless everyone.......................CLORA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2009 Report Share Posted July 11, 2009 Clora, I had rheumatic fever in 2000; at age 23. Again, my PCP and rheumy didn't think there was a connection. Ever since the rheumatic fever, my health deterorated fast. A year later I was diagnosed w/RA and a few years later fibromyalgia. I have always been depressed as long as I can remember. I didn't want to take any anti-depression meds because of the stigma attached to them. I finally said " f$%k it " and started taking anti-depression meds in 2005 after my aunt passed away. I have been taking them ever since. It still deal w/ severe depression and I highly doubt I ever will get better. MS Contin is Morphine Sulfate. It's simular to oxycontin. I have taken it off and on for 3 years. My pain doctor put me on full time to deal w/ my severe pain from RA/Fibro and for a large ventral hernia. My rheumy didn't want me on narcotics for my RA/Fibro...but was OK for me to take it for my hernia. MS Contin helps w/ all of my pains. What I have found out, is if you truely need narcotics for pain...you don't seem to get a " high " . If you don't need it medically...you tend to feel a " high " . I don't tell my family what I take because I don't want them to ask me for pain meds and I don't want anyone to try to steal them. My husband worries that I am addicted, but I know he doesn't understand the degree of pain that I am living with. It's nice to talk to people who know exactly what you are going through...I LOVE YOU GUYS!!! > > , Weaver, Tanwy, , > > , I sometimes am concerned I would build a tolerance to my meds to . But there are so many pain meds out there I am sure we can get something else, I hope so anyway. what is MS contin?, Don't know if I had that. Need to know what it is first. My family thinks I am addicted. I just don't tell them what I take. My husband knows I hurt from the crys of pain. I am one not to cry but I have went over my limit with this pain. > > Tawny, I got pain meds so easy from this one rhuemy. He was great. At the time I had no medical insurance and I was laid off. All I had to pay was my 45 dollar doctor visit. He gave me what ever I wanted. I think he had a second sence for people in pain. I always took the meds as recommended. Or I would have gotten addicted is what I believe. I am very careful to not take more than I am suppose too. One time I took all my meds twice by accident. I forgot I had already took them an hour ago. I called the poison center right away. After that my daughter bought me a pill container for a week with 4 doses on each day. I was ok after I double took my meds, but I felt awful till they wore off. > > Weaver, I don't let anyone worry me about what pills I take. It took me a while to do this. No one knows our pain, untill they walk a mile in our shoes. My daughter remarked one time how her mother n law didn take her RA pain as bad as I did. Her mom n law had RA too.I was so hurt from that remark at first. This group explained a lot to me about that. I don't share what pills I take to anyone but my husband and my reg doctor. I came from a family of alcholism and drug addicts. I think that maybe they over did it. I don't know why, I am glad Im not. Talk to your doctor about not being able to sleep. Your regular doctor. I went through 4 times before he got it right for me. > > I went to my primary doc and said I couldnt sleep he gave me some pills (were not addictive). It didnt help so I called my doc and said I still cant sleep. I slept about 2 hours and woke up wide awake. The nurse said doctor said to take 2 instead of one. I did that night and I still didn't sleep but 2 hours. I called back, said I can't sleep still. Nurse said to take 3 that night. I did and slept good for the first time in a long time. It is hard to sleep when one is in so much pain and thats not unusual. We are suppose to complain here. So don't worry about being a complainer. You're not a complainer. > > > I have Pulmonary Arterial Hypertention and Asthma and emphazemia. and bronchitis. I am sure I didnt spell that right but I think everyone gets the idea. I don't know if I have anything close to granulomous. and hope I don't . I took Humirra for almost a year, it wasnt helping so she just put me on Ebrell a couple weeks ago. I cant take plaguenil,methotrexate and a lot others because I am allergic. What does your Rhuemy say about it? I am curious. Good luck and God bless. > > Everyone; I had rhamatic fever when I was 5. I think I read somewhere you can get RA from that. Also I hear you can get it from an infection. I know depression can cause a lot of problems and worsen lot of illnesses. I started depression at 15. I don't think depression was invented then lol. I