Guest guest Posted March 19, 2010 Report Share Posted March 19, 2010 Hi PJ,  I'm new to the group and have been lurking. Will introduce myself in a minute. I did the no caffeine, no dairy, no wheat, no sugar diet about a year ago. Now I already was no caffeine for 20 yrs, and low white flour, white sugar for 3 or 4, so thought it would be a snap. Oh and my naturopath also had me do no red meat. I lasted 3 weeks on the diet. I quit for 2 reasons.  I have trouble w/my appetite to begin with. After a while on this diet, there was nothing that appealed to me and so I just would skip meals. I lost 10 lbs in 3 weeks, which may not seem like a lot, but I started out at 115 lbs and I am 5'7 " . I could not afford to loose anymore weight. I had lost those 10 lbs 7 years earlier and it took me 7 long years to put them back on. To loose them in 3 weeks was depressing.  And I was battling depression to begin with so this was making me worse.  The second reason I quit the diet is because after all that suffering, it didn't make one bit of difference for me! If anything the RA was worse. Intro to follow.  Sheryl From: warrenisewit <warrenisewit@...> Subject: [ ] Has anyone found resukts with anti-flamatory diet? Date: Thursday, March 18, 2010, 10:29 PM  Hi, I am new to the group. I have had RA since my teenage years. Didn't go heavy into meds until my late 20's. I have reached the point to do infusions. I have done every med out there. Luckily my joint damage is minimal. I have been looking at the results on the internet of some people using an anti-inflamatory Dite. No caffeine, no dairy, no wheat, no sugar and all I can think is no way. Any thoughts on this thought provoking change in diet? Looking forward to the support. PJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2010 Report Share Posted March 21, 2010 Hi PJ - I have been in this group only since November when I was initially diagnosed with erosive RA. I was very leery of the medication that I was told I " had to " take. My father has RA and last year his immune system was so compromised that he almost died from a virus he couldn't get rid of. I went to a Holistic M.D. (yes, an actual M.D.) who had me do an elimination diet (not so hard to do). Well, all I can say is that several months ago, before I started this " diet " I was walking with a limp (I am 40 years old) and had severe pain in my joints as well as a rash for the last year, which no one could diagnose. The Holistic M.D. stated this diet was to show that there could be a type of allergic inflammation linked to RA. Well, low and behold, I was on this diet for 2-1/2 months straight. My rash went away, my pain went away, I no longer limp, and am going to do my first 5k in a couple of weeks. If you are interested, feel free to e-mail me, and I will give you the specifics on the diet. The reason that I can really tell that it works is that I have TOTALLY slacked off of the diet, and the rash does come back as well as some pain! It is hopeful for me, although I don't know if the damage still occurs or not without pain - some say it does, some say it doesn't! It would be hopeful though to know that possibly you can help yourself tremendously by just some " simple " diet changes! Donna Ruzich > > Hi, > I am new to the group. I have had RA since my teenage years. Didn't go heavy into meds until my late 20's. > > I have reached the point to do infusions. I have done every med out there. Luckily my joint damage is minimal. > > I have been looking at the results on the internet of some people using an anti-inflamatory Dite. > > No caffeine, no dairy, no wheat, no sugar and all I can think is no way. > > Any thoughts on this thought provoking change in diet? > > Looking forward to the support. > > PJ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2010 Report Share Posted March 22, 2010 Thanks so much for your support. I would be very interested in the diet that you have been following. I am skeptical. NO! I don't want to feel deprived. I love my whole grains and caffeine. But, I should just get off the pity pot and give it a try! What have I got to lose. There is always room for another 10 pounds to lose. Give me an e--mail at warrenisewit@... Hope you have a great week. So jealous to here you can run. Stay healthy. Pj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2010 Report Share Posted March 22, 2010 Thank you for taking the time to reply. Sounds like you were already a good eater. I am going to try following the diet and see if I get some results. I have to admit I am spoiled eater. I love whole grains, some sugar and my caffeine. But some energy and pain