Hi All

[Guest guest]

Hey Tawny - good to see you back. Sorry to hear about your fall. Praying you are

feeling somewhat better now that the prednisone has been added back into the

mix......Doreen

> On Apr 8, 2009, at 8:36 PM, tdianaok wrote:

>

> Hi everyone,

>

> I know its been a long while since posting, sorry. I am just having

> a very bad time, and not able to do much of anything. It just seems

> to get worse each day, not sure sometimes how to cope, but do what I

> can.

> I miss reading posts, and hearing from all my dear friends.

> I had a bad fall Friday, thank goodness I didn't break anything, but

> very sore, and very bruised. I'm still on humira and mtx, and now

> taking some prednisone. I need some relief, and everyone knows how

> frustrating that can be. Sending some sunshine to all, and hope some

> better days to all.

> Hugs to all, Tawny

[Guest guest]

Hi Tawny:

I too have missed you so much. I know what it takes for you to be on

line. Just so glad you are here.

You have had more than your share of pain and problems. I hope things

will ease up in that area. I had that Plantar Fascia and it is just

brutal. As you know my RA is worse in my feet and ankles, then getting

the Plantar F. on top of that was horrible. Plus I have a large RA

nodule on the side of my foot arch, and some times the pain it causes

is outrageous. Boy, we all suffer way to much. It is so hard to try

and have a life when your pain is unbearable. So very wearing.

I think you body is so used to your pain meds. they are not working

anymore. I hope when you see your Rheumy that she gives you a stronger

pain RX to help you through the bad days. Unbearable pain makes me

crazy. Those days when my feet are so bad, I felt like chopping them

off. I would be worse without my feet, but at the time, it seems like a

good idea. ha ha ha..................

I know you are riddled with a lot of pain, and I sure wish it wasn't so.

Maybe your Rheumy will increase your Pred. until you start to feel

better. Pred. is the " wonder drug " for me, and I know I will be on it

the rest of my life. I cannot function without it, nor could I bear

that awful pain day in and day out. We all have to give to get. Such

is our lives with RA.

I will keep you in my prayers. Wishing you many better days ahead, and

to be pain free. You deserve a break, big time.

I loved your closing words. I will e-mail you at home. Love you.

Hugs,

Barbara

> >

> >

> > Hi Tawny:

> >

> > I have been thinking of you these last 2 days. Imagine my surprise

> when

> > I saw your post today. I sure have missed talking with you, etc.

> >

> > I was so sorry to read that you are feeling so awful, and that you

had

> a

> > bad fall. Thank God you broke nothing. I know how wearing pain is,

and

> > I am sorry you are in such bad pain. I hope the Pred. starts to give

> > you some relief. I hope you have some nice strong pain pills to help

> > you. No fun to suffer like that day in and day out.

> >

> > I am praying you will have better days ahead, and pain free days

also.

> > God Bless you, and take care. So nice to read your post today.

> >

> > Hugs,

> >

> > Barbara

>

[Guest guest]

Hi Tawny:

I too have missed you so much. I know what it takes for you to be on

line. Just so glad you are here.

You have had more than your share of pain and problems. I hope things

will ease up in that area. I had that Plantar Fascia and it is just

brutal. As you know my RA is worse in my feet and ankles, then getting

the Plantar F. on top of that was horrible. Plus I have a large RA

nodule on the side of my foot arch, and some times the pain it causes

is outrageous. Boy, we all suffer way to much. It is so hard to try

and have a life when your pain is unbearable. So very wearing.

I think you body is so used to your pain meds. they are not working

anymore. I hope when you see your Rheumy that she gives you a stronger

pain RX to help you through the bad days. Unbearable pain makes me

crazy. Those days when my feet are so bad, I felt like chopping them

off. I would be worse without my feet, but at the time, it seems like a

good idea. ha ha ha..................

I know you are riddled with a lot of pain, and I sure wish it wasn't so.

Maybe your Rheumy will increase your Pred. until you start to feel

better. Pred. is the " wonder drug " for me, and I know I will be on it

the rest of my life. I cannot function without it, nor could I bear

that awful pain day in and day out. We all have to give to get. Such

is our lives with RA.

I will keep you in my prayers. Wishing you many better days ahead, and

to be pain free. You deserve a break, big time.

I loved your closing words. I will e-mail you at home. Love you.

Hugs,

Barbara

> >

> >

> > Hi Tawny:

> >

> > I have been thinking of you these last 2 days. Imagine my surprise

> when

> > I saw your post today. I sure have missed talking with you, etc.

