Getting better

[Guest guest]

My daughter's been on doxy & tindamax (2 days week), earlier minocycline &

zithromax together, and tetracycline after the 10 weeks of IV. We have an HMO &

of course the LLMD is not a provider, but the drugs have gone through. (The

10weeks of IV, insurance paid for 8 & that doctor was one of the HMO ID docs.)

We started getting all of daughters drugs rejected all of the sudden- even the

ones for other conditions prescribed by the HMO specialist. The pharmacy kept

saying they wouldn't go through- 'too soon for refill' 'contact doctor for

authorization' 'not covered' Left our long term pharmacy & took the scripts

to another chain- the prescriptions went through no problem Go figure.

Sue

[Guest guest]

I'm happy for you and your daughter Sue. Did you homeschool her? My daughter

has been too sick to go to school for two years. We both just got diagnosed in

Feb. I hope someday I can say my daughter is well enough to get back to school

too.

-Pat

[ ] getting better

I am happy to share that my daughter started school today, after missing

almost three years of school & 32 months (and counting) of treatment for Lyme.

We sometimes wondered if it would ever happen, but the LLMD said he guessed 2-3

years of treatment, maybe 4 or 5. So she is right on schedule. She is not all

the way there yet, but is sooo much better than she was. We are praying that she

doesn't have any real severe relapses, but you've got to enjoy the moment. When

things were really bad, I found hope in hearing about the recoveries out there.

I hope this message will give one of you the hope you need today.

Sue

[Guest guest]

Hi Pat,

I hope you & your daughter get better too. It has been a long journey- if I

knew it was going to be so long, we might have homeschooled. We thought she

would be out a few weeks, then a few months, then only one year etc. She was

on home instruction the first year - that went well. It was 8th grade & the

tutor was willing to come every day. If she was too sick he wouldn't stay long.

She started 8th grade in both algebra & geometry and was a very strong student.

We dropped geometry after a month or two- she wound up only finishing about 3/4

of algebra- enough to graduate 8th grade & just repeat algebra in high school.

She only made it to 9th grade for a week- home instruction fell apart & after a

few months we signed her up for an online high school. The school district

provided this through her IEP- they classified her in 8th grade because of the

chronic illness. She should be finishing 10th grade- credit wise she is almost

a year behind. She asked to go to this alternative program where she can catch

up credit-wise & still graduate on time. She also felt awkward going back after

being out sick for 3 years.

It has been very hard working with the school district- I never did the

homeschool option because she wanted to keep the door open to going back & the

chance to go to social things with her classmates when she was well enough.

The online school was definitely less stressful than juggling home instruction

schedules. Not ideal for my social daughter who thrives on being with teachers

& other kids, but a go at your own pace & schedule while still getting credits

her public school or colleges will easily accept. ALso maybe easier than

feeling like you have to do all of the teaching if you are sick too. My heart

goes out to you- I hope you see some progress soon.

Sue

[Guest guest]

We did the homebound option. My daughter did well with this option after we

got it in place.

My first meeting of the year for me as a homebound teacher ended in tears as

my supervisor, the secretary, and several of my fellow teachers telling me

she wasn't that sick and she was such a social butterfly she needed to be in

school.

I held back the tears, left the meeting early, and debated who to call. I

stood my ground. They took the great teacher away from her and left her with

a teacher who had a baby in day care who stayed sick. Her Math teacher was

great and he took an interest in her. He was amazed at what she knew on some

days and then puzzled about why she didn't know it the next visit. He would

call me when she didn't answer the door and I would call her dad and he would

get up from working a 12 hour shift and wake her up and let the teacher in.

She was always ready but would fall back to sleep. She always had coffee made

and ready for both teachers. It was amazing what she would do.

Socially she was immature when she went back to school. She had a couple of

friends she kept in touch with by phone or on the Internet. When I dropped

her off at the high school the first morning the two friends that kept in

touch with her were waiting to do whatever it took to keep her in school.

Don't think that it was all good because we had some trying times. She met

her current boyfriend while she was waiting for her grandmother to pick her

up while I was gone on a trip. Grandmother was late and she was the only one

there....he waited. He introduced himself to her and said don't worry if you

are late I will stay with her until you get here.

She had a rough first year, my base school and her attendance, our

principal questioned the attendance one time. After I handed him an article

about

neuro-cognitive issues in Lyme and he read what I had highlighted there was

never a problem again with her attendance. I am sure that some of the absences

were due to peers but that was ok because there was a big adjustment going

on and it wore her out.

I am proud to report that in the first two years she passed all the portions

of the Alabama High School Graduation Exam, squeaked by in math and science,

flourished in history and English, played volleyball from sophomore year to

current, took basic piano, is singing with the choir at school, made all

district chorus, came close to making state, and made Chorale which is the choir

that performs at ALL the special occasions at the school.

This is just one young persons experience with getting back in the

mainstream after dealing with Lyme for four/five years. Today, marks the

anniversary

of two years off of Lyme antibiotics without recurrence of symptoms. Can

she start showing symptoms tomorrow? Yes Can she be re-exposed? Yes Do you

let them sit back and not venture out to accomplish what they feel they can?

NO.

