Guest guest Posted April 20, 2000 Report Share Posted April 20, 2000 Vivian, I am sending this to you again because I'm not sure you got it the first time! **************************************************************************** ********* Hi Vivian I go to Church in Carmichaels Pa. We are members of the Greene Valley Church of God. I live in ville Pa. It's about 7 miles west of Waynesburg and about a mile from west greene high school! Small world! I am going to Uniontown mall tonight to take my 11 yr old and her friends shopping for her birthday! I'll be thinking of you while I:m there! lol I have considered doing the 21 day challenge but I don't have time on Sunday's! I think I need to get the 8 min for that! It takes us 1/2 hour to drive to church and then I have to count the tithes and offering after church. I am not usually home until close to 2pm and then I have to feed my family and be ready to leave again shortly after 5pm to be back at church. We are home somewhere between 9 and 10 pm. I have done taebo mon - tues - wed this week. So I guess I'm right with you guys. What else do I need to do? I think I drink 1/2 gallon of water while I'm doing thw advanced! I have been trying to drink more water anyway and cut out my iced tea. I drink decaf with a little sugar but I 'm trying to narrow it down to no more than a few glasses a day. Have a great day! At 01:46 PM 4/19/00 -0000, you wrote: >Oh, man, PA! We used to live in Carmichaels, Finleyville, and opolis. We went to church in Uniontown. Where are you? We're in central TX now.... How I miss PA!! Please enjoy the beauty for me. And the weather! We're already in the 90s here, and had 95 degrees in March! Uncle! You'll love it here, and yes, we hold ourselves accountable to each other. If you care to, join us on our 21 Day Challenge (21 DC); doing TB 21 days in a row (is supposed to make it a habit). We're on Day 3, but you can just start now. There are various challenges: water (drink 1/2 gallon at least a day for 21 days), etc. Feel free to comment on any and all you read, your experiences, whatever. Tell us about PA! You'll feel right at home right away, I do believe. Welcome! Yours and His, Vivian, who stays amazed at the neat people here (and is no longer jealous because she can't post on the TB board [WebTV; the page is always too big]), because HERE is the best place to be, and besides, they have this Groundhog Day thing going, which is driving me BARMY! > > >------------------------------------------------------------------------ >Win $1000 at eGroups! >Click here to find out how: >1/2861/1/_/21226/_/956152221/ >------------------------------------------------------------------------ > >As Deb has said: " Fitness is a journey and it begins with the first step. " > >Visit our new vault site http://taeboon.isportsdot.com/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2002 Report Share Posted November 14, 2002 Hi , My rheumy at Bethesda is Dr. Dwyer. He is pretty good at what he does, but with all this that's going on in the world right now, he's not sure how much longer he'll be around before they put him in some ship somewhere. So, yes it would be of great benefit if you can remember who at Walter treats AOSD. Until then, I'll stay tuned... Thank You, Bob & Vivian Mirabal Vivian Hi Vivian, are you seeing a rhuematologist at Bethasda? Last year my pcm told me there was a rhuematologist at Walter who has treated AOSD patients before but I dont remember his name, I will see if I can find out. I know there arent many RD's in the army. I hope he hasnt moved on somewhere else. I know that they do have pediatric rheumy's at Walter also and they are familiar with stills. GO DAWGS !!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2002 Report Share Posted November 14, 2002 Hi , My rheumy at Bethesda is Dr. Dwyer. He is pretty good at what he does, but with all this that's going on in the world right now, he's not sure how much longer he'll be around before they put him in some ship somewhere. So, yes it would be of great benefit if you can remember who at Walter treats AOSD. Until then, I'll stay tuned... Thank You, Bob & Vivian Mirabal Vivian Hi Vivian, are you seeing a rhuematologist at Bethasda? Last year my pcm told me there was a rhuematologist at Walter who has treated AOSD patients before but I dont remember his name, I will see if I can find out. I know there arent many RD's in the army. I hope he hasnt moved on somewhere else. I know that they do have pediatric rheumy's at Walter also and they are familiar with stills. GO DAWGS !!