Hi Everyone

July 9, 1999

Some people swear by it, but everyone I know who went to Mexico for it didn't

make it. I only knew six personally, but it's not worth trying to me.

Artis-Ann

July 10, 1999

See www.worldwithoutcancer.com for more info on laetrile.

Melinda

www.cancure.org

Re: [ ] Hi everyone

>From: Clue7less@...

>

>Some people swear by it, but everyone I know who went to Mexico for it

didn't

>make it. I only knew six personally, but it's not worth trying to me.

>

>Artis-Ann

>

>---------------------------

July 10, 1999

We've been to Mexico and everyone we've met died as well. I made it because

my brain tumor is benign and they really couldn't help that and my 5 year

old daughter at the time made it because she didn't have lymphoma to start

with! The doctors here felt she had this but the outcome proves otherwise.

She is almost 8 years old now and living a very normal life.

Johanne

Re: [ ] Hi everyone

> From: Clue7less@...

>

> Some people swear by it, but everyone I know who went to Mexico for it

didn't

> make it. I only knew six personally, but it's not worth trying to me.

>

> Artis-Ann

>

> ---------------------------

July 12, 1999

I think it has merit. From what I understand it works well with certain

tumors. Remember one alternative approach is not a cure-all for all

cancers. Other therapies - even combined ones - work well.

I would imagine it depends on the person, the environment, stage of cancer,

etc. FYI - I take 6-8 seeds daily as a preventive.

Tom

[ ] Hi everyone

From: ninjax@...

What do you all think about Laetrile, which

is Vit B 17, and it is found in apricot seeds.

???? as a cure for cancer??

From Marie

---------------------------

July 12, 1999

Marie,

My husband is fighting melanoma, and he takes Laetrile 500mg 2 times a day.

I have read that it has cured people of their cancer. You can find

information on it at http://www.worldwithoutcancer.com/

Margie

[ ] Hi everyone

From: ninjax@...

What do you all think about Laetrile, which

is Vit B 17, and it is found in apricot seeds.

???? as a cure for cancer??

From Marie

---------------------------

July 14, 1999

If you have cancer, you do need to follow a certain diet and protocol, not

just eat kernels or take laetrile. See www.worldwithoutcancer.com for info

on enzymes, diet, etc.

Mel

[ ] Hi everyone

From: ninjax@...

What do you all think about Laetrile, which

is Vit B 17, and it is found in apricot seeds.

???? as a cure for cancer??

From Marie

---------------------------

January 12, 2002

---This isn't herbal, but it seems to help a bit. Alfalfa pills. They

are supposedly a pain killer. Good luck. A

In @y..., " ashy4uk " <ashy4uk@y...> wrote:

> Hi my name is Mike & I am 38 yrs old.I have suffered from PA for

5yrs

> & have used Methotrexate,Piroxicam,Vioxx & a long list of

painkilling

> drugs to little avail.I am currently using Vioxx & Tramadol,when

the

> pain get's very bad I double up on painkillers by taking Kapake as

> well.I am interested in hearing from anyone who has used any herbal

> remedies with success,I am at the stage of trying anything in the

> hope of bettering my quality of life!!! Looking forward to hearing

> from you.

August 29, 2002

HAPY DANCE TIME AGAIN!!!!!!

> david has his evauation for waiver (title xix) later today. keep us in your

> thoughts... hopefully all that i have put him through over this last month

> won't be for not.

> by the way his speech ther and i thought that it would be a good idea to

> eval him now too. the last time it was just a week after starting enzymes

> and one the oral vocabulary he scored only a 71 which is below avg and not

> in normal range. well we did that part of the test yesterday and cassie

> was so excited that she had to tell me the score!!! remember he has been

> off enzymes and supps for a month because of this other eval today.... the

> score went up to 91!!!! totally normal!!!!completely average!!! and this

> was the aprt of the test that was the hardest for him before hn-enzymes.

> ican't wait to see the rest of the scores and to reeval in 6 mo to see

> where he really is because he has regresses so much off of the enzymes i

> know that his score will be even better...WAHHHOOOOOO!!!!!! neva

>

> LIFE IS MEANT TO BE LIVED, NOT ENDURED.

>

> Neva

>

> ---------------------------------

>

August 29, 2002

In a message dated 8/29/2002 8:34:35 AM Eastern Daylight Time,

Mum231ASD@... writes:

> .... the

> > score went up to 91!!!! totally normal!!!!

