Re: Re: OKD................

[Guest guest]

Go ahead and ramble......that is what we are all here for!!!!!

I am so glad that you are doing what sounds like a smart taper. I too look at

those pill bottles and wonder what they are doing to me outside the bottle and

inside me! I had a blood clot in my lung and they put me on coumadin. Well, the

coumadin caused every " old " scar on my body to start to bleed. So they

determined that I am allergic to Coumadin. They put a filter in my vena cava

and that should prevent any clots, except for and clots in my neck veins. Oy,

I try not to think about these things or I just so nuts. I get panic attacks

during the nights where I have to go outside and get fresh air. These things

just aren't funny.

I am just so glad, my friend, that you took Barbara's advice and don't forget we

are ALWAYS here to listen and lend an ear, a shoulder or any other body part. I

put my money on you, Sweetie, you are going to beat this beast and we are all

going to help you do it!

Try to have a pain free Sunday night, lots of good things on TV so that we can

see how silly other people's problems are!

Gentle, tender angel hugs across the miles................

Debs in FL

[ ] Re: OKD................

So grateful for your nice responses, thanks. Deb, I know I cant quit some of

them cold turkey, I am tapering those. I dunno began staring at 8 bottles of

meds, and shots of Enbrel, and I just cant vomit, quease, and god knows whatelse

anymore.

Yeah, those damn blood clots are scary, but i refuse to live in fear too. Yes, I

told my primary care, my Rheumy and the Hematology folks.

I think its best to always try to get off them, they are are individually toxic

in their own ways.

Did you ever watch the commercials for OUR drugs and then at the end, they start

to list all the side effects and fatal consequences of them for like 30

seconds???

Nothing beats a failure, but a try, so I am going to see how i fare. I havent

taken the Enbrel in 2 weeks because I am dealing with another viral infection

anyways, you can cold turkey Enbrel....you cant get off Prednisone without a

taper, you can on Coumadin as long as your clotting factor is ok, they do the

tests to make sure. I am staying on the MTX, but ugh, on MTX DAY, the next day I

am in ugh, but I know I have to keep one of them....

I think DMARDS are good from the agony of RA, until you realize there not, dont

know what else to say....everything comes and goes and nothing stays static, you

just keep moving forward.

I read all our stories, sometimes dont know what to say in response, sometimes

its the luck of the draw, and your own wits that get you thru......sometimes,

its the drugs, but not too many discuss alternatives of lifestyle, dietary,

mental conditioning, exercise, supplements, herbs vitamins, physical therapies,

etc.....

dont want to ramble, jsut want to break the chain a bit and RATTLE (should I say

THROTTLE) that bad boy!!!

Thanks again

OKD