Hi All

[Guest guest]

> Hi everyone,

>

> I have a question about my son who is 3 years old, ASD and been

> chelating since November. It's a little personal and I'll try not

to

> be graphic. Tonight when I was changing my sons diaper I noticed

> that his penis is red. Just the area he urinates through, not the

> entire penis. When I tried to do a touch test he began crying and

is

> awfully raw apparently. I tried to check for tenderness in

> surounding areas and he still cried. I have never encountered this

> before. I would think if it's that raw it would have bothered him

to

> urinate but he didnt cry or anything when he went in his diaper.

(he

> is not yet potty trained)

> He had pneumonia in February and they put him on antibiotics. He

was

> okay for a couple weeks, we started the chelation again then he

came

> down with this cough that was the worst I'd ever seen. I had to

take

> him to the pedi again and they put him on more antibiotics saying

> he " may " have some sort of viral issue. He is on Probiotics as

well

> but I wonder............could he have developed a yeast issue from

> all the antibiotics. Is that what this redness could be? I was not

> sure if the above is a sign of yeast. He has never had a yeast

issue

> so I am not really sure of the signs to look for.

> Just wanted some experienced advice until I get to contact his DAN

> doctor about post-poning his chelation treatments.

>

> Thanks so much.....

>

>

>

>

>

>

>

>

> =======================================================

>

[Guest guest]

,

First, if you have a doctor who is putting your son on antibiotics

for viral issues, you should consider getting another doctor.

Antibiotics cannot impact viral issues other than to depress the

immune system and make viral issues that much more problematic.

Antibiotics attack bacteria, NOT viruses.

It sounds very much like your son does have yeast. Just like what

we call a yeast infection in women, not as common in males, but can

present the same way. Your son would also have this yeast

overgrowth in his gut.

If you did not use probiotics and lots of them after the antibiotics

a yeast overgrowth is almost assured, especially in children,

especially in ASD kids.

Get him on some good multistrain probiotics. Lots of them. I use

Candex to control yeast. It must be dosed on an empty stomach, but

it has very little taste and is easy to give a three year old. If

things are really out of control, you may want to add a drop or two

of GSE. It is best to give the probiotics away from the GSE but

they can be given with Candex.

You want to skip a round of chelation to get this a bit under

control, but a few days of Candex and probiotics should do the

trick. If his penis is very sore, you could also try some vaginal

cream intended for yeast infections. That might give him more

instant relief.

I hope he's feeling better soon,

Anita

>

> Hi everyone,

>

> I have a question about my son who is 3 years old, ASD and been

> chelating since November. It's a little personal and I'll try not

to

> be graphic. Tonight when I was changing my sons diaper I noticed

> that his penis is red. Just the area he urinates through, not the

> entire penis. When I tried to do a touch test he began crying and

is

> awfully raw apparently. I tried to check for tenderness in

> surounding areas and he still cried. I have never encountered this

> before. I would think if it's that raw it would have bothered him

to

> urinate but he didnt cry or anything when he went in his diaper.

(he

> is not yet potty trained)

> He had pneumonia in February and they put him on antibiotics. He

was

> okay for a couple weeks, we started the chelation again then he

came

> down with this cough that was the worst I'd ever seen. I had to

take

> him to the pedi again and they put him on more antibiotics saying

> he " may " have some sort of viral issue. He is on Probiotics as

well

> but I wonder............could he have developed a yeast issue from

> all the antibiotics. Is that what this redness could be? I was

not

> sure if the above is a sign of yeast. He has never had a yeast

issue

> so I am not really sure of the signs to look for.

> Just wanted some experienced advice until I get to contact his DAN

> doctor about post-poning his chelation treatments.

>

> Thanks so much.....

>

>

>

[Guest guest]

,

You must read my response and that of Anita together. You son can continue to

give your sone pear juice for the simple reason that due to some complex

chemistry issues intestinal yeast cannot feed on pear juice sugars. This is

widely confirmed in autism literature. Candex is an anti yeast formulation from

Pure Essence Labs. I get mine from Brain Child nutritionals check them on the

web. I have a poor internt connection currently an unable to do multi searches -

but just enter candex, pure essence or brain child nutritionals as a seach word

on or google and you will get further information....also pls use an anti

yeast formulation as Anita has suggested for his penal cover area. Apologies for

being graphic - however, pls check for redness too around his anal hole by very

careful observation.

