Hi All

[Guest guest]

yes i already reposted as per year thanks

Donna

310-595-6462

From: lindaracine@...Date: Fri, 22 May 2009 14:23:23 +0000Subject: [ ] Re: hi all

Hi Donna...You actually did say "month" in your original post. Maybe you meant "year?" Big scoliosis surgeries and revision surgeries take around 8-10 hours (and sometimes a lot more). There's no way a surgeon could do more than 1-2 per week, and that would be a LOT. UCSF is certainly one of the top 5 revision centers in the US, and I doubt they ever do more than 2-3 a week in total.Regards,>> > i meant 50-100 a mont not a week it was late lol> > > Donna > 310-595-6462> > > > > > > > From: .Kirkaldie@...> Date: Thu, 17 Jan 2002 12:27:00 -0700> Subject: Re: [ ] hi all> > > > > > > > > Donna,> > Those numbers you quoted are huge, a doc possible could do one, maybe two or three a week. You must remember even the best surgeon, has office days, or half days, and most their practice isn't just limited to Flatback revisions, they are doing many kinds of spinal surgeries too. You must also know, a great deal of these surgeons stage fusions to the sacrum, in two parts, as they are very long daunting surgeries, and even staged, each part can be 4-6-8 hours. My revisions weren't staged, 10 to 12 hours each, so you can see what a day it is for not only us, but the doc's working on us. So adding up in practical time, the numbers you quoted just isn't possible. I think sometime back, when someone was talking about experience, and Dr. Bridwells names came up, and he does more of these than about anyone out there, I think they said he'd figured he'd done around 100-150 these( I hope I'm right on this, Bridwell people chime in). Numbers of surgeries will continue to tick onto there lists, as more and more of us start to fall apart as we age.> > > Colorado Springs > > [ ] hi all> > > > any southern california surgoens that do flatbakc revision procedures there? I am in NV there isnt anyone but i know there is SF but if icould Southern cal then i have more options to leting a friend hodl my dog while gone etc and its 4 hrs away> thanks your freind> donna>

[Guest guest]

Hi Donna, I haven't introduced myself yet but have been reading your posts. I can tell that your spirits have lifted since your first post. This group is awesome isn't it! Here's hoping you get your back situation straightened out.

G NC

[ ] hi all> > > > any southern california surgoens that do flatbakc revision procedures there? I am in NV there isnt anyone but i know there is SF but if icould Southern cal then i have more options to leting a friend hodl my dog while gone etc and its 4 hrs away> thanks your freind> donna>

[Guest guest]

Donna,

Sorry to be correcting you again, you may have mistyped, but as said,

50-100 a YEAR would be impossible...probably more likely to see a doctor

schedule a complex spine case like ours no MORE than once or twice a month....so

at that rate you would find it likely that a candidate surgeon should be doing

on order of 25 year. A few, like the names often mentioned here do more, but not

all that many more.

When did you schedule your appointment for with DrBerven?

Take Care, Cam

[Guest guest]

, what I do for the unquenchable hunger is to take a table spoon of

D-Ribose. Duncan said it was ok on the diet and it helps me. Doug

From: Elaine Smyth <elainesmyth68@ hotmail.com>

Subject: hi all

candidiasis

Date: Tuesday, May 19, 2009, 3:09 PM

 

Hi

I'm finding it really tough on the candida diet, is it normal to still feel

hungry after eating? am i maybe not eating enough, i'm sort of lost and as much

as i'm reading up on things i'm not getting the info quick enough, so much to

take in, also should i take nystatin to kill it off. what do you have as a snack

if your hungry? is it normal to feel like your having withdrawls of somekind,

reminds me of when i gave up cigerettes, light headed and on and off headaches,

any feedback would be much appreciated, i'm still confused with the different

sites telling you, ya can have certain foods and others saying no, so if you

have a site i can reference to i'd much appreciate it.

Thanks

Elaine

____________ _________ _________ _________ _________ _________ _

Share your photos with Windows Live Photos – Free.

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[Guest guest]

yes i mistyped just have 1 finger good

Donna

310-595-6462

From: cammaltby@...Date: Fri, 22 May 2009 19:29:09 +0000Subject: [ ] Re: hi all

Donna,Sorry to be correcting you again, you may have mistyped, but as said, 50-100 a YEAR would be impossible...probably more likely to see a doctor schedule a complex spine case like ours no MORE than once or twice a month....so at that rate you would find it likely that a candidate surgeon should be doing on order of 25 year. A few, like the names often mentioned here do more, but not all that many more.When did you schedule your appointment for with DrBerven?Take Care, Cam

[Guest guest]

Hunger and cravings have also been linked to malnutrition. I'd suspect

malabsoption as a cause, and to mitigate malabsoption many people supplement a

little higher when they are ill, particularly chromium, b-vitamins, magnesium

and potassium.

Duncan

>

>

> From: Elaine Smyth <elainesmyth68@...>

> Subject: hi all

> candidiasis

> Date: Tuesday, May 19, 2009, 3:09 PM

>

>

>

>

>  

> Hi

>

>

>

> I'm finding it really tough on the candida diet, is it normal to still feel

hungry after eating? am i maybe not eating enough, i'm sort of lost and as much

as i'm reading up on things i'm not getting the info quick enough, so much to

take in, also should i take nystatin to kill it off. what do you have as a snack

if your hungry? is it normal to feel like your having withdrawls of somekind,

reminds me of when i gave up cigerettes, light headed and on and off headaches,

any feedback would be much appreciated, i'm still confused with the different

sites telling you, ya can have certain foods and others saying no, so if you

have a site i can reference to i'd much appreciate it.

