Hi All

[Guest guest]

What a wonderful idea, Sophie! Only problem is she's 3 so she's not in

school yet (she does go to daycare while I'm still trying to hold onto my

job LOL). I'll still try to call though and see if they may at least be

able to point me in the right direction. We live in a rather large city,

but it's just stock full of retired people, so we don't have very many pedi

services here.

I haven't much of a problem finding PT/pool therapy... I was able to find

that the second place we called. It's a half hour away, but better than the

3 hours we have to travel for our pedi rheumatologist. We went for the

initial eval yesterday and the first pool therapy session today. Then

straight for her first session of MRI studies. *sigh* I'll just be glad when

we can get into some kind of routine after all this initial work-up stuff.

~Jenn

-- Re: Hi all

Hi Jenn,

We live in a small rural community, and we had to travel to our

Children's hospital where my daughter's rheumy is located for PT.

The local PT was afraid to touch her B/c she had never seen a child

With JRA. Our schools here have an OT for kids with special needs.

Check with the school system for a referral to a pediatric OT. I

Think it is pretty common to have an OT in the school system these

Days.

Take care.

Sophie

>

> Hi everyone

>

> I just joined the loop-- my daughter, Jordan, has just recently

Been

> diagnosed with polyarticular arthritis within this past week. I've

> been pulling my hair out trying to find a pediactric occupational

> therapist. Does anyone have any good ideas as to where I can

Go/who I

> can call to try to find one? Her pedi rheumatologist is in another

> county, and the only place they know of isn't accepting new

Patients.

> I've called our health insurance company (Cigna) and they were of

No

> help and I have called tons of rehab facilities in our area and

> everyone just gives me the same answer... " we don't have an OT, but

We

> can incorporate that into our PT program " . Well, she needs hand

> splints and without OT, she can't get them... Or so I'm told. Any

> suggestions would be greatly appreciated! I'm just at a loss and

So

> overwhelmed and frustrated with every aspect of this right now.

>

> Thanks!

>

> Jenn

>

[Guest guest]

Hi

I have in the past belonged to a different type of group (geared for

children's clothes hahaha) then when all this started happening I really

missed the support of the loop, but was not really wanting to go back to

that one because they really don't understand what I'm going through. I was

glad when I found this one. We're in Melbourne, Florida. I've tried

calling two branches of one local hospital and they don't have pedi OT or

pool therapy. The other local hospital is the one that isn't accepting new

patients.

As far as the splints, I'm not sure if she was referring to the Dyna splints

or not? She just said resting hand splints for her to wear when she's

napping and sleeping. That would be great if you could send me his

information- it definitely wouldn't hurt to try calling anyway...the least

he could do is tell me " I don't know " .

Her regular pedi started her on Motrin until we could get in to see the pedi

rheumatologist, which was last Wednesday and she was then placed on Naproxen

She'll be starting Methotrexate this Friday- we initially had to wait for

more labs to be drawn, but they couldn't draw them all at the same time due

to her weight. We still have more that have to be drawn on Saturday but we

ll be able to start the Methotrexate this Friday (I wanted to wait until the

weekend so I could keep an eye on her to make sure there's no adverse

reactions). Her rheumo doc thinks there may be something else underlying

the JRA because she's loosing both extension and flexion in literally all

her joints small and large, so she's been running all sorts of labs. I've

never even heard of a lot of them. I'm kicking myself now because I didn't

jot them down so I could look them all up to see what they were. She had

MRI studies on her C-spine, ankles and feet today and we have to go back

next Tuesday to have MRIs of her hands and wrists. It's just all so tiring

for her and I feel so badly for having to drag her through all this. She's

been a trooper though!

Thanks for the prayers~ a person can never have enough

~Jenn

-- Re: Hi all

Hi ! You'll find everyone here to be a blessing, my son was dianosed

in March with poly and I was so relieved to find support form this group.

Where are you located? We are in Oklahoma, my son goes to a pt/ot in the

hospital, try calling your local one to see if there is one there...are you

talking about the Dyna splints? My son just got them last week and is

supposedly one of the first kids with JRA to try them. So far so good, they

have helped a little in the short time he's been using them. If that's the

kind of splints you're talking about I can give you the guy's info that

fitted my son's splints, perhaps they can direct you to a local OT? Have

they started her on any meds yet? Sorry for all the questions, I know how

overwhelming this all is...you and your family are in my prayers.

