Humira

[Guest guest]

> >

> >

> > Hi everyone, I'm new to this group and I have been reading all the

> past posts.

> > I have RA an Fibro but my question is about the RA. I have

> started taking

> > Humira and have had great results with my Ra. But, and there is

> always a but.

> > I have been having health problems because the Humira has

> compromised

> > my immune system so much. First I have swollen and weepy eyes.

> The Doc

> > said it was seasonal allergies. I've never had it before. This

> morning I woke

> > up with Oral Thrush and have to take medicine for it. I told my

> Doc that I am

> > thinking of quiting Humira. She said that I should be patient and

> see if these

> > health problems become chronic. Has anyone had the same experience

> with

> > Humira? I would sure like to think I can get over this hurdle.

> > Pat

[Guest guest]

I'm limited in what I can take because of a

> sulph allergy that I just developed after trying Celebrex and

Bextra.

Pat

What is a sulph allergy?

I dont take Humira so can't help you there - I do take MTX and Mobic

and Foltx plus I get Remicade infusions once every 8 weeks. My

liver count goes up and down...

God bless,

Althea

[Guest guest]

Welcome Pat. Thrush is a listed side effect of Humira. Vision problems are

also listed:

http://www.drugdigest.org/DD/DVH/Uses/0,3915,551811%7CHumira,00.html

I can understand why you would want to stop taking it. Have you tried

Enbrel?

a

>

>

>

> Hi everyone, I'm new to this group and I have been reading all the past posts.

> I have RA an Fibro but my question is about the RA. I have started taking

> Humira and have had great results with my Ra. But, and there is always a but.

> I have been having health problems because the Humira has compromised

> my immune system so much. First I have swollen and weepy eyes. The Doc

> said it was seasonal allergies. I've never had it before. This morning I

> woke

> up with Oral Thrush and have to take medicine for it. I told my Doc that I am

> thinking of quiting Humira. She said that I should be patient and see if

> these

> health problems become chronic. Has anyone had the same experience with

> Humira? I would sure like to think I can get over this hurdle.

> Pat

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

>

> I'm limited in what I can take because of a

> > sulph allergy that I just developed after trying Celebrex and

> Bextra.

> Pat

>

> What is a sulph allergy?

>

> I dont take Humira so can't help you there - I do take MTX and Mobic

> and Foltx plus I get Remicade infusions once every 8 weeks. My

> liver count goes up and down...

>

> God bless,

> Althea

Sorry Althea,

I left out the a in Sulpha

I'm not a great speller or typist for that matter.

Pat

[Guest guest]

> Welcome Pat. Thrush is a listed side effect of Humira. Vision problems are

> also listed:

>

> http://www.drugdigest.org/DD/DVH/Uses/

0,3915,551811%7CHumira,00.html

>

> I can understand why you would want to stop taking it. Have you tried

> Enbrel?

>

> a

>

> a, Thanks for the information. I printed it out and am going to fax it to

my doctor. I spoke with him today and he feels that the steroid that I am

taking

for my eye allergy is the culprit in the appearance of Thrush. He told me to

keep taking the Humira.

>

> Pat

> >

> >

> >

> > Hi everyone, I'm new to this group and I have been reading all the past

posts.

> > I have RA an Fibro but my question is about the RA. I have started taking

> > Humira and have had great results with my Ra. But, and there is always a

but.

> > I have been having health problems because the Humira has

compromised

> > my immune system so much. First I have swollen and weepy eyes. The

Doc

> > said it was seasonal allergies. I've never had it before. This morning I

> > woke

> > up with Oral Thrush and have to take medicine for it. I told my Doc that I

am

> > thinking of quiting Humira. She said that I should be patient and see if

> > these

> > health problems become chronic. Has anyone had the same experience

with

> > Humira? I would sure like to think I can get over this hurdle.

> > Pat

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Welcome to the group, Pat! When you describe your eyes as " weepy, " do

you mean that they are watery or do they seem infected?

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Re: Humira

>

>

>

>

> > Welcome Pat. Thrush is a listed side effect of Humira. Vision

problems are

> > also listed:

> >

> > http://www.drugdigest.org/DD/DVH/Uses/

> 0,3915,551811%7CHumira,00.html

> >

> > I can understand why you would want to stop taking it. Have you

tried

> > Enbrel?

> >

> > a

> >

> > a, Thanks for the information. I printed it out and am going to

fax it to

> my doctor. I spoke with him today and he feels that the steroid that

I am taking

> for my eye allergy is the culprit in the appearance of Thrush. He

told me to

> keep taking the Humira.

