Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 oh by the way, does anyone know any of the 350 HIV/AIDS patients that Dr Bihari has treated ? I was wondering if they are member of this group... regards,Shaq On 10/22/08, shaquenator shaquenator <shaquenator@...> wrote: well, thanks Nonie and Zahavi...i just hope there's more of people like noreen martin here =) I know what she is going through... regards, Shaq On 10/22/08, Nonie <nmsammy@...> wrote: Yes, it is the pharmaceutical version. You can see by the price!! Marc sells it for $60 for a months supply of extract and $45.US for capsules! Or almost free if you have your own oleander bush and very carefully, following the exact cooking instructions! Nonie low dose naltrexone From: shaquenator@... Date: Wed, 22 Oct 2008 16:29:39 +0800Subject: Re: [low dose naltrexone] Re: Newly diagnosed with RA Anvirzel...hhmmm, sounds like a pharmaceutical products ( usually the name contains x,y,z ) is it harmless or non-toxic ? regards, Shaq On 10/22/08, Nonie <nmsammy@...> wrote: There are clinical trials right now on Anvirzel, made from oleander and available for about $2700 for a 3 month supply. You can also make a homemade version of oleander...VERY CAREFULLY!!! You can read Tony Issacs articles on oleander on Natural News for more info. I think there are 6 articles. Nonie low dose naltrexone From: shaquenator@... Date: Wed, 22 Oct 2008 16:17:53 +0800Subject: Re: [low dose naltrexone] Re: Newly diagnosed with RAokies =) On 10/22/08, Nonie <nmsammy@...> wrote: Hi Shaq, You can email Marc and ask him. Nonie Hi Nonie, thanks for sharing =) was there a clinical trial conducted showing it's efficacy ? Curing AIDS ???? are you sure ? regards, Shaq Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 i am not from india ,i am from the nethelands but i buy from the adress i gave you and it works very good.you take naltrexone 50 mg dissolve it in dstiled water,keep it in a fridge in a brown glass shake it good before use and with a syringe you take 4.5 or 3 mg put it in a glass with a bit water and drink it between 22.00 to 0200. > > > > > > > > > > > > > > > > > > > > Hi, > > > > > > > > > > > > > > > > > > > > and welcome aboard. I know that we have had some > > people > > > > in > > > > > > here > > > > > > > > using > > > > > > > > > > LDN for RA. They have written in about less pain and > > a > > > > better > > > > > > > > feeling > > > > > > > > > > in general. Do you have much pain? LDN is often able > > to > > > > > > reduce > > > > > > > > pain in > > > > > > > > > > the joints. This is due to the increased level of > > > > endorphines > > > > > > > > which is > > > > > > > > > > produced when taking LDN. If you want to try LDN you > > > > have to > > > > > > know > > > > > > > > that > > > > > > > > > > taking LDN is for life. As long as there is no cure > > for > > > > our > > > > > > auto > > > > > > > > > > immune diseases LDN is the best alternative. In my > > > > opinion. > > > > > > > > > > > > > > > > > > > > If you decide to start using LDN, please tell us how > > you > > > > are > > > > > > > > doing. > > > > > > > > > > Remember that many have to take this medicine for > > months > > > > > > before > > > > > > > > they > > > > > > > > > > can tell a different. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > All my best, > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Ingrid > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 oh, they dont provide 3mg or 4.5mg tablet ? coz im bad with preparations...a clumsy person hehehehe... On 10/22/08, zahavi <zahavi100@...> wrote: i am not from india ,i am from the nethelands but i buy from the adress i gave you and it works very good.you take naltrexone 50 mg dissolve it in dstiled water,keep it in a fridge in a brown glass shake it good before use and with a syringe you take 4.5 or 3 mg put it in a glass with a bit water and drink it between 22.00 to 0200. > > > > > > > > > >> > > > > > > > > > Hi,> > > > > > > > > >> > > > > > > > > > and welcome aboard. I know that we have had some > > people> > > > in> > > > > > here> > > > > > > > using> > > > > > > > > > LDN for RA. They have written in about less pain and> > a> > > > better> > > > > > > > feeling> > > > > > > > > > in general. Do you have much pain? LDN is often able> > to > > > > > > reduce> > > > > > > > pain in> > > > > > > > > > the joints. This is due to the increased level of> > > > endorphines > > > > > > > > which is> > > > > > > > > > produced when taking LDN. If you want to try LDN you> > > > have to> > > > > > know > > > > > > > > that> > > > > > > > > > taking LDN is for life. As long as there is no cure> > for> > > > our> > > > > > auto > > > > > > > > > > immune diseases LDN is the best alternative. In my> > > > opinion.> > > > > > > > > >> > > > > > > > > > If you decide to start using LDN, please tell us how> > you> > > > are> > > > > > > > doing.> > > > > > > > > > Remember that many have to take this medicine for> > months > > > > > > before> > > > > > > > they> > > > > > > > > > can tell a different.