Hi Everyone

[Guest guest]

Hi ita:

Welcome to our wonderful group of caring, loving, and compassionate

people.

I can understand your fears. I too was scared to death when I got

diagnosed with RA. I had never heard of it, so I went on line to check

it out, got so damn scared I never looked again for 4 years.

It is very overwhelming when we get a disease such as these. You are

heading in the right direction when you find yourself a wonderful,

caring, Rheumy. That makes all the dif. in the world. The main thing

is for your Rheumy to start to treat your diseases aggressively. That

is what mine did.

I have had RA for 6 years now. I am 69 year old woman. I have learned

to live with RA as best as I can. I had to really listen to my Rheumy

who takes very good care of me. The one thing I have learned to deal

with is to pace myself each day. I do lie down or take a nap each day.

On the days I feel good, I just do one thing that I have wanted to do,

but pace myself no matter what. I use to go, go, go, and then pay

dearly by being in bed 3 or 4 days because I wore myself out. We all

learn to deal with what we have, as best we can, and try to live our

lives. I just take one day at a time, as this is all I can handle. I

am finally taking the right combination of meds. that are working well

for me. Each one of us has to find what works best for us.

Don't give up hope. Just listen to your Rheumy. If you don't like that

dr., then find yourself one that you do like. You have to really love

your Rheumy. That is half the battle to feeling better.

Wishing you pain free days ahead. Just remember to rest each day, as

this is what we need to do. It does no good to be so tired that you

can't function.

Hugs,

Barbara

>

> I'm new here...and very frightened. Don't know whats ahead for me. I'm

45 mother of 4 (27,23,10 & 6 yrs old) I was diagnosed with Fibromyalgia

and Chronic Fatigue about 4 years ago....although I've had symptoms for

about almost 20 yrs nows. I recently sprained my left ring finger (3

months ago) and it has not healed. After several visits to my doctor &

chiropractor. All fingers on my left hand now look bruised and swollen

and I am not able to make a fist.....it's painful and I feel tightness

when trying. I was just diagnosed with RA and waiting to see a

specialist. I read up some on RA and have many symptoms. I don't know

how to cope with all of this...I feel like a freak when in public and

can't use my left hand correctly. How does everyone hear deal with it ?

Am I going to heal from my hand? Please help with advise.

>

> ita

>

[Guest guest]

Hi ita,

Welcome to the group, you've definately come to the right place. You'll get all

the support you need and plenty people to share your ups and downs with.

 

I cannot add any more than Barbara has, she has said it all.

 

Oh yes I can. As far as your hand is concerned, my 2 hands are badly deformed

due to the RA as are other bits and bobs. The quicker you get drug treatment,

the better to ward of joint damage. No matter what this throws at you, you will

cope, just stay strong and listen to what your body is telling you.

 

You've got your hands full with your family, but get them involved.

 

I wish you all the very best ita.

x

From: juanita <javismommy@...>

Subject: [ ] Hi everyone

Date: Saturday, 4 April, 2009, 3:49 AM

I'm new here...and very frightened. Don't know whats ahead for me. I'm 45 mother

of 4 (27,23,10 & 6 yrs old) I was diagnosed with Fibromyalgia and Chronic

Fatigue about 4 years ago....although I've had symptoms for about almost 20 yrs

nows. I recently sprained my left ring finger (3 months ago) and it has not

healed. After several visits to my doctor & chiropractor. All fingers on my left

hand now look bruised and swollen and I am not able to make a fist.....it' s

painful and I feel tightness when trying. I was just diagnosed with RA and

waiting to see a specialist. I read up some on RA and have many symptoms. I

don't know how to cope with all of this...I feel like a freak when in public and

can't use my left hand correctly. How does everyone hear deal with it ? Am I

going to heal from my hand? Please help with advise.

ita

[Guest guest]

Welcome, ita. Did your blood test positive for RA? Have you seen an

Orthopaedic for your hand? IMHO, its unusual for RA to affect just one side of

your body only and the way you are describing your left hand, it sounds like

there might be something else going on with it. You still may have RA, but I'm

concerned about your description of your hand. Keep us posted. We care.