Zack, 10, poly

<brinjo@...> wrote:

Hi everyone

I just joined the loop-- my daughter, Jordan, has just recently been

diagnosed with polyarticular arthritis within this past week. I've

been pulling my hair out trying to find a pediactric occupational

therapist. Does anyone have any good ideas as to where I can go/who I

can call to try to find one? Her pedi rheumatologist is in another

county, and the only place they know of isn't accepting new patients.

I've called our health insurance company (Cigna) and they were of no

help and I have called tons of rehab facilities in our area and

everyone just gives me the same answer... " we don't have an OT, but we

can incorporate that into our PT program " . Well, she needs hand

splints and without OT, she can't get them... or so I'm told. Any

suggestions would be greatly appreciated! I'm just at a loss and so

overwhelmed and frustrated with every aspect of this right now.

Thanks!

Jenn

Live each day to the fullest

like it's the last you'll ever see

lay your head down each night with no regrets

contented you will be

and Terry

Zack, Kyla, Niklas and Austen

aka the Terry crew

[Guest guest]

The beginning was really hard for us too. We only travel 1hr 45

minutes to the rheumy, but at the beginning the visits were every two

weeks, then four weeks until we got to six weeks. The interval

between appts varies with how well is doing--currently we are

at every 8 weeks. I used to think I would have to give up working

too, but once was on an effective " cocktail " of meds, things

got so much better. But it all took time.

Take care and good luck!

Sophie

> >

> > Hi everyone

> >

> > I just joined the loop-- my daughter, Jordan, has just recently

> Been

> > diagnosed with polyarticular arthritis within this past week.

I've

> > been pulling my hair out trying to find a pediactric occupational

> > therapist. Does anyone have any good ideas as to where I can

> Go/who I

> > can call to try to find one? Her pedi rheumatologist is in

another

> > county, and the only place they know of isn't accepting new

> Patients.

> > I've called our health insurance company (Cigna) and they were of

> No

> > help and I have called tons of rehab facilities in our area and

> > everyone just gives me the same answer... " we don't have an OT,

but

> We

> > can incorporate that into our PT program " . Well, she needs hand

> > splints and without OT, she can't get them... Or so I'm told. Any

> > suggestions would be greatly appreciated! I'm just at a loss and

> So

> > overwhelmed and frustrated with every aspect of this right now.

> >

> > Thanks!

> >

> > Jenn

> >

>

[Guest guest]

Jenn, that sounds just like the Dyna splints, my son wears them at night, they

'gently pull his hands up to stretch his wrist'. He's supposed to wear them for

8 hours to get the best results, we've done it gradually, trying to add more

time every night and last night was the first time he went the full 8

hours....here's the main office info for them-

phone-1-410-544-9530

770 Ritchie Highway, Suite W21

Severna Park, MD 21145-3923

That's smart to wait until Friday for the mtx, we had a home health care nurse

out at our house the day after he was diagnosed to start his injections of

it....I was still under the initial shock of learning what he had, don't get me

wrong, after 2 1/2 years of not knowing it was a blessing to find out so we

could begin treatments, but it all just seemed to happening to quickly in the

beginning.

Poor thing, I know it has to be done but it just seems like too much for them.

She sounds like a tough little girl, nothings gonna faze her in a couple years

=) Pool therapy sounds so awesome, I couldn't get my son to go b/c it was a

class of older folk and he's 10......he's not interested, lol

Good luck with the testing and mtx, I pray you'll see some improvemnts soon!

Zack, 10, poly

~*~*~ Jenn ~*~*~ <brinjo@...> wrote:

Hi

I have in the past belonged to a different type of group (geared for

children's clothes hahaha) then when all this started happening I really

missed the support of the loop, but was not really wanting to go back to

that one because they really don't understand what I'm going through. I was

glad when I found this one. We're in Melbourne, Florida. I've tried

calling two branches of one local hospital and they don't have pedi OT or

pool therapy. The other local hospital is the one that isn't accepting new

patients.

As far as the splints, I'm not sure if she was referring to the Dyna splints

or not? She just said resting hand splints for her to wear when she's

napping and sleeping. That would be great if you could send me his

information- it definitely wouldn't hurt to try calling anyway...the least

he could do is tell me " I don't know " .

Her regular pedi started her on Motrin until we could get in to see the pedi

rheumatologist, which was last Wednesday and she was then placed on Naproxen

She'll be starting Methotrexate this Friday- we initially had to wait for

more labs to be drawn, but they couldn't draw them all at the same time due

to her weight. We still have more that have to be drawn on Saturday but we

ll be able to start the Methotrexate this Friday (I wanted to wait until the

weekend so I could keep an eye on her to make sure there's no adverse

reactions). Her rheumo doc thinks there may be something else underlying

the JRA because she's loosing both extension and flexion in literally all

her joints small and large, so she's been running all sorts of labs. I've

never even heard of a lot of them. I'm kicking myself now because I didn't

jot them down so I could look them all up to see what they were. She had

MRI studies on her C-spine, ankles and feet today and we have to go back

next Tuesday to have MRIs of her hands and wrists. It's just all so tiring

for her and I feel so badly for having to drag her through all this. She's

been a trooper though!

Thanks for the prayers~ a person can never have enough

~Jenn

-- Re: Hi all

Hi ! You'll find everyone here to be a blessing, my son was dianosed

in March with poly and I was so relieved to find support form this group.

Where are you located? We are in Oklahoma, my son goes to a pt/ot in the

hospital, try calling your local one to see if there is one there...are you

talking about the Dyna splints? My son just got them last week and is

supposedly one of the first kids with JRA to try them. So far so good, they

have helped a little in the short time he's been using them. If that's the

kind of splints you're talking about I can give you the guy's info that

fitted my son's splints, perhaps they can direct you to a local OT? Have

they started her on any meds yet? Sorry for all the questions, I know how

overwhelming this all is...you and your family are in my prayers.

Zack, 10, poly

<brinjo@...> wrote:

Hi everyone

I just joined the loop-- my daughter, Jordan, has just recently been

diagnosed with polyarticular arthritis within this past week. I've

been pulling my hair out trying to find a pediactric occupational

therapist. Does anyone have any good ideas as to where I can go/who I

can call to try to find one? Her pedi rheumatologist is in another

county, and the only place they know of isn't accepting new patients.

I've called our health insurance company (Cigna) and they were of no

help and I have called tons of rehab facilities in our area and

everyone just gives me the same answer... " we don't have an OT, but we

can incorporate that into our PT program " . Well, she needs hand

splints and without OT, she can't get them... or so I'm told. Any

suggestions would be greatly appreciated! I'm just at a loss and so

overwhelmed and frustrated with every aspect of this right now.

Thanks!

Jenn

Live each day to the fullest

like it's the last you'll ever see

lay your head down each night with no regrets

contented you will be

and Terry

Zack, Kyla, Niklas and Austen

aka the Terry crew

[Guest guest]

We'll just have to have our own Merrimac Valley get-together! You, me, Ann, & ...

Sharon

[ ] hi all

Hi all,I know I haven't posted in a while but I wanted to say I hope you all have a safe and happy New Year. I wish I could join you in NC but I am unable to leave my 7 year old with anybody else, for now. I hope you all have a great time. Somebody please give my best, she is having all of our worse nightmares but the good news is somebody caught it and she is being treated. I hope all works out well for her.

[Guest guest]

Val,

Same to you. 2007 is bound to be a great year for you. You are coming

up to your anniversay! I am sorry you can't get to NC too...but I know

how hard it is to leave your little ones when they are that age...heck

mine is going to be just shy of 11 and it will still be a scramble, but

I will work it out somehow.

Perhaps we will have a chance to meet up if come to Boston this spring

from my 2 year check up.

Take Care, Cam

[Guest guest]

Cam,

I would love that. I hope to catch , PA when she is

here in April for the marathon.

[Guest guest]

Sharon,

What a great idea! I think Vonnie is around here too.

Isn't up for her surgery soon? Sorry I haven't called.

[Guest guest]

No prob, Hon.

Amit is planning a business trip this Thurs. through next Tues., so I will be very happy for a diversion. Just imagine! Me alone in this house for 5 days. I can hardly wait.

We talked with our attorney yesterday, and she thought it was fine for me to drive as long as I don't feel impaired. I drove a little yesterday and felt quite normal. I don't feel I should do a lot of driving yet, but at least I won't be alone and stranded without transportation. (We just won't let your honey talk to mine, right?!)

Of coure it would be great if Vonnie could meet with us as well. I think she said she's in Cambridge, or somewhere around there, though.

Sharon

(who feels like a kid with a new driver's license!)

:^)

[ ] Re: hi all

Sharon,What a great idea! I think Vonnie is around here too.Isn't up for her surgery soon? Sorry I haven't called.

[Guest guest]

Hi Sharon,

Welcome back to the land of the driving! This may or may not work for

you....but for months I struggled with the " turning to look " thing...I

am sure you have noticed that it is a little tricky not to " twist " . I

finally found that instead of thinking about turning from the

shoulder/neck, to instead think about lifting and turning by moving my

hip...it is possible to get a good look behind without twisting the

spine. I guess now it is almost second nature to initiate with the

hip... I so wish I had smooth leather or vinyl seat as it would make

this maneuver even easier.

I think Martha was a big proponent of the wide rear view mirrors that

attatch to the factory installed one in your car...but I never ended up

trying one.

Happy cruisin!

Cam

[Guest guest]

Hi, Cam.

I plan to look up the large rear view mirror. I've actually never been good at the swivel-to-look maneuver, probably because my neck has a very limited turn capability toward the right. So even when I was "only" fused to L5 I was always one for doing my look-behinds in the mirrors.

Thanks for the congrats! I did my walk around the block without my cane for the first time today as well. I honestly didn't miss it, and actually found the stairs easier! I'll probably still use it in wintery conditions, and maybe for shopping, but I really feel liberated from the cane as well. I've had Dr. Rand's ok on it for a few weeks now, but just today went ahead and tried.

Sharon

[ ] Re: hi all

Hi Sharon,Welcome back to the land of the driving! This may or may not work for you....but for months I struggled with the "turning to look" thing...I am sure you have noticed that it is a little tricky not to "twist". I finally found that instead of thinking about turning from the shoulder/neck, to instead think about lifting and turning by moving my hip...it is possible to get a good look behind without twisting the spine. I guess now it is almost second nature to initiate with the hip... I so wish I had smooth leather or vinyl seat as it would make this maneuver even easier.I think Martha was a big proponent of the wide rear view mirrors that attatch to the factory installed one in your car...but I never ended up trying one.Happy cruisin!Cam

[Guest guest]

Hi Sharon,GREAT you can drive now,it must feel good to finally drive

again I know I couldn't wait for that..Walking without the cane is

also a big step..Glad to hear all is coming along well.So is all the

pain you had before your surgery all gone? I have this large mirror

attached to my rear view mirror and love it cause it shows alot on

the sides and behind me,it is hard to turn to look behind you after

surgery and I know sometimes it still is at times.Glad to hear all is

well with you,keep up the good work..Vonnie -

-- In , " Sharon Green "

<sharon.green18@...> wrote:

>

> Hi, Cam.

>

> I plan to look up the large rear view mirror. I've actually never

been good at the swivel-to-look maneuver, probably because my neck

has a very limited turn capability toward the right. So even when I

was " only " fused to L5 I was always one for doing my look-behinds in

the mirrors.

>

> Thanks for the congrats! I did my walk around the block without my

cane for the first time today as well. I honestly didn't miss it,

and actually found the stairs easier! I'll probably still use it in

wintery conditions, and maybe for shopping, but I really feel

liberated from the cane as well. I've had Dr. Rand's ok on it for a

few weeks now, but just today went ahead and tried.

>

> Sharon

>

> [ ] Re: hi all

>

>

> Hi Sharon,

>

> Welcome back to the land of the driving! This may or may not work

for

> you....but for months I struggled with the " turning to look "

thing...I

> am sure you have noticed that it is a little tricky not

to " twist " . I

> finally found that instead of thinking about turning from the

> shoulder/neck, to instead think about lifting and turning by

moving my

> hip...it is possible to get a good look behind without twisting

the

> spine. I guess now it is almost second nature to initiate with

the

> hip... I so wish I had smooth leather or vinyl seat as it would

make

> this maneuver even easier.

>

> I think Martha was a big proponent of the wide rear view mirrors

that

> attatch to the factory installed one in your car...but I never

ended up

> trying one.