> >

> > Pat

> > >

> > >

> > >

> > > Hi everyone, I'm new to this group and I have been reading all the

past

> posts.

> > > I have RA an Fibro but my question is about the RA. I have

started taking

> > > Humira and have had great results with my Ra. But, and there is

always a

> but.

> > > I have been having health problems because the Humira has

> compromised

> > > my immune system so much. First I have swollen and weepy eyes.

The

> Doc

> > > said it was seasonal allergies. I've never had it before. This

morning I

> > > woke

> > > up with Oral Thrush and have to take medicine for it. I told my

Doc that I

> am

> > > thinking of quiting Humira. She said that I should be patient

and see if

> > > these

> > > health problems become chronic. Has anyone had the same

experience

> with

> > > Humira? I would sure like to think I can get over this hurdle.

> > > Pat

[Guest guest]

Pat,

I take Humira and have not experienced that. I can't imagine going

off all drugs for 6 weeks. I hope you feel better soon.

Jennie

>

>

> Hi everyone,

>

> I started this thread because I developed a rash and what my family

doctor

> thought was Thrush. It turned out we were all wrong.

> After a month of going from doctor to doctor I found out that I had

Lichen

> Panus on my body, eyes and mouth. It was finally determined that

it was a

> reaction to the Humira. So I had to go off of it and all

medication for six

> weeks. The six weeks are over and i'm in bad shape. My rhuemy was

very

> surprised at the reaction and told me that Lichen Panus is an

autoimmune

> desease of the skin. Because of my sulph allergy I am limited in

what I can

> take. I have started taking the loading dose of Arava and will be

on a low

> dose of Arava with a low dose of Methotrexate to help with the

side effects.

> Has anyone had a similar experience with Humera and Lichen Panus?

Or

> Has anyone gotten the Lichen from other drugs ?

>

> Thanks for listening,

> Pat

[Guest guest]

Has anyone on Humira experienced a maybe copper after taste that lingers on.

Sorry for not being able to explain better.

Thanks,

Jan

[Guest guest]

Hi Jan,

I've been on Humira for nearly a year now. Can't say

as I notice a coppery taste, but then, I really don't

taste much of anything unless its extremely sweet,

sour or salty, but that's not due to Humira.

Just a comment on Humira's results, my hands are

looking pretty good, not as swollen and puffy. I'm not

in the pain that I was before, and the work days are

much easier to get through. I've gained weight,

however, mostly around my waistline, which is rather

depressing, and the annoying brain fog is ever-present

warm blessings,

jane

[Guest guest]

Jan,

I have not experienced that on Humira although I have tasted copper when I've

been on certain antibiotics.

Regards,

Kathy F.

In a message dated 2/11/2005 2:14:50 PM Eastern Standard Time,

JNJSewing@... writes:

Has anyone on Humira experienced a maybe copper after taste that lingers

on.

Sorry for not being able to explain better.

Thanks,

Jan

[Guest guest]

I took Humira. It did not help me with my problems but did not have a

copper taste.

Janet

[Guest guest]

Tracie,

Respiratory infections are a side effect of Humira. I've never taken

Humira, so I have no experience with it.

Here is a list of the reported side effects:

http://www.rxlist.com/cgi/generic3/humira_ad.htm

Please call your doctor and let him know about these symptoms.

a

On May 23, 2005, at 3:54 PM, tracierae143 wrote:

> Hi again,

>

> Has anyone who has tried Humira had side effects involving your upper

> respiratory tract?  For example, coughing, wheezing, sore throat, that

> sort of thing.  I am just wondering if this is a cold or an allergic

> reacation to the med.  Any personal experience anyone has had or any

> infomration would be greatly appreciated.  Thanks.

>

> Tracie

>

>

>

>

>

[Guest guest]

Hi Tracie,

You go girl!!! I'm so excited that Humira is working for you:) It

takes awhile to find a med that works, so hope this is the one for

you. That is good news the lab work came back good, so just enjoy.

Your always in my prayers, Tawny

> HI All,

>

> I am starting to get a little hopeful here. I think the Humira is

> working, shhhh, don't scare it away though. I am starting to feel

> slightly human again and my labs are better. All my inflammatory

> levels are coming down. I am trying not to get too excited, I have

> had four shots now, but what do you guys think, will this last???

