Guest guest Posted January 21, 2001 Report Share Posted January 21, 2001 For me it was 5 minutes. I could tell there was sugar added to the food when I ate out before I finished eating it. Headache, woosie, fatigue, throbbing. LIZ flare-up how long after one eats a forbidden food would a reaction occur? Send blank message to candidiasis-unsubscribeonelist if you want to UNSUBSCRIBE ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2001 Report Share Posted January 22, 2001 > how long after one eats a forbidden food would a reaction occur? My son will usually have a reaction to forbidden foods in three days, he will get sores in his mouth and thrush.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2001 Report Share Posted January 22, 2001 For me it depends on the food. Yeast will give me a headache within 5 minutes after eating it. > >how long after one eats a forbidden food would a reaction occur? > > > > > eGroups Sponsor ><http://rd./M=168002.1291681.2888959.2/D=egroupmail/S=1700061589:N/A=5\ 6 >4956/*http://www.columbiahouse.com/gateway?token=7415> >Choose 3 DVDs for $0.49 each! > >Send blank message to candidiasis-unsubscribeonelist if you want to >UNSUBSCRIBE ! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2003 Report Share Posted September 13, 2003 Joe in Arizona wrote: > HI all, > > After a vigorous weekend of tennis I experienced my first flare- up. I had never felt totally exhausted, physically weak, and extreme muscle soreness throughout my body. This episode highlights the quirkiness of the illness. > > It took two weeks before I felt almost normal again. Luckily I see the rhuematologist on Friday. Maybe he can give a little insight on the flare-up. > > Have a good weekend, > > Joe in Arizona Joe, What you experienced may indeed be a flare; obviously, I have no clue as to how long, or strong, PA has been for you, nor your experience(s) with flares. However: Since you are physically able (at least, until now) to participate in " a vigorous weekend of tennis " (color me mightily envious), I'm wondering if those resultant two weeks of discomfort might be (and I'm not trying to minimize what you experienced: I, too, have paid for " overdoing " ) the results of challenging your PA- afflicted joints, tendons, muscles, etc., several steps too high-- rather than having had an actual, increased-disease-process generated flare, in which (additional) inflammation, swelling, redness, etc., occur. I realize that to some, this may seem a rather academic distinction; I don't think it is. Distinguishing the symptomology, physical findings & differential treatments between a frank PA flare on the one hand, and the consequences of having physically challenged one's PA-afflicted anatomy on the other, is important. We need to know how to correctly read and interpret our body's messages, in order to respond appropriately. I'd be interested in your rheumatologist's evaluation. Wishing you the best, D. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2005 Report Share Posted November 28, 2005 Hi Sandy. I think it could be anxiety or depression. For my daughter, once she starts complaining about being tired all the time and she starts sleeping during the day, is usually when her depression has taken over. Though, when she is totally overwhelmed with anxiety she shuts down and goes to sleep. It is usually her being totally overwhelmed with the anxiety that triggers the depression though. So, it is a toss up! Boy, that was helpful! Sorry. I think the difference is when it becomes day in and day out that, for her, it is more likely depression. Good luck and I hope she is feeling better soon. Kim In a message dated 11/28/2005 10:03:33 AM Central Standard Time, melbiscuit5@... writes: Is feeling tired all the time depression or ocd? She gets plenty of sleep, but will lay there with her eyes closed and say she is tired! She never did that before so I don't know how to deal with it. I hope she gets a handle on this soon! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2005 Report Share Posted November 29, 2005 In a message dated 11/29/2005 7:12:27 A.M. Pacific Standard Time, writes: Is feeling tired all the time depression or ocd? She gets plenty of sleep, but will lay there with her eyes closed and say she is tired! She never did that before so I don't know how to deal with it. Hi Sandy -- I'm so sorry for the setback -- been there. (13.5) sleeps a LOT. She has been back at home in independent study since September. She sleeps at least 12 hours a day, and would probably sleep more if I didn't force her out of bed by sprinkling water on her -- it is like waking a corpse! She does have depression, though it seems a bit better. For , I think part of it is the addition of Seroquel back into the mix. Good luck, and I " m glad you had fun in Mexico!!! Suzanne in CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2009 Report Share Posted July 3, 2009 Hi - I am so sorry you are having such a time of things right now. Has your Rheumy tried you on prednisone for your flare? When I have a flare, my Rheumy will have me take 5mg of prednisone for five days and then stop. Its not such a bad thing to have to go with the MTX/Enbrel combo. MTX is a DMARD (disease modifying anti-rheumatic drug) and the Enbrel is a TNF (tumor necrosis factor) inhibitor - one of the main causes of RA. The bad thing is that we were diagnosed with RA to begin with. Now its time to get creative and find the right combo of meds to keep it under control so you can be relatively pain free. I pray you have good results with this combo and you get some relief soon. I understand your fear. Keep in mind the side effects listed for these meds are not common and they (drug mfg) have to list ALL side effects reported so that we (the consumer) are aware of everything. Also, don't be afraid to sob, vent, rant or whatever you want to call it. We are all in the same boat here and it really helps to shout out our frustrations to people who REALLY know what we're going through. Wishing you pain free days ahead.....Doreen I really need the group right now. The worse flare-up ever, plus my rheumy is frustrated, not with me, but with the inability to help me. Now I have to go w/ Methrotrexate/Enbrel, tried to stay away from these, but the time has come. Â Â No sob story, just so scarred...... Â Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2009 Report Share Posted July 3, 2009 Hi : Don't be scared to start some R.A. meds. I too have R.A. and was diagnosed over 