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Re: Doctors & MSA

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Very Interesting history lesson. I am glad to know this info. Marilyn in

TN

----------

>

>To: shydrageregroups

>Subject: Doctors & MSA

>Date: Fri, Sep 1, 2000, 7:26 PM

>

>Kerri,

>

>While you may just have had the good fortune to meet up with a doctor who

>understood MSA, there may have been another reason or reasons. Japan has an

>area where there is a Lytico Bodig " hotspot " . You may remember that one of

>the articles that Pam makes available is on " Parkinson's Plus. " In the

>article there is a discussion of the Parkinson's Plus diseases including

>PSP, the MSA group, and finally another disease that is rarely found in the

>US called Lytico Bodig. LB has some similarities to all these diseases but

>if possible is perhaps worse. LB was first found on Guam and is a very

>interesting disease from a genetic and a demographic point of view. My

>first secretary when I came to Guam was a woman who had four brothers who

>had LB. LB was first found on Guam and at one time people thought that by

>doing demographic and family studies they would find the key that would

>unlock the mysteries behind Parkinsonianism. Because of the pocket of LB in

>Japan a number of excellent Japanese researchers have come to Guam to carry

>out research to see what links there may be between the Japanese disease and

>the disease on Guam. You can find some of them identified in the

>bibliography of that article.

>

>At any rate, depending on where your doctor studied or where some of her

>instructors studied, there could be cultural reasons for her to have learned

>about MSA.

>

>By the way, there is also a pocket of LB somewhere in South American or the

>Caribbean.

>

>Jim and Peg from Guam

>

>

>____________________________________

>>Date: Fri, 01 Sep 2000 07:02:52 -0000

>

>>Subject: Doctors & MSA

>

>>Hi to everyone

>

>>I had to go to a doctor concerning a very bad cold and a sore ear.

>This new doctor I saw either Chinese or Japanese went through my file

>first up and asked what I have been diagnosed with. I said Multiple

>System Atrohpy. This doctor would have to be one of the first

>doctor's that knew about the disease. But sadly she will not be

>staying in Horsham for long. She was filling in because of a doctor

>shortage. I thought I may have a doctor who understood MSA.

>

>I thought I would share that with everyone.

>

>

>

>Regards & HUGS Kerri

>______________________________________

>

>

>********************************

>*** Peg & Jim

>*** # 29 Cruz Heights

>*** Ipan-Talofofo, Guam 96930

>*** USA

>***

>*** Note: Guam is 15 hours ahead of

>*** Eastern Standard Time (EST).

>*** 14 ahead of EDT.

>********************************

>

>

>

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