As Anita also said any doctor giving antibiotics to you ASD son for virus is

no good - pls get him or her off your son now before he or she does more harm.

Kind Rgds,

Chidi

<plzpray4myson@...> wrote:

> Hi everyone,

>

> I have a question about my son who is 3 years old, ASD and been

> chelating since November. It's a little personal and I'll try not

to

> be graphic. Tonight when I was changing my sons diaper I noticed

> that his penis is red. Just the area he urinates through, not the

> entire penis. When I tried to do a touch test he began crying and

is

> awfully raw apparently. I tried to check for tenderness in

> surounding areas and he still cried. I have never encountered this

> before. I would think if it's that raw it would have bothered him

to

> urinate but he didnt cry or anything when he went in his diaper.

(he

> is not yet potty trained)

> He had pneumonia in February and they put him on antibiotics. He

was

> okay for a couple weeks, we started the chelation again then he

came

> down with this cough that was the worst I'd ever seen. I had to

take

> him to the pedi again and they put him on more antibiotics saying

> he " may " have some sort of viral issue. He is on Probiotics as

well

> but I wonder............could he have developed a yeast issue from

> all the antibiotics. Is that what this redness could be? I was not

> sure if the above is a sign of yeast. He has never had a yeast

issue

> so I am not really sure of the signs to look for.

> Just wanted some experienced advice until I get to contact his DAN

> doctor about post-poning his chelation treatments.

>

> Thanks so much.....

>

>

>

>

>

>

>

>

> =======================================================

>

[Guest guest]

Get some Grapefruit seed extract and a multidophilus (probiotic)

from a health food store until the Candex comes in. These two

things " should " clear him up and give relief in a couple of days.

The GSE from the caps can be mixed with a drink and the probiotics

can be purchased as chewables and are good

Reese

>

> Hi everyone,

>

> I have a question about my son who is 3 years old, ASD and been

> chelating since November. It's a little personal and I'll try not

to

> be graphic. Tonight when I was changing my sons diaper I noticed

> that his penis is red. Just the area he urinates through, not the

> entire penis. When I tried to do a touch test he began crying and

is

> awfully raw apparently. I tried to check for tenderness in

> surounding areas and he still cried. I have never encountered this

> before. I would think if it's that raw it would have bothered him

to

> urinate but he didnt cry or anything when he went in his diaper.

(he

> is not yet potty trained)

> He had pneumonia in February and they put him on antibiotics. He

was

> okay for a couple weeks, we started the chelation again then he

came

> down with this cough that was the worst I'd ever seen. I had to

take

> him to the pedi again and they put him on more antibiotics saying

> he " may " have some sort of viral issue. He is on Probiotics as

well

> but I wonder............could he have developed a yeast issue from

> all the antibiotics. Is that what this redness could be? I was

not

> sure if the above is a sign of yeast. He has never had a yeast

issue

> so I am not really sure of the signs to look for.

> Just wanted some experienced advice until I get to contact his DAN

> doctor about post-poning his chelation treatments.

>

> Thanks so much.....

>

>

>

[Guest guest]

Make sure you are giving him alot of liquids, as well. I took my

son to the ped. thinking he had a yeast infection because He was

grabbing at his penis every time he had to urinate. The test came

back negative for infection, (we were chelating at the time) and I

believe that the tip of his penis was just irritated. The symptoms

did go away...without yeast treatment, after the round of

chelation.

shannon

>

> Hi everyone,

>

> I have a question about my son who is 3 years old, ASD and been

> chelating since November. It's a little personal and I'll try not

to

> be graphic. Tonight when I was changing my sons diaper I noticed

> that his penis is red. Just the area he urinates through, not the

> entire penis. When I tried to do a touch test he began crying and

is

> awfully raw apparently. I tried to check for tenderness in

> surounding areas and he still cried. I have never encountered this

> before. I would think if it's that raw it would have bothered him

to

> urinate but he didnt cry or anything when he went in his diaper.