5 years ago. I had never heard of it before. My R.A. reared its ugly head over a 5 day period. I went from a very high functioning woman to a swollen body, pain in orbit, could not get out of bed without help, could not walk, dress myself, feed myself, and could not get off and on the toilet without help. My feet, ankles, hands, thumbs, wrists were so swollen and in unbearable pain. I thought I had a Brain Tumor. Saw my PCP, thought I had RA and went to the Rheumy within a 1/2 hour, emergency appt. She tested the fluid in my knee to see if I had Gout. I did not. She took blood samples for testing, gave me 2 shots of steroids, plus a MTX shot. I did not question one thing about the meds. I could have cared less about side effects, etc. I knew I could not remain in this condition very long. I had no idea what I had in store for myself with this disease. I have never regretted taking these meds. from day one. I found the " Right cocktails of meds. for me " . It has taken 4 years to do so. I am in a full remission due to the R.A. meds, that I take daily. I also inject. with MTX once a week. I am very grateful and happy that I listened to my Rheumy, who is so brilliant, a most caring and wonderful Dr. I don't care what I have to take as long as it helps me and slows down the distruction that R.A. does 24 hrs. a day. I have limitations on things I can't do, but I can still do many things, slowly. I have learned to pace myself daily. That was hard for me to learn to do. I do rest each afternoon, as I tire easily. My Rheumy has insisted on the rest issue. I plan each day as to what I want to accomplish, and if I can't do it all, then I do it the next day. I have learned to change my life around living with R.A. I just take one day at a time. That is all I can manage. I hope this letter helps you some. We all here know what you feel, your fears, your worries, and your pain in those bad flares. R.A. is a nasty beast. Wishing you pain free days ahead. Also, remember, we need these drugs to stop the progression of this wretched disease. Rest when you can. I care. Hugs, Barbara > > I really need the group right now. The worse flare-up ever, plus my rheumy is frustrated, not with me, but with the inability to help me. Now I have to go w/ Methrotrexate/Enbrel, tried to stay away from these, but the time has come. > > No sob story, just so scarred...... > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2009 Report Share Posted July 3, 2009 , I think its normal to be worried when starting new medications, especially if you are reading all the side effects. I know I was pretty freaked in the beginning. The side effects are listed as possibilities not definites. But once you see that they are able to give you your quality of life back, they really aren't that scary. Heck, I was crying this past Sunday, because I realized I didn't have enough Methlytrexate for my weekly dose. Even though I knew I could just get more the next day, I also know I can't live with out it... I think its helping me more then hurting... Best of luck Bonnie > > I really need the group right now. The worse flare-up ever, plus my rheumy is frustrated, not with me, but with the inability to help me. Now I have to go w/ Methrotrexate/Enbrel, tried to stay away from these, but the time has come. > Â > Â No sob story, just so scarred...... > Â > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2009 Report Share Posted July 5, 2009 , I hope the combo of meds will help you. It will take a few weeks for it to start working. Can your doctor give you a burst of prednisone, or a steroid shot. When I'm flaring, the steroid shot helps very quickly, and it last quite awhile. It doesn't hurt to ask. I hope he can help. Sending gentle hugs, and hope you feel better, Tawny > > I really need the group right now. The worse flare-up ever, plus my rheumy is frustrated, not with me, but with the inability to help me. Now I have to go w/ Methrotrexate/Enbrel, tried to stay away from these, but the time has come. > > No sob story, just so scarred...... > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 , I'm right there with you. I will start a new Phizer Phase 3 study using a new drug in pill form on Monday. And I have to admit I am very scarred too. Most of us here have been in your boat. Hang in there and stick with this group. gentle hugs > > I really need the group right now. The worse flare-up ever, plus my rheumy is frustrated, not with me, but with the inability to help me. Now I have to go w/ Methrotrexate/Enbrel, tried to stay away from these, but the time has come. > Â > Â No sob story, just so scarred...... > Â > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2009 Report Share Posted July 10, 2009 Sue, I don't know the name of the drug as I will get the pills on Monday. But as I understand this 13 month study group after 3 months if I am on the placebo I will be switched to the real drug and if it works (hope) I can stay on the drug even after the study is over. Will give an update on the study if I can get the name of the pill. Wish me luck, I get my new puppy this weekend. > > > , I'm right there with you. I will start a new Phizer Phase 3 > > study using a new drug in pill form on Monday. And I have to admit I > > am very scarred too. Most of us here have been in your boat. Hang > > in there and stick with this group. > > > > gentle hugs > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2009 Report Share Posted July 14, 2009 I received the new study drug today. I take one pill twice a day from two different containers. The nurse said that this drug does not have a name but I find that hard to believe. The bottles say Program No. A392, Protocol No. A3921046 Also for the first few weeks I have to call Pfizer eveyday to answer 2 questions. The pill from both bottles look exactly the same, I hope I'm not on placebo. Was wondering if anyone else is on this trial? PS Named puppy Dee Dee (Demon Dog) 1 1/2 pound pomeranian. > > > Sue, I don't know the name of the drug as I will get the pills on > > Monday. But as I understand this 13 month study group after 3 > > months if I am on the placebo I will be switched to the real drug > > and if it works (hope) I can stay on the drug even after the study > > is over. Will give an update on the study if I can get the name of > > the pill. > > Wish me luck, I get my new puppy this weekend. > > > Quote Link to comment Share on other sites More sharing options...
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