> > > > > > > > > >> > > > > > > > > > > > > > > > > > > >> > > > > > > > > > All my best,> > > > > > > > > >> > > > > > > > > > > > > > > > > > > >> > > > > > > > > > Ingrid> > > > > > > > >> > > > > > > >> > > > > > > > > > > > > > > >> > > > > > >> > > > > >> > > > > >> > > > > >> > > > >> > > > > > > >> > > >> > >> >> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 for 3 or 4.5 mg you need compounding pharmacy.it is not standard medecine.even a clumsy person can do it the way i wrote to you, > > > > > > > > > > > > > > > > > > > > > > > > Hi, > > > > > > > > > > > > > > > > > > > > > > > > and welcome aboard. I know that we have had some > > > > people > > > > > > in > > > > > > > > here > > > > > > > > > > using > > > > > > > > > > > > LDN for RA. They have written in about less pain > > and > > > > a > > > > > > better > > > > > > > > > > feeling > > > > > > > > > > > > in general. Do you have much pain? LDN is often > > able > > > > to > > > > > > > > reduce > > > > > > > > > > pain in > > > > > > > > > > > > the joints. This is due to the increased level of > > > > > > endorphines > > > > > > > > > > which is > > > > > > > > > > > > produced when taking LDN. If you want to try LDN > > you > > > > > > have to > > > > > > > > know > > > > > > > > > > that > > > > > > > > > > > > taking LDN is for life. As long as there is no > > cure > > > > for > > > > > > our > > > > > > > > auto > > > > > > > > > > > > immune diseases LDN is the best alternative. In > > my > > > > > > opinion. > > > > > > > > > > > > > > > > > > > > > > > > If you decide to start using LDN, please tell us > > how > > > > you > > > > > > are > > > > > > > > > > doing. > > > > > > > > > > > > Remember that many have to take this medicine for > > > > months > > > > > > > > before > > > > > > > > > > they > > > > > > > > > > > > can tell a different. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > All my best, > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Ingrid > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 Dr. Mc Candless has a HIV/Aids group: LDN_HIVAIDS/Friendly regards Ingrid Re: [low dose naltrexone] Re: Newly diagnosed with RA oh how i wish anyone talking on the effects of LDN for HIV/AIDS patient...or maybe their testimony of using LDN =( On 10/22/08, cathy.camara <cathy.camara@...> wrote: - I seemed to have read that LDN plays a limited role in LYME disease and people with crohns disease don't have to stay on LDN for life. Is that right? -- In low dose naltrexone , C <covo@...> wrote:>> Ingrid,> > As the newest self proclaimed LDN expert you need to be careful about > how you phrase some things eg. your statement below that "If you want > to try LDN you have to know that taking LDN is for life.". To many > people that will come across as scary and a reason for not even trying > it in the first place. I guess you meant to say something along the > lines of "If LDN works for your RA then to maintain the benefits you > will need to continue to use it"???> > Cheers,> > > Gunn Dybfest wrote:> >> > Hi,> >> > and welcome aboard. I know that we have had some people in here using > > LDN for RA. They have written in about less pain and a better feeling > > in general. Do you have much pain? LDN is often able to reduce pain in > > the joints. This is due to the increased level of endorphines which is > > produced when taking LDN. If you want to try LDN you have to know that > > taking LDN is for life. As long as there is no cure for our auto > > immune diseases LDN is the best alternative. In my opinion.> >> > If you decide to start using LDN, please tell us how you are doing. > > Remember that many have to take this medicine for months before they > > can tell a different.> >> > > >> > All my best,> >> >> > > > Ingrid> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 I remember that I read the same thing. I am not sure what to think, but I agree with you; I have Crohns and I would not stop using LDN anyway, I think my over all well being has improved so much I would not dare to get my "old health" back again. I haven't had a cold in one year. (my colds used to last for weeks with sinus problems and heavy coughing).. I have also had this typical LDN-feel-good with a wonderful balanced self. I am also sure that I am preventing other severe diseases to occur. I had a partial nefrectomy (kidney ca.) last year, and I feel safe that LDN will help me having a super immune system, strong enough to fight eventual cancer cells trying to return. I just love LDN, and will never stop using it. Ingrid [low dose naltrexone] Re: Newly diagnosed with RA, I remember hearing the same thing and it may have been reported by oneof the researchers. It was stated that Crohn's and autisum can seeimprovement after a course of time and that the improvements would notbe reversed by stopping the LDN. I also remember however that a childwith Crohn's had stopped a number of months back and the ailment hadreturned. So I personally would just not take the chance by gettingoff. Unless there is a problem obtaining LDN or there is an adversereaction of some sort, why not continue anyways?My best, Aletha>> ,> > I'm sure I too have read on here of people with Crohn's who don't need > to stay on LDN to remain in remission but when I said that once before > people disagreed.