>

> Happy cruisin!

> Cam

>

[Guest guest]

,

It was nice to hear from you. I am sorry to hear about your dad. No

matter the age of ones parents or the strength of the relationship

its always a challenge to face the loss of the person(s) that gave

you life.

I hope the new med kicks in and starts working.

Blessings,

(Aundrea 11 systemic jra/gerd)-

-- In , " " <bionicmaninmt@...> wrote:

>

> Hello everyone,

> I know I haven't posted here in a long time, but you all should be

> use to that by now. I hope you all are enjoying your weather there

in

> the mid west lol. it's a nice balmy 34 here in nw montana. Just

about

> time to break out the shorts! Guess I should wait for the snow to

> melt off, and since that won't be for awhile yet.

>

> The Holiday season wasn't good to me this year and I am still

dealing

> with a lot of that. My dad passed away dec 10th. We weren't close

but

> it has still delt a big blow. Things will get better over time that

I

> know.

>

> As for my medical. I was on Rituxan there for awhile but decided to

> stop that after the latest FDA Warning on it. Was not a risk I was

> willing to take. The bad thing about that is it was working. I am

now

> on Orencia I believe it is slowly starting to work, but I think it

is

> causing some of my new problems I am having now. I will be talking

> with my doctors about that here in the next couple of days.

>

> Well that is about all for now. Will try to post again soon. Until

> next time take care...

>

>

>

[Guest guest]

I don't know, - but I do know, it's been 4 months since my knees

were replaced, and they definitely don't feel like " normal " knees -

though they also don't hurt the way my real ones did.

Judy

>

> Lastnight at my water aerobics class, I talked to a woman that had her

> right knee replaced last Nov. She was telling me about the physical

> therapy and all, but then she told me.. Youll always know you have

> something in your knee. I asked what do you mean? She said your always

> going to feel it.. It never feels normal like your own knee did. Is

> that true? B.

>

[Guest guest]

I agree had my lpkr done in Nov and it does not feel normal. They say

to keep it moving but the only time it feels close to normal is after

PT, as soon as I quit moving it stiffens up. If I walk to much my hip

and leg hurts

> >

> > Lastnight at my water aerobics class, I talked to a woman that had her

> > right knee replaced last Nov. She was telling me about the physical

> > therapy and all, but then she told me.. Youll always know you have

> > something in your knee. I asked what do you mean? She said your always

> > going to feel it.. It never feels normal like your own knee did. Is

> > that true? B.

> >

>

[Guest guest]

Recovery takes time. I know it's so hard to take that as a matter of faith early in the recovery process. I worried and sometimes cried through my first four months. That seems to be an almost universal response. I'm told my recovery was a bit more painful and longer than average. I know I was on pain meds longer than many others at this site. But I seem to be catching up. I changed my attitude when I started measuring my progress in terms of months. If you don't feel any progress or even regress over one month, I would see the surgeon, get x-rays, etc. But if you are making progress, somewhat consistently, month by month, just think where you will be in a year. Yes, as we know from some our members, there can be real complications. Some may never feel like they did 20

years ago. But most of us will return to normal and active lives. My double knee replacement was Sept. 8. My knees have got a bit more stiff and sore. But there is a strength in my knees that I didn't have for years. At almost the six-months post-op, I can -- on any given day -- go to work, swim, grocery shop, unload my groceries and put them away without pain. I'm unaware of my knees most of the time. They hurt the most when I go down steps, much less when I go up. And it still hurts when I get up from a sofa or other low seating. Others at the six-month mark may be doing better, and that inspires me and gives me hope. But to compare myself to them would be a waste of emotional, physical and mental energy. At 56, I could also compare myself to Christie Brinkley, or even worse, an air-brushed photo of her.

That would be a downer, but it doesn't mean she can't inspire me to try harder By the way, she just had back surgery and is probably worrying about her recovery. Even the rich and famous can't escape aging and injury. Over the holidays, I got out of attending water aerobics regularly. Last week I got back into it. It's now almost 2:00 p.m.. I'm at the office, didn't take my noon dose of Tramadol and yet I am sitting here pain free. It's obvious I wasn't working my knees nearly enough. Getting back to that has made all the difference. Donnagaragesale1999 <garagesale1999@...> wrote: I agree had my lpkr done in Nov and it does not feel normal. They sayto keep it moving but the only time it feels close to normal is afterPT, as soon as I quit moving it stiffens up. If I walk to much my hipand leg hurts> >> > Lastnight at my water aerobics class, I talked to a woman that had her> > right knee replaced last Nov. She was telling me about the physical> > therapy and all, but then she told me.. Youll always know you have> > something in your knee. I asked what do you mean? She said your always> > going to feel it.. It never feels normal like your own knee did. Is> > that true? B.> >>

Any questions? Get answers on any topic at Answers. Try it now.