> >

> > I was so sorry to read that you are feeling so awful, and that you

had

> a

> > bad fall. Thank God you broke nothing. I know how wearing pain is,

and

> > I am sorry you are in such bad pain. I hope the Pred. starts to give

> > you some relief. I hope you have some nice strong pain pills to help

> > you. No fun to suffer like that day in and day out.

> >

> > I am praying you will have better days ahead, and pain free days

also.

> > God Bless you, and take care. So nice to read your post today.

> >

> > Hugs,

> >

> > Barbara

>

[Guest guest]

Hi Sue:

It is a miracle that you didn't break any bones. When I had a bad fall,

I broke my hip. I still have no idea why I fell.

Hope you can rest and take things easy after your fall. I hope you feel

better soon.

Hugs,

Barbara

>

> > Welcome back, Tawny. Betty and I were talking about you and

> > wondering when

> > we might hear from you again. I'm glad you're doing well enough and

> > hope it

> > will stay in the 'good' direction. Careful with the falls, they can

> > certainly hurt! BTDT

>

[Guest guest]

Goodness, Sue, we've had a time of it lately, and I don't know where to

start. Since the first of the year, we've been to doctors everywhere, mostly

for Betty since we've had to 'ignore' her ailments since she had no

insurance. She has had mylograms, x-rays, all kinds of blood tests, MRI's,

pokes and prods. We had to get a GPS to help us navigate the big cities and

it has been a boon to us. She probably need a new knee and maybe surgery for

it and her back. Other than the couple of scares with her diabetic comas

it's been just lots of time waiting in doctor's offices. She also had some

bad bouts of diarrhea that lasted for about 3 months, so it was hard for her

to go to a doctor's appointment. It quit as it started, just disappeared.

I've been having lots of pain for one reason or another. I seriously damaged

my back and went to my GP, who decided I was only looking for pain pills and

wasn't going to do anything until I told him off. He sent me for one x-ray

to placate me. We've been juggling medicines with our new insurance. If we

mail-order 3 month supplies, they are free! Because of the insurance change,

my Rheumy of 20 years put me out the door. I had to ask my GP for a 30 day

supply until I found another Rheumy and a script for Lodine. He called it in

to my pharmacy, and it was only for 10 days! That was a terrible slap in the

face on top of the back problem, so he 'apologized' by calling in some

Vicoden, and I'm already taking Morphine. Another slap... I've been having

pain and grumbling in my entire GI tract. No gas or runs or other indicators

pointing to anything specific. It just sounded like a thunderstorm with pigs

flipped onto their backs. From the ribs down was tender to downright

painful, and nobody knew what caused it. The only thing I noticed was that

my stool was grayish most of the time.

My son found us a lift for the back of the van that lowers and raises

itself. In order for us to use it, I had to take the hitch from under the

van and change the receiver to a 2 " . While I had it out, I added another

reciever to the passenger's side, hoping to get a lift to load a chair with

the overhead lift we already had. I couldn't figure out a practical way to

do it, but I came up with another idea, I'd make the lift swing out to the

curb so we can access the inside of the rear of the van. I had to custom

build it but got it working a couple of days ago, and it works like a charm.

I'm happy about that!

I didn't plan to make this a book, but that's some of the hilights of our

few months. Pheewww. Both of us are looking at surgeries in the near future,

that'll be fun, too.

Dennis in eastexas

On Thu, Apr 9, 2009 at 10:16 PM, marysue <marysue@...> wrote:

>

>

> Yes, those falls can be really bad. Today I was coming up the back

> steps and stumbled or something. Do we ever really know what causes us

> to fall? Anyway, I landed on my feet, very hard, somehow, but screamed

> and about scared my husband to death. I hadn't even seem him; he was

> crouched behind the grill, doing something.

>

> Dennis, you've been silent lately. How goes it with you?

>

> Sue

>

>

> On Apr 9, 2009, at 10:40 PM, Dennis W wrote:

>

> > Welcome back, Tawny. Betty and I were talking about you and

> > wondering when

> > we might hear from you again. I'm glad you're doing well enough and

> > hope it

> > will stay in the 'good' direction. Careful with the falls, they can

> > certainly hurt! BTDT

>

>

>

--

Dennis in eastexas

[Guest guest]

Barbara,

It is very hard to function at times, when the pain has taken over your

life. I have been depressed from it all, and I'm trying to get over it,

without any meds. I know that isn't the best, but for now I'm OK.

I have been a member of this group for a very long time. We all go

through so much with all these horrible diseases. We are strong though,

were still going. With the help of others on this group, it sure helps

a lot. For all the new members, know that later on you will always need

someone who understands what your going through. We all go AWOL

sometimes, and I always hope that person is feeling better, and getting

back to their normal life. It hasn't helped for me, but I do believe it

can happen if given the right help from your rheumy. Don't give up, one

day there will be a cure. Sorry Barb, for rambling, I'm good at

that,lol

Yes, the plantar fascia is so awful. I've been seeing a doctor, and its

just not working. I've tried different insoles, all these do at home

remedies, nothing helps. My friend told me the other day, to try 100mg

of B-6 daily, she is doing great. She got the info out of a magazine.

I am ready for surgery. I just can't deal with much more pain. I know

what you mean, I would like to chop my leg off. I woke up today, and my

left leg is swollen, pain, and numbness. Which I do have neuropathy

pain in my leg, and the neurontin does help. My knee is very swollen,

so I believe that is the cause. I will get a steroid shot when I see

the doctor, can't wait now.

I will have to go on prednisone for awhile. We do have to give in, when

nothing else helps. I'm glad it helps you, its hard to do anything ,

when your body doesn't work with your brain.

You are right, I need a change of pain meds. I just hate messing with

it, the way everyone feels about pain meds, know what I mean? I'll have

to take the risk though, I need something to help me live.

You have a bless day, Barbara. We just need someone to lean on to feel

better sometimes. I'm always here, and I will be glad to hear from you.

Take care, Tawny

>

>

> Hi Tawny:

>

> I too have missed you so much. I know what it takes for you to be on

> line. Just so glad you are here.

>

> You have had more than your share of pain and problems. I hope things

> will ease up in that area. I had that Plantar Fascia and it is just

> brutal. As you know my RA is worse in my feet and ankles, then getting

> the Plantar F. on top of that was horrible. Plus I have a large RA

> nodule on the side of my foot arch, and some times the pain it causes

> is outrageous. Boy, we all suffer way to much. It is so hard to try

> and have a life when your pain is unbearable. So very wearing.

>

> I think you body is so used to your pain meds. they are not working

> anymore. I hope when you see your Rheumy that she gives you a stronger

> pain RX to help you through the bad days. Unbearable pain makes me

> crazy. Those days when my feet are so bad, I felt like chopping them

> off. I would be worse without my feet, but at the time, it seems like

a

> good idea. ha ha ha..................

>

> I know you are riddled with a lot of pain, and I sure wish it wasn't

so.

> Maybe your Rheumy will increase your Pred. until you start to feel

> better. Pred. is the " wonder drug " for me, and I know I will be on it

> the rest of my life. I cannot function without it, nor could I bear

> that awful pain day in and day out. We all have to give to get. Such

> is our lives with RA.

>

> I will keep you in my prayers. Wishing you many better days ahead, and

> to be pain free. You deserve a break, big time.

>

> I loved your closing words. I will e-mail you at home. Love you.

>

> Hugs,

>

> Barbara

>

>

[Guest guest]

Sue,

I'm glad your OK. Not sure why we fall so much. I sure can't be

anymore careful, I walk like a snail. I know your hubby was scared.

Take care, and I know you do, Tawny

>

>

> Hi Sue:

>

> It is a miracle that you didn't break any bones. When I had a bad

fall,

> I broke my hip. I still have no idea why I fell.

>

> Hope you can rest and take things easy after your fall. I hope you

feel

> better soon.

>

> Hugs,

>

> Barbara

[Guest guest]

Doreen,

You know how it goes, trying to feel better. Thanks so very much for

your thoughts and prayers, Tawny

> >

> > Hi everyone,

> >

> > I know its been a long while since posting, sorry. I am just having

> > a very bad time, and not able to do much of anything. It just seems

> > to get worse each day, not sure sometimes how to cope, but do what I

> > can.

> > I miss reading posts, and hearing from all my dear friends.

> > I had a bad fall Friday, thank goodness I didn't break anything, but

> > very sore, and very bruised. I'm still on humira and mtx, and now

> > taking some prednisone. I need some relief, and everyone knows how

> > frustrating that can be. Sending some sunshine to all, and hope some

> > better days to all.