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2003 Report Share Posted January 27, 2003 Thanks Sherry: I'll look into the spinach, but I have a feeling that my digestive system might not be able to squeeze the nuttrients out of it. And I seem to remember something about it having a high oxalic acid content... I'll have to do some research on that. Thanks for your input! Vivian > Hi Vivian - > Yeap - feels like anemia, smells like anemia, looks like anemia, but it's > not- . . . > Well, it could be a copper anemia. The problem I've had with this all my life > is that though I'd take copper - my body doesn't seem to do anything with it. > The only thing I've found to work over the long run is spinach on a daily > basis. (I know ithyroid says green leafy " bad " but it's got a mix of minerals > / vitamins that seem to fit into my system.) It takes about a week of steady > spinach - preferably fresh but frozen is ok. > Sherry > > > On top of this, it appears that I'm anemic: > > Iron: 15 mcg/dl (range 35 ~ 140) > > Ferritin: 3 ng/ml (range 10 ~ 291) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2010 Report Share Posted September 5, 2010 Do you take the MTX in pill form? The pills made me so sick that I switched to the injection form. So much better and no more nausea or throwing up. I tried to stick out the pills for 5 weeks, but I could not take that anymore. I was sick 24/7 and it was brutal. I was fearful of doing the injections, but my Rheumy taught me how. You don't even feel the needle as it is very thin. I use my thighs and alternate them each time. I take .8 on the needle. I hope you can get yourself feeling better soon. It is awful to feel that sick all the time.  Take care of yourself. I pray you will feel better soon.  Hugs,  Barbara From: Vivian Cone <vcone@...> Subject: RE: [ ] Remission Date: Sunday, September 5, 2010, 5:42 PM  Hi Janine, No one should tell you to live with it. There is no living with this pain. I too am on Methotrexate and my pain has increased. I don't know why it does that but It does. I want to get off the Methotrexate because the nausea and vomiting is awful. I take it on Friday's and I am down Friday and Saturday every week because it makes me so sick. This person is obviously ignorant and insensitive - living with the pain is not the answer she should give anyone... Hugs - Vivian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2011 Report Share Posted March 5, 2011 Vivian- Interview a couple SS lawyers and you will find one that you are comfortable with. Trust your gut instinct. You are NOT giving up on your life, but getting ON with it. This is just a new way to think about things. You can still work when and if you are able. Feel free to contact me off-list anytime you want to. I'll be here. So is the group. We are all in some life-delema to some degree or another from our medical issues. We all need support. Hang in there and know we are with you. Gentle hugs-- in SC > > My hematologist/oncologist is sending me a copy of this quack's > report. He is on my side and he has known me for years and is aware > since he was the first doctor I saw when my sed rate when sky high. I > am not mental when I say I don't feel well. Anyone who has RA- Lupus- > MGUS-neuropathy and Fibromyalgia knows how awful you feel most every > day. Based on this guy's report I need a psychiatrist more than a > Rheumatologist. I thought about getting an attorney but I need to > check were you get one. I went on line but it is hard to pick since I > have never had to do this before. Thanks for your support Chris. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2011 Report Share Posted March 6, 2011 How does that work? Do the attorney's get 1/3 of your disability for the rest of your life to help you? Light Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2011 Report Share Posted March 6, 2011 , There is a cap on how much the attorney can be paid. Right now, the cap is $6000. http://www.ssa.gov/representation/74%20FR%206080%20pdf.pdf If the case is won, the attorney is entitled to 25% of the back pay awarded or $6000, whichever is less. http://www.disabilitysecrets.com/blog/2010/02/social-security-disability-att.htm\ l Not an MD On Sun, Mar 6, 2011 at 6:22 PM, light <lauralight1972@...> wrote: > How does that work? Do the attorney's get 1/3 of your disability for the rest of your life to help you? > > Light Quote Link to comment Share on other sites More sharing options...
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