>

>

>

> Thanks

>

> Elaine

>

>

>

>

>

>

>

> _________________________________________________________________

> Share your photos with Windows Live Photos †" Free.

> http://clk.atdmt.com/UKM/go/134665338/direct/01/

>

>

[Guest guest]

Hi Doug,

 

Thanks.   That could help people.

 

My point, thought, was that I don't have unquenchable hunger anymore. 

Sometimes I get a craving, but if I ignore it for a few minutes, it goes away. 

Then I find I'm more interested in DOING things, rather than eating -- such as

playing guitar or going for a walk or talking to a friend -- and they're more

interesting and meaningful if I haven't eaten something that feeds candida.

 

From: Elaine Smyth <elainesmyth68@ hotmail.com>

Subject: hi all

candidiasis

Date: Tuesday, May 19, 2009, 3:09 PM

 

Hi

I'm finding it really tough on the candida diet, is it normal to still feel

hungry after eating? am i maybe not eating enough, i'm sort of lost and as much

as i'm reading up on things i'm not getting the info quick enough, so much to

take in, also should i take nystatin to kill it off. what do you have as a snack

if your hungry? is it normal to feel like your having withdrawls of somekind,

reminds me of when i gave up cigerettes, light headed and on and off headaches,

any feedback would be much appreciated, i'm still confused with the different

sites telling you, ya can have certain foods and others saying no, so if you

have a site i can reference to i'd much appreciate it.

Thanks

Elaine

____________ _________ _________ _________ _________ _________ _

Share your photos with Windows Live Photos – Free.

http://clk.atdmt. com/UKM/go/ 134665338/ direct/01/

[Guest guest]

Hi, I am new to this group. so, hello to all.  In response to your question, are

you close to Wichita, Kansas.  If so,  the doctor who made it better for me is

there.  E-mail if you would like more information.

From: kansas77@... <kansas77@...>

Subject: Hi all

spinal problems

Date: Tuesday, May 26, 2009, 8:27 PM

I had few questioons

In late 40s and getting orathitis is in my left knee upper arm and shoulder.Now

my left foot on bottom is hurting and I can barley left my knee up much get

shoes on.Can magieusim help on chronic pain?Degenrated disc live in Kansas any

good doctors help on this.So tire of pain meds lack of sleep hardly do stuff now

walking bugging me.Refuse stop walking if I can help it.

Is there others that are in group fighting this to.Not sure how to spell word.My

spelling not great all time.

Sue,ks

[Guest guest]

YOu may have plantar fasciitis...look it up and see if that matches your foot

problem.

 

---

From: kansas77@... <kansas77@...>

Subject: Hi all

spinal problems

Date: Tuesday, May 26, 2009, 9:27 PM

I had few questioons

In late 40s and getting orathitis is in my left knee upper arm and shoulder.Now

my left foot on bottom is hurting and I can barley left my knee up much get

shoes on.Can magieusim help on chronic pain?Degenrated disc live in Kansas any

good doctors help on this.So tire of pain meds lack of sleep hardly do stuff now

walking bugging me.Refuse stop walking if I can help it.

Is there others that are in group fighting this to.Not sure how to spell word.My

spelling not great all time.

Sue,ks

[Guest guest]

Hi ,

I'm sorry to hear your in so much pain. I hope you find another rheumy

very soon. It sounds like your in a flare, and your RA is getting

worse. Not a good sign, to see deformity. Are you on any other meds?

If you need help finding a rheumy in your area, just post your area, and

hopefully someone can direct you in the right direction, to a good

rheumy. Do you have a primary doctor that can help you with some meds,

until you can find a rheumy?

Good luck,

Tawny

--- In , " Massey " <renandstimpy3@...>

wrote:

>

> How has everyone been doing? I hope better then me. I have been off my

enbrel now since December. My Rheumy was a jerk and the enbrel stopped

working months and months before I had stopped it. I am currently

looking for a new one. In the meantime I have been in lots of pain and

hiding it well at work and at home.

> I have been getting cramps in my feet and hands along with tingling

and numbness. I also get the charely horse cramps in the legs as well.

thankfully I have not swelled up like a balloon but have noticed some

deformity in my pinky fingers on both hands. I have also noticed some

deformity in my knees as well because my caps are starting to turn

inward.

> I will be changing insurance companies at work soon to Kaiser and

thinking about doing there flex pay account at work as well to help with

some of the co-pay for the prescriptions. I hope everyone else is having

a pain free day and night. Sleep well

>

>

>

>

> _______________________________________

> No viruses found in this outgoing message

> Scanned by iolo AntiVirus 1.5.3.5

> http://www.iolo.com

>

>

>

[Guest guest]

I have a primary who has helped with only basic pain meds. I'm on tramodol and

percocets. otherwise he told me to see my rheumy. I told him I don't like him

and he said well find one on your own at this point. Isn't that nice I haven't

been back to him since.

[ ] Re: Hi all

Hi ,

I'm sorry to hear your in so much pain. I hope you find another rheumy

very soon. It sounds like your in a flare, and your RA is getting

worse. Not a good sign, to see deformity. Are you on any other meds?

If you need help finding a rheumy in your area, just post your area, and

hopefully someone can direct you in the right direction, to a good

rheumy. Do you have a primary doctor that can help you with some meds,

until you can find a rheumy?