Doreen

I'm new here...and very frightened. Don't know whats ahead for me. I'm 45

mother of 4 (27,23,10 & 6 yrs old) I was diagnosed with Fibromyalgia and Chronic

Fatigue about 4 years ago....although I've had symptoms for about almost 20 yrs

nows. I recently sprained my left ring finger (3 months ago) and it has not

healed. After several visits to my doctor & chiropractor. All fingers on my left

hand now look bruised and swollen and I am not able to make a fist.....it's

painful and I feel tightness when trying. I was just diagnosed with RA and

waiting to see a specialist. I read up some on RA and have many symptoms. I

don't know how to cope with all of this...I feel like a freak when in public and

can't use my left hand correctly. How does everyone hear deal with it ? Am I

going to heal from my hand? Please help with advise.

ita

[Guest guest]

RA affected me that way. Just my left side was affected at first. Atypical

RA can do that. My RA factor was through the roof according to my regular

doc who promptly sent me to a specialist. My left wrist and elbow was what

was affected first. I looked 10 months pregnant in the elbow!! It would

not bend far to put it mildly. The wrist was bad...not quite as bad as the

elbow though. It did go away though eventually.

Sorry I have not checked in for a while. I passed out a while back and I am

still sore as all get out from ending up on the floor. I still have no idea

what caused the fall. I was mildly dizzy and grabbed the door frame and

that is the last thing I remember until I woke up on the floor. Nothing was

broken thank goodness at least. I will see my regular doc next week to see

if he has any ideas. The last thing they told me was my diaphragm on the

right side was probably paralyzed. It is up to where the top lobe of the

lung is the only one that can get oxygen. I was not short of breath though

when I fell so I can rule that out.

Welcome to everyone I missed!

[ ] Re: Hi everyone

Welcome, ita. Did your blood test positive for RA? Have you seen an

Orthopaedic for your hand? IMHO, its unusual for RA to affect just one side

of your body only

[Guest guest]

Thanks, - I stand corrected. I guess there is more to this RA than just

the " typical " stuff. Although I should know that by now. Sorry. Hope you are

able to get to the bottom of why you passed out - that is scary.....Doreen

>

> RA affected me that way. Just my left side was affected at first.

> Atypical RA can do that. My RA factor was through the roof

> according to my regular doc who promptly sent me to a specialist.

> My left wrist and elbow was what was affected first. I looked 10

> months pregnant in the elbow!! It would not bend far to put it

> mildly. The wrist was bad...not quite as bad as the elbow though.

> It did go away though eventually.

>

> Sorry I have not checked in for a while. I passed out a while back

> and I am still sore as all get out from ending up on the floor. I

> still have no idea what caused the fall. I was mildly dizzy and

> grabbed the door frame and that is the last thing I remember until

> I woke up on the floor. Nothing was broken thank goodness at

> least. I will see my regular doc next week to see if he has any

> ideas. The last thing they told me was my diaphragm on the right

> side was probably paralyzed. It is up to where the top lobe of the

> lung is the only one that can get oxygen. I was not short of

> breath though when I fell so I can rule that out.

>

> Welcome to everyone I missed!

>

>

>

> ----- Original Message -----

> From: " Mimi " <mimi212@...>

>

> Welcome, ita. Have you seen an Orthopaedic for your hand? IMHO,

> its unusual for RA to affect just one side of your body only

>

[Guest guest]

I did not know that either until I got diagnosed. He is still not sure

which RA variation I have. I am going to see my regular doc tomorrow about

the passing out. I am just grateful it was nothing worse than a bruise!!

[ ] Re: Hi everyone

Thanks, - I stand corrected. I guess there is more to this RA than

just the " typical " stuff. Although I should know that by now. Sorry. Hope

you are able to get to the bottom of why you passed out - that is

scary.....Doreen

[Guest guest]

Hi Joanne!

So glad to see you posting here again...I will check out your pictures

again on Facebook. I've seen your watercolors and they are really great!

You deserved first place! Good luck on your next show!

I am really tickled to hear that you are feeling good once again. Those

Vitamin B's are pretty important, and in fact, I'm thinking I need to

start making my kefir again. It's a great source of some B vitamins,

and my hair got thicker and healthier while I was on it. I'm so glad

you are sleeping through the night! That's wonderful. It does feel

good to feel good again and I'm really proud of you for going the

distance and making such a valiant effort to get better.

