Re: methotrexate, prednisone and hair

[Guest guest]

I seem to be awfully opinionated lately. I don't mean to come off as crass or

snotty. I am on both Pred and MTX. I would much rather have my hands and feet

than my hair. I understand that not everybody feels the way that I do- but it is

worth a thought maybe?

 

Gentle hugs-- in SC

[Guest guest]

Daily function is rather importgant lol. I'm glad you have found the right mix

for you. I have circumbed to allowing myself to take prednisione aong w my mtx

when necessary, living in bed is not how I choose to live my life, but I try not

to take very much prednisone or for too long. My rhuemie has given me year long

scripts for prednisone to take when I feel it's necessary, only up to 40 5 mlg

tabs a month. Usually one month's supply lasts me for several months.

 

ladeyangll

From: phyllis crubaugh <phylliscrubaugh@...>

Subject: Re: [ ] methotrexate, prednisone and hair

Date: Sunday, March 6, 2011, 5:48 PM

 

I seem to be awfully opinionated lately. I don't mean to come off as crass or

snotty. I am on both Pred and MTX. I would much rather have my hands and feet

than my hair. I understand that not everybody feels the way that I do- but it is

worth a thought maybe?

 

Gentle hugs-- in SC

[Guest guest]

You are not being snotty! Lol But I do think hair is a sensitive issue for a lot

of women. In my case, I was unable to continue MTX so it was never an issue. I

believe Arava can cause hair loss but I couldn't take that either. I am not a

vain person but I don't want to lose my hair! If there was only one drug left

for me to take- yes, I would then choose no pain vs. hair loss. I'm just

grateful I haven't had to make that choice. I do think it's a very personal

choice.

Sent from my iPhone

On Mar 6, 2011, at 5:48 PM, phyllis crubaugh <phylliscrubaugh@...> wrote:

> I seem to be awfully opinionated lately. I don't mean to come off as crass or

snotty. I am on both Pred and MTX. I would much rather have my hands and feet

than my hair. I understand that not everybody feels the way that I do- but it is

worth a thought maybe?

>

> Gentle hugs-- in SC

>

>

[Guest guest]

Thank you for the info re the shampoo.  I was unaware of the mtx and pred

causing dryness and brittleness.  I have a lot of curly hair naturally, have

experience some thin spots from the mtx however.  I'm always combatting dryness

and brittleness these days so I'll give your suggestion a try. Have a nice day.

 

ladeyangll

From: mtaquilts <mtaquilts@...>

Subject: [ ] methotrexate, prednisone and hair

Date: Sunday, March 6, 2011, 4:19 PM

 

I have been a " lurker' for a long time, and thought I might be able to shed some

insight on the above subject. I had been on Prednisone for 18 months because of

pericarditis due to a viral infection. I have had RA since 2002. It has taken me

18 months to get off Prednisone (long story.)

After various attempts, I was started on Methotrexate 3 pills a week, with no

problems. It has enabled me to " get off " the Prednisone. I am also on Plaquenil

(since 2002) and Enbrel (since 2004.) Both Prednisone and MTX can cause your

hair to thin, become dry and brittle. I am also on folic acid on the days I do

not take MTX.

I have been coloring my hair for at least 15 years. Nothing I take seems to

affect it. While on Prednisone I started using Nexxus VitaTress Biotin Shampoo.

I do believe it helped quite a bit. Biotin is good for hair and nails. As the

Prednisone was reduced from 40 mg down, my hair has come in very curly (I didn't

have curly hair before) and quite thick. It's worth a try. Good luck.

[Guest guest]

For anyone else interested, there is another product my hairdresser told me to

try: From the Frieda Collection it is Frizz-Ease. It is a finished cream

in a tube that makes dry frizzy hair feel soft. You can get it at Target.

.