Good luck,

Tawny

>

> How has everyone been doing? I hope better then me. I have been off my

enbrel now since December. My Rheumy was a jerk and the enbrel stopped

working months and months before I had stopped it. I am currently

looking for a new one. In the meantime I have been in lots of pain and

hiding it well at work and at home.

> I have been getting cramps in my feet and hands along with tingling

and numbness. I also get the charely horse cramps in the legs as well.

thankfully I have not swelled up like a balloon but have noticed some

deformity in my pinky fingers on both hands. I have also noticed some

deformity in my knees as well because my caps are starting to turn

inward.

> I will be changing insurance companies at work soon to Kaiser and

thinking about doing there flex pay account at work as well to help with

some of the co-pay for the prescriptions. I hope everyone else is having

a pain free day and night. Sleep well

>

>

>

>

> _______________________________________

> No viruses found in this outgoing message

> Scanned by iolo AntiVirus 1.5.3.5

> http://www.iolo.com

>

>

>

[Guest guest]

,

I'm glad he is at least helping with pain meds. I hope you find one soon. Good

luck, Tawny

>

> I have a primary who has helped with only basic pain meds. I'm on tramodol

and percocets. otherwise he told me to see my rheumy. I told him I don't like

him and he said well find one on your own at this point. Isn't that nice I

haven't been back to him since.

>

>

[Guest guest]

it just gets fustrating after a while. to go day in and day out with all this

pain and no one really understanding it. Not even my soon to be husband really

understands. I work a full time job 40+ a week along with taking care of 2 kids

aged 4 and 5 and then my soon to be husband is also blind so I have to drive him

everywhere. I am probably burnt out from my job I work with adults with

developmental disabilities along with helping him at home. I plan on going back

to school in July which will probably make it worse but I am getting to the

point now where I can no longer do the job I love to do. I'm going back to be a

pharmacy technician which will be easier on me except for I will probably have

to stand all day long but atleast I might have a better understanding of some of

the drugs that we all have to take in our daily life in order to survive. I

applied to SSDI back in october but never heard a word from them and when I've

called to check up on it they never recieved it so the next chance I will have

to apply in person is at the end of july.

[ ] Re: Hi all

,

I'm glad he is at least helping with pain meds. I hope you find one soon. Good

luck, Tawny

>

> I have a primary who has helped with only basic pain meds. I'm on tramodol

and percocets. otherwise he told me to see my rheumy. I told him I don't like

him and he said well find one on your own at this point. Isn't that nice I

haven't been back to him since.

>

>

------------------------------------------------------------------------------

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_______________________________________

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Scanned by iolo AntiVirus 1.5.3.5

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[Guest guest]

,

You have so much on your plate right now, I'm sorry. Everyone is

leaning on you right now, and you need a shoulder once in awhile. Have

you taken your soon too be hubby, to one of your doctor visits? Its

really hard for people who love us the most to fully understand it all.

They can't fix us, and it hurts them. We never get better, and its hard

for them to watch us in pain constantly.

You are in the right direction, you can't go on at the job your doing.

You need one that will not be too bad on you. Standing might be too

hard for you, standing all day. I would talk with someone at the

school, and find a new career that will work for you.

If you need someone to talk to, you can always email me. I know how you

feel, we all face challenges. Just know, we are all here for you. I

hope you have some pain free days.

Gentle hugs,

Tawny

--- In , " Massey " <renandstimpy3@...>

wrote:

>

> it just gets fustrating after a while. to go day in and day out with

all this pain and no one really understanding it. Not even my soon to be

husband really understands. I work a full time job 40+ a week along with

taking care of 2 kids aged 4 and 5 and then my soon to be husband is

also blind so I have to drive him everywhere. I am probably burnt out

from my job I work with adults with developmental disabilities along

with helping him at home. I plan on going back to school in July which

will probably make it worse but I am getting to the point now where I

can no longer do the job I love to do. I'm going back to be a pharmacy

technician which will be easier on me except for I will probably have to

stand all day long but atleast I might have a better understanding of

some of the drugs that we all have to take in our daily life in order to

survive. I applied to SSDI back in october but never heard a word from

them and when I've called to check up on it they never recieved it so

the next chance I will have to apply in person is at the end of july.

>

>

[Guest guest]

From: Elaine Smyth <elainesmyth68@...>

Subject: hi all

candidiasis-owner

Date: Wednesday, June 10, 2009, 9:12 AM

#yiv758223990 .hmmessage P

{

margin:0px;padding:0px;}

#yiv758223990 {

font-size:10pt;font-family:Verdana;}

Hi Everyone

 

I'm on my fourth week since monday of my candidas diet, i know i've lost a lot

of weight already, my bowels feel a lot better, their not swollen the way they

were, well its the only way i can describe it, i get a sore stomach now and

again, but i'm feeling a lot better than i was since the first week or so, my

skin and hair look great and overall i look a lot healthier but i was just

wondering should i start the nystatin now?, and any other info you can give me

as to what i should be doing now would be good also, i'm taking GSE liquid and

pau d'arco capsules and probiotics, is there anything else i need to take, i

also take garlic everyday.

 

Thanks

Elaine

Beyond Hotmail - see what else you can do with Windows Live. Find out more.