relief would be great!!! We live on a farm and have fresh eggs, grass fed beef, home grown pork and lamb. We have a huge garden and eat very well out of it. I'm so sorry that you have had to fight RA for such a long time. I suppose the disease makes us stronger people and there is a lesson living with it daily. I truly believe that exercise and rest are the 2 most important things we do daily. Missing my double fiber bread already! Pj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2010 Report Share Posted March 24, 2010 I would love info on this i have psoriatic can you email me privately Jolene In a message dated 3/22/2010 8:12:02 A.M. Eastern Daylight Time, koala2u@... writes: Hi PJ - I have been in this group only since November when I was initially diagnosed with erosive RA. I was very leery of the medication that I was told I " had to " take. My father has RA and last year his immune system was so compromised that he almost died from a virus he couldn't get rid of. I went to a Holistic M.D. (yes, an actual M.D.) who had me do an elimination diet (not so hard to do). Well, all I can say is that several months ago, before I started this " diet " I was walking with a limp (I am 40 years old) and had severe pain in my joints as well as a rash for the last year, which no one could diagnose. The Holistic M.D. stated this diet was to show that there could be a type of allergic inflammation linked to RA. Well, low and behold, I was on this diet for 2-1/2 months straight. My rash went away, my pain went away, I no longer limp, and am going to do my first 5k in a couple of weeks. If you are interested, feel free to e-mail me, and I will give you t he specifics on the diet. The reason that I can really tell that it works is that I have TOTALLY slacked off of the diet, and the rash does come back as well as some pain! It is hopeful for me, although I don't know if the damage still occurs or not without pain - some say it does, some say it doesn't! It would be hopeful though to know that possibly you can help yourself tremendously by just some " simple " diet changes! Donna Ruzich > > Hi, > I am new to the group. I have had RA since my teenage years. Didn't go heavy into meds until my late 20's. > > I have reached the point to do infusions. I have done every med out there. Luckily my joint damage is minimal. > > I have been looking at the results on the internet of some people using an anti-inflamatory Dite. > > No caffeine, no dairy, no wheat, no sugar and all I can think is no way. > > Any thoughts on this thought provoking change in diet? > > Looking forward to the support. > > PJ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2010 Report Share Posted April 1, 2010 Koala2u, This is my first post - I, too, would like to hear more about the elimination diet. I was diagnosed Sept/Oct 09 with RA and am taking methotrexate. Before I started taking it I felt disabled, feet & ankles hurting, walking down stairs at home like an elderly person (I am 48), my hands swollen and hurting. Since taking MTX I have felt like my old self. No side effects. caitsmom4 > > Hi PJ - > > I have been in this group only since November when I was initially diagnosed with erosive RA. I was very leery of the medication that I was told I " had to " take. My father has RA and last year his immune system was so compromised that he almost died from a virus he couldn't get rid of. I went to a Holistic M.D. (yes, an actual M.D.) who had me do an elimination diet (not so hard to do). Well, all I can say is that several months ago, before I started this " diet " I was walking with a limp (I am 40 years old) and had severe pain in my joints as well as a rash for the last year, which no one could diagnose. The Holistic M.D. stated this diet was to show that there could be a type of allergic inflammation linked to RA. Well, low and behold, I was on this diet for 2-1/2 months straight. My rash went away, my pain went away, I no longer limp, and am going to do my first 5k in a couple of weeks. If you are interested, feel free to e-mail me, and I will give you the specifics on the diet. The reason that I can really tell that it works is that I have TOTALLY slacked off of the diet, and the rash does come back as well as some pain! It is hopeful for me, although I don't know if the damage still occurs or not without pain - some say it does, some say it doesn't! It would be hopeful though to know that possibly you can help yourself tremendously by just some " simple " diet changes! Donna Ruzich > Quote Link to comment Share on other sites More sharing options...
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