> > Hugs to all, Tawny

>

[Guest guest]

Hi Tawny:

That Plantar Fascia is one painfull beast. I also got 2 types of shoe

inserts from my foot dr. I did get 3 shots in the heels of my foot, and

boy, that is awful. I thought I would scream with the pain. I got one

each visit for 3 weeks. I also have Neuropathy in both feet. I didn't

know what it was called until I saw my foot dr. That along with the

Plantar F., and a bad RA flare in my feet, almost did me in. You know

how awful it is when you have more pain than you can handle. I really

thought I would lose my mind during that time. I hope I never have that

Plantar Fascia again. I do know what you are going through.

I hope you do get on a high dose of Pred., plus some much stronger pain

meds. You need some relief very soon. I know it is so depressing to

feel so awful all the time. I know you hate to take another pill, but

maybe through all this pain and suffering, your dr. can give you some

depression samples to get you through this rough time. It can be a

short time use. I know that they do help.

I pray when you see your Rheumy that you get all the meds. you need to

make you have better days, and ease your pain and suffering.

Yes, I agree with you. Everyone here is so wonderful and caring. They

are the best. Just knowing they know what we deal with all the time,

really matters to me. It took a long time for my family and friends to

finally realize what this RA has done to me and my life. Now I do just

what I can each day, and if I don't get to everything, it will wait

until the next day. I had to change my lifestyle to deal with the RA.

As you well know, these auto-immune diseases are very hard to live with.

We can only do what we can do on any given day.

I hope you start to feel better soon, as I know things are so hard for

you right now. Believe me, there are better days ahead for you. I just

know it.

Take care of yourself, and rest as much as you can. It will help in the

end.

Talk soon.

Love and hugs,

Barbara

> >

> >

> > Hi Tawny:

> >

> > I too have missed you so much. I know what it takes for you to be on

> > line. Just so glad you are here.

> >

> > You have had more than your share of pain and problems. I hope

things

> > will ease up in that area. I had that Plantar Fascia and it is just

> > brutal. As you know my RA is worse in my feet and ankles, then

getting

> > the Plantar F. on top of that was horrible. Plus I have a large RA

> > nodule on the side of my foot arch, and some times the pain it

causes

> > is outrageous. Boy, we all suffer way to much. It is so hard to try

> > and have a life when your pain is unbearable. So very wearing.

> >

> > I think you body is so used to your pain meds. they are not working

> > anymore. I hope when you see your Rheumy that she gives you a

stronger

> > pain RX to help you through the bad days. Unbearable pain makes me

> > crazy. Those days when my feet are so bad, I felt like chopping them

> > off. I would be worse without my feet, but at the time, it seems

like

> a

> > good idea. ha ha ha..................

> >

> > I know you are riddled with a lot of pain, and I sure wish it wasn't

> so.

> > Maybe your Rheumy will increase your Pred. until you start to feel

> > better. Pred. is the " wonder drug " for me, and I know I will be on

it

> > the rest of my life. I cannot function without it, nor could I bear

> > that awful pain day in and day out. We all have to give to get. Such

> > is our lives with RA.

> >

> > I will keep you in my prayers. Wishing you many better days ahead,

and

> > to be pain free. You deserve a break, big time.

> >

> > I loved your closing words. I will e-mail you at home. Love you.

> >

> > Hugs,

> >

> > Barbara

> >

> >

>

[Guest guest]

I actually was not hurt at all, thank goodness. I was lucky that I

could catch myself and land on my feet. I guess we all have a certain

number of falls that come to us.

Sue

On Apr 10, 2009, at 4:47 PM, tdianaok wrote:

>

> Sue,

>

> I'm glad your OK. Not sure why we fall so much. I sure can't be

> anymore careful, I walk like a snail. I know your hubby was scared.

> Take care, and I know you do, Tawny

[Guest guest]

Dennis,

Thanks for updating us. I'm sorry that you and Betty have had such a

rough time of it.

I thought you had found a new rheumy who was going to put you on a

biologic. Did that not work out for you because your insurance

wouldn't pay for it? I was so hoping that you could get on one and

also hoping that it would give you some relief.

At least you and Betty have each other. I wish you both well.

Sue

On Apr 10, 2009, at 4:07 PM, Dennis W wrote:

> Goodness, Sue, we've had a time of it lately, and I don't know where

> to

> start. Since the first of the year, we've been to doctors

> everywhere, mostly

> for Betty since we've had to 'ignore' her ailments since she had no

> insurance.

[Guest guest]

The new Rheumy has dictated the standard, Prednisone is very bad so you'll

have to get off of it. Now I'm back to 7.5 mg, the lowest I've been in my

other attempts. This time I think I'll go farther since the Rheumy promised

to help me battle the pain. Sure he will... He contacted the Health Well

Foundation for help in paying for Enbrel, but he talked to me about Humira.