[Guest guest]

I had my teeth pulled at age 22.  Some type of inherited disease.  Doc put me

out, pulled the teeth and put the dentures right in while I was out.  I had a

couple of VERY painful weeks.  But I stopped catching every virus around and

actually felt good.  You don't realize how much your teeth effect you.  I had

strep throat for two months prior to teeth removal.  Doc told me teeth out or it

will slowly destroy my organs.  He couldn't get it done fast enough for me.  It

isn't fun to go through.  But if they are draining poison into your system,  you

will be glad when it gets done and you are healed.

From: kansas77@... <kansas77@...>

Subject: Hi all

spinal problems

Date: Thursday, June 25, 2009, 6:54 PM

I thought post short note break from homework back to it.

Went to denist get chipped tooth pull took exway said I need get all them pulled

like ugh.One is bad enough on it.Sept soonest I get in and on antibodic now

..Maybe get all pull I wont get migraines no more than.Has anyone gone through

thiss Im scared to death of denist drill sound just freak me out.

Be glad heatwave in Kansas get little cooler be nice 105 and higher humidty

getting me down this week.Back to home work what fun.

Sue,ks

[Guest guest]

hi Sue,

I just got 2 upper back teeth pulled out Wed.  All of them need

to be pulled and then on my way to dentures.

I have no good teeth in my mouth.

If you are like me then go for it!  I have the Oregon Health Plan Plus open card

so it is all being paid for, so far.

btw, I am 46yo and went through years of braces when I was growing up and

then years of getting root canals, etc.  I have been through novacaine, laughing

gas, drills, suction things in your mouth, the dentist picking away at your

teeth.

Alot of money down the drain, never had good teeth anyways.

Sounds like you need them all pulled so you won't get migraines.  I am on my 4th

bottle of antibiotics, (Amoxicillin) because of all of the abcesses.  I had

earaches and chin

aches and it also bothered my eye I think too.  Heck, I don't know.

My opinion, get them all pulled and you will feel better!

gentle hugs, Coleen

________________________________

From: " kansas77@... " <kansas77@...>

spinal problems

Sent: Thursday, June 25, 2009 4:54:32 PM

Subject: Hi all

I thought post short note break from homework back to it.

Went to denist get chipped tooth pull took exway said I need get all them pulled

like ugh.One is bad enough on it.Sept soonest  I get in and on antibodic now

..Maybe get all pull I wont get migraines no more than.Has anyone gone through

thiss Im scared to death of denist drill sound just freak me out.

Be glad heatwave in Kansas get little cooler be nice 105 and higher humidty

getting me down this week.Back to home work what fun.

Sue,ks

------------------------------------

[Guest guest]

With all the pain meds we have to take, it takes a toll on our teeth. I already

went thru what is happening to you now with the upper, now having the same thing

happening with the bottom teeth. The one thing to remember with the bottom is

you need some type of anchor with a full denture, because they never work right.

I know this from my mother whom had hers pulled very early in life. She is

dealing still with that fact. When the time comes for me to go full dentures on

the bottom I plan to get anchors embedded to lock the plate in. They will never

stay in good unless you do this. Check with you dentist about the anchors before

you have a plate made.

This is just a heads up from experience, and my honest opinion. You will thank

me in the long run. Take my word for it.

 

Bama, george

 

" He is your friend, your partner, your defender, your dog. You are his life, his

love, his leader. He will be yours, faithful and true, to the last beat of his

heart. You owe it to him to be worthy of such devotion. " -unknown-

________________________________

From: Coleen Fox <foxycol63@...>

spinal problems

Sent: Friday, June 26, 2009 7:06:48 AM

Subject: Re: Hi all

hi Sue,

I just got 2 upper back teeth pulled out Wed.  All of them need

to be pulled and then on my way to dentures.

I have no good teeth in my mouth.

If you are like me then go for it!  I have the Oregon Health Plan Plus open card

so it is all being paid for, so far.

btw, I am 46yo and went through years of braces when I was growing up and

then years of getting root canals, etc.  I have been through novacaine, laughing

gas, drills, suction things in your mouth, the dentist picking away at your

teeth.

Alot of money down the drain, never had good teeth anyways.

Sounds like you need them all pulled so you won't get migraines.  I am on my 4th

bottle of antibiotics, (Amoxicillin) because of all of the abcesses.  I had

earaches and chin

aches and it also bothered my eye I think too.  Heck, I don't know.

My opinion, get them all pulled and you will feel better!

gentle hugs, Coleen

____________ _________ _________ __

From: " kansas77sbcglobal (DOT) net " <kansas77sbcglobal (DOT) . net>

spinedisorderssuppo rtgroup@gro ups.com

Sent: Thursday, June 25, 2009 4:54:32 PM

Subject: Hi all

I thought post short note break from homework back to it.

Went to denist get chipped tooth pull took exway said I need get all them pulled

like ugh.One is bad enough on it.Sept soonest  I get in and on antibodic now

..Maybe get all pull I wont get migraines no more than.Has anyone gone through

thiss Im scared to death of denist drill sound just freak me out.

Be glad heatwave in Kansas get little cooler be nice 105 and higher humidty

getting me down this week.Back to home work what fun.

Sue,ks

------------ --------- --------- ------

[Guest guest]

hi ,

You mean they actually anchor the bottom denture into the jaw bone?

I just had 2 upper back teeth removed Wed and am on my way to

getting full dentures.

thanks, Coleen

________________________________

From: Lambert <glambert28@...>

spinal problems

Sent: Friday, June 26, 2009 7:43:39 AM

Subject: Re: Hi all

With all the pain meds we have to take, it takes a toll on our teeth. I already

went thru what is happening to you now with the upper, now having the same thing

happening with the bottom teeth. The one thing to remember with the bottom is

you need some type of anchor with a full denture, because they never work right.