What fabulous news!!!!!!!!!

Liane Gentry Skye

<A HREF= " http://talkingwithpictures.com/ " >Talking With Pictures</A>

" nonverbal " does not have to mean " unable to communicate "

October 2, 2002

Hi Debbie,

I have to say hi to a fellow New Yorker. It's a great day here in the Big

Apple, isn't it?

Sorry to hear your friend has PA. I have many questions about her including how

long she has had the condition, who made the diagnosis, is she under the care of

a rheumatologist, what medication is she taking for the PA and what medicines

has she taken previously, what are her symptoms/where does she have the PA, etc.

When we know a bit more about your friend, there are probably people here who

will have excellent suggestions to offer based on their knowledge and

experience. I also found that reading several months' worth of posts in the

list archives was very helpful in educating me about the disease.

It is nice of you to help your friend by joining a list such as this and showing

so much interest in her disease.

Regards,

Kathy

> Im so glad to be here. I have a friend who just found out she has Psoriatic

> Arthritis and I want to find out as much information as

> possible on it from

> people who also have this condition.

October 3, 2002

In a message dated 10/2/2002 1:48:45 PM Eastern Daylight Time,

pugnfriend@... writes:

> Hi Debbie,

> I have to say hi to a fellow New Yorker. It's a great day here in the Big

> Apple, isn't it?

>

> Sorry to hear your friend has PA. I have many questions about her

> including how long she has had the condition, who made the diagnosis, is

> she under the care of a rheumatologist, what medication is she taking for

> the PA and what medicines has she taken previously, what are her

> symptoms/where does she have the PA, etc. When we know a bit more about

> your friend, there are probably people here who will have excellent

> suggestions to offer based on their knowledge and experience. I also found

> that reading several months' worth of posts in the list archives was very

> helpful in educating me about the disease.

>

> It is nice of you to help your friend by joining a list such as this and

> showing so much interest in her disease.

Hi Kathy!!

Thanks so much for writing I am going to send my friend this mail so she can

answer the questions. I know that she found out she had Psoriatic Arthritis

this week. She is a very good friend and I want to get as much information as

possible so we kind of know what we are dealing with and what her options

are.

Where in NY are you? Im in Brooklyn. I will get back with the answers as fast

as I can so I can start learning more about this condition and I want to

thank you very much for writing to me.

Debbie

June 15, 2003

Hello, Vicky. What a lovely age, but not to have just be Dx with PA. I hope

some day to actually see South Wales. It has such a rich history, very

romantic. Of course I may have been reading a few too many of those Historical

Romanaces.

Wishing you well, Sylvia from Oklahoma [uSA].

Vicky Lane <vicky@...> wrote:Hi everyone *waves*

I'm Vicky..I joined recently..sorry I haven't introduced myself properly until

now..I've been trying to keep up with the posts, plus I'm the littlest bit shy.

Anyway, it's not like there's really much to say about me..

I'm 18, I was diagnosed with PA at 17, last october actually, though I've

suffered from it for about 5 years before that. I live in a town in south Wales

(that'd be UK).

I found this place on google, and decided to check it out..I'm glad I did too,

there seems to be a lot of lovely people on here, and I'm looking forward to

getting to know you better

Vicky

--x--

[

June 15, 2003

-Hi Vicky,

Welcome to the group. I had PA at 18 too. That was many years

ago.Hope you are able to get around and be with your friends. Hope

this website will help you.

Best Wishes,

Marti

April 21, 2005

Hi Troy

take a look at this link and consider having a hair test (ELEMENTAL) done at

Doctors Data lab.

_http://home.earthlink.net/~moriam/HOW_TO_hair_test.html_

(http://home.earthlink.net/~moriam/HOW_TO_hair_test.html)

You can get it done without a Dr from here

_www.dircetlabs.com_ (http://www.dircetlabs.com)

Mandi in UK

April 21, 2005

Welcome to the list. Consider getting a hair elements test from DDI and apply

counting rules (found in FAQs of this list). You can get the hair analysis

without a doctor through DLS (Direct Lab Services) and they have a special ($67)

this month for those who mention this list.

Are you on any supplements? Please be aware that you can't safely chelate for

mercury, lead, or arsenic if you still have mercury amalgam filllings, so you

may want to start looking for a mercury-free dentist.

<tt>

I was directed here by Debbie from the amyloidosis site. If there is

an Andy Culter out there or anyone who can help me I would be so grateful.