I'm not sure I trust him yet. He's in a fancy new building with waterfalls

inside and outside, doors that don't meet ADA guidelines, and not enough

parking places, exits into the parking lot of the small business next door.

If a customer parks near that 'exit', we would all be stuck. Unfortunately,

he's the only one that accepts my insurance, not a good thing. We'll muddle

through it.

Dennis in eastexas

On Fri, Apr 10, 2009 at 9:11 PM, marysue <marysue@...> wrote:

>

>

> Dennis,

>

> Thanks for updating us. I'm sorry that you and Betty have had such a

> rough time of it.

>

> I thought you had found a new rheumy who was going to put you on a

> biologic. Did that not work out for you because your insurance

> wouldn't pay for it? I was so hoping that you could get on one and

> also hoping that it would give you some relief.

>

> At least you and Betty have each other. I wish you both well.

>

> Sue

>

>

> On Apr 10, 2009, at 4:07 PM, Dennis W wrote:

>

> > Goodness, Sue, we've had a time of it lately, and I don't know where

> > to

> > start. Since the first of the year, we've been to doctors

> > everywhere, mostly

> > for Betty since we've had to 'ignore' her ailments since she had no

> > insurance.

> _

>

[Guest guest]

Hi Dennis:

I hope your new Rheumy is a man of his word, and helps you with your

pain when off Pred. I wish you luck getting off it. As you know, I

have never been able to get off it. Just wondering why he wants you off

it?

I also hope you like this Rheumy, and he can actually help you.

Wishing you a peaceful Easter. Hope you start to feel better soon. You

so deserve it.

Hugs,

Barbara

> >

> > > Goodness, Sue, we've had a time of it lately, and I don't know

where

> > > to

> > > start. Since the first of the year, we've been to doctors

> > > everywhere, mostly

> > > for Betty since we've had to 'ignore' her ailments since she had

no

> > > insurance.

> > _

> >

>

>

>

[Guest guest]

The thing for me is that my Rheumy of 20 years would dump me for money. The

medicare replacement we chose is apparently micromanagement driven. Every

procedure has to be approved before even a shot can be given. My only

options were to change insurance companies or doctors. With this insurance,

we get 3 month supplies of meds from their pharmacy with no co-pay, dental

coverage discounts, eye exams and glasses at almost no cost, and a number of

other benefits we didn't want to give up just to keep that doctor. He and

one other doctor accept our ins, and the other tried to do me in when I used

him for a couple of years and had to fire him because he was taking my meds

away so my blood tests would look good. I didn't really have a choice.

Dennis in eastexas

On Sat, Apr 11, 2009 at 2:32 PM, betty gates <bettygates@...> wrote:

>

>

> dennis,

> its not good that you and betty would have to muddle thru anything. a new

> dr. is always bad to start with. you have to trust him, and be able to talk

> to him. i hope he turns out okey with you, and you can get some help with

> your pain.

>

> BETTY

>

> PRAY FOR OUR TROOPS

>

> MAY NO SOLDIER GO UNLOVED, MAY NO SOLDIER WALK ALONE, MAY NO SOLDIER BE

> FORGOTTEN, UNTIL THEY ALL COME HOME.

>

> SOLDIER'S ANGELS

>

>

[Guest guest]

Dennis,

I hope that it works out for you to get on a biologic, and maybe it

will help you so much that you can get off the prednisone. It causes

so many bad things to happen sometimes. Look at what happened to

Malynda.

I hope this rheumy turns out to be a good one, since you don't have

much choice in the matter.

Sue

On Apr 11, 2009, at 1:27 PM, Dennis W wrote:

> The new Rheumy has dictated the standard, Prednisone is very bad so

> you'll

> have to get off of it. Now I'm back to 7.5 mg, the lowest I've been

> in my

> other attempts. This time I think I'll go farther since the Rheumy

> promised

> to help me battle the pain. Sure he will... He contacted the Health

> Well

> Foundation for help in paying for Enbrel, but he talked to me about

> Humira.

> I'm not sure I trust him yet. He's in a fancy new building with

> waterfalls

> inside and outside, doors that don't meet ADA guidelines, and not

> enough

> parking places, exits into the parking lot of the small business

> next door.

> If a customer parks near that 'exit', we would all be stuck.

> Unfortunately,

> he's the only one that accepts my insurance, not a good thing. We'll

> muddle

> through it.