[Guest guest]

Hi, I don't know if my hair loss due to mx and cortisone but I am sure it slowed

down apparently with cold shower. After warm/hot shower, I always have my scalp

in coldest water, I am careful not to have it my shoulder or anywhere (bending

my head front) and it is not uncomfortable. High blood circulation help my

follicules, I think.ender

   

 

Thank you for the info re the shampoo.  I was unaware of the mtx and pred

causing dryness and brittleness.  

[Guest guest]

, you seemed to imply that you are taking a drug that does not cause hair

loss. So which one are you on?

Why were you unable to continue MTX?

Jan

On Mar 6, 2011, at 6:00 PM, wrote:

>

> You are not being snotty! Lol But I do think hair is a sensitive issue for a

lot of women. In my case, I was unable to continue MTX so it was never an issue.

I believe Arava can cause hair loss but I couldn't take that either. I am not a

vain person but I don't want to lose my hair! If there was only one drug left

for me to take- yes, I would then choose no pain vs. hair loss. I'm just

grateful I haven't had to make that choice. I do think it's a very personal

choice.

>

>

> Sent from my iPhone

[Guest guest]

Chris

Sometimes it's not vanity with hair loss. Losing a lot of your physical

functionality can be depressing but also losing your physical look can be as

well. I am not vain in the wide sense of the word but hair loss would be very

devestating to me. When I am in pain I can still put on a great dress, fix

myself up and feel human. Also some of us have jobs that require that we look

presentable. If I were to lose my hair I know that I would not be able to stay

at my job. I am very good at my job but it is a very public position and one

that I must look good. The whole point is as women and men we are dealing with

this rotten RA why do have to deal with losing part of our identity as well

CArol

[Guest guest]

Hey Carol-

 

I really - no REALLY didn't mean to infer that hair loss was all about vanity

and I swear I wasn't being ugly. I honestly am far happier with my hands & feet

working well than I am worried about the hairbrush filling up daily ( which it

is ). I was starting to get upset about it and then I really did ask myself

which was more important.

 

You are right though, since I don't have to be presentable to the public any

more it is far less of an issue for me. My horse, pigs, cows,

chickens, turkeys  & goats don't give a rip. I am blessed with a loving Life

Partner of nearly 21 years that just wants me happy and healthy. I did have to

work with the public and I was a business owner, so I get what you are saying.

 

I really think that a happy person with less than normal hair and/or skin issues

is easier to look at and appreciate than a beautiful but miserable/B8tchy

person. I can get a wig, but not a new hand ( dang it! ) or feet. Less emphasis

on who we are rather than what we look like or the diseases we have would make

for a better world- but that is just my opinion. I have never been accused of

going with the majority however, so my thoughts are likely 'out there'. I really

hope that I didn't upset anybody with my comments, that would break my heart.

I just hate that so many women think that they are less than pretty because of

skin or hair issues. I say " Blind 'em with your smile girl! "   I am ugly as

home-made sin, have half of my teeth missing, walk with a cane, shake like a

leaf, fat as a tick ( thanks to massive doses of Pred  and prolly the country

cookin' ) yet people laugh with me- not at me.

 

Gentle hugs-- in SC

Chris

Sometimes it's not vanity with hair loss. Losing a lot of your physical

functionality can be depressing but also losing your physical look can be as

well. I am not vain in the wide sense of the word but hair loss would be very

devestating to me. When I am in pain I can still put on a great dress, fix

myself up and feel human. Also some of us have jobs that require that we look

presentable. If I were to lose my hair I know that I would not be able to stay

at my job. I am very good at my job but it is a very public position and one

that I must look good. The whole point is as women and men we are dealing with

this rotten RA why do have to deal with losing part of our identity as well

[Guest guest]

Chris

I really did nt think you were being ugly at all. If I had to make the decision

between walking and hair I definately would take take the walking. I really wish

I didnt have to be in the public eye so much. And OMG some days I feel like a

raving B.

I would definately have to get a wig though. lol

Carol