> >>------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 Thank you for teaching me, is it ok that I copy and paste what to write ;-) The sentence I wrote was a blunder, I often do blunders, my English is not perfect, not even am I... but I hopefully learn. I have never proclaimed myself being an expert, as you write.... I am here answering and asking question as all of us do. I am not a doctor, I am not a health career, and I am not planning to be an expert, nor am I trying to be an expert, are you? Ingrid Re: [low dose naltrexone] Newly diagnosed with RAIngrid,As the newest self proclaimed LDN expert you need to be careful about how you phrase some things eg. your statement below that "If you want to try LDN you have to know that taking LDN is for life.". To many people that will come across as scary and a reason for not even trying it in the first place. I guess you meant to say something along the lines of "If LDN works for your RA then to maintain the benefits you will need to continue to use it"???Cheers,Gunn Dybfest wrote:>> Hi,>> and welcome aboard. I know that we have had some people in here using > LDN for RA. They have written in about less pain and a better feeling > in general. Do you have much pain? LDN is often able to reduce pain in > the joints. This is due to the increased level of endorphines which is > produced when taking LDN. If you want to try LDN you have to know that > taking LDN is for life. As long as there is no cure for our auto > immune diseases LDN is the best alternative. In my opinion.>> If you decide to start using LDN, please tell us how you are doing. > Remember that many have to take this medicine for months before they > can tell a different.>> >> All my best,>>> > Ingrid------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2008 Report Share Posted October 23, 2008 Hello, now I am doing some qualified guessing (again)....;-)... Dr. Bihary treated other patient groups early in the 80' with full dose naltrexone. He then discovered spesific effects of the medicine that later was leading to try low dose naltrexone on other diseases like MS and RA. Ingrid Re: [low dose naltrexone] Re: Newly diagnosed with RAokies =) On 10/22/08, Nonie <nmsammy@...> wrote: Hi Shaq, You can email Marc and ask him. Nonie Hi Nonie, thanks for sharing =) was there a clinical trial conducted showing it's efficacy ? Curing AIDS ???? are you sure ? regards, Shaq Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2008 Report Share Posted October 23, 2008 In brief, taken from a Bihari interview. Dr. Bihari: We were treating heroin addicts, and in 1984 a new drug for the treatment of addiction came out. It was called Naltrexone, and it was designed to block the heroin " high " and it was a flop. I used it for a lot of patients, as did most addiction doctors across the country. At 50 milligrams a day, it made people feel terrible. Not that it blocked the heroin so much as it blocked their own endorphins, which is a source of our sense of well-being, so that people couldn't sleep. I knew from work that had been done by the National Institute on Drug Abuse in developing the drug that it had the ability to trigger the body into making more endorphins, but at the high 50 milligram dosage, the dose was too high. It blocks those endorphins. About six months later our addicts began dying in large numbers of AIDS. I ran HIV tests on about a hundred addicts, and fifty percent were already HIV positive. This was in 1985. We began looking for some way to approach this new disease, with a view to the idea that this disease was likely to turn into a worldwide epidemic. When I discovered that people with HIV had less than twenty percent of the normal levels of endorphins, that meant that the virus not only kills the immune system cells, it also weakens the whole immune system, so that it's not as able to fight the virus. We began looking for ways to use this drug to raise endorphins without blocking them. We hired a laboratory scientist to measure endorphin levels. We'd measure in the afternoon, then we'd give the first dose at bedtime that night. Then we'd measure again at the same time the next day; then again at one week, and again at one month. We found that doses just a fraction of the recommended dosage to addicts would trigger or jumpstart endorphin production during the night. Except with exercise, endorphins are made only between two and four in the morning. The brain sends a message out to the adrenal and pituitary glands and tells them to make endorphins. Giving a dose three, four, five hours before that, at bedtime, is enough to make that message from the brain much stronger. From 's LDN board. Art -- > > Hello, > now I am doing some qualified guessing (again)....;-)... > Dr. Bihary treated other patient groups early in the 80' with full dose naltrexone. > He then discovered spesific effects of the medicine that later was leading to try low dose naltrexone on other diseases like MS and RA. > >  Ingrid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2008 Report Share Posted October 23, 2008 Yup, Im aware but seems cant find any testimony there =( regards, Shaq On 10/23/08, Gunn Dybfest <gunn.ingrid@...> wrote: Dr. Mc Candless has a HIV/Aids group: LDN_HIVAIDS/ Friendly regards Ingrid Re: [low dose naltrexone] Re: Newly diagnosed with RA oh how i wish anyone talking on the effects of LDN for HIV/AIDS patient...or maybe their testimony of using LDN =( On 10/22/08, cathy.camara <cathy.camara@...> wrote: - I seemed to have read that LDN plays a limited role in LYME disease and people with crohns disease don't have to stay on LDN for life. Is that right? -- In low dose naltrexone , C <covo@...