[Guest guest]

HI !! I am praying for your father Gordon right now! See everyone THIS

is what I mean about Bigger and Better things to work on! Not hatred.

Hang in there ! I will keep your father close to my heart and pray

for a speedy and complete recovery!

I too have an elderly father who is also VERY STRONG and it would devastate me

when and if anything happens to him!

Hugs, Eileen

---------------------------------

Looking for earth-friendly autos?

Browse Top Cars by " Green Rating " at Autos' Green Center.

[Guest guest]

One of the things I find helpful to make prayer even stronger is fasting and

prayer.

we pray, give up some meals and the the monetary amount of those meals go to the

hungery, the church foodbank or those in need.

I'll keep your Dad in my next Fast & Pray.

hi all

dwarfism

> I know everyone is talking about the conference, but I have a request.

> my dad had a massive stroke 2 days ago, any thoughts or prayers you

> can send his way would be great.

> his name is Gordon for those who pray. I am a wreck, he is the

> strongest man I know but he was crying this morning because he can't

> use his left side at all. It hurts me to know he is in emotional pain,

> and I live on the other wide of the country from him so I can't get to

> him. I just don't know what to do.

> sorry to go on, peace all and thanks chris

>

>

[Guest guest]

My heart goes out to you Chris.

The most difficult time in my life was watching my father's illness

take him from the tall strong man he was to someone laying in bed

requiring assistance, and not being able to cope with his situation.

May Gordon find the strength to cope with his challange and overcome

any obstacles.

>

> I know everyone is talking about the conference, but I have a request.

> my dad had a massive stroke 2 days ago, any thoughts or prayers you

> can send his way would be great.

> his name is Gordon for those who pray. I am a wreck, he is the

> strongest man I know but he was crying this morning because he can't

> use his left side at all. It hurts me to know he is in emotional

pain, and I live on the other wide of the country from him so I can't

get to him. I just don't know what to do.

> sorry to go on, peace all and thanks chris

>

[Guest guest]

Well, I " m not healed, but I seem to be in remission as long as I keep

using the core protocol, which makes me absolutely ecstatic.

I used cryptolepis on my boyfriend who had come back from Africa with

malaria (he couldn't get to a doctor right away and Buhner recommended

crypto when I emailed him), but we also used other herbs at the same

time (all on my MD's advice, and I don't know what was in the Chinese

herbal combo that he 'prescribed') so it's hard to say what was

successful there and whether our malaria experience even applies to

babesia at all.

How are you doing?

loveandlight1111 wrote:

>

> Just want to say hi to everyone and see how you are all doing.

> My computer has been down for 3-4 months. Any one healed?

> Anyone doing Cryptolepsis? Healing Blessings to all Joyce

>

>

[Guest guest]

Joyce, I've been thinking all these months about you. HOw are YOU doing?

Is you liver high enzyme problem gone? Are you feeling better? How's

your computer?

I've got bitten again. I was ALMOST THERE, almost free from killers,

just fighting some left cysts and a bit of non-symptomatic bartonella.

Then got bitten again: babesia, borrelia, bartonela and mycoplasma

(ART).

I felt awful, going downwards, until I decided to add artemisinin,

400mg a day. Now I'm well like before, just with night sweats though....

So glad you're back!

Selma

[Guest guest]

---Hi Selma,So sorry you got bit again. Hang in there.

I am now using Cryptolepsis for Babs. I take it righ

befor the full moon for 12 days. Dr still doing muscle

testing and I am still using pendulum. Had to cut dose

of crypto as the herx was too intense. What a ride we

are on. Healing Blessings to you. Namaste Joyce. I

can tell EMF's from computer make me sicker so

limiting my time. Take care

> Joyce, I've been thinking all these months about

> you. HOw are YOU doing?