Jeanette

's Favorites

6904 Honeysuckle Ln

Theodore, AL 36582

251-583-1470

251-895-1396

www.morgansfavorites.com

In a message dated 6/4/2008 4:49:49 P.M. Central Daylight Time,

merrymom1013@... writes:

Hi Pat,

I hope you & your daughter get better too. It has been a long journey- if I

knew it was going to be so long, we might have homeschooled. We thought she

would be out a few weeks, then a few months, then only one year etc. She

was on home instruction the first year - that went well. It was 8th grade &

the tutor was willing to come every day. If she was too sick he wouldn't stay

long. She started 8th grade in both algebra & geometry and was a very

strong student. We dropped geometry after a month or two- she wound up only

finishing about 3/4 of algebra- enough to graduate 8th grade & just repeat

algebra in high school. She only made it to 9th grade for a week- home

instruction

fell apart & after a few months we signed her up for an online high school.

The school district provided this through her IEP- they classified her in

8th grade because of the chronic illness. She should be finishing 10th grade-

credit wise she is almost a year behind. She asked to go to this

alternative program where she can catch up credit-wise & still graduate on

time. She

also felt awkward going back after being out sick for 3 years.

It has been very hard working with the school district- I never did the

homeschool option because she wanted to keep the door open to going back & the

chance to go to social things with her classmates when she was well enough.

The online school was definitely less stressful than juggling home

instruction schedules. Not ideal for my social daughter who thrives on being

with

teachers & other kids, but a go at your own pace & schedule while still getting

credits her public school or colleges will easily accept. ALso maybe easier

than feeling like you have to do all of the teaching if you are sick too. My

heart goes out to you- I hope you see some progress soon.

Sue

[Non-text portions of this message have been removed]

_------------------------------------

The book, Cure Unknown: Inside the Lyme Epidemic by Pamela Weintraub is now

available for purchase. Please visit the official website at

http://cureunknown.com/index.html for more information.

Links

_ (http://www.morgansfavorites.com/)

**************Get trade secrets for amazing burgers. Watch " Cooking with

Tyler Florence " on AOL Food.

(http://food.aol.com/tyler-florence?video=4? & NCID=aolfod00030000000002)

[Guest guest]

coffee doesn't grow candida, if that's what you're thinking. The concept

was a myth. You know about the supplements; I have no comment on the

antifungals.

all good,

Duncan

>

> Hi everyone,

> I have been following a candida diet fairly close for about three weeks.

However My tongue still hurts and my throat bugs me off and on. One thing that I

feel I can't give up is coffee. Any thoughts on being able to get better while

still drinking coffee? Can you get better from candida to a point where you

aren't thinking about what you eat everyday? I am currently breast feeding my 4

month old daughter any ideas for supplements/anti fungal that I can safely take?

> Thanks

>

[Guest guest]

All I take is Renew Life Ultimate Flora (Critical Care)50 billion cultures per

capsule. Does anyone have any suggestions for supplements that I should be

taking? Do the Candida Cleanse kits work? Would anyone mind sending me a list of

what they think are must haves in terms of supplements etc.

Thanks

P.S. It's nice to know that I'm not the only one in the world doing this geeky

diet and struggling with yeast lol!

> >

> > Hi everyone,

> > I have been following a candida diet fairly close for about three weeks.

However My tongue still hurts and my throat bugs me off and on. One thing that I

feel I can't give up is coffee. Any thoughts on being able to get better while

still drinking coffee? Can you get better from candida to a point where you

aren't thinking about what you eat everyday? I am currently breast feeding my 4

month old daughter any ideas for supplements/anti fungal that I can safely take?

> > Thanks

> >

>

[Guest guest]

>

> So how do you know when you are able to add back more foods into your diet?

How quickly? and can you add back most foodgroups and just steer clear of

sugars and refined products? Did I miss the link that addresses this?

>

+++Hi there. Is your name ?

Once you've thoroughly read my main candida article you will understand what

foods are healthy and which ones aren't healthy even for people who are healthy.

In order to have life-long health you need to follow the basic principles of

this program - also see this article for people who don't have candida, which

lists damaging foods:

Foods That Damage, Foods That Heal

http://www.healingnaturallybybee.com/articles/heal13.php

It takes 1 month of natural healing for every year you've been unhealthy, and

for most people today that is since before they were born, so most people on

this program have a long ways to go before they can add any other foods.

Please ensure you read two important articles so you understand candida, and

know what you need to do and why:

1) How to Successfully Overcome Candida

http://www.healingnaturallybybee.com/articles/intro2.php

2) Curing Candida, How to Get Started

http://www.healingnaturallybybee.com/articles/intro1.php

For encouragement and inspiration see these wonderful Success Stories by members

of this group: http://www.healingnaturallybybee.com/success/index.php

The best in health, Bee

[Guest guest]

My ears are still plugged, but my lungs feel better. Yesterday I tried the

20 mg of Prednisone all at once and felt really sick about two hours after

taking it. Didn't know if it was from infections or treatment. Today I took

10 mg in the morning and the other 10 mg about 3 pm. Only got a little

sick for a little while.

My new pain is something I describe as feeling like the bones in my left

foot are swollen. If it were really swelling, you'd think the Prednisone

would take care of it. Once last night, I couldn't put any weight on it. But I

kept trying and then I could walk on it. It was very strange.

Each day, a new adventure.

dd