(he

> is not yet potty trained)

> He had pneumonia in February and they put him on antibiotics. He

was

> okay for a couple weeks, we started the chelation again then he

came

> down with this cough that was the worst I'd ever seen. I had to

take

> him to the pedi again and they put him on more antibiotics saying

> he " may " have some sort of viral issue. He is on Probiotics as

well

> but I wonder............could he have developed a yeast issue from

> all the antibiotics. Is that what this redness could be? I was

not

> sure if the above is a sign of yeast. He has never had a yeast

issue

> so I am not really sure of the signs to look for.

> Just wanted some experienced advice until I get to contact his DAN

> doctor about post-poning his chelation treatments.

>

> Thanks so much.....

>

>

>

[Guest guest]

I want to give an alternate view regarding this part:

>

> ...the holy grail of chelation is that you heal the gut before

chelation or the yeast will feed on the chelating agents with no

positive results.

Alternate view: mercury poisoning is a major contributor

to yeast. You are unlikely to get rid of yeast completely

until you chelate. Many people have treated yeast and

find it just comes back to be treated again.

Yeast and gut are very much worth monitoring and treating.

I think the part I question is the " heal " part. I think

you can IMPROVE the situation before chelation, but trying

to really get it " good " may be counter-productive.

And yeast is VERY common during chelation, so the best

stategy I know of is " get good at treating yeast " .

good wishes,

Moria

http://home.earthlink.net/~moriam/

Mercury Detox: Information, Tools, and Resources

[Guest guest]

> He had pneumonia in February and they put him on antibiotics. He was

> okay for a couple weeks, we started the chelation again then he came

> down with this cough that was the worst I'd ever seen. I had to take

> him to the pedi again and they put him on more antibiotics saying

> he " may " have some sort of viral issue.

He needs anti-virals for virus issues. Try giving him some OLE and/or

Virastop enzyme.

>>He is on Probiotics as well

> but I wonder............could he have developed a yeast issue from

> all the antibiotics. Is that what this redness could be?

Yes, antibiotics usually cause a yeast overgrowth problem.

Dana

[Guest guest]

Chidi,

You are absolutely correct about the problem of normal chelators and

stimulation of yeast. Recently there was a product released that both

doesn't have this problem, it will actually eliminate the yeast. It is

call NCD Zeolite. See www.ZeoliteAustismStudy.com

<http://www.ZeoliteAustismStudy.com> for an audio by Dr. Prociuk,

DAN MD discussing specifically the issue of yeast and chelating and what

his experience is using NCD.

Forrist Lytehaause

www.ZeoliteAutismStudy.com <http://www.ZeoliteAutismStudy.com>

Study Coordinator

Health & Wellness Research Institute

Portland, OR

(503)675-7684

Because many people ask where to purchase: (800)460-1882 or

www.ZeoliteSource.com <http://www.ZeoliteSource.com>

> Hi everyone,

>

> I have a question about my son who is 3 years old, ASD and been

> chelating since November. It's a little personal and I'll try not to

> be graphic. Tonight when I was changing my sons diaper I noticed

> that his penis is red. Just the area he urinates through, not the

> entire penis. When I tried to do a touch test he began crying and is

> awfully raw apparently. I tried to check for tenderness in

> surounding areas and he still cried. I have never encountered this

> before. I would think if it's that raw it would have bothered him to

> urinate but he didnt cry or anything when he went in his diaper. (he

> is not yet potty trained)

> He had pneumonia in February and they put him on antibiotics. He was

> okay for a couple weeks, we started the chelation again then he came

> down with this cough that was the worst I'd ever seen. I had to take

> him to the pedi again and they put him on more antibiotics saying

> he " may " have some sort of viral issue. He is on Probiotics as well

> but I wonder............could he have developed a yeast issue from

> all the antibiotics. Is that what this redness could be? I was not

> sure if the above is a sign of yeast. He has never had a yeast issue

> so I am not really sure of the signs to look for.

> Just wanted some experienced advice until I get to contact his DAN

> doctor about post-poning his chelation treatments.

>

> Thanks so much.....