I know this from my mother whom had hers pulled very early in life. She is

dealing still with that fact. When the time comes for me to go full dentures on

the bottom I plan to get anchors embedded to lock the plate in. They will never

stay in good unless you do this. Check with you dentist about the anchors before

you have a plate made.

This is just a heads up from experience, and my honest opinion. You will thank

me in the long run. Take my word for it.

 

Bama, george

 

" He is your friend, your partner, your defender, your dog. You are his life, his

love, his leader. He will be yours, faithful and true, to the last beat of his

heart. You owe it to him to be worthy of such devotion. " -unknown-

________________________________

From: Coleen Fox <foxycol63@...>

spinal problems

Sent: Friday, June 26, 2009 7:06:48 AM

Subject: Re: Hi all

hi Sue,

I just got 2 upper back teeth pulled out Wed.  All of them need

to be pulled and then on my way to dentures.

I have no good teeth in my mouth.

If you are like me then go for it!  I have the Oregon Health Plan Plus open card

so it is all being paid for, so far.

btw, I am 46yo and went through years of braces when I was growing up and

then years of getting root canals, etc.  I have been through novacaine, laughing

gas, drills, suction things in your mouth, the dentist picking away at your

teeth.

Alot of money down the drain, never had good teeth anyways.

Sounds like you need them all pulled so you won't get migraines.  I am on my 4th

bottle of antibiotics, (Amoxicillin) because of all of the abcesses.  I had

earaches and chin

aches and it also bothered my eye I think too.  Heck, I don't know.

My opinion, get them all pulled and you will feel better!

gentle hugs, Coleen

____________ _________ _________ __

From: " kansas77sbcglobal (DOT) net " <kansas77sbcglobal (DOT) . net>

spinedisorderssuppo rtgroup@gro ups.com

Sent: Thursday, June 25, 2009 4:54:32 PM

Subject: Hi all

I thought post short note break from homework back to it.

Went to denist get chipped tooth pull took exway said I need get all them pulled

like ugh.One is bad enough on it.Sept soonest  I get in and on antibodic now

..Maybe get all pull I wont get migraines no more than.Has anyone gone through

thiss Im scared to death of denist drill sound just freak me out.

Be glad heatwave in Kansas get little cooler be nice 105 and higher humidty

getting me down this week.Back to home work what fun.

Sue,ks

------------ --------- --------- ------

[Guest guest]

Coleen,

No not that way. When I talked to a dentist about it he explained it as two

anchors embedded in your gums on each side, and then when your bottom set is

made a slot is cut into the plate that locks into those anchors which keeps the

denture from moving without and adhesives. Very good idea in my opinion. That

way you would only take them out to clean, and you can sleep with them in, which

IMO again you will begin to think of them as permanent instead of false. 

I would like to know though if you had anchors in the top, would you have to

have the full plate or not that covers your pallet, maybe made like the bottom

just covers your gums.

Check with your dentist, I do believe they are very expensive to do though, not

sure.

 

Bama, george

 

" He is your friend, your partner, your defender, your dog. You are his life, his

love, his leader. He will be yours, faithful and true, to the last beat of his

heart. You owe it to him to be worthy of such devotion. " -unknown-

________________________________

From: Coleen Fox <foxycol63@...>

spinal problems

Sent: Friday, June 26, 2009 2:18:57 PM

Subject: Re: Hi all

hi ,

You mean they actually anchor the bottom denture into the jaw bone?

I just had 2 upper back teeth removed Wed and am on my way to

getting full dentures.

thanks, Coleen

____________ _________ _________ __

From: Lambert <glambert28 (DOT) com>

spinedisorderssuppo rtgroup@gro ups.com

Sent: Friday, June 26, 2009 7:43:39 AM

Subject: Re: Hi all

With all the pain meds we have to take, it takes a toll on our teeth. I already

went thru what is happening to you now with the upper, now having the same thing

happening with the bottom teeth. The one thing to remember with the bottom is

you need some type of anchor with a full denture, because they never work right.

I know this from my mother whom had hers pulled very early in life. She is

dealing still with that fact. When the time comes for me to go full dentures on

the bottom I plan to get anchors embedded to lock the plate in. They will never

stay in good unless you do this. Check with you dentist about the anchors before

you have a plate made.

This is just a heads up from experience, and my honest opinion. You will thank

me in the long run. Take my word for it.

 

Bama, george

 

" He is your friend, your partner, your defender, your dog. You are his life, his

love, his leader. He will be yours, faithful and true, to the last beat of his

heart. You owe it to him to be worthy of such devotion. " -unknown-

____________ _________ _________ __

From: Coleen Fox <foxycol63 (DOT) com>

spinedisorderssuppo rtgroup@gro ups.com

Sent: Friday, June 26, 2009 7:06:48 AM

Subject: Re: Hi all

hi Sue,

I just got 2 upper back teeth pulled out Wed.  All of them need

to be pulled and then on my way to dentures.

I have no good teeth in my mouth.

If you are like me then go for it!  I have the Oregon Health Plan Plus open card

so it is all being paid for, so far.

btw, I am 46yo and went through years of braces when I was growing up and

then years of getting root canals, etc.  I have been through novacaine, laughing

gas, drills, suction things in your mouth, the dentist picking away at your

teeth.

Alot of money down the drain, never had good teeth anyways.

