Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 Amy, the practice pen only works once. The hardest thing for me at first was getting used to the loud " pop " when you depress the plunger - it would make me jump every time. The first few times I had a friend do it for me because I was afraid the startle-reflex from the sound would make me not steady-handed. Now I don't even blink. This sounds weird, but now I LOVE to give myself the injection because I know that it is making my life worth living again. good luck, sherry z Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 Many times when using LDN psoriasis gets worst for a while and then clears up later. It just takes a while. Aletha [low dose naltrexone] humira hi all,,I've been on 4.5 for about 2 months for m.s. im slowlygetting better and better, the problem,,,my psoriasis (guttate) isway out of control and i think im being approved for humira.can i take both ? joe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2008 Report Share Posted May 14, 2008 My doctor told me that it may not kick in for six weeks or so. I had surgery in December and went off Humira. I ended up with a horrible flare (my worst yet) and started back on MTX/Humira a month ago. It hasn't kicked in yet, but I'm hoping soon! Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2008 Report Share Posted May 14, 2008 , it took about 2 months for me, but that was at an every other week dose. That was when things started to get better, but they continued to improve for several more months. When we upped the dose to 3 times a month, I got more improvement. When we upped to weekly, still another bump in improvement. I never have had complete relief from P on the soles of my feet, which cause me quite a problem with standing and walking. And never complete joint relief, although it is bearable between flares. But the improvement from where I was 2 years ago is quite remarkable. I hope you have great results! regards, sherry z Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2008 Report Share Posted May 14, 2008 I am waiting for my first dose of Humira. They are delivering it tomorrow. Thank God for their Patient Assistance Programs. There is no way I could afford it with out that. " tweetygodess " <tweetygodess@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2008 Report Share Posted May 15, 2008 Hi , It took 2 months for the improvement to become noticeable when I was on every other week Humira. When it stopped working 6 months later and everything came back with a vengeance my then-rheumy put me on every week injections. That took a month or so to start showing improvement and it helped for a while, but then I went under extreme stress and for all intents and purposes it stopped working altogether (or, if it was working I'd afraid to see what I shape would have been in without it! It was the worst flare I have ever even heard of) so my now-rheumy started me on Remicade in April. Hope this is helpful, and best of luck with the Humira!!! I hope it works for you!!!! :-) Carla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2008 Report Share Posted May 15, 2008 Six weeks? Ok. Well, that means I should be seeing some improvement (I hope!) right about the time that I go back and visit the rheumy and the derm. Thanks for answering, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2008 Report Share Posted July 1, 2008 I want to be a member of the club! I've received 4 Humira shots so far, my psoriasis is almost completely gone. I was 40% covered for the past 13 years. My PA is getting better, slow but sure. I'm still on pain meds, but I had a 4 day stint last week that I felt almost perfect except for a couple twinges here and there. Then our weather changed and it started up again, that and I reeled in a 40lb king salmon on my own. That was a blast but it took a toll on my arms and hands. Kari in Alaska > > > > OK, can I just say I LOVE MY HUMIRA!!! I have had a scalp problem > > for about 2 years. I never knew that it might be related to my joint > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2008 Report Share Posted July 1, 2008 Karl, personally I would be happy to take that pain for landing a 40 pound king salmon!!! So glad to hear you're doing well on Humira. Welcome to the club. " S. Zorzi " <szorzi_1999@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2008 Report Share Posted July 2, 2008 Sounds good to me. It's been a long time snce I've been this happy with a medication that I'm taking. If we start a club, I'll join up. I think I'd have to take the pain to land a fish like that as well. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2008 Report Share Posted August 20, 2008 : Only your rheumy can advise you as to the best course of action, but going off your PA meds may - in the long run - prove to have a more negative effect that the infections have. I don't know what kinds of infections you experienced other than the MRSA (bad enough, all by itself) but I would try and figure out how you were exposed in each case and what you can do to avoid future exposure. (With the MRSA, I would guess that there was something in the dentist's offfice, since MRSA is often spread in hospital settings. Hard to see how else you might have picked it up in your absessed tooth.) Also ask your rheumy if there are things you can do to build your resistance because PA meds only target one portion of your immune system. Do some reading on nutrition and find out what foods have anti-inflammatory properties and add them to your diet. I just heard a speaker on topie that last night. He's written a book called 101 Foods that can Save Your Life. He also discussed foods that can reduce pain and as some of you have pