Re: temp? blood pressure? tears>Jane

[Guest guest]

Jane,

hi. I am sorry about ur sister. I have a older sister and when I read ur

email, I saw part of my sister in it. Must be hard to see ur sister ill.

Do u get to visit her much? Opps... forgot to introduce myself. I am

nancy from cleveland. I am 41 and have Parkinson and orthostatic

hypotension and same old same old.

Does ur sister get P.T. or movement classes??I find they help me

significantly. I can't stretch my hands over my head , but I do stretch

them forward while sitting. My low fiber diet is pureed. I am going

Monday to a nutritionist to get a updated diet. I will post it here. A

swallowing evaluation and barium swallow was also done. My chewing is

uncoordinated and esophagus doesn't have movement. Gravity pulls down

the pureed food. Delayed gastric emptying test found that out.

For the orthostatic i wear compression hose. Most HA will not put them

on and tell u u shouldn't wear them all the time while my docs tell me

to do it. I follow the docs they are knowledgeable in the medical area.

Yes like Bill says - the blood pressure should be taken laying , sitting

, and if possible standing.

try to smile . i know it is hard sometimes.

nancy:)

Werre wrote:

>

> Jane,

>

> Yes people with MSA often run " normal " temperatures of as low as 96 deg.

>

> On the blood pressure, many MSA patients have orthostatic hypotension. This

is

> where when you are laying down flat, your BP could be high like 160/100;

> sitting it could be normal like 120/80 and standing it would drop possibly

very

> low 80/40 or lower. There is medicine that can raise the BP.

>

> Is your sister getting physical and speech therapy? They can help movement

and

> swallowing. It sounds as if she should also have a swallowing study done or

at

> the very least - a swallowing evaluation. Medicare will pay 80% of all of

this

> and many supplementals will pay the rest.

>

> Take care, Bill and Charlotte

> ==============================

>

> xbow@... wrote:

>

> > My sister has MSA (mutiple systems atrophy) and CBGD

> > (cortical basal ganglionic degeneration)

> > i've newly joined this newsgroup.

> > private responses can be sent to:

> > xbow@...

> >

> > did i read something about lower

> > " normal " temperatures?

> > did people here have lower than

> > " normal " blood pressure?

> >

> > my sister at 66 years old is now in

> > a nursing home and has to remember

> > how to breath and eat without choking?

> >

> > i feel sad about knowing the slope is

> > getting steeper and faster......

> >

> > <tears>

> >

> > -jane

> >

> > --

> > made with recycled electrons!

> >

> >