Guest guest Posted December 17, 2007 Report Share Posted December 17, 2007 Isn't it the other way around? the painkillers won't work if you're on ldn. My father-in-law is taking ldn. He fell and ended up in the hospital. The nurses were amazed that the morphine and vicodin had no effect! How long do you need to be off ldn in order for pain meds to work? --- Gunn Dybfest <gunn.ingrid@...> wrote: > Hi again amit > Painkillers? > I hope you stay away from narcotics painkillers, > LDN won't work if you use those. > > Ingrid > > > > Re: [low dose naltrexone] HI EVERYONE > > > hi > thanks > i will go by your words. > i will continue LDN . > any suggestions for the increased symptoms . > i started cinnarazine for giddiness, taking pain > killers and amitryptylline also > thanks for your wishes and advice > amit > > Marcie <marcie_martin@...> wrote: > If you are having a relapse, I don't believe that > LDN is the cause. The relapse was probably > beginning before LDN came along. My opinion: > You're not better on Avonex. My opinion again: > Avonex is a useless and expensive drug. > > My opinion again: Take your chances with LDN. > > Give it a fair chance. I hope you get to feeling > better real soon! > > Marcie > > > amit7017w <amit7017w (DOT) co.in> wrote: > > i am on ldn 3 mg now .its the 8 th day . > i think i am having a relapse ? > > giddiness and vertigo,spasticity and headaches . > ] > i dont know when it will clear . > > i was better on avonex ?? > > any suggestions please > > amit > > > > > > > > > Get the freedom to save as many mails as you wish. > Click here to know how. > > > > ________________________________________________________________________________\ ____ > Never miss a thing. Make your home page. > http://www./r/hs Live simply, Love generously, Care deeply,Speak kindly, Leave the rest to God ________________________________________________________________________________\ ____ Never miss a thing. Make your home page. http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2007 Report Share Posted December 17, 2007 Ingrid, I think the opposite is true - narcotic pain-killers won't be as effective because of LDN. Art -- > > Hi again amit > Painkillers? > I hope you stay away from narcotics painkillers, > LDN won't work if you use those. > > Ingrid > Never miss a thing. Make your home page. > http://www./r/hs > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2007 Report Share Posted December 17, 2007 LDN is in the system for only a few hours. Art -- > > Isn't it the other way around? the painkillers won't > work if you're on ldn. My father-in-law is taking ldn. > He fell and ended up in the hospital. The nurses were > amazed that the morphine and vicodin had no effect! > How long do you need to be off ldn in order for pain > meds to work? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2007 Report Share Posted December 18, 2007 so if I took ldn at 10:00 on a Saturday and had a car accident on Sunday at noon, pain meds would work? --- Art Hansen <rtee54@...> wrote: > LDN is in the system for only a few hours. > > Art > -- > > > > > > Isn't it the other way around? the painkillers > won't > > work if you're on ldn. My father-in-law is taking > ldn. > > He fell and ended up in the hospital. The nurses > were > > amazed that the morphine and vicodin had no > effect! > > How long do you need to be off ldn in order for > pain > > meds to work? > > > > > Live simply, Love generously, Care deeply,Speak kindly, Leave the rest to God ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2007 Report Share Posted December 18, 2007 If I were in pain I'd certainly give it a try. Dr. Skip Lenz has said Darvocet, a narcotic, can be used safely along with LDN. Art -- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2007 Report Share Posted December 18, 2007 Hi Amit, As Marcie states: stick with it.........if you've only Just started LDN 8 days ago, any relapse was probably heading your before that..... I've been on LDN 6 months now and have been having mild vertigo on and off for the past 2 weeks.....I did go up to 4.5mg about 2 weeks ago so I feel it's probably brought about by upping my dosage so went back down to 3mg as I feel 'better' on that at the moment.......and even though Vertigo was my very First symptom - way before I was DX with MS - the fact that I'm experiencing it mildly now does not scare me into thinking I'm having a relapse....it's just my body adjusting to the changes and 'healing' itself with the help of LDN....... As Marcie states again: Â Hang in there, don't panic or worry and you'll be greatful you stopped Avonex in no time.... Kelli From: Marcie [mailto:marcie_martin@...] Sent: Tuesday, 18 December 2007 3:34 AM low dose naltrexone Subject: Re: [low dose naltrexone] HI EVERYONE If you are having a relapse, I don't believe that LDN is the cause. The relapse was probably beginning before LDN came along. My opinion: You're not better on Avonex. My opinion again: Avonex is a useless and expensive drug. My opinion again: Take your chances with LDN. Give it a fair chance. I hope you get to feeling better real soon! Marcie amit7017w <amit7017w (DOT) co.in> wrote: i am on ldn 3 mg now .its the 8 th day . i think i am having a relapse ? giddiness and vertigo,spasticity and headaches . ] i ! dont know when it will clear . i was better on avonex ?? any suggestions please amit Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2007 Report Share Posted December 18, 2007 Art..or anyone, Do you know why Darvocet seems to be singled out as the only opiate compatible with LDN. Why would it not behave like the other opiate's that you should not take? Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2007 Report Share Posted December 18, 2007 Hi ,Darvocet was cleared for use by LDNers by Dr. Skip Lenz, a pharmacist and LDN expert. I suggest you contact him atslenzrph@...for his reasoning in the matter.Regards,Dudley From: S. E. Sent: Monday, December 17, 2007 10:17 PM low dose naltrexone Subject: [low dose naltrexone] Re: HI EVERYONE Art..or anyone, Do you know why Darvocet seems to be singled out as the only opiate compatible with LDN. Why would it not behave like the other opiate's that you should not take? Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2007 Report Share Posted December 18, 2007 That's basically the same question I used to ask. Didn't make sense to me either, but a few insisted it was okay. Art -- > > Art..or anyone, > Do you know why Darvocet seems to be singled out as the only opiate compatible with LDN. Why would it not behave like the other opiate's that you should not take? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2007 Report Share Posted December 18, 2007 Art, yes of course, LDN blocks the opioid receptors...and then the narcotics wouldn't work... Sometimes my fingers are faster than my brain Ingrid [low dose naltrexone] Re: HI EVERYONEIngrid,I think the opposite is true - narcotic pain-killers won't be as effective because of LDN.Art-->> Hi again amit> Painkillers?> I hope you stay away from narcotics painkillers,> LDN won't work if you use those.> > Ingrid> Never miss a thing. Make your home page. > http://www./r/hs> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Cristin ~ You need magnesium, there is a site that explains it, I will find it and post it for you ~ Hugs DStart the year off right. Easy ways to stay in shape in the new year. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Cristin ~ You need magnesium, there is a site that explains it, I will find it and post it for you ~ Hugs DStart the year off right. Easy ways to stay in shape in the new year. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Cristin, Is there another name for this condition? I have never heard of it. Lynda At 06:52 AM 1/4/2008, you wrote: >Hello everyone. My name is Cristin. I live in Ontario, Canada. I >had saline breast implants put in about 6 years ago now. I had them >removed 1 and a half years later. It was a terrible experience. I >was only 22 at the time. The only reason I wanted to have the >surgery was to have my breasts look like they did before I was >breastfeeding. I should have had a lift. The size was fine. The >surgeon told me that implants would definitly be a better choice. >Not only would it look like a lift but they would also look more >full and rounded. And I listened to him. After the surgery I was >in so much pain. I could not look after my daughter for a while. I >would need help lieing down and sitting up long after the doctor >said I would be in pain. When I finanlly removed the bandages, I >was disquested. They looked terrible. They were huge and covered >in veins. I cried and cried and went into depression for a while. >The surgeon said that he has never seen this happen before. And >that over time it should get better. I wanted them out. But then I >was scared. I looked on the interenet for photos and experiences of >this. They were not good. The surgeon told me that the best thing >to be done was to have another surgery to make them smaller and cut >out the biggest vein that was showing. I had this done. More >pain. Depression. They did look a little bit better, but not >much. After a little bit, the right implant would fall all the way >down to the right side when I would lie down. And when I was >standing, it was still moved over a considerable amount. The pain >got worse. To make all of this so much worse, I started >experiencing sympoms of Erythromelalgia. First in my feet, where my >feet got red and all of the veins came out. As well as alot of >pain. This spread to my hands, legs, arms, face. Basically my >whole body. I wanted the implants out. >I had the surgery to have them removed. >Even though I was extrememly scared of the outcome, and whether or >not there would be anything left, I went throught with it. >When I saw the result, I was astonished at first, because they were >alot smaller then I was used to. An A cup. I was a C 36 before any >surgeries. So I was not used to this. After a couple of weeks, the >size miraculously increased abit. I guess all of the tissue was >pushed in and tender. Anyways I am very happy that I had them >removed. I have no more pain in my breast. But I do have >Erythromelalgia. Which is a very painful and dibilitating >condition. The doctors dont know how to help me. I will help >myself. The worst decision that I made, was the decision to have >breast implants put in. >Has anyone else had Erythromelalgia as a result of the implant >surgery? >Have a wonderful day. >Cristin Filipuzzi > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Cristin, Is there another name for this condition? I have never heard of it. Lynda At 06:52 AM 1/4/2008, you wrote: >Hello everyone. My name is Cristin. I live in Ontario, Canada. I >had saline breast implants put in about 6 years ago now. I had them >removed 1 and a half years later. It was a terrible experience. I >was only 22 at the time. The only reason I wanted to have the >surgery was to have my breasts look like they did before I was >breastfeeding. I should have had a lift. The size was fine. The >surgeon told me that implants would definitly be a better choice. >Not only would it look like a lift but they would also look more >full and rounded. And I listened to him. After the surgery I was >in so much pain. I could not look after my daughter for a while. I >would need help lieing down and sitting up long after the doctor >said I would be in pain. When I finanlly removed the bandages, I >was disquested. They looked terrible. They were huge and covered >in veins. I cried and cried and went into depression for a while. >The surgeon said that he has never seen this happen before. And >that over time it should get better. I wanted them out. But then I >was scared. I looked on the interenet for photos and experiences of >this. They were not good. The surgeon told me that the best thing >to be done was to have another surgery to make them smaller and cut >out the biggest vein that was showing. I had this done. More >pain. Depression. They did look a little bit better, but not >much. After a little bit, the right implant would fall all the way >down to the right side when I would lie down. And when I was >standing, it was still moved over a considerable amount. The pain >got worse. To make all of this so much worse, I started >experiencing sympoms of Erythromelalgia. First in my feet, where my >feet got red and all of the veins came out. As well as alot of >pain. This spread to my hands, legs, arms, face. Basically my >whole body. I wanted the implants out. >I had the surgery to have them removed. >Even though I was extrememly scared of the outcome, and whether or >not there would be anything left, I went throught with it. >When I saw the result, I was astonished at first, because they were >alot smaller then I was used to. An A cup. I was a C 36 before any >surgeries. So I was not used to this. After a couple of weeks, the >size miraculously increased abit. I guess all of the tissue was >pushed in and tender. Anyways I am very happy that I had them >removed. I have no more pain in my breast. But I do have >Erythromelalgia. Which is a very painful and dibilitating >condition. The doctors dont know how to help me. I will help >myself. The worst decision that I made, was the decision to have >breast implants put in. >Has anyone else had Erythromelalgia as a result of the implant >surgery? >Have a wonderful day. >Cristin Filipuzzi > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Cristin, I just researched this, and am willing to bet that hyperbaric treatment is your best bet for recovery. Research this online. Lynda At 06:52 AM 1/4/2008, you wrote: >Hello everyone. My name is Cristin. I live in Ontario, Canada. I >had saline breast implants put in about 6 years ago now. I had them >removed 1 and a half years later. It was a terrible experience. I >was only 22 at the time. The only reason I wanted to have the >surgery was to have my breasts look like they did before I was >breastfeeding. I should have had a lift. The size was fine. The >surgeon told me that implants would definitly be a better choice. >Not only would it look like a lift but they would also look more >full and rounded. And I listened to him. After the surgery I was >in so much pain. I could not look after my daughter for a while. I >would need help lieing down and sitting up long after the doctor >said I would be in pain. When I finanlly removed the bandages, I >was disquested. They looked terrible. They were huge and covered >in veins. I cried and cried and went into depression for a while. >The surgeon said that he has never seen this happen before. And >that over time it should get better. I wanted them out. But then I >was scared. I looked on the interenet for photos and experiences of >this. They were not good. The surgeon told me that the best thing >to be done was to have another surgery to make them smaller and cut >out the biggest vein that was showing. I had this done. More >pain. Depression. They did look a little bit better, but not >much. After a little bit, the right implant would fall all the way >down to the right side when I would lie down. And when I was >standing, it was still moved over a considerable amount. The pain >got worse. To make all of this so much worse, I started >experiencing sympoms of Erythromelalgia. First in my feet, where my >feet got red and all of the veins came out. As well as alot of >pain. This spread to my hands, legs, arms, face. Basically my >whole body. I wanted the implants out. >I had the surgery to have them removed. >Even though I was extrememly scared of the outcome, and whether or >not there would be anything left, I went throught with it. >When I