You've been a tiger on that candida diet. You've got willpower that is

for sure! I wish I had your willpower when it comes to avoiding sugar.

I can fast with the best of them, but sugar tempts me just a little bit.

I have kids in the house....that says it all. My son loves to make

chocolate chip cookies.

Oh, the trees in Utah...they are Aspens in their glorious fall color.

We have tons of aspens on our property.

We are getting ready to head up there probably in a few weeks. Can't

wait!

Take care Joanne and thanks for giving us an update that is so

encouraging! You found your answers....that is what counts!

For our new ladies, could you share with us what you think helped you

recover your health the most since explant?

Thanks Joanne!

Hugs,

Patty

>

> Haven't posted in so long. I love your pictures on facebook, Patty.

What are those yellow trees in Utah? I posted some new pics from my trip

to Portland for my son's graduation and the birth of my new

grandaughter. It was a wonderful trip.

>

> I am Sleeping!!!!!! I never thought I would sleep again but I truly am

sleeping a full 8 hours most nights. All the tingling and burning

sensation are still gone since doing the vitamin B's. Amazing what sleep

will do for you. I think I have been deficient most of my life. I

haven't been doing anymore detoxing or fasting and I am still eating a

little grains and some dairy but for the most part I remain on the

candida diet (scared to death to ever eat sugar again).

>

> Hope you are all well. I got a first place award for one of my

watercolors at my last art association meeting and hope to win again

tonight. It feels so good to feel good again.

>

> Congratulations on your school, Patty. I can't imagine going back to

school. Maybe for art!

>

> Hello to Dede too!

>

> Hugs,

> Joanne

>

[Guest guest]

Thanks Patty,

Appreciate you being here and all the help that you give. Thanks for the

comments on my photos. I walk 3 miles every other day to get those pics. Forget

the gym!

Take care,

Love,

Joanne

-- In , " glory2glory1401 " <glory2glory1401@...>

wrote:

>

> Hi Joanne!

> So glad to see you posting here again...I will check out your pictures

> again on Facebook. I've seen your watercolors and they are really great!

> You deserved first place! Good luck on your next show!

>

> I am really tickled to hear that you are feeling good once again. Those

> Vitamin B's are pretty important, and in fact, I'm thinking I need to

> start making my kefir again. It's a great source of some B vitamins,

> and my hair got thicker and healthier while I was on it. I'm so glad

> you are sleeping through the night! That's wonderful. It does feel

> good to feel good again and I'm really proud of you for going the

> distance and making such a valiant effort to get better.

>

> You've been a tiger on that candida diet. You've got willpower that is

> for sure! I wish I had your willpower when it comes to avoiding sugar.

> I can fast with the best of them, but sugar tempts me just a little bit.

> I have kids in the house....that says it all. My son loves to make

> chocolate chip cookies.

>

> Oh, the trees in Utah...they are Aspens in their glorious fall color.

> We have tons of aspens on our property.

> We are getting ready to head up there probably in a few weeks. Can't

> wait!

>

> Take care Joanne and thanks for giving us an update that is so

> encouraging! You found your answers....that is what counts!

>

> For our new ladies, could you share with us what you think helped you

> recover your health the most since explant?

> Thanks Joanne!

> Hugs,

> Patty

>

>

> >

> > Haven't posted in so long. I love your pictures on facebook, Patty.

> What are those yellow trees in Utah? I posted some new pics from my trip

> to Portland for my son's graduation and the birth of my new

> grandaughter. It was a wonderful trip.

> >

> > I am Sleeping!!!!!! I never thought I would sleep again but I truly am

> sleeping a full 8 hours most nights. All the tingling and burning

> sensation are still gone since doing the vitamin B's. Amazing what sleep

> will do for you. I think I have been deficient most of my life. I

> haven't been doing anymore detoxing or fasting and I am still eating a

> little grains and some dairy but for the most part I remain on the

> candida diet (scared to death to ever eat sugar again).

> >

> > Hope you are all well. I got a first place award for one of my

> watercolors at my last art association meeting and hope to win again

> tonight. It feels so good to feel good again.

> >

> > Congratulations on your school, Patty. I can't imagine going back to

> school. Maybe for art!