>

>

>

>

>

>

>

>

> =======================================================

>

[Guest guest]

> > Hi everyone,

> >

> > I have a question about my son who is 3 years old, ASD and been

> > chelating since November. It's a little personal and I'll try not to

> > be graphic. Tonight when I was changing my sons diaper I noticed

> > that his penis is red. Just the area he urinates through, not the

> > entire penis. When I tried to do a touch test he began crying and is

> > awfully raw apparently. I tried to check for tenderness in

> > surounding areas and he still cried. I have never encountered this

> > before. I would think if it's that raw it would have bothered him to

> > urinate but he didnt cry or anything when he went in his diaper. (he

> > is not yet potty trained)

> > He had pneumonia in February and they put him on antibiotics. He was

> > okay for a couple weeks, we started the chelation again then he came

> > down with this cough that was the worst I'd ever seen. I had to take

> > him to the pedi again and they put him on more antibiotics saying

> > he " may " have some sort of viral issue. He is on Probiotics as well

> > but I wonder............could he have developed a yeast issue from

> > all the antibiotics. Is that what this redness could be? I was not

> > sure if the above is a sign of yeast. He has never had a yeast issue

> > so I am not really sure of the signs to look for.

> > Just wanted some experienced advice until I get to contact his DAN

> > doctor about post-poning his chelation treatments.

> >

> > Thanks so much.....

> >

> >

[Guest guest]

,

Where do you want the evidence? The evidence in the form of several

studies published in peer review journals documenting zeolite getting

rid of mercury, lead, arsenic, and several other things. DAN doctors

clinical evidence.

I'm guessing you have not yet taken the time to review the facts. They

exist and are assembled for easy review at www.ZeoliteAutismStudy.com

<http://www.ZeoliteAutismStudy.com> - The company that produces this

product has grown 10 fold (1000%) since August after they introduced

NCD into the market. This is not because their prior products are not

effective, they are. If is because the word of mouth and the rapid

results people are experiencing. Autism is a tiny segment of the NCD

business.

Please take a minute to check your facts. While it is new to being

generally released to the public. It has been through 5 years of testing

resulting in a patent. And zeolites in general were discovered in the

70s for their unique properties, and are widely used in toxic waste

clean up, agriculture and commercial rasing of animals.

The purpose of the study is not to turn anyone into experiemental

subjects, rather to produce the proof needed to obtain insurance company

support and payments for NCD. Heck, not much different then the studies

done for chiropractic, massage or certain herbal remedies.

Forrist

Here's some links to a few of the studies:

o Scientific White Paper

<http://zeoliteautismstudy.com/pdf/WhitePaperandPatent.pdf>

o Zeolite & Heavy Metals

<http://zeoliteautismstudy.com/zeolite-heavymetals.pdf>

o Zeolite & Lead <http://zeoliteautismstudy.com/pdf/zeolite-lead.pdf>

o Zeolite & Mercury

<http://zeoliteautismstudy.com/pdf/zeolite-mercury.pdf>

More information specific to NCD Zeolite & yeast can be found at:

www.ZeoliteAutismStudy.com <http://www.ZeoliteAutismStudy.com>

Forrist

PS. NCD also has gotten rid of raw skin problems. Doesn't mean it always

will. The key is, to what degree is a heavy metal or environmental toxin

causing the problem, to that degree NCD will safely help.

> > Chidi,

> >

> > You are absolutely correct about the problem of normal chelators

>and

> > stimulation of yeast.

> > Recently there was a product released that >both

> > doesn't have this problem, it will actually eliminate the yeast.

>

>

>

> I feel that people making claims such as these really should be at

> least attempting to provide evidence to back the claims. NCD is so

> new and unproven that I suspect there is no real evidence that it does

> anything beneficial in the human body. It's another one of those

> things that we can spend lots of money on if we want to turn ourselves

> into experimental subjects.

>

> J

>

>

>

[Guest guest]

Dear Forrist,

I have not yet reviewed the website or tests you refer to.

The claim you've made that I object to is that NCD " works better "

than other chelators. When you have compared NCD to ALA used

EVERY 3 HOURS (e.g. " Andy's method " ), I will consider that

to be valid evidence. (Of course, other factors could still

corrupt such a study.) I do NOT consider it to be valid

evidence if you are comparing NCD to other (infrequent) uses

of chelation agents. I also consider ALA to be BY FAR the

most important chelation agent.