Sounds like you need them all pulled so you won't get migraines.  I am on my 4th

bottle of antibiotics, (Amoxicillin) because of all of the abcesses.  I had

earaches and chin

aches and it also bothered my eye I think too.  Heck, I don't know.

My opinion, get them all pulled and you will feel better!

gentle hugs, Coleen

____________ _________ _________ __

From: " kansas77@sbcglobal . net " <kansas77@sbcglobal .. net>

spinedisorderssuppo rtgroup@gro ups.com

Sent: Thursday, June 25, 2009 4:54:32 PM

Subject: Hi all

I thought post short note break from homework back to it.

Went to denist get chipped tooth pull took exway said I need get all them pulled

like ugh.One is bad enough on it.Sept soonest  I get in and on antibodic now

..Maybe get all pull I wont get migraines no more than.Has anyone gone through

thiss Im scared to death of denist drill sound just freak me out.

Be glad heatwave in Kansas get little cooler be nice 105 and higher humidty

getting me down this week.Back to home work what fun.

Sue,ks

------------ --------- --------- ------

[Guest guest]

Dear ,

?

Sending You a hug first.? I went and looked at the symptoms, and I have no

material suggestions at all.? However, I do have a very viable suggestion, and

that is to look another way for healing.? We have seen marvelous healings,

especially with children, from reading Science and Health with Key to the

Scriptures.

?

My daughter had msud (congential thing, believed to be permanent) disappear

through prayer in her 30's.?

?

There is always?possibility for healing.?

?

Love,

Francine

Speak with Him Thou for He hearest.

Spirit with Spirit can speak.

Closer is Love than breathing,

Nearer than hands and feet.

(with appreciation for Tennyson)

[Guest guest]

Dear I pray for your daughter,  Francine is right, believe in God

everything will be OK. Miracle is possible. Take a deep breath

God Bless U & Your Family.

From: sunrose101@... <sunrose101@...>

Subject: [ ] Re: Hi All

Date: Saturday, December 12, 2009, 1:09 PM

 

Dear ,

?

Sending You a hug first.? I went and looked at the symptoms, and I have no

material suggestions at all.? However, I do have a very viable suggestion, and

that is to look another way for healing.? We have seen marvelous healings,

especially with children, from reading Science and Health with Key to the

Scriptures.

?

My daughter had msud (congential thing, believed to be permanent) disappear

through prayer in her 30's.?

?

There is always?possibility for healing.?

?

Love,

Francine

Speak with Him Thou for He hearest.

Spirit with Spirit can speak.

Closer is Love than breathing,

Nearer than hands and feet.

(with appreciation for Tennyson)

[Guest guest]

Hi Christa:

     I am sorry you are having terrible foot pain.  My RA hit my feet and

ankles the worst.  There were days when I could not walk or stand on them. 

Those days I was in bed all the time.  I do take more RA meds. then you do.  I

take MTX, Sulfasalazine, Leucovorin, Placquenil, and Pred.  I am on the max

dose of each, except the Pred.  I have just decreased the Pred. from 10 mg. a

day to 5mg. a day.  I have several types and strength's of pain meds.  I have

been on all these meds. for over 3 years, and am finally in a medicine induced

remission for the last year.  I am very grateful for this, and how long it will

last I don't know.  It takes quite awhile to find the right combination of

meds. to help our RA.  I hope one of your drs. can help relieve your pain. 

When my feet were at their worst with pain, I could not stand it, and wanted to

chop them off.  I have a very high level of pain tolerance, and believe me I

was over the top with

the pain.

    I hope you will get your pain under control soon.  It is awful to suffer

like that.  Try to stay off them as much as possible.  I also bought a foot

bath to soak them in hot water, and Epsom salts. It does help.  I also used to

wrap them in a small blanket and heating pad. That is soothing also.

   Take care and I wish you many pain free days ahead.

 

Hugs,

 

Barbara

From: Christa <loveyouhun@...>

Subject: [ ] Hi All

Date: Saturday, January 2, 2010, 8:17 PM

 

Hi,

I just recently went to see my rhuemmy and he did not change my medications. I'm

currently taking Methotrexate and Folic Acid. I did tell him I was having pain

in my feet and also I have metal in my right ankle (due to car accident 2 years

ago). He said unfortunely the metal will shrink and will cause pain.

I notice if I'm standing on my feet for a long time I will have pain. I have a

special shoe that suppose to support my feet but it's not. I will see my Dr (he

operated on my right wrist and ankle from the accident) this month. I hope there

is nothing wrong with that. I never had terrible pain unitl a few months ago. I

have 0 tolerance of pain. I tried to put my feet up and also take Tylenol but

the Rheummy said to take the Arthritis one. I guess I need to get that huh? I

would appreciate any feedback on this matter. Thanks

Christa

[Guest guest]

Hi Christa,

What your Rhumey told you just does not sound right to me, I have had both

Hips and Knees replaced and I have what appears to be a crochet hook in my right

wrist. Metal does not shrink !!!! Defiantly go back to the Dr. that did the

original surgery.

My prayers are with you.

>

> Hi,

> I just recently went to see my rhuemmy and he did not change my

medications. I'm currently taking Methotrexate and Folic Acid. I did tell him

I was having pain in my feet and also I have metal in my right ankle (due to car

accident 2 years ago). He said unfortunely the metal will shrink and will cause

pain.