> Unfortunately, I still have problems with the fibromyalgia and my

back

> issue, but if the RA were controlled that would be a lot more

> tolerable. I have never had a remission or break from a flare

before

> so I am really excited. I would love your feedback on this. I

don't

> want to get too excited, but I was beginning to think nothing would

> ever work. I am still on the Prednisone, folic acid, and MTX as

> well. The doctor does not want to mess with anything right now as

I

> am finally starting to improve. Let me know what you think. I

have

> appreciated all of your support.

>

> Tracie in Maine

[Guest guest]

Tracie, I'll be hoping along with you that it will last! Just enjoy the

pain-free time while you have it. Enbrel works the same way for me, and

I feel so lucky. I wish everyone here could get relief from their pain.

Sue

On Friday, July 8, 2005, at 09:32 AM, tracierae143 wrote:

>

> I am starting to get a little hopeful here. I think the Humira is

> working, shhhh, don't scare it away though. I am starting to feel

> slightly human again and my labs are better. All my inflammatory

> levels are coming down. I am trying not to get too excited, I have

> had four shots now, but what do you guys think, will this last???

[Guest guest]

Tracie,

Fabulous news! No one can say how long it will last, but I'd be

optimistic if I were you.

Enbrel has been working for me for 6 years now. Since being on Enbrel,

I have more trouble with the FM than I do with RA.

You deserve a break! I'm really happy for you.

a

On Jul 8, 2005, at 9:32 AM, tracierae143 wrote:

> HI All,

>

> I am starting to get a little hopeful here.  I think the Humira is

> working, shhhh, don't scare it away though.  I am starting to feel

> slightly human again and my labs are better.  All my inflammatory

> levels are coming down.  I am trying not to get too excited, I have

> had four shots now, but what do you guys think, will this last??? 

> Unfortunately, I still have problems with the fibromyalgia and my back

> issue, but if the RA were controlled that would be a lot more

> tolerable.  I have never had a remission or break from a flare before

> so I am really excited.  I would love your feedback on this.  I don't

> want to get too excited, but I was beginning to think nothing would

> ever work.  I am still on the Prednisone, folic acid, and MTX as

> well.  The doctor does not want to mess with anything right now as I

> am finally starting to improve.  Let me know what you think.  I have

> appreciated all of your support. 

>

> Tracie in Maine

>

>

>

>

>

[Guest guest]

Hey Tracie-I just started Humira-due for my second dose on MOnday. had a rough

time with the switch from Embril to Humira.,..OW!!!!! Am still on prednisone,.

but once the Humira takes effect,. I am gonna try and wean down.,.,.,good

luck!!! sherri

[ ] Re: HUMIRA

Hi Tracie,

You go girl!!! I'm so excited that Humira is working for you:) It

takes awhile to find a med that works, so hope this is the one for

you. That is good news the lab work came back good, so just enjoy.

Your always in my prayers, Tawny

> HI All,

>

> I am starting to get a little hopeful here. I think the Humira is

> working, shhhh, don't scare it away though. I am starting to feel

> slightly human again and my labs are better. All my inflammatory

> levels are coming down. I am trying not to get too excited, I have

> had four shots now, but what do you guys think, will this last???

> Unfortunately, I still have problems with the fibromyalgia and my

back

> issue, but if the RA were controlled that would be a lot more

> tolerable. I have never had a remission or break from a flare

before

> so I am really excited. I would love your feedback on this. I

don't

> want to get too excited, but I was beginning to think nothing would

> ever work. I am still on the Prednisone, folic acid, and MTX as

> well. The doctor does not want to mess with anything right now as

I

> am finally starting to improve. Let me know what you think. I

have

> appreciated all of your support.

>

> Tracie in Maine

[Guest guest]

hi mary. welcome to the group. glad to hear your are getting some relief. i

also just

started humira (had 3 shots now) and it has been a miracle for me. i was SOOO

reluctant

to try it, but now am glad i did. i can't help but wonder how long this bliss

will last - but

i'm trying to enjoy it while it does. i used to be about 25% covered in P, and

now it's

almost all gone. i wore a really dark shirt last night... something i haven't

done in years.

the pain has also subsided and i feel like a new person. i started taking it

because the PA

in my neck was out of control... but the clearing of P has been a HUGE bonus.

i've had P

on my hands for 15 years, and within 2 weeks, it was gone. when i catch a

glance of my

hands, i do a double take now... they used to be bright red, and now they're

white. looks

strange to me!

best of luck to you!

zac

[Guest guest]

I have been taking Humira for one year and have experienced no side

effects. I have been really pleased with it, it works for me. The

only negative thing I have experienced is the brief burning sensation

upon injection but it is momentary and tolerable. HOpe this helps.