I will make this as short as possible.

Sick for 10 months (swallowed half of an amalgam filling 13 months

ago) Dentist said no big deal as would just go right through me so I

never thought about it again.)

Malaise

swollen tongue with teeth marks and white

heart palipitations (sometime heart beats 120 bmp for no reason)

beau's lines on thumb and big toe

lose breath very easy

exercise intolerance

burning skin sensation on legs back

sometimes bed ridden thinking the end is near

good for one day then toast for days on end

sore neck and shoulders

metallic taste in mouth

feel like I have the beggining of the flu but it never develops.

Been to doctors and had many many tests.

I will post only abnormal test results as I have had every blood test

conceivable.

GP did blood tests and found nothing abnormal and says it is the flu

and you will get better. (Had Hiv, Hep A,B,C, syphillis etc.. all neg)

I don't agree and pursue....sent to internist

Internist does physical and runs blood tests.

AST ALT and Bilirubin Elevated slightly. Ferritin high 305 Creatinine

1.2 (mono test, celiac, B12, calcium, alubinin, Folate, etc... all neg

or normal)

Orders Ultrasound, Chest Xray, Upper GI...all come back fine

CEA, PSA, AP all normal. schedule for colonoscopy for May

Shedule for stress test in May

Electrocardiogram in August (earliest i could get)

Does another blood test. CK elevated 3x normal AST elevated more

creatinine still 1.2. The rest normal.

Orders blood test again...everything normal but creatinine still 1.2 I

notice Anion Gap is 3 Normal being 3-15....he's not concerned.

I push for more tests...

Iron low 13 Sat %19....he's not concerned. (even though I am taking

iron supplements, only 10 mg day extra)

Urinalysis shows Trace Ketones...PH 5

Had Merury and Lead test month ago results not back yet.

Had immunofixation test done today. I'm thinking amyloidosis.

Liver specialists say I am fine. I feel like crap though. Doctors seem

to think I have a secondary motive and offer mind altering chemicals

so I won't bug them I guess....I politely decline and continue to

pursue. (I know they are trying their best but are limited to their

training of common disease) and I guess I have stumped them.

I am not fine and something serious is going on inside me. I just

can't find what it is and am grasping for anything I can.

Any ideas would be most appreciated. I am sitting here typing as my

legs feel like they are on fire, my neck is killing me and my stomach

is burning.

Troy

</tt>

<tt>

=======================================================

July 16, 2005

Hi ,

Thanks for the update on . Sounds like she is doing wonderful. Keep us posted on her surgery. Do they call the condition - tongue tied? I've heard of it. na got tubes in April and I was worried too. It'll be OK.

mom to na (2yrs) DOC Grad and Kiersten (6 wks) Preventative Repo

www.thefilyaws.comkelly <docbandbabies@...> wrote:

just thought i would pop in and say hello to everyone. it has been a good long while since i have updated kathryn. she is doing great. for anyone who has worries over the band affecting the baby's intellingence let me reassure you it doesn't!!!! kathryn is smart as a whip. she can count to 13, recognizes all her numbers (primary), knows all her primary colors and shapes as well....no i am not bragging...lol. now if we could just get out of the tantrum phase!!! i have been reading some on the boards and trying to keep up but ya'll are growing so much. i was really disappointed like many others about the people article and was glad to see the rebuttle letters from some of the parents printed in this weeks issue. If you are the praying kind keep kathryn in your prayers as we have

been told she may end up having surgery on her mouth. the little thingy..(yup that's my medical term) that holds her tongue to her mouth...does that make sense???...is too short and it may affect her speech later so the doctor is talking about clipping it. he said it was a minor surgery but nothing is minor when it comes to knocking my baby out and cutting on her!!! so that's where we are at now. her head looks absolutely fantastic, we are about to celebrate a year post grad!!!! and if we had to do it all over again we would. good luck to everyone. may all you babies be rounding!! in Texasmom to 9/7/03 DocGrad 7/04Plagio/Brachy/Tort

Start your day with - make it your home page

July 17, 2005

,

Thanks for the update, it is very encouraging to all of us here. I

know it hard not to do, but try not to stress too much over the tied

tongue op., my girlfriends baby had it done and it was very quick and

recovery was like nothing. I will still say a prayer for her and you

both.

CAROLG

--- In Plagiocephaly , " kelly " <docbandbabies@y...>

wrote:

> just thought i would pop in and say hello to everyone. it has

> been a good long while since i have updated kathryn.