saw the result, I was astonished at first, because they were >alot smaller then I was used to. An A cup. I was a C 36 before any >surgeries. So I was not used to this. After a couple of weeks, the >size miraculously increased abit. I guess all of the tissue was >pushed in and tender. Anyways I am very happy that I had them >removed. I have no more pain in my breast. But I do have >Erythromelalgia. Which is a very painful and dibilitating >condition. The doctors dont know how to help me. I will help >myself. The worst decision that I made, was the decision to have >breast implants put in. >Has anyone else had Erythromelalgia as a result of the implant >surgery? >Have a wonderful day. >Cristin Filipuzzi > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Cristin, I just researched this, and am willing to bet that hyperbaric treatment is your best bet for recovery. Research this online. Lynda At 06:52 AM 1/4/2008, you wrote: >Hello everyone. My name is Cristin. I live in Ontario, Canada. I >had saline breast implants put in about 6 years ago now. I had them >removed 1 and a half years later. It was a terrible experience. I >was only 22 at the time. The only reason I wanted to have the >surgery was to have my breasts look like they did before I was >breastfeeding. I should have had a lift. The size was fine. The >surgeon told me that implants would definitly be a better choice. >Not only would it look like a lift but they would also look more >full and rounded. And I listened to him. After the surgery I was >in so much pain. I could not look after my daughter for a while. I >would need help lieing down and sitting up long after the doctor >said I would be in pain. When I finanlly removed the bandages, I >was disquested. They looked terrible. They were huge and covered >in veins. I cried and cried and went into depression for a while. >The surgeon said that he has never seen this happen before. And >that over time it should get better. I wanted them out. But then I >was scared. I looked on the interenet for photos and experiences of >this. They were not good. The surgeon told me that the best thing >to be done was to have another surgery to make them smaller and cut >out the biggest vein that was showing. I had this done. More >pain. Depression. They did look a little bit better, but not >much. After a little bit, the right implant would fall all the way >down to the right side when I would lie down. And when I was >standing, it was still moved over a considerable amount. The pain >got worse. To make all of this so much worse, I started >experiencing sympoms of Erythromelalgia. First in my feet, where my >feet got red and all of the veins came out. As well as alot of >pain. This spread to my hands, legs, arms, face. Basically my >whole body. I wanted the implants out. >I had the surgery to have them removed. >Even though I was extrememly scared of the outcome, and whether or >not there would be anything left, I went throught with it. >When I saw the result, I was astonished at first, because they were >alot smaller then I was used to. An A cup. I was a C 36 before any >surgeries. So I was not used to this. After a couple of weeks, the >size miraculously increased abit. I guess all of the tissue was >pushed in and tender. Anyways I am very happy that I had them >removed. I have no more pain in my breast. But I do have >Erythromelalgia. Which is a very painful and dibilitating >condition. The doctors dont know how to help me. I will help >myself. The worst decision that I made, was the decision to have >breast implants put in. >Has anyone else had Erythromelalgia as a result of the implant >surgery? >Have a wonderful day. >Cristin Filipuzzi > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Hi Cristin, My, my, what an ordeal you have been through! First of all, I want to congratulate you and being smart enough to make a decision to get rid of the implants fairly soon after you got them. We often fall prey to the persuasive words of those doctors, who sell implants like used car salesmen, and try to convince us that all the problems will resolve. They often don't, and get worse. Second, yes, there are women who experience the pain and burning in the hands and feet, and some women not only have extremity pain, but burning pain through their body. I have heard that often, mostly with women who have had silicone gel, but it has been an issue women have dealt with. I believe that this condition can go into remission, like many autoimmune diseases can, but it depends on alot of factors, like diet, stress, your detoxing efforts, and your mental state (having a positive outlook and remaining hopeful). Do you know if the entire capsule surrounding the implant was removed at explant? This is one aspect of explant that is really important, but often overlooked by most doctors. A residual capsule can harbor bacteria and silicone degradation products that can keep the immune system exerted in a negative way. You are in good company in Ontario Canada! Dr. Pierre Blais, one of our most admired supporters in this ugly implant battle, lives and works in Ontario. You can see his articles regarding implants in our files and many places on the internet. If you do a search for his name, I am sure