>

[Guest guest]

Hi dennis, don't forget to sign up for the VA, that might help with doctors

visits and meds

Sent from my iPhone

On Apr 11, 2009, at 10:04 PM, Dennis W <betnden@...> wrote:

The thing for me is that my Rheumy of 20 years would dump me for money. The

medicare replacement we chose is apparently micromanagement driven. Every

procedure has to be approved before even a shot can be given. My only

options were to change insurance companies or doctors. With this insurance,

we get 3 month supplies of meds from their pharmacy with no co-pay, dental

coverage discounts, eye exams and glasses at almost no cost, and a number of

other benefits we didn't want to give up just to keep that doctor. He and

one other doctor accept our ins, and the other tried to do me in when I used

him for a couple of years and had to fire him because he was taking my meds

away so my blood tests would look good. I didn't really have a choice.

Dennis in eastexas

On Sat, Apr 11, 2009 at 2:32 PM, betty gates <bettygates@...> wrote:

>

>

> dennis,

> its not good that you and betty would have to muddle thru anything. a new

> dr. is always bad to start with. you have to trust him, and be able to talk

> to him. i hope he turns out okey with you, and you can get some help with

> your pain.

>

> BETTY

>

> PRAY FOR OUR TROOPS

>

> MAY NO SOLDIER GO UNLOVED, MAY NO SOLDIER WALK ALONE, MAY NO SOLDIER BE

> FORGOTTEN, UNTIL THEY ALL COME HOME.

>

> SOLDIER'S ANGELS

>

>

[Guest guest]

Golly, Kate, are you sure you aren't Betty's evil twin sister? She nags me

like you're doing! LOL

I keep forgetting even though I downloaded forms and have lost them on this

pile I call my desk. Maybe they will cover the Psychic evaluations I appear

to need. Almost every day since the first of the year has been a whirlwind

of doctors, tests, preparing for everything else and wanting to sell the

house to pay for building a new one that I don't even have to paint. It's

not happening so far even though the economy is still good in this area.

Dennis in eastexas

On Sat, Apr 11, 2009 at 10:50 PM, Kate Fair <kalfoley@...> wrote:

>

>

> Hi dennis, don't forget to sign up for the VA, that might help with doctors

> visits and meds

>

> Sent from my iPhone

>

[Guest guest]

I think you're on to something Dennis, the whole thing about having RA is one

BIG NAG! Nagging pain, nagging necessity to take pills, nagging appointment,

nagging doctors, nagging tests, nagging results, it's never gonna end! I signed

up for the VA, it takes awhile to get everything processed, then you have to go

to the local office and get your ID card. You'll probably be category 5 which

means you can see doctors and use the pharmacy, I haven't gotten that far yet

because I'm still on my other medical plan. I'm not sure how it's gonna work out

because they're so busy and the poor news coverage the VA has been getting

lately. I can tell you the co-pay for meds is 8.00 each and they cover

everything. I am going to be going on Enbrel next month so I am getting

everything done to use them if necessary.

Later,

Stan

Seattle, Rainy and Stormy.

Re: [ ] hi all

Golly, Kate, are you sure you aren't Betty's evil twin sister? She nags me

like you're doing! LOL

I keep forgetting even though I downloaded forms and have lost them on this

pile I call my desk. Maybe they will cover the Psychic evaluations I appear

to need. Almost every day since the first of the year has been a whirlwind

of doctors, tests, preparing for everything else and wanting to sell the

house to pay for building a new one that I don't even have to paint. It's

not happening so far even though the economy is still good in this area.

Dennis in eastexas

On Sat, Apr 11, 2009 at 10:50 PM, Kate Fair < kalfoley@... > wrote:

>

>

> Hi dennis, don't forget to sign up for the VA, that might help with doctors

> visits and meds

>

> Sent from my iPhone

>

[Guest guest]

Hi Dennis:

I would have dumped that low life dr. too. I hate to hear about things

like that.

Do you like your current Rheumy? It is so hard to find the right one,

and one who really listens to you, and tries to help you. I hope you

get the right one.

Hope you and Betty are having a nice Easter. Weather here is

cloudy/sunny/ around 72. Just got out of the pool, and I am nicely

refreshed. Do you have the same weather as I have here in S. W.

Florida? So very nice lately.

Wishing you both pain free days ahead. Take care and get lots of rest.

Hugs,

Barbara

>

> >

> >

> > dennis,

> > its not good that you and betty would have to muddle thru anything.

a new

> > dr. is always bad to start with. you have to trust him, and be able

to talk

> > to him. i hope he turns out okey with you, and you can get some help

with

> > your pain.