> >

> > Hello to Dede too!

> >

> > Hugs,

> > Joanne

> >

>

[Guest guest]

Hello Joanne ! ! !

You sound so awesome ! ! It is so nice to see

people get their healthy back ! !

I am so glad you had a good trip ! I will have

to check out all your new pics on FB.

Which paintings did you win with ? ? All of

your artwork is incredible, you are so talented ! !

Hugs

Dede**************Recession-proof vacation ideas. Find free things to do in the U.S. (http://travel.aol.com/travel-ideas/domestic/national-tourism-week?ncid=emlcntustrav00000002)

[Guest guest]

Hi Dede,

I got the award for the water scene one with the house on the stilts. Thanks for

your comments.

Hope you are well,

Hugs,

Joanne

>

> Hello Joanne ! ! !

> You sound so awesome ! ! It is so nice to see

> people get their healthy back ! !

> I am so glad you had a good trip ! I will have

> to check out all your new pics on FB.

> Which paintings did you win with ? ? All of

> your artwork is incredible, you are so talented ! !

> Hugs

> Dede

>

>

> **************

> Recession-proof vacation ideas. Find free things to do

> in the U.S.

>

(http://travel.aol.com/travel-ideas/domestic/national-tourism-week?ncid=emlcntus\

trav00000002)

>

[Guest guest]

Welcome Mattie.  I was sorry to read that you have all those diseases. 

Sometimes it seems like when it rains it pours.

 

Nice to meet you, and look forward to your posts.

 

Hugs,

 

Barbara

From: mattiemayson <mattiemayson@...>

Subject: [ ] Hi everyone

Date: Wednesday, March 10, 2010, 8:52 AM

 

Hi, just wanted to say hello, I'm a new member who has had lupus, arthritis,

fibro, and raynauld's for 15 years now. Thought I'd love to find some support

and be able to offer any advice I can to people.

-Mattie

[Guest guest]

Hi Mattie!

I don't post often, as I am still kind of new to RA. I also have type 1

diabetes, hypothyroid, fibro, and I suspect sjogren's. Sometimes I feel like

one big autoimmune disease!! It's overwhelming. This is a very good group and

I'm sure you'll find support here. Welcome!

Jodie

>

> Hi, just wanted to say hello, I'm a new member who has had lupus, arthritis,

fibro, and raynauld's for 15 years now. Thought I'd love to find some support

and be able to offer any advice I can to people.

>

>

>

> -Mattie

>

[Guest guest]

Carol,  I would get the flu shot.  I am a nurse working in the hospital and I

get it as soon as available. Thank goodness, as I am home with a little bug now

and am going directly to antibiotics (generally a Z-pack).  The complications

from a true influenza for those of us on immunosuppressive medications can be

life threatening.  I got mine back in September, and did not even have a site

reaction.  My Rhuemy suggests, actually insists, I get the flu shots as soon as

available.  Being a nurse, anything I can do to avoid being intubated due to

overwhelming pnueamonia is a must. Hope you get well fast.

Dale Ellen

[Guest guest]

Thanks Ellen you can be sure I will not miss getting one as soon as I am over

this.

Carol

[ ] Hi Everyone

Carol, I would get the flu shot. I am a nurse working in the hospital and I

get it as soon as available. Thank goodness, as I am home with a little bug now

and am going directly to antibiotics (generally a Z-pack). The complications

from a true influenza for those of us on immunosuppressive medications can be

life threatening. I got mine back in September, and did not even have a site

reaction. My Rhuemy suggests, actually insists, I get the flu shots as soon as

available. Being a nurse, anything I can do to avoid being intubated due to

overwhelming pnueamonia is a must. Hope you get well fast.

Dale Ellen

[Guest guest]

Congratulations spence and I hope your good health can continue

Hi Everyone

Hi............

Just a follow up to my Sotto Pelle inserts. A month plus into this treatment

and my numbers have increased alot. Before my testosterone levels were 150ish,

and now my testosterone levels are at 858. I am very happy that the blood test

results are very positive.

A year of fighting these numbers and finally something is working....

Spence

Reply to sender | Reply to group | Reply via web post | Start a New Topic

[The entire original message is not included]