New to the group saying hello

[Guest guest]

Just wanted to introduce myself to the group.

My name is son and I was diagnosed several months ago with RA. It

first showed up on an MRI of my C-spine while going for a new MRI for my MS. I

have MS, Firbro, spinal stenosis is 3 areas and now RA.

I " m going to be reading and asking questions. I'm not up on the whole RA thing.

So far dr's haven't given me anything for my RA other than telling me to take

OTC stuff. I was on prednisone for 10 days for an MS flare and it did absolutely

nothing for my pain or fatigue. I wake up with swollen puffy eyes, swollen

fingers and toes and everything hurts. After walking and moving for about an

hour or so in the morning things get better but the swollen puffy eyes take most

of the day to clear up.

Does anyone have any advise on OTC meds that would work? Currently i'm on

neurontin 300mg's 4x's a day, baclofen 10mg's 4x's a day, valium 2mg's 3x's a

day. I also have meclizine for vertigo that I take as needed.

Anyone with experience with these meds or other meds that would help with the

pain, swelling and fatigue would be greatly appreciated.

son

[Guest guest]

,

Welcome. I'm very sorry to read about your situation.

Have you seen a rheumatologist yet? He or she can best help you decide

the course of treatment for you. It's important to address RA early

and aggressively.

Not an MD

On Sun, Feb 14, 2010 at 9:52 AM, kittysnick

<veronicaslavishlathers@...> wrote:

> Just wanted to introduce myself to the group.

> My name is son and I was diagnosed several months ago with RA.

 It first showed up on an MRI of my C-spine while going for a new MRI for my MS.

 I have MS, Firbro, spinal stenosis is 3 areas and now RA.

>

> I " m going to be reading and asking questions. I'm not up on the whole RA

thing. So far dr's haven't given me anything for my RA other than telling me to

take OTC stuff. I was on prednisone for 10 days for an MS flare and it did

absolutely nothing for my pain or fatigue.  I wake up with swollen puffy eyes,

swollen fingers and toes and everything hurts. After walking and moving for

about an hour or so in the morning things get better but the swollen puffy eyes

take most of the day to clear up.

>

> Does anyone have any advise on OTC meds that would work? Currently i'm on

neurontin 300mg's 4x's a day, baclofen 10mg's 4x's a day, valium 2mg's 3x's a

day.  I also have meclizine for vertigo that I take as needed.

>

> Anyone with experience with these meds or other meds that would help with the

pain, swelling and fatigue would be greatly appreciated.

>

> son

[Guest guest]

Yes I have . He simply told me that during a flare up he gives steroids.

I'm on and off steroids for my MS and while I just had an MS flare up and was on

steroids it did nothing for my RA pain. Trying to find a new Rheum. because

this one is over an hour from my house and takes way too long to get an

appointment. By the time I do get in the damage is done and i'm no longer in an

RA flare up. I " m trying to find something OTC that can help till I can get a

roomie who will actually help me.

son

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[Guest guest]

>

>

> Yes I have . He simply told me that during a flare up he gives steroids.

That doesn't sound like a good plan to me. My understanding is that you need to

take dmards to prevent ongoing permanent damage from the RA. I was also told by

my doc that even if I don't feel like anything is happening (i.e. no pain and it

seems like maybe I'm in remission) RA is still doing damage and never to stop

taking my meds.

J.

[Guest guest]

Thats what I had thought too . Its like with my MS. Even while i was

in remission the disease was constantly progressing. I just wasn't aware of the

damage still going on in my body. I tried to call my PCP to get a

recommendation for a new roomie but they're not in today. Guess they keep

bankers hours lol. Its only presidents day not christmas lol.

From: bajones@...

Date: Mon, 15 Feb 2010 16:47:13 +0000

Subject: [ ] Re: New to the group saying hello

>

>

> Yes I have . He simply told me that during a flare up he gives steroids.

That doesn't sound like a good plan to me. My understanding is that you need to

take dmards to prevent ongoing permanent damage from the RA. I was also told by

my doc that even if I don't feel like anything is happening (i.e. no pain and it

seems like maybe I'm in remission) RA is still doing damage and never to stop

taking my meds.

J.

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