> she is doing great. for anyone who has worries over the band

> affecting the baby's intellingence let me reassure you it

> doesn't!!!! kathryn is smart as a whip. she can count to 13,

> recognizes all her numbers (primary), knows all her primary colors

> and shapes as well....no i am not bragging...lol. now if we could

> just get out of the tantrum phase!!!

> i have been reading some on the boards and trying to keep up but

> ya'll are growing so much. i was really disappointed like many

> others about the people article and was glad to see the rebuttle

> letters from some of the parents printed in this weeks issue.

> If you are the praying kind keep kathryn in your prayers as we

> have been told she may end up having surgery on her mouth. the

> little thingy..(yup that's my medical term) that holds her tongue

to

> her mouth...does that make sense???...is too short and it may

affect

> her speech later so the doctor is talking about clipping it. he

said

> it was a minor surgery but nothing is minor when it comes to

> knocking my baby out and cutting on her!!!

> so that's where we are at now. her head looks absolutely

> fantastic, we are about to celebrate a year post grad!!!! and if we

> had to do it all over again we would.

> good luck to everyone. may all you babies be rounding!!

>

> in Texas

> mom to 9/7/03 DocGrad 7/04

> Plagio/Brachy/Tort

July 17, 2005

,

Thanks for the update, it is very encouraging to all of us here. I

know it hard not to do, but try not to stress too much over the tied

tongue op., my girlfriends baby had it done and it was very quick and

recovery was like nothing. I will still say a prayer for her and you

both.

CAROLG

--- In Plagiocephaly , " kelly " <docbandbabies@y...>

wrote:

> just thought i would pop in and say hello to everyone. it has

> been a good long while since i have updated kathryn.

> she is doing great. for anyone who has worries over the band

> affecting the baby's intellingence let me reassure you it

> doesn't!!!! kathryn is smart as a whip. she can count to 13,

> recognizes all her numbers (primary), knows all her primary colors

> and shapes as well....no i am not bragging...lol. now if we could

> just get out of the tantrum phase!!!

> i have been reading some on the boards and trying to keep up but

> ya'll are growing so much. i was really disappointed like many

> others about the people article and was glad to see the rebuttle

> letters from some of the parents printed in this weeks issue.

> If you are the praying kind keep kathryn in your prayers as we

> have been told she may end up having surgery on her mouth. the

> little thingy..(yup that's my medical term) that holds her tongue

to

> her mouth...does that make sense???...is too short and it may

affect

> her speech later so the doctor is talking about clipping it. he

said

> it was a minor surgery but nothing is minor when it comes to

> knocking my baby out and cutting on her!!!

> so that's where we are at now. her head looks absolutely

> fantastic, we are about to celebrate a year post grad!!!! and if we

> had to do it all over again we would.

> good luck to everyone. may all you babies be rounding!!

>

> in Texas

> mom to 9/7/03 DocGrad 7/04

> Plagio/Brachy/Tort

July 18, 2005

Hi , thanks for the update. It is very encouraging to parents to hear

success stories like 's. It's good to hear from you.

Becky

, repo grad

Pittsburgh, pA

hi everyone

just thought i would pop in and say hello to everyone. it has

been a good long while since i have updated kathryn.

she is doing great. for anyone who has worries over the band

affecting the baby's intellingence let me reassure you it

doesn't!!!! kathryn is smart as a whip. she can count to 13,

recognizes all her numbers (primary), knows all her primary colors

and shapes as well....no i am not bragging...lol. now if we could

just get out of the tantrum phase!!!

i have been reading some on the boards and trying to keep up but

ya'll are growing so much. i was really disappointed like many

others about the people article and was glad to see the rebuttle

letters from some of the parents printed in this weeks issue.

If you are the praying kind keep kathryn in your prayers as we

have been told she may end up having surgery on her mouth. the

little thingy..(yup that's my medical term) that holds her tongue to

her mouth...does that make sense???...is too short and it may affect

her speech later so the doctor is talking about clipping it. he said

it was a minor surgery but nothing is minor when it comes to

knocking my baby out and cutting on her!!!

so that's where we are at now. her head looks absolutely

fantastic, we are about to celebrate a year post grad!!!! and if we

had to do it all over again we would.

good luck to everyone. may all you babies be rounding!!

in Texas

mom to 9/7/03 DocGrad 7/04

Plagio/Brachy/Tort

For more plagio info

July 18, 2005