Ampyra has anyone heard of this drug?

[Guest guest]

I was watching the Today show this morning and Meredith was interviewing a lady

who had MS and was not walking very good. Her neurologist put her on Ampyra. She

started walking again. I guess it doesn't work for everyone. Meredith's husband

has progressive MS as this lady did too, and it did nothing for him. I was

wondering if anyone else has tried this medicine and if they did, did it helped

them? I have an appointment coming up in June with my neurologist, if there are

more pros then cons I think I might consider it. I have progressive MS too. Also

what are the side effects and has anyone experienced any of them?

[Guest guest]

I have Secondary Progressive MS. I take LDN, and eat a diet base on my

personal food sensitivities. I take vitamin D3, garlic, calcium,and B12

daily, and ginko, ginseng, and magnesium as needed.

These measures have reversed my symptoms and stopped disease progression.

Yvette

On Thu, May 27, 2010 at 10:17 AM, buttonsndough wrote:

> . I was wondering if anyone else has tried this medicine and if they

> did, did it helped them? I have an appointment coming up in June with my

> neurologist, if there are more pros then cons I think I might consider it. I

> have progressive MS too. Also what are the side effects and has anyone

> experienced any of them?

>

>

>

>

--

Yvette

Freelance Writer

www.msquill.com

Omaha Natural Health Examiner

http://www.examiner.com/x-16397-Omaha-Natural-Health-Examiner

[Guest guest]

 

Hi, I do know that if you have certain retinal issues and/or seizures (past

/current), you should not take this medicine at all or a lesser dosage. I know

many are excited about this drug, it took along time to get it on the market but

it is only a symptomatic drug...one of the first, granted but as you pointed out

already, it doesn't work for all and it doesn't come without possible side

effects. If you don't fall into the risk groups, it may be worth a shot....let

us know how it goes.

Bianca 

________________________________

To: mscured

Sent: Thu, May 27, 2010 11:17:37 AM

Subject: Ampyra has anyone heard of this drug?

 

I was watching the Today show this morning and Meredith was interviewing a lady

who had MS and was not walking very good. Her neurologist put her on Ampyra. She

started walking again. I guess it doesn't work for everyone. Meredith's husband

has progressive MS as this lady did too, and it did nothing for him. I was

wondering if anyone else has tried this medicine and if they did, did it helped

them? I have an appointment coming up in June with my neurologist, if there are

more pros then cons I think I might consider it. I have progressive MS too. Also

what are the side effects and has anyone experienced any of them?

[Guest guest]

Yes.

There are a few that I know through Facebook who are taking it. They are yet to

say how they are improving.

I had looked up possible side effects before it was released and had already

decided against taking it due to its previous useage and the drug's possible

side effects.

Hope that helps!

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

To: mscured

From: buttonsndough@...

Date: Thu, 27 May 2010 15:17:37 +0000

Subject: Ampyra has anyone heard of this drug?

I was watching the Today show this morning and Meredith was interviewing a lady

who had MS and was not walking very good. Her neurologist put her on Ampyra. She

started walking again. I guess it doesn't work for everyone. Meredith's husband

has progressive MS as this lady did too, and it did nothing for him. I was

wondering if anyone else has tried this medicine and if they did, did it helped

them? I have an appointment coming up in June with my neurologist, if there are

more pros then cons I think I might consider it. I have progressive MS too. Also

what are the side effects and has anyone experienced any of them?

_________________________________________________________________

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[Guest guest]

Ampyra is an improved form of 4-amino-pyridine which is and has been available

through compounding pharmacies for years. The delivery and shelf-life/stability

are supposed to be much improved but it is way more expensive. 4 amino-pyridine

is a potassium channel blocker. It facilitates communication along damages

nerves. It has been used by spinal cord injury patients for years. There is a

risk of seizures and the dosage is very important. MS patients often have a

greater risk of seizures so this is doubly important for us. (spinal code

patients take up to 60mg/day but the ampyra dose is 20m, 2x/day and I don't know

of any msers taking more than 30mg of 4AP/day--and that was to treat a flare--it

just isn't worth the risk of seizures)

I have been taking compounded slow release 4AP for 2 years now and it does give

me more muscle strength. I can tell when it wears off, I just don't move as

well. It also has helped with fatigue and mental alertness. Friends that have

been able to switch from 4AP to Ampyra say that it really is significantly

better but I do not have insurance that will pay for it, so I'm glad that 4AP is

an option.

Initially, many people report some trouble sleeping---maybe that is the

increased energy and alertness in overdrive until the body gets used to it.

>

> I was watching the Today show this morning and Meredith was interviewing a

lady who had MS and was not walking very good. Her neurologist put her on

Ampyra. She started walking again. I guess it doesn't work for everyone.

Meredith's husband has progressive MS as this lady did too, and it did nothing

for him. I was wondering if anyone else has tried this medicine and if they did,

did it helped them? I have an appointment coming up in June with my neurologist,

if there are more pros then cons I think I might consider it. I have progressive

MS too. Also what are the side effects and has anyone experienced any of them?

>