> wrote: >> Ingrid,> > As the newest self proclaimed LDN expert you need to be careful about > how you phrase some things eg. your statement below that " If you want > to try LDN you have to know that taking LDN is for life. " . To many > people that will come across as scary and a reason for not even trying > it in the first place. I guess you meant to say something along the > lines of " If LDN works for your RA then to maintain the benefits you > will need to continue to use it " ???> > Cheers,> > > Gunn Dybfest wrote:> >> > Hi,> >> > and welcome aboard. I know that we have had some people in here using > > LDN for RA. They have written in about less pain and a better feeling > > in general. Do you have much pain? LDN is often able to reduce pain in > > the joints. This is due to the increased level of endorphines which is > > produced when taking LDN. If you want to try LDN you have to know that > > taking LDN is for life. As long as there is no cure for our auto > > immune diseases LDN is the best alternative. In my opinion. > >> > If you decide to start using LDN, please tell us how you are doing. > > Remember that many have to take this medicine for months before they > > can tell a different. > >> > > >> > All my best,> >> >> > > > Ingrid> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2010 Report Share Posted November 20, 2010 My GP has diagnosed me with RA and has referred me to a rheumatologist. I have had pain in my hands, neck, shoulders and feet for over a year with bouts of horrible fatigue. I have been told by many people that rheumatologist is going to put my on disability right away. Is that the norm? I would like to continue working if I can get some help with the fatigue and the pain in my hands. Anyone have any advice? Thanks, Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2010 Report Share Posted November 21, 2010 Jen, A good rheumatologist would not put you on disability right away; that would be like admitting failure before he's even started treating you. The goal is to attack it aggressively from the beginning to reduce the pain and inflammation and prevent joint deformity. It may take a while to find the cocktail of meds that will do that for you, but you don't have to go on disability right away, maybe not ever. I'm on Enbrel, and it controls my RA wonderfully; I can hardly tell I have it. I'm retired; but if I had to work, I could. The medications for RA today are so much better than they used to be. Make sure that your rheumy treats your RA aggressively. Be the squeaky wheel that gets the grease. There is hope today for people with RA. Good luck, and keep us posted on your progress. Sue On Nov 20, 2010, at 6:42 PM, user wrote: > My GP has diagnosed me with RA and has referred me to a > rheumatologist. I have had pain in my hands, neck, shoulders and > feet for over a year with bouts of horrible fatigue. I have been > told by many people that rheumatologist is going to put my on > disability right away. Is that the norm? I would like to continue > working if I can get some help with the fatigue and the pain in my > hands. Anyone have any advice? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2010 Report Share Posted November 21, 2010 A good Rheumy will see what is in front of them and on tests and what s/ he sees may not be what you or I have experienced Ms Sue. She has been going through this for over a year. Just because she was diagnosed sooner, well- the disease may be at a point that we don't know. I know that mine has been aggressive as all get out.  Bottom line in my opinion, is that Jen talk at length with the Rheumy and ask questions as to why. It is obvious that they are wanting to help and IF she needs to go on disability, she will have a year to 2 year wait in most cases. In this economy, that is a dangerous game to wait to see about.  Also with Disability Ms Jen- you will be able to work on a program called " Ticket to Work " . So IF you are able to work, you will still be able to work while on disability. They just take a dollar for every dollar until you reach your disabiity income and you get 4 years to see if it will work. It is to allow people to try without losing the benefits and having to start over again. That is what it was designed to do. It is not like if you want to and can work that you are not allowed to do so. I think that your Doc is looking out for your best interest in this case. If it were me, I'd follow through with the disability and go where you can from there. Ask many questions Jen and learn your body and how it reacts first to treatment. But in the meantime, that disability will take the time it takes to go through regardless.  Good for you that want to work! I hope all goes well for you.  in SC > My GP has diagnosed me with RA and has referred me to a > rheumatologist. I have had pain in my hands, neck, shoulders and > feet for over a year with bouts of horrible fatigue. I have been > told by many people that rheumatologist is going to put my on > disability right away. Is that the norm? I would like to continue > working if I can get some help with the fatigue and the pain in my > hands. Anyone have any advice? Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.