[Guest guest]

Jackie,

I've been on watching the posts on this board for a while but not really

participating. I've been getting Humira for the past month and a half. I've had

3 injections so far and haven't noticed any side effects except for feeling

achy for about a day. I was also told that I wouldn't feel the benefits of it

for maybe 3 months.

Thanks

and good luck

[Guest guest]

Thanks for the info . I'm just a little nervous about it.

> I have been taking Humira for one year and have experienced no side

> effects. I have been really pleased with it, it works for me. The

> only negative thing I have experienced is the brief burning

sensation

> upon injection but it is momentary and tolerable. HOpe this helps.

>

[Guest guest]

I started Humira 2 months ago and felt immediate relief. I have been pain free

since. In my opinion, it's a great drug.

jaykay1inhd <jaykay1inhd@...> wrote:Does anyone have info on Humira. A

friend of mine (with RA as well)

is going to participate in a study for 12 weeks. He has asked if I

would like to join as well since the dr. has put an ad in the paper.

I would like to know results, side effects, etc. Thanks for any info.

Jackie

[Guest guest]

I have often wondered about how we can tell what is going on with us

when we start having more pain, stiffness, etc. Is it a flare, or has

our medication become more ineffective for us, or is it a progression

of the RA? How do we tell? Sue

On Thursday, October 6, 2005, at 05:00 PM, Grammi B wrote:

> Hi I've been on Humira going on 2 years now with no problems. I am

> wondering if it somehow not working quite as well these days, but it

> may just be the flare. Up to now, it has worked wonderfully for me.

[Guest guest]

TANYA, IF YOU HAVE MADE SURE THAT THE HUMIRA WAS ALWAYS KEPT REFRIGERATED AND

THE EXPIRATION DATES ARE GOOD, YOU MIGHT GIVE THEM TO YOUR RHEUMY DOCTOR. IT

WAS HARD GIVING UP MY HUMIRA...AS IT HELPED MY PAIN AND ARTHRITIS SO MUCH.

AFTER A FEW MONTHS, I WAS BACK TO MY CONSTANT PAIN AND STIFFNESS. HOW ARE YOU

DOING WITHOUT THE HUMIRA? HOW LONG HAVE YOU BEEN OFF IT? HAS ANYONE ELSE HAD A

COMPLETE REMISSION AFTER GOING OFF THE ANTI-TNF DRUGS. LIZ, ARE YOU TAKING

REMICADE AGAIN, YET? IF NOT, HOW ARE YOU DOING?

REGARDS, CONNIE (SORRY ABOUT THE CAPS...I JUST SEE WHAT I'M WRITING BETTER.

GLAUCOMA IN ONE EYE...CATARACT THAT NEEDS TO BE REMOVED IN THE OTHER.)

[Guest guest]

In a message dated 10/1/05 1:05:44 AM GMT Daylight Time, mcqueenm46@...

writes:

HOWEVER - the pustular psoriasis on my

scalp and face is not flaring and is healing - that's like a miracle

and I believe the skin p is also less apparent - that will take some

time to determine - but it is definitely not flaring. I'm so anxious

to se if the joints will respond as well. This is the first quick

result I've been able to report ever.

Hi ,

It's good to hear from you. How are things going now with regard to your

joints? Any improvement yet? I hope so. Let us know if you can.

Take care,

[Guest guest]

<sarahm_76@...> wrote: I was wondering if I could ask for some

advice about Humira from anyone who has tried it, sucessfully and

unsucessfully...I would really appreciate to hear about any experiences of bad

reactions to Humira. Only as a precaution so that if something does go wrong I

will be aware and can get on top of it quickly.

Hey , I'm sorry to hear about your experience with Enbrel, I hope you

find something that helps. I was on Humira for about 6 months. It was a wonder

drug for me until I got drug-induced lupus-like symptoms. The lupus was brutal &

my PA & P flared horribly when I stopped the Humira. (I'm on methotrexate now

and its working beautifully for the PA, not so much for the P)

If you want more details, feel free to e-mail directly. The lupus was

triggered by the sun. My first symptom was a rough, red rash under my eyes and

across the bridge of my nose. A few days after that appeared I felt very sick --

like the flu, but noone else I was around had anything. Then I got arthritis

which was very different than my typical PA.

Apparently the lupus-like symptoms are a rare side effect & my presentation

wasn't typical.

I hope things get better for you soon.

Beth

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