you will find tons. It would be nice if you could be in contact with him, but he is not a practicing doctor, but a medical scientist and researcher. He can tell you more about a retained scar capsule. So, that is the first thing I would find out. If you can get a copy of your operative report, you can search it for clues and a discussion of what was done with your scar capsule. Stay hopeful that you can win this battle~ if there is any possibility that this condition can go into remission, (and there is), then keep that as your goal always, and you'll get there! Patty > > Hello everyone. My name is Cristin. I live in Ontario, Canada. I > had saline breast implants put in about 6 years ago now. I had them > removed 1 and a half years later. It was a terrible experience. I > was only 22 at the time. The only reason I wanted to have the > surgery was to have my breasts look like they did before I was > breastfeeding. I should have had a lift. The size was fine. The > surgeon told me that implants would definitly be a better choice. > Not only would it look like a lift but they would also look more > full and rounded. And I listened to him. After the surgery I was > in so much pain. I could not look after my daughter for a while. I > would need help lieing down and sitting up long after the doctor > said I would be in pain. When I finanlly removed the bandages, I > was disquested. They looked terrible. They were huge and covered > in veins. I cried and cried and went into depression for a while. > The surgeon said that he has never seen this happen before. And > that over time it should get better. I wanted them out. But then I > was scared. I looked on the interenet for photos and experiences of > this. They were not good. The surgeon told me that the best thing > to be done was to have another surgery to make them smaller and cut > out the biggest vein that was showing. I had this done. More > pain. Depression. They did look a little bit better, but not > much. After a little bit, the right implant would fall all the way > down to the right side when I would lie down. And when I was > standing, it was still moved over a considerable amount. The pain > got worse. To make all of this so much worse, I started > experiencing sympoms of Erythromelalgia. First in my feet, where my > feet got red and all of the veins came out. As well as alot of > pain. This spread to my hands, legs, arms, face. Basically my > whole body. I wanted the implants out. > I had the surgery to have them removed. > Even though I was extrememly scared of the outcome, and whether or > not there would be anything left, I went throught with it. > When I saw the result, I was astonished at first, because they were > alot smaller then I was used to. An A cup. I was a C 36 before any > surgeries. So I was not used to this. After a couple of weeks, the > size miraculously increased abit. I guess all of the tissue was > pushed in and tender. Anyways I am very happy that I had them > removed. I have no more pain in my breast. But I do have > Erythromelalgia. Which is a very painful and dibilitating > condition. The doctors dont know how to help me. I will help > myself. The worst decision that I made, was the decision to have > breast implants put in. > Has anyone else had Erythromelalgia as a result of the implant > surgery? > Have a wonderful day. > Cristin Filipuzzi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Hi Cristin, My, my, what an ordeal you have been through! First of all, I want to congratulate you and being smart enough to make a decision to get rid of the implants fairly soon after you got them. We often fall prey to the persuasive words of those doctors, who sell implants like used car salesmen, and try to convince us that all the problems will resolve. They often don't, and get worse. Second, yes, there are women who experience the pain and burning in the hands and feet, and some women not only have extremity pain, but burning pain through their body. I have heard that often, mostly with women who have had silicone gel, but it has been an issue women have dealt with. I believe that this condition can go into remission, like many autoimmune diseases can, but it depends on alot of factors, like diet, stress, your detoxing efforts, and your mental state (having a positive outlook and remaining hopeful). Do you know if the entire capsule surrounding the implant was removed at explant? This is one aspect of explant that is really important, but often overlooked by most doctors. A residual capsule can harbor bacteria and silicone degradation products that can keep the immune system exerted in a negative way. You are in good company in Ontario Canada! Dr. Pierre Blais, one of our most admired supporters in this ugly implant battle, lives and works in Ontario. You can see his articles regarding implants in our files and many places on the internet. If you do a search for his name, I am sure you will find tons. It would be nice if you could be in contact with him, but he is not a practicing doctor, but a medical scientist and researcher. He can tell you more about a retained scar capsule. So, that is the first thing I would find out. If you can get a copy of your operative report, you can search it for