I admit it is possible that you have already done such studies

(comparing to ALA chelation, every 3 hours), but it seems

extremely unlikely to me. I've read many websites for many

products, many articles about chelation, etc etc, and I have

not yet seen any that consider these issues.

good wishes,

Moria

http://home.earthlink.net/~moriam/

Mercury Detox: Information, Tools, and Resources

> > > Chidi,

> > >

> > > You are absolutely correct about the problem of normal

chelators

> >and

> > > stimulation of yeast.

> > > Recently there was a product released that >both

> > > doesn't have this problem, it will actually eliminate the

yeast.

> >

> >

> >

> > I feel that people making claims such as these really should be

at

> > least attempting to provide evidence to back the claims. NCD is

so

> > new and unproven that I suspect there is no real evidence that

it does

> > anything beneficial in the human body. It's another one of those

> > things that we can spend lots of money on if we want to turn

ourselves

> > into experimental subjects.

> >

> > J

> >

> >

> >

>

>

>

>

>

[Guest guest]

All,

Really like the debate on this subject. However, can we make it more inclusive

by being very very polite. Nothing transforms knowledge like robust debate - it

even gets better when its done its extremely politely while valuing one another,

valuing and respecting our differences and the ab initio paradigm is co-creation

for our children and a better world.

Thanks and God bless u all.

Kind Rgds,

Chidi

moriamerri <moriam@...> wrote:

Dear Forrist,

I have not yet reviewed the website or tests you refer to.

The claim you've made that I object to is that NCD " works better "

than other chelators. When you have compared NCD to ALA used

EVERY 3 HOURS (e.g. " Andy's method " ), I will consider that

to be valid evidence. (Of course, other factors could still

corrupt such a study.) I do NOT consider it to be valid

evidence if you are comparing NCD to other (infrequent) uses

of chelation agents. I also consider ALA to be BY FAR the

most important chelation agent.

I admit it is possible that you have already done such studies

(comparing to ALA chelation, every 3 hours), but it seems

extremely unlikely to me. I've read many websites for many

products, many articles about chelation, etc etc, and I have

not yet seen any that consider these issues.

good wishes,

Moria

http://home.earthlink.net/~moriam/

Mercury Detox: Information, Tools, and Resources

> > > Chidi,

> > >

> > > You are absolutely correct about the problem of normal

chelators

> >and

> > > stimulation of yeast.

> > > Recently there was a product released that >both

> > > doesn't have this problem, it will actually eliminate the

yeast.

> >

> >

> >

> > I feel that people making claims such as these really should be

at

> > least attempting to provide evidence to back the claims. NCD is

so

> > new and unproven that I suspect there is no real evidence that

it does

> > anything beneficial in the human body. It's another one of those

> > things that we can spend lots of money on if we want to turn

ourselves

> > into experimental subjects.

> >

> > J

> >

> >

> >

>

>

>

>

>

[Guest guest]

Dear Chidi,

I'm glad that you are liking the debate.

I gather from your comment that you find something in my

message less than " very polite " . Could you please let me

know what that was? I'm not trying to be offensive or

rude in any way.

good wishes,

Moria

http://home.earthlink.net/~moriam/

Mercury Detox: Information, Tools, and Resources

> > > > Chidi,

> > > >

> > > > You are absolutely correct about the problem of normal

> chelators

> > >and

> > > > stimulation of yeast.

> > > > Recently there was a product released that >both

> > > > doesn't have this problem, it will actually eliminate the

> yeast.

> > >

> > >

> > >

> > > I feel that people making claims such as these really should

be

> at

> > > least attempting to provide evidence to back the claims. NCD

is

> so

> > > new and unproven that I suspect there is no real evidence that

> it does

> > > anything beneficial in the human body. It's another one of

those

> > > things that we can spend lots of money on if we want to turn

> ourselves

> > > into experimental subjects.

> > >

> > > J

> > >

> > >

> > >

> >

> >

> >

> >

> >

[Guest guest]

Moria,

Many thanks...am keen to avoid finger pointing...its all about paradigms -

words like claim and comparison are often considered not very polite in many

anglo cultures worldwide including mine. They are rather used in courts and

other dispute centres...my suggestion is that we can remain focused on the facts

in a contributing manner ie. what do you think or????????????? rather you

claimed etc.

