Re: OT Newly diagnosed with a lot of questions!

[Guest guest]

Lori and group;

Lori what do you mean " back of the meds once the dMards work " ? I

took meds for a year before I got my humira injections and the meds

didn't work in the first place. I only got worse. I bet I could go

off the meds now. My meds are sulfazaline, plagunil. The injections

are great.

Thanks

Clora

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> I would advise a newly diagnosed patient to use whatever they could

to get the RA under control as fast as possible - remember, DMARD's

and Biologics don't work overnight. Once the RA was under control,

then I'd back off the meds. Once you have deformity, it is too

late. Even with early and aggressive treatment, I still have

deformity in both hands and feet, and I haven't even had this 3 years

yet. I hate taking all of this medication, but I know that without

it I couldn't lead a life worth living.

> Lori

> http://home.comcast.net/~queenstitcher/

> http://stitchingqueen.multiply.com

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[Guest guest]

and group;

You sure could write a handbook ,(I would buy it) you have all

this information. Plus the things the doctor don't tell the

patients. My doctor never once ask me if I was hurting. She said

what is your pain level from 1 to 10. I thought 5 was real bad so I

told her 5. She didnt try to fix it. Finally after talking to this

group I said 11 she fixed it lol.

gentle hugs

Clora

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> Sharon,

>

> Thank you for sharing your experience.

>

> You are so right about RA not being like high school. This is what I

> am talking about when I mention the " window of opportunity. "

>

> Also, in addition to avoiding permanent damage by treating RA early

> with DMARDs, the very nature of the disease can be altered. Do

> patients wish to live with a kitten or a tiger?

>

> What exactly would you want in the handbook? Maybe we could make one

> of our own here.

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> Not an MD

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