> >

> > BETTY

> >

> > PRAY FOR OUR TROOPS

> >

> > MAY NO SOLDIER GO UNLOVED, MAY NO SOLDIER WALK ALONE, MAY NO SOLDIER

BE

> > FORGOTTEN, UNTIL THEY ALL COME HOME.

> >

> > SOLDIER'S ANGELS

> >

> >

[Guest guest]

Been there (TKR in March). Are you going to outpatient PT? If so, check with

your PT. I'm achy today. It's been raining for days here. PT yesterday so I'm

going to do what's done in PT: apply some some heat before exercises. Just got

my first good night's sleep in weeks. Trying to get on a normal sleep schedule

before returning to work in 12 days. Recovery is exciting but it's hard. someone

referred to my sick leave as a " vacation. " Not my idea of a vacation. Take it

easy. Treat your pain. & #13; & #10; & #13; & #10;> & #13; & #10;> HI All, & #13; & #10;>

& #13; & #10;> Just check in. I think I might have over did it the last few days.

I am sore in my knee and very tight. I did my excericse and iced it. I

also took a pain pill today to. Could not sleep good either last

night. & #13; & #10;> & #13; & #10;> katie & #13; & #10;> & #13; & #10;

[Guest guest]

It depends on what kind of diet you are doing. If you are doing a plan like

mine (http://www.naturallythriving.com/basics/cfd.php) then yes it's likely that

as your body depletes itself of sugar for fuel, you will feel hungrier than

usual. Eat lots of food, and lots of fat and drink lots of water to get through

that.

Luv, Debby in San , CA

Student: Nutrition Certification and PhD in Psychology

Website: http://www.naturallythriving.com

----- Original Message ----

> From: Elaine Smyth

>

> I'm finding it really tough on the candida diet, is it normal to still feel

> hungry after eating? am i maybe not eating enough, i'm sort of lost and as

much

> as i'm reading up on things i'm not getting the info quick enough, so much to

> take in, also should i take nystatin to kill it off. what do you have as a

snack

> if your hungry? is it normal to feel like your having withdrawls of somekind,

> reminds me of when i gave up cigerettes, light headed and on and off

headaches,

> any feedback would be much appreciated, i'm still confused with the different

> sites telling you, ya can have certain foods and others saying no, so if you

> have a site i can reference to i'd much appreciate it.

[Guest guest]

exactly reason i wont use surgeon in vegas i asked how many he had doen and he said afew i heard that a speicalist sould do 30-70 a month

Donna

310-595-6462

From: .Kirkaldie@...Date: Thu, 17 Jan 2002 05:15:15 -0700Subject: Re: [ ] hi all

Donna,

In a post today to , I posted that Ken Had surgery with Dr. Pashman at Cedars I believe. In post # 25954 I listed some names to possibly check out in Southern Calif. Also go to the Scoliosis Research Society site( just google it) and they have a physician finder there by state, and or city. Look for key words in their description, Adult, degenerative, aging. Most area's have one local doc to check for a starting place, but quiz any assistant you speak with for their experience with Flatback and post Harrington Rod spines. If they hum or ha around, move to the next name. When going for a surgeon experience does matter, if they have done one or two cases, or looked in on one, run away. That is why when speaking of this surgery, many times the same couple of handful of names crop up, they do this often, have a track record, and patients here you can speak with. You don't want to be the patient anyone practices on, you need experience, this is very major, and tricky surgery in the best of hands.

Good luck,

Colorado Springs

[ ] hi all

any southern california surgoens that do flatbakc revision procedures there? I am in NV there isnt anyone but i know there is SF but if icould Southern cal then i have more options to leting a friend hodl my dog while gone etc and its 4 hrs awaythanks your freinddonna

[Guest guest]

Hi Elaine,

 

In my opinion and experience, hunger can be confused with a feeling of

satisfying the candida in your body, which is crying out to be fed.  I think

this feeling may be what people consider feeling " full " .  In my experience, I

can have a stomach full of food, yet still not get that " satisfied " feeling that

I'd get if I had something starchy or sugary.  So over the years -- yes, it

took me years to master this craving -- I learned that I would never feel

satisfied in that way again, that feeling satisfied in that way would only make

me sick, and that when I felt like I was still hungry, I really wasn't.  I just

was feeling the lack of candida being fed.