>

> Is you liver high enzyme problem gone? Are you

> feeling better? How's

> your computer?

>

> I've got bitten again. I was ALMOST THERE, almost

> free from killers,

> just fighting some left cysts and a bit of

> non-symptomatic bartonella.

> Then got bitten again: babesia, borrelia, bartonela

> and mycoplasma

> (ART).

>

> I felt awful, going downwards, until I decided to

> add artemisinin,

> 400mg a day. Now I'm well like before, just with

> night sweats though....

>

> So glad you're back!

>

> Selma

>

>

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[Guest guest]

Welcome back Joyce.

I agree with you, that it IS a problem spending too much time at the computer.

My vision would get very bad, (blurry), the longer I was on here at night. It

has been pretty decent lately.

More outside time, less time at the computer, and with the electricity in our

homes in general.

Jim.

###

joyce la fleur <loveandlight1111@...> wrote:

---Hi Selma,So sorry you got bit again. Hang in there.

I am now using Cryptolepsis for Babs. I take it righ

befor the full moon for 12 days. Dr still doing muscle

testing and I am still using pendulum. Had to cut dose

of crypto as the herx was too intense. What a ride we

are on. Healing Blessings to you. Namaste Joyce. I

can tell EMF's from computer make me sicker so

limiting my time. Take care

[Guest guest]

Dear Joyce,

Sorry I didn't figure out how to answer you in Planet thrive. And got

no time this week to keep experimenting.

Great you feel cryptolepsis is doing a good job! Wish you the best of

luck. If I fail with artemisinin this time again, plus the Pc-Noni, I

will try to give it a try.

Add me in the list of feeling bad with EMFs from computer. Mine is

particularly bad as it's all wireless!

For the first time since I got lyme, my chills are better. I guess

most of it was EMF related! NOt lyme!!! I'm cutting the circuit

breaker during the night and I'm a bit more away from the computer

these last weeks.

My doctor who does ART also does the pendulum. I had a very

interesting teeth extraction experience yesterday. My dr checked for

bad pathogens and where to scrap my bones with the pendulum ONLY. It

immediately made me think of you!!

Under these old canal teeth there were pockets of awful materials

coming from the dead roots, that didn't appear in the X ray (I don't

know the name in English, they told me 'fistula')...

I'm a bit better from the bite, but still treating the new

infections. It's been a busy lyme time lately again. I wonder how to

get rid of mycoplasma, as I never treated it before....

Wish you the best, and I'm glad to hear about you again!! I hope my

babesia won't become cronic like last time. Very good luck with your

treatment!!

Selma

> ---Hi Selma,So sorry you got bit again. Hang in there.

> I am now using Cryptolepsis for Babs. I take it righ

> befor the full moon for 12 days. Dr still doing muscle

> testing and I am still using pendulum. Had to cut dose

> of crypto as the herx was too intense. What a ride we

> are on. Healing Blessings to you. Namaste Joyce. I

> can tell EMF's from computer make me sicker so

> limiting my time. Take care

>

>

[Guest guest]

--- Thanks for the welcome back , Jim. I love

connecting with everyone on the computer and

researching,but have to weigh the positives and the

negatives. I have been pretty house bound and it gets

really hard at times not to connect. The connection

and support is very healing. I can totally feel the

EMF's when I am on the computer. I have to pace

myself using it. I do have a bracelet I wear with

diodes that are suppose to help with the EMF " S. Not

sure if it does anything.

Happy Healing Joyce

> Welcome back Joyce.

>

> I agree with you, that it IS a problem spending

> too much time at the computer. My vision would get

> very bad, (blurry), the longer I was on here at

> night. It has been pretty decent lately.

> More outside time, less time at the computer, and

> with the electricity in our homes in general.

> Jim.

> ###

>

> joyce la fleur <loveandlight1111@...> wrote:

> ---Hi Selma,So sorry you got bit again.

> Hang in there.

> I am now using Cryptolepsis for Babs. I take it righ

> befor the full moon for 12 days. Dr still doing

> muscle

> testing and I am still using pendulum. Had to cut

> dose

> of crypto as the herx was too intense. What a ride

> we

> are on. Healing Blessings to you. Namaste Joyce. I

> can tell EMF's from computer make me sicker so

> limiting my time. Take care

>

>

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