got help at 22 and was given medicine. I have taken depression medicine off and on for 30 years. I seem to have all kinds of medical problems., I don't want to blame anyone. I believe depression could be in our genes, from a lost loved one, or just in the chemicals in our brains. Depression is not recognised by a lot of people as an illness. My church thinks it from demons. haaaaaaa. I don't think so. Many people won't get help for depression cause of the ramifacations of it. All you have to do is. DON'T TELL ANYONE!!!!. Thats what I do. I know its there and I can't fight it anymore. I just take the meds and thats my secret. I love every one and pray for a cure for RA. God bless everyone.......................CLORA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2009 Report Share Posted July 13, 2009 - I know how hard this all is for you. Its interesting how some of us can pinpoint a major event in our lives that seemed to trigger the onset of RA/FM. I'm glad to hear that you're taking something for your depression - but is it the right dosage or even the right medication? My thoughts are that your depression shouldn't still be severe. You might not be able to ever be off medication, but you should have a happy, productive life that isn't bogged down by your depression. It is wonderful to have a place to go where everyone can relate to what the other is going through. It would be a lonely world otherwise. Hang in there, talk to your doctor, be happy.....Doreen Clora, I had rheumatic fever in 2000; at age 23. Again, my PCP and rheumy didn't think there was a connection. Ever since the rheumatic fever, my health deterorated fast. A year later I was diagnosed w/RA and a few years later fibromyalgia. I have always been depressed as long as I can remember. I didn't want to take any anti-depression meds because of the stigma attached to them. I finally said " f$%k it " and started taking anti-depression meds in 2005 after my aunt passed away. I have been taking them ever since. It still deal w/ severe depression and I highly doubt I ever will get better. MS Contin is Morphine Sulfate. It's simular to oxycontin. I have taken it off and on for 3 years. My pain doctor put me on full time to deal w/ my severe pain from RA/Fibro and for a large ventral hernia. My rheumy didn't want me on narcotics for my RA/Fibro...but was OK for me to take it for my hernia. MS Contin helps w/ all of my pains. What I have found out, is if you truely need narcotics for pain...you don't seem to get a " high " . If you don't need it medically...you tend to feel a " high " . I don't tell my family what I take because I don't want them to ask me for pain meds and I don't want anyone to try to steal them. My husband worries that I am addicted, but I know he doesn't understand the degree of pain that I am living with. It's nice to talk to people who know exactly what you are going through...I LOVE YOU GUYS!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2009 Report Share Posted July 13, 2009 Doreen, I would like to get off of my depression meds, but I am not in a place where I can yet. I see my psych on Wednesday so we'll see what she says. Thanks for the kind words...much appreciated. > > Clora, > > I had rheumatic fever in 2000; at age 23. Again, my PCP and rheumy didn't think there was a connection. Ever since the rheumatic fever, my health deterorated fast. A year later I was diagnosed w/RA and a few years later fibromyalgia. > I have always been depressed as long as I can remember. I didn't want to take any anti-depression meds because of the stigma attached to them. I finally said " f$%k it " and started taking anti-depression meds in 2005 after my aunt passed away. I have been taking them ever since. It still deal w/ severe depression and I highly doubt I ever will get better. > MS Contin is Morphine Sulfate. It's simular to oxycontin. I have taken it off and on for 3 years. My pain doctor put me on full time to deal w/ my severe pain from RA/Fibro and for a large ventral hernia. My rheumy didn't want me on narcotics for my RA/Fibro...but was OK for me to take it for my hernia. MS Contin helps w/ all of my pains. > What I have found out, is if you truely need narcotics for pain...you don't seem to get a " high " . If you don't need it medically...you tend to feel a " high " . I don't tell my family what I take because I don't want them to ask me for pain meds and I don't want anyone to try to steal them. My husband worries that I am addicted, but I know he doesn't understand the degree of pain that I am living with. It's nice to talk to people who know exactly what you are going through...I LOVE YOU GUYS!!! > > > Quote Link to comment Share on other sites More sharing options...
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