 

Eventually I discovered I felt much happier with life and the experience of

living when I did not satisfy the craving to feed candida by eating " bad "

food.  ALSO, if I overeat on " good " food, that can still cause the same

problems that eating bad food does.  That's how it works with me.

 

Good luck!

 

From: Elaine Smyth <elainesmyth68@...>

Subject: hi all

candidiasis

Date: Tuesday, May 19, 2009, 3:09 PM

 

Hi

I'm finding it really tough on the candida diet, is it normal to still feel

hungry after eating? am i maybe not eating enough, i'm sort of lost and as much

as i'm reading up on things i'm not getting the info quick enough, so much to

take in, also should i take nystatin to kill it off. what do you have as a snack

if your hungry? is it normal to feel like your having withdrawls of somekind,

reminds me of when i gave up cigerettes, light headed and on and off headaches,

any feedback would be much appreciated, i'm still confused with the different

sites telling you, ya can have certain foods and others saying no, so if you

have a site i can reference to i'd much appreciate it.

Thanks

Elaine

_________________________________________________________________

Share your photos with Windows Live Photos – Free.

http://clk.atdmt.com/UKM/go/134665338/direct/01/

[Guest guest]

i meant 50-100 a mont not a week it was late lol

Donna

310-595-6462

From: .Kirkaldie@...Date: Thu, 17 Jan 2002 12:27:00 -0700Subject: Re: [ ] hi all

Donna,

Those numbers you quoted are huge, a doc possible could do one, maybe two or three a week. You must remember even the best surgeon, has office days, or half days, and most their practice isn't just limited to Flatback revisions, they are doing many kinds of spinal surgeries too. You must also know, a great deal of these surgeons stage fusions to the sacrum, in two parts, as they are very long daunting surgeries, and even staged, each part can be 4-6-8 hours. My revisions weren't staged, 10 to 12 hours each, so you can see what a day it is for not only us, but the doc's working on us. So adding up in practical time, the numbers you quoted just isn't possible. I think sometime back, when someone was talking about experience, and Dr. Bridwells names came up, and he does more of these than about anyone out there, I think they said he'd figured he'd done around 100-150 these( I hope I'm right on this, Bridwell people chime in). Numbers of surgeries will continue to tick onto there lists, as more and more of us start to fall apart as we age.

Colorado Springs

[ ] hi all

any southern california surgoens that do flatbakc revision procedures there? I am in NV there isnt anyone but i know there is SF but if icould Southern cal then i have more options to leting a friend hodl my dog while gone etc and its 4 hrs awaythanks your freinddonna

[Guest guest]

Hi Donna...

You actually did say " month " in your original post. Maybe you meant " year? "

Big scoliosis surgeries and revision surgeries take around 8-10 hours (and

sometimes a lot more). There's no way a surgeon could do more than 1-2 per

week, and that would be a LOT. UCSF is certainly one of the top 5 revision

centers in the US, and I doubt they ever do more than 2-3 a week in total.

Regards,

>

>

> i meant 50-100 a mont not a week it was late lol

>

>

> Donna

> 310-595-6462

>

>

>

>

>

>

>

> From: .Kirkaldie@...

> Date: Thu, 17 Jan 2002 12:27:00 -0700

> Subject: Re: [ ] hi all

>

>

>

>

>

>

>

>

> Donna,

>

> Those numbers you quoted are huge, a doc possible could do one, maybe two or

three a week. You must remember even the best surgeon, has office days, or half

days, and most their practice isn't just limited to Flatback revisions, they are

doing many kinds of spinal surgeries too. You must also know, a great deal of

these surgeons stage fusions to the sacrum, in two parts, as they are very long

daunting surgeries, and even staged, each part can be 4-6-8 hours. My revisions

weren't staged, 10 to 12 hours each, so you can see what a day it is for not

only us, but the doc's working on us. So adding up in practical time, the

numbers you quoted just isn't possible. I think sometime back, when someone was

talking about experience, and Dr. Bridwells names came up, and he does more of

these than about anyone out there, I think they said he'd figured he'd done

around 100-150 these( I hope I'm right on this, Bridwell people chime in).

Numbers of surgeries will continue to tick onto there lists, as more and more of

us start to fall apart as we age.

>

>

> Colorado Springs

>

> [ ] hi all

>

>

>

> any southern california surgoens that do flatbakc revision procedures there? I

am in NV there isnt anyone but i know there is SF but if icould Southern cal

then i have more options to leting a friend hodl my dog while gone etc and its 4

hrs away

> thanks your freind

> donna

>