Kind Rgds,

Chidi

moriamerri <moriam@...> wrote:

Dear Chidi,

I'm glad that you are liking the debate.

I gather from your comment that you find something in my

message less than " very polite " . Could you please let me

know what that was? I'm not trying to be offensive or

rude in any way.

good wishes,

Moria

http://home.earthlink.net/~moriam/

Mercury Detox: Information, Tools, and Resources

> > > > Chidi,

> > > >

> > > > You are absolutely correct about the problem of normal

> chelators

> > >and

> > > > stimulation of yeast.

> > > > Recently there was a product released that >both

> > > > doesn't have this problem, it will actually eliminate the

> yeast.

> > >

> > >

> > >

> > > I feel that people making claims such as these really should

be

> at

> > > least attempting to provide evidence to back the claims. NCD

is

> so

> > > new and unproven that I suspect there is no real evidence that

> it does

> > > anything beneficial in the human body. It's another one of

those

> > > things that we can spend lots of money on if we want to turn

> ourselves

> > > into experimental subjects.

> > >

> > > J

> > >

> > >

> > >

> >

> >

> >

> >

> >

[Guest guest]

> > > > > Chidi,

> > > > >

> > > > > You are absolutely correct about the problem of normal

> > chelators

> > > >and

> > > > > stimulation of yeast.

> > > > > Recently there was a product released that >both

> > > > > doesn't have this problem, it will actually eliminate the

> > yeast.

> > > >

> > > >

> > > >

> > > > I feel that people making claims such as these really should

> be

> > at

> > > > least attempting to provide evidence to back the claims. NCD

> is

> > so

> > > > new and unproven that I suspect there is no real evidence

that

> > it does

> > > > anything beneficial in the human body. It's another one of

> those

> > > > things that we can spend lots of money on if we want to turn

> > ourselves

> > > > into experimental subjects.

> > > >

> > > > J

> > > >

> > > >

> > > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Moria,

Thank you for the clarity and specificity of your last msg. It is true

that the study you suggest has not been done. The key, I guess, boils

down to clarity. In this case, what each of us are defining as " works

better " . We obviously have different definitions and that's fine though

helpful when we know that.

For me, " works better " applies to these factors: NCD does not promote

but rather inhibits yeast, it does not create any free roaming toxics or

heavy metals but only pulls out that which it is removing from the body

and it does not remove any of the important positive minerals.

In terms of what will produce " better " results under study conditions

you proposed we are likely to never know unless someone wants to fund

the narrow study you've suggested.

Respectfully,

Forrist

> >

> > moriamerri moriam@ wrote:

> > Dear Forrist,

> >

> > I have not yet reviewed the website or tests you refer to.

> >

> > The claim you've made that I object to is that NCD " works better "

> > than other chelators. When you have compared NCD to ALA used

> > EVERY 3 HOURS (e.g. " Andy's method " ), I will consider that

> > to be valid evidence. (Of course, other factors could still

> > corrupt such a study.) I do NOT consider it to be valid

> > evidence if you are comparing NCD to other (infrequent) uses

> > of chelation agents. I also consider ALA to be BY FAR the

> > most important chelation agent.

> >

> > I admit it is possible that you have already done such studies

> > (comparing to ALA chelation, every 3 hours), but it seems

> > extremely unlikely to me. I've read many websites for many

> > products, many articles about chelation, etc etc, and I have

> > not yet seen any that consider these issues.

> >

> >

> > good wishes,

> > Moria

> > http://home.earthlink.net/~moriam/

> > Mercury Detox: Information, Tools, and Resources

> >

[Guest guest]

> my suggestion is that we can remain focused on the facts

In which case there can be no further discussion of NCD zeolite beyond

the facts that it is a mineral, it is for sale for people to eat, and

the descriptive chemistry of it and other zeolites are very very very

well established and do not include chelation or detoxification in any

medically relevant sense.

Besides, who decides what the facts are? You? Me? DeFelice?

Barrett?