clues and a discussion of what was done with your scar capsule. Stay hopeful that you can win this battle~ if there is any possibility that this condition can go into remission, (and there is), then keep that as your goal always, and you'll get there! Patty > > Hello everyone. My name is Cristin. I live in Ontario, Canada. I > had saline breast implants put in about 6 years ago now. I had them > removed 1 and a half years later. It was a terrible experience. I > was only 22 at the time. The only reason I wanted to have the > surgery was to have my breasts look like they did before I was > breastfeeding. I should have had a lift. The size was fine. The > surgeon told me that implants would definitly be a better choice. > Not only would it look like a lift but they would also look more > full and rounded. And I listened to him. After the surgery I was > in so much pain. I could not look after my daughter for a while. I > would need help lieing down and sitting up long after the doctor > said I would be in pain. When I finanlly removed the bandages, I > was disquested. They looked terrible. They were huge and covered > in veins. I cried and cried and went into depression for a while. > The surgeon said that he has never seen this happen before. And > that over time it should get better. I wanted them out. But then I > was scared. I looked on the interenet for photos and experiences of > this. They were not good. The surgeon told me that the best thing > to be done was to have another surgery to make them smaller and cut > out the biggest vein that was showing. I had this done. More > pain. Depression. They did look a little bit better, but not > much. After a little bit, the right implant would fall all the way > down to the right side when I would lie down. And when I was > standing, it was still moved over a considerable amount. The pain > got worse. To make all of this so much worse, I started > experiencing sympoms of Erythromelalgia. First in my feet, where my > feet got red and all of the veins came out. As well as alot of > pain. This spread to my hands, legs, arms, face. Basically my > whole body. I wanted the implants out. > I had the surgery to have them removed. > Even though I was extrememly scared of the outcome, and whether or > not there would be anything left, I went throught with it. > When I saw the result, I was astonished at first, because they were > alot smaller then I was used to. An A cup. I was a C 36 before any > surgeries. So I was not used to this. After a couple of weeks, the > size miraculously increased abit. I guess all of the tissue was > pushed in and tender. Anyways I am very happy that I had them > removed. I have no more pain in my breast. But I do have > Erythromelalgia. Which is a very painful and dibilitating > condition. The doctors dont know how to help me. I will help > myself. The worst decision that I made, was the decision to have > breast implants put in. > Has anyone else had Erythromelalgia as a result of the implant > surgery? > Have a wonderful day. > Cristin Filipuzzi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Cristin: Check this link for hyperbarics for your condition. http://archive.rubicon-foundation.org/803 Lynda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Cristin: Check this link for hyperbarics for your condition. http://archive.rubicon-foundation.org/803 Lynda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Hi Cristin- Wow, you have been through a lot! I'm so sorry to hear of your ordeal and that you are still dealing with so many after-effects of breast implants. I can't believe that your surgeon actually removed a blood vessel! You poor thing! It sound like the ladies are giving you some ideas on treatment for your condition, but I actually just wanted to encourage you to get your story out there. So many women are getting breast implants and don't know the dangers, there are so many we are learning about. More and more each day! Your story is very intriguing and I believe could help a lot of women change their mind about getting implants. So, if you are ever interested in writing your story (and it looks like you already did!) you should get it out there on some websites. Patty, our group leader can get it posted on this forum under the " files " section. I think you would just email it to her or give her permission to post it there. A few other places to have it posted would be humanticsfoundation.com. You can email your story to ilena.rose@... (that's gmail just in case it doesn't come up,) and also to explantation.com. Just go to " stories " then all the way to the bottom to " your story " and you can submit your story to Jeena and she will post it. The more we get out there and tell our stories, the more likely women will see our stories and hopefully change their minds about getting implants. Good luck with everything! ~Krista > > Hello everyone. My name is Cristin. I live in Ontario, Canada. I > had saline breast implants put in about 6 years ago now. I had them > removed 1 and a half years later. It was a terrible experience. I > was only 22 at the time. The only reason I wanted to have the > surgery was to have my breasts look like they did before I was > breastfeeding. I should have had a