> I notice if I'm standing on my feet for a long time I will have pain. I

have a special shoe that suppose to support my feet but it's not. I will see my

Dr (he operated on my right wrist and ankle from the accident) this month. I

hope there is nothing wrong with that. I never had terrible pain unitl a few

months ago. I have 0 tolerance of pain. I tried to put my feet up and also

take Tylenol but the Rheummy said to take the Arthritis one. I guess I need to

get that huh? I would appreciate any feedback on this matter. Thanks

>

>

> Christa

>

[Guest guest]

Hello from New York State - as opposed to Yorkshire, etc.

I saw you message a couple of days ago, but had several other things to get to

first.

Your " story " is so typical of what i have heard and seen in New york, Vermont

and with my cousin in California that all one would need to do would be to

change the " names, dates and places in " filling out a prepared form " describing

the ordeal!

When it comes to backs, every now and the, we are fortunate to find someone who

truly cares and tries and knows enough to do something that stands a chance of

helping, but that is not at all common in my experience, or from what I see and

hear!

I picked up a book called " How Dr.s Think " in a bargain bin. It's written by a

" high powered Doc who is married to one he says is a better Doc that he is and

more intelligent. He was motivated to write it after fighting for 3 years to

find out what was wrong with a hand he, basically, could not use. What he went

through sounded " painfully " similar to what you and I and so many others have to

go through with our backs, necks and the secondary things they cause us! I would

really recommend the book to anyone who may have to deal with docs for more than

a common cold. Thanks to the Internet and the online " stores " it's still

available in good quantities and not that expensive. It specifically addresses,

seemingly. most of the facets of the problem(s) involved in getting help! 

If we need help with our backs, necks, feet, hearts, etc, it is up to us to be

aggressive in seeking out anyone who may help and demanding that someone do

something. It is often a full " time and a half " job and one where those of us

who cannot accept the incompetence and uncaring attitude of so many are going to

be in serious trouble. It's pretty sad really - no very sad!

We need a patient advocacy group everywhere!!!!

I won't begin to detail all the factors that contribute to the problems we face

in finding the help we need, but most of it stems from the attitude the " system "

instill in the Docs and the uncaring manner in which so many medical offices are

managed. They seem to see us in the same " light " as many see dogs and cats that

want something (really need to go out, are hungry, etc) and they just try to

make us go away. Oftimes when I am on the phone with someone regarding a product

or " service " that isn't right, I am asked, " Did I try to help you? " Much of the

time it seems there sole purpose during the call is to placate me and geryt me

to say they did try to help. Mae a " service " and it's likely happended to us!!!

If we become politely, respectfully insistent when we need help from a Doc, we

are quickly labeled as " one of those! Then trying to get anywhere is all but

impossible!!!! If we show any sort of initiative, have " a mind of our own, " etc

the result is the same. Example - the last " Back Surgeon " to work on my back was

extraordinarily good and did all I could have hoped for. He readily agreed to

refer me to a Pain Clinic (worth a try), as his policy is to leave " pain

management " to someone else. I imagine it's to avoid the liability that can be

incurred from the dispensing of potent medications. His office is also a very

busy place and he is a very busy guy.

His Office manager (misManager?) insisted that they would make the appointment

for me (in the dead of winter when a " normal " 3 hour drive through an area to

the east of our Great Lakes is routinely subject to sudden, vicious snow storms

that can dump a couple of feet of snow in a very sort time and make it

impossible to see at mid day). It was also the height of cold and flu season and

travel was difficult for me due to my recent surgery. I was told, " You can

always call and change the appointment. " I had to as my back was going through a

particularly bad spell where I needed to be quite and horizontal. The next

appointment had to be rescheduled due to my having a truly miserable cold and

being unable to stay awake (not dsue to any medications). On the third try, the

weather was so bad the main roads between here and there were closed (a common

occurrence). When I called I wanted to reschedule, but was told, " you have to

get another referral, because

this is the sixth (not third as was the case) 5time you've canceled! "

On my next (and final appointment with the Dr. i asked for another referral and

he got a look of terror in his eyes. The pain Clinic clearly had him afraid

they'd take no more of his patients (despite his being extremely highly regarded

in his geographical area and for his abilities as a Neurosurgeon). His Office

Manager who had been so very helpful as long as I did things exactly the way she

wanted them done clearly just wanted me out of the office when I asked her for

help with that, as the Dr. had suggested.

She had no clue that the trip to " her " office (as I'm sure she regards it), was

an ordeal for me at that time, nor did she care! She said, 'i'll call you when

we've set up another appointment. " That was in April of 2006. I'm still

waiting!!!! I've run into too many situations where the office staffs make

medical decisions with no regard for the well being of their patients!!!!

As it turned out, a few months more healing from having my back muscles severed

for the surgery made a major difference, but it was 2 full years before I was no

longer flattened for 2 to 3 week periods while things healed up!!! Do they not

know that this is what many of us will face????

Of course, about the time the back settled down, my " Left Great Toe " began

really bothering. The incompetence and indifference and arrogance of the 4 foot

doctors and one area Orthopedic Surgeon I tried (Living in a sparsely populated

area where a day will often be consumed by a 15 minute medical appointment makes

it all the more difficult when one needs help!) seeking help with the joint that

holds the toe to the foot (major Artritis) is still difficult fo rme to

comprehend. What was tried to ease the problem was absolutely the opposite of

what was needed and only made it worse and worse. They did this knowing full

well of my history of back problems (I could not afford to have my stance aor

gait negatively eaffected by my foot!