Andy

[Guest guest]

--- Hi, and welcome aboard! You will find this group so helpful and

supportive and they have the best advice around! I know you will get a

wealth of info here! And HONEY, we *can* all relate!!

Toni

In , " mcryleysmom " <cdoor@...> wrote:

>

> Hi everyone I am new to this site and to the whole world of internet

> chat. My five year old son was just diagnosed with asperger's and I

am

> looking for other people to talk with who can relate to us.

> mcraydensmom

>

[Guest guest]

HI WELCOME MY DAUGHTER IS 5 AS WELL AND SHE HAD NOT BEEN DX YET.

WHAT TYPES OF THINGS WAS YOUR SON DOING? IS HE IN PRESCHOOL OR KINDER.

PLEASE GET BACK TO ME I AM INTERESTED TO HEAR ABOUT YOUR SON.

THANKS MICHELLE

tsbthatsme <kbtoni@...> wrote:

--- Hi, and welcome aboard! You will find this group so helpful and

supportive and they have the best advice around! I know you will get a

wealth of info here! And HONEY, we *can* all relate!!

Toni

In , " mcryleysmom " <cdoor@...> wrote:

>

> Hi everyone I am new to this site and to the whole world of internet

> chat. My five year old son was just diagnosed with asperger's and I

am

> looking for other people to talk with who can relate to us.

> mcraydensmom

>

[Guest guest]

Hi ,

My son is in Kindergarten going into grade one. He is extremely intelligent I.e

knew al his colours and shapes and numbers by 18 months. But cries all the time.

He can not understand why if on the first day of school if he sat on the yellow

mat why he should not be doing that everyday. He cries about anything that

changes like that. He also does everything by rote memory. He knows how to get

everywhere we go and remembers everywhere we have been. For example if we were

driving to the mall and passed a turn off to a house that we once went to last

year to a garage sale he would say " hey that is the way to that garage sale we

went to once " He repeats a lot of things we tell him. I first noticed this 2

years ago when we were trick or treating and we said don't walk on the grass. He

then started saying " don't walk on the grass don't walk on the grass " over and

over as he walked to each house. He takes everything literally. He loves

reflections in vehicles or spilled liquid on the table. He is drawn to anything

that has a button he can push or anything that " transforms " He can not handle

going to busy public places with too many smells and places. He is very choosy

about what foods he will eat based on texture and smell. The list goes on and

on. I am so relieved to have finally have a name to put to the behaviours. Are

you waiting for dx? What kind of things have you seen in your daughter? I would

love to hear about it. Thanks so much for the reply. It is such a nice feeling

to talk to someone who may have some idea of the things we go through. Hope to

hear back soon.

Re: ( ) Re: Hi all

HI WELCOME MY DAUGHTER IS 5 AS WELL AND SHE HAD NOT BEEN DX YET.

WHAT TYPES OF THINGS WAS YOUR SON DOING? IS HE IN PRESCHOOL OR KINDER. PLEASE

GET BACK TO ME I AM INTERESTED TO HEAR ABOUT YOUR SON.

THANKS MICHELLE

tsbthatsme <kbtoni@...> wrote:

--- Hi, and welcome aboard! You will find this group so helpful and

supportive and they have the best advice around! I know you will get a

wealth of info here! And HONEY, we *can* all relate!!

Toni

In , " mcryleysmom " <cdoor@...> wrote:

>

> Hi everyone I am new to this site and to the whole world of internet

> chat. My five year old son was just diagnosed with asperger's and I

am

> looking for other people to talk with who can relate to us.

> mcraydensmom

>

[Guest guest]

Hi Toni,

Thanks for the reply. I am really looking forward to reading and replying to you

all. This already seems like a great group:)

( ) Re: Hi all

--- Hi, and welcome aboard! You will find this group so helpful and

supportive and they have the best advice around! I know you will get a

wealth of info here! And HONEY, we *can* all relate!!

Toni

In , " mcryleysmom " <cdoor@...> wrote:

>

> Hi everyone I am new to this site and to the whole world of internet

> chat. My five year old son was just diagnosed with asperger's and I

am

> looking for other people to talk with who can relate to us.

> mcraydensmom

>

[Guest guest]

Nan,

I am sure your checkup will be great. I wish I could walk all over

like that.