lift. The size was fine. The > surgeon told me that implants would definitly be a better choice. > Not only would it look like a lift but they would also look more > full and rounded. And I listened to him. After the surgery I was > in so much pain. I could not look after my daughter for a while. I > would need help lieing down and sitting up long after the doctor > said I would be in pain. When I finanlly removed the bandages, I > was disquested. They looked terrible. They were huge and covered > in veins. I cried and cried and went into depression for a while. > The surgeon said that he has never seen this happen before. And > that over time it should get better. I wanted them out. But then I > was scared. I looked on the interenet for photos and experiences of > this. They were not good. The surgeon told me that the best thing > to be done was to have another surgery to make them smaller and cut > out the biggest vein that was showing. I had this done. More > pain. Depression. They did look a little bit better, but not > much. After a little bit, the right implant would fall all the way > down to the right side when I would lie down. And when I was > standing, it was still moved over a considerable amount. The pain > got worse. To make all of this so much worse, I started > experiencing sympoms of Erythromelalgia. First in my feet, where my > feet got red and all of the veins came out. As well as alot of > pain. This spread to my hands, legs, arms, face. Basically my > whole body. I wanted the implants out. > I had the surgery to have them removed. > Even though I was extrememly scared of the outcome, and whether or > not there would be anything left, I went throught with it. > When I saw the result, I was astonished at first, because they were > alot smaller then I was used to. An A cup. I was a C 36 before any > surgeries. So I was not used to this. After a couple of weeks, the > size miraculously increased abit. I guess all of the tissue was > pushed in and tender. Anyways I am very happy that I had them > removed. I have no more pain in my breast. But I do have > Erythromelalgia. Which is a very painful and dibilitating > condition. The doctors dont know how to help me. I will help > myself. The worst decision that I made, was the decision to have > breast implants put in. > Has anyone else had Erythromelalgia as a result of the implant > surgery? > Have a wonderful day. > Cristin Filipuzzi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Hi Cristin- Wow, you have been through a lot! I'm so sorry to hear of your ordeal and that you are still dealing with so many after-effects of breast implants. I can't believe that your surgeon actually removed a blood vessel! You poor thing! It sound like the ladies are giving you some ideas on treatment for your condition, but I actually just wanted to encourage you to get your story out there. So many women are getting breast implants and don't know the dangers, there are so many we are learning about. More and more each day! Your story is very intriguing and I believe could help a lot of women change their mind about getting implants. So, if you are ever interested in writing your story (and it looks like you already did!) you should get it out there on some websites. Patty, our group leader can get it posted on this forum under the " files " section. I think you would just email it to her or give her permission to post it there. A few other places to have it posted would be humanticsfoundation.com. You can email your story to ilena.rose@... (that's gmail just in case it doesn't come up,) and also to explantation.com. Just go to " stories " then all the way to the bottom to " your story " and you can submit your story to Jeena and she will post it. The more we get out there and tell our stories, the more likely women will see our stories and hopefully change their minds about getting implants. Good luck with everything! ~Krista > > Hello everyone. My name is Cristin. I live in Ontario, Canada. I > had saline breast implants put in about 6 years ago now. I had them > removed 1 and a half years later. It was a terrible experience. I > was only 22 at the time. The only reason I wanted to have the > surgery was to have my breasts look like they did before I was > breastfeeding. I should have had a lift. The size was fine. The > surgeon told me that implants would definitly be a better choice. > Not only would it look like a lift but they would also look more > full and rounded. And I listened to him. After the surgery I was > in so much pain. I could not look after my daughter for a while. I > would need help lieing down and sitting up long after the doctor > said I would be in pain. When I finanlly removed the bandages, I > was disquested. They looked terrible. They were huge and covered > in veins. I cried and cried and went into depression for a while. > The surgeon said that he has never seen this happen before. And > that over time it should get better. I wanted them out. But then I > was scared. I looked on the interenet for photos and experiences of > this. They were not good. The surgeon told me that the best thing > to be done was to have another surgery to make them smaller and cut > out the biggest vein that was showing. I