Last February I went back to an Orthopedic Surgeon 60 miles from here who was

one of 2 persons I saw for my back opver a 3 year period who was honest with me.

he said, " I can't see anything (in the pics), but it could be just my little

brain. " He referred me to another member of his group who does many foot

surgeries. The dr to whom I was referred took the few moments needed to describe

what was wrong with my toe and offer 3 options (doing nothing or 2 types of

surgery). I decided I'd like ly have the less extreme surgery (no fusion), but

wanted to think it over during the weekend (It was a Friday.). I tried stopping

at the local Mall and my back was really set off. I was barely able to get back

to my truck. The decision was made for me. What I had feared had happend to my

back due to the foot. I had been " chasing " it for 13 months.

The surgery went well in an in house unit the Orthapedic group operates

themselves = no messing with a hospital and a very clean well run facility. I

had no more pain from the surgery than I had from the toe beforehand and it only

decreased from there. The toe was done at the end of March and within a month I

was driving my 2 vehicles with clutch pedals using the stiff post op shoe. I'd

feared it would be a very long time before I could drive them again! But trying

to get shoes to fit my feet (and the " new foot " ) along with the orthitics I've

worn since I was 20 has been a long slow process that I began in early June,

2009. I had one pair of shoes I could sort of use. I managed to get to others

stretched enough to use them and bought a new pair. It's been all trial and

error trying find a combination of shoes and orthotics that work. It was made

tougher by damage done under the back of my 4th toe due to favoring the big toe.

I 've done it myself, as the

orthopedic shoe store could not get it right and I learned, the hard way, that

I know about as much as the foot doctors about the process. The first I went to,

in 1962, had bad feet (why he became a Podiatrist!) showed and explained how

one's foot should move and how the orthtics would compensate for the structure

of my feet causing callus and corns. None of the 5 I've been to since seem to

understand that basic " stuff. " I'm a good ay from walking normally, but am

gaiing on it steadily.

Unfortunately I've had a brutal time with my back at a different level than the

last 2 surgeries since early June of last year. If I need to go far, it's on

crutches which is brutal! A shopping car is often better. I spend most of my

time sitting in the swivel rocker recliner with my feet propped way up to ease

the pain in the big musckes of my upper left leg. That has been easing, but is

spreading to the same areas of the right leg.

It's been back to Physical Therapy, but we can't seem to " get off the ground " so

far. And it looks like I'll be asking our Family Dr. to refer me back to the

surgeons. oOf course once one has had back surgery, many Docs think that all

that could be done has been done. I know " their speech " almost word for word!

Now my purpose in trying to type all this was not to complain or show how tough

I've had it, but to demonstrate that far too many of us go through this sort of

" crappe " virtually every day. It's a situation that is very sad and inexcusable.

What is worse is that I've heard enough form friends afflicted with Cancer, heat

disease, etc that it seems all too similar in their cases as well. I will remain

this way as long as the general population of whatever state, or nation we live

in tolerates it! So far no one has really shaken tings up. I suspect it is

because, most of us just want to get on with the business of living and enjoying

whatever we can and however we can.

A few years ago I stopped to by auto parts from a dealer (excellent service, top

quality parts and prices comparable to the after market stores. I've known the

Assistant Service Manager for many years (He lost a son to Lymphoma in the late

1990's). He asked how I was and I said, " Fine from the neck up. " He said, " How's

your back? " i said, " sore, but I'm sure glad it's only my back (I am truly

grateful for my overall good health!). " We said to the others in the area, " What

an optimist! " I can't imagine how he and his wife and other son suffered (and

still do) from the loss of the other son!!!!

I hope that some of what I put in this causes others to realize a bit more, it's

too much like this for too many, but at least, we are not being singled out and

picked on.

Someone who can share a good laugh with us, make us laugh and who will let us be

what we are without making a big issue of it is sure a blessing. I sure don't

want to think about it all the time. When my lad asked what I want for my b day

or Christmas, etc, I point to our shaggy dog who she has to comb and walk most

of the time and say ( " There he is!!! " ) He's no cure all, but I am " addicted " to

having a good pooch around and this one is gentle and very well mannered and a

reall goofy character. He truly is a " real live Muppet. " I'm still working on

teaching him not to block the asile with his rear end while eating. He's only

been here since late March of 2007......

Here's to a comfortable day, week, month and year for all!

My very best to everyone.

Bill

> From: peter cooke <peterjcooke123@...>

> Subject: hi all

> neck pain

> Date: Saturday, January 9, 2010, 12:47 AM

> hi group, Well Ive read a lot of your

> letters so thought I would add my input. I am English living

> in England. Profession, plumber .retired for 10 years at 58

> yrs due to back problems, course of treatment was pain

> killers,7 years on, now suffering from aches and pain in

> legs now 65 yrs old, now they decide to xray my back.

> which shows a lot of weakening bones and damaged vertebra 

> , and my GP said it was inoperable  due to there wasn't

> enough solid bone structure in the surrounding area to fix

> any sort of implant to.

> A further 3 years have now passed with rapidly increasing

> pain. so I demanded that they give me an MRI scan.  not

> that easy, first you have to meet their conditions, 1,

> course of pain killers, 2, 6-8 week course of physio , 10

> page questionnaire on pain management ,

> this whole process took 6 months to get the scan.  Which

> shows the main problems 2 areas where the nerves are

> trapped,causing sciatic pain in both legs and the

> consultant said he could operate on it.

>  

> So how many of you guys have had this opperation ?

> successful ?

> have a nice day

>

> have a nice day

>

>

>      

>

>