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Hi ,

I once spoke with a lady in Arizona -- the mother of an acquaintance of my

daughter -- who told me she went from severe RA to no meds at all by giving up

all foods that contained gluten.  That was several years ago.  Occasionally I

read an article that mentions one might want to try going gluten free for immune

system illnesses.  I have never lasted long enough being gluten free to know if

it would work for me. 

Whole Foods Market has a section of gluten-free foods.  The rice crackers are

good, but I haven't had any of the bread that I liked.  The pasta is ok.  You

might want to try going gluten free.  I am sorry you have to deal with RA at

such a young age.  It is bad enough at a much later time in life.  Good luck.

Patsy

________________________________

From: " BijouxMusic@... " <BijouxMusic@...>

Sent: Wednesday, August 12, 2009 11:07:26 PM

Subject: [ ] Hello, I am new to the group

 

Hi Folks,

My name is , and I would like to introduce myself to the group and ask

one question.

I am 38 years old I have had RA since I was about 23, although I've been

diagnosed about 5 years ago.

I have a quick question for now. Does anybody know anyone that has experienced

cure from RA?

I mean real cure. Not meds, placebo, diet, etc. Basically, being able to eat and

drink whatever you want and have a normal life.

Thank you.

.

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Thank you patsy. I will look into that.

eduardo.

Re: [ ] Patsy to

Hi ,

I once spoke with a lady in Arizona -- the mother of an acquaintance of my

daughter -- who told me she went from severe RA to no meds at all by giving up

all foods that contained gluten.? That was several years ago.??Occasionally I

read an article that mentions one might want to try going gluten free for immune

system illnesses.? I have never lasted long enough being gluten free to know if

it would work for me.?

Whole Foods Market has a section of gluten-free foods.? The rice crackers are

good, but I haven't had any of the bread that I liked.? The pasta is ok.? You

might want to try going gluten free.? I am sorry you have to deal with RA at

such a young age.? It is bad enough at a much?later time in life.? Good luck.

Patsy

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  • 3 weeks later...

Hi ,

I had a neuroma in my foot that was painful. My podiatrist (sp) gave me a

cortisone shot and I have not had it come back in years.  It was not related to

my RA.

Sincerely,

Patsy

________________________________

From: marysue <marysue@...>

Sent: Tuesday, September 1, 2009 2:14:59 PM

Subject: Re: [ ] New to the group

 

,

Unfortunately, it often does take a while to get in for a first visit

with a rheumatologist. You might call and ask them to put you on a

cancellation list. Then if someone cancels, you could get in earlier.

In the meantime, you might ask the doctor who referred you to

prescribe a low dose of prednisone while you're waiting. It has a lot

of bad side effects, but a low dose for a short while should not harm

you.

I've never seen a relationship between my RA and my diet.

Sue

On Sep 1, 2009, at 2:49 PM, cjsc91128 wrote:

> Hi everyone,

> I'm new to the group and haven't actually gotten my dx yet. I have

> a neuroma in my right foot and went to a doctor after about a 3

> month flare up that wouldn't subside. I thought the tenderness in my

> knees and wrist might be related but the blood work came back with a

> rhumetoid factor of over 600. So, she referred me to a rhumetologist

> which I won't get to see until September 22. Searching the internet

> for information, I found you.

> I must say, reading through the messages I'm becoming more alarmed

> by the minute. Right now, the steroids have relieved the pain

> everywhere, shrunk the pinched nerve in my foot, and the only

> discomfort that has returned is in my right wrist.

> What can I do in the meantime to reduce the inflammation and flare

> up that will inevitably return before I can get to the doctor? I

> read a mention about changing our diets?

> Thanks in advance for any direction/guidance.

>

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  • 1 year later...

Hi Denice,

I just wanted to share with you that my mom got a lot of relief with her feet

when she was put on a drug called Gabapentin.  She did not have RA, but I do

and

the same drug is helping my pain from a pinched nerve.  Evidently this drug

helps a lot of different conditions.  Good luck to you!

Patsy

________________________________

From: Symens <denisesymens@...>

Sent: Fri, January 7, 2011 5:25:59 PM

Subject: Re: [ ] Numb Feet

 

Hi Carol,

I hate to hear you are going through the same thing as me.  I was diagnosed

January 2009 with RA, and started having tingling in my hands and feet starting

in May 2009. I have had problems with my toes being numb starting two months

ago.  I live in South Dakota (the windchill is 20 below now, and I can't get

out

of my drive due to snowdrifts), and I have to really watch my feet or I

experience severe (level 10) pain when my feet start warming up.  This started

just this month.  Sigh.....I wonder what else will pop up?  I also have

chronic

joint pain that gets me down, and I have a hard time walking because of my big

toes.  My toes aren't big, its just the big toe of each foot lol.  But, I

talked

to my PCP and she will write a letter recommending me for disablilty, my hearing

is in April or May.  So,that made my day today!  Perhaps you should think

about

filing for disability Carol?  Take care and try to have a great new year.

Oh, anyone else have to put up with the great white north in the winter?

(Frozen)

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