had this done. More > pain. Depression. They did look a little bit better, but not > much. After a little bit, the right implant would fall all the way > down to the right side when I would lie down. And when I was > standing, it was still moved over a considerable amount. The pain > got worse. To make all of this so much worse, I started > experiencing sympoms of Erythromelalgia. First in my feet, where my > feet got red and all of the veins came out. As well as alot of > pain. This spread to my hands, legs, arms, face. Basically my > whole body. I wanted the implants out. > I had the surgery to have them removed. > Even though I was extrememly scared of the outcome, and whether or > not there would be anything left, I went throught with it. > When I saw the result, I was astonished at first, because they were > alot smaller then I was used to. An A cup. I was a C 36 before any > surgeries. So I was not used to this. After a couple of weeks, the > size miraculously increased abit. I guess all of the tissue was > pushed in and tender. Anyways I am very happy that I had them > removed. I have no more pain in my breast. But I do have > Erythromelalgia. Which is a very painful and dibilitating > condition. The doctors dont know how to help me. I will help > myself. The worst decision that I made, was the decision to have > breast implants put in. > Has anyone else had Erythromelalgia as a result of the implant > surgery? > Have a wonderful day. > Cristin Filipuzzi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Perfect Lynda! This sounds like the way to go. Patty > > Cristin: > > Check this link for hyperbarics for your condition. > > http://archive.rubicon-foundation.org/803 > > > Lynda > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Perfect Lynda! This sounds like the way to go. Patty > > Cristin: > > Check this link for hyperbarics for your condition. > > http://archive.rubicon-foundation.org/803 > > > Lynda > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Hi Traci. I am in Brampton. Have you had saline implants before? Have a nice day. CristinTM McIntosh <prowlermeow@...> wrote: Hi Cristin,Where are you? I'm in Mississauga just outside of Toronto.Hugs,Tracicristinfilipuzzi7 <cristinfilipuzzi7 (DOT) ca> wrote: Hello everyone. My name is Cristin. I live in Ontario, Canada. I had saline breast implants put in about 6 years ago now. I had them removed 1 and a half years later. It was a terrible experience. I was only 22 at the time. The only reason I wanted to have the surgery was to have my breasts look like they did before I was breastfeeding. I should have had a lift. The size was fine. The surgeon told me that implants would definitly be a better choice. Not only would it look like a lift but they would also look more full and rounded. And I listened to him. After the surgery I was in so much pain. I could not look after my daughter for a while. I would need help lieing down and sitting up long after the doctor said I would be in pain. When I finanlly removed the bandages, I was disquested. They looked terrible. They were huge and covered in veins. I cried and cried and went into depression for a while. The surgeon said that he has never seen this happen before. And that over time it should get better. I wanted them out. But then I was scared. I looked on the interenet for photos and experiences of this. They were not good. The surgeon told me that the best thing to be done was to have another surgery to make them smaller and cut out the biggest vein that was showing. I had this done. More pain. Depression. They did look a little bit better, but not much. After a little bit, the right implant would fall all the way down to the right side when I would lie down. And when I was standing, it was still moved over a considerable amount. The pain got worse. To make all of this so much worse, I started experiencing sympoms of Erythromelalgia. First in my feet, where my feet got red and all of the veins came out. As well as alot of pain. This spread to my hands, legs, arms, face. Basically my whole body. I wanted the implants out. I had the surgery to have them removed. Even though I was extrememly scared of the outcome, and whether or not there would be anything left, I went throught with it. When I saw the result, I was astonished at first, because they were alot smaller then I was used to. An A cup. I was a C 36 before any surgeries. So I was not used to this. After a couple of weeks, the size miraculously increased abit. I guess all of the tissue was pushed in and tender. Anyways I am very happy that I had them removed. I have no more pain in my breast. But I do have Erythromelalgia. Which is a very painful and dibilitating condition. The doctors dont know how to help me. I will help myself. The worst decision that I made, was the decision to have breast implants put in. Has anyone else had Erythromelalgia as a result of the implant surgery? Have a wonderful day.Cristin FilipuzziNo hour of life is wasted that is spent in the saddle. ~Winston Churchill Never miss a thing. Make your homepage. Looking for the perfect gift? Give the gift of Flickr! Quote Link to comment Share on other sites More sharing options...
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