>

> I am here in St. Louis for my 2 mo checkup with Dr. Bridwell

> tomorrow. We made a weekend trip out of it so that my daughter

and

> her friend could go to Six Flags and see the sights. Hubby is

glad

> he has someone to ride the roller coasters with, as I have never

> been a fan of those, even before surgery. Anyway, while they are

at

> the park, I am actually enjoying the quiet. I did want to chime

in

> though, and reiterate what an exciting feeling it is to be able to

> walk again without pain. I actually walked all over downtown

> yesterday and then at a nearby attraction & it was so great. My

> daughter even mentioned when we started that she was afraid that I

> would not be able to walk, and then she remembered that Mom

> had " surgery for that " . I was not really in any pain, just had a

> kind of severe aching, but nothing like the leg pain before. I

tell

> everyone all the time how great it is to be able to do this, but

of

> course no one really knows unless they have been through it.

>

> Thanks to all of you for all your ongoing support, and I will post

> the results of the checkup when we get back.

>

> Nan

>

[Guest guest]

ONLY a viking would consider something like what you just described

a " holiday " ....Only you Ian!!! It read like Bollywood film to me!

Amazing. Glad you are back in one piece you bear you. How's the

family...or should I say clan? -Betz

[Guest guest]

Hi ! You'll find everyone here to be a blessing, my son was dianosed in

March with poly and I was so relieved to find support form this group. Where

are you located? We are in Oklahoma, my son goes to a pt/ot in the hospital,

try calling your local one to see if there is one there...are you talking about

the Dyna splints? My son just got them last week and is supposedly one of the

first kids with JRA to try them. So far so good, they have helped a little in

the short time he's been using them. If that's the kind of splints you're

talking about I can give you the guy's info that fitted my son's splints,

perhaps they can direct you to a local OT? Have they started her on any meds

yet? Sorry for all the questions, I know how overwhelming this all is...you and

your family are in my prayers.

Zack, 10, poly

<brinjo@...> wrote:

Hi everyone

I just joined the loop-- my daughter, Jordan, has just recently been

diagnosed with polyarticular arthritis within this past week. I've

been pulling my hair out trying to find a pediactric occupational

therapist. Does anyone have any good ideas as to where I can go/who I

can call to try to find one? Her pedi rheumatologist is in another

county, and the only place they know of isn't accepting new patients.

I've called our health insurance company (Cigna) and they were of no

help and I have called tons of rehab facilities in our area and

everyone just gives me the same answer... " we don't have an OT, but we

can incorporate that into our PT program " . Well, she needs hand

splints and without OT, she can't get them... or so I'm told. Any

suggestions would be greatly appreciated! I'm just at a loss and so

overwhelmed and frustrated with every aspect of this right now.

Thanks!

Jenn

Live each day to the fullest

like it's the last you'll ever see

lay your head down each night with no regrets

contented you will be

and Terry

Zack, Kyla, Niklas and Austen

aka the Terry crew

[Guest guest]

Hi Jenn,

We live in a small rural community, and we had to travel to our

Children's hospital where my daughter's rheumy is located for PT.

The local PT was afraid to touch her b/c she had never seen a child

with JRA. Our schools here have an OT for kids with special needs.

Check with the school system for a referral to a pediatric OT. I

think it is pretty common to have an OT in the school system these

days.

Take care.

Sophie

>

> Hi everyone

>

> I just joined the loop-- my daughter, Jordan, has just recently

been

> diagnosed with polyarticular arthritis within this past week. I've

> been pulling my hair out trying to find a pediactric occupational

> therapist. Does anyone have any good ideas as to where I can

go/who I

> can call to try to find one? Her pedi rheumatologist is in another

> county, and the only place they know of isn't accepting new

patients.

> I've called our health insurance company (Cigna) and they were of

no

> help and I have called tons of rehab facilities in our area and

> everyone just gives me the same answer... " we don't have an OT, but

we

> can incorporate that into our PT program " . Well, she needs hand

> splints and without OT, she can't get them... or so I'm told. Any

> suggestions would be greatly appreciated! I'm just at a loss and

so

> overwhelmed and frustrated with every aspect of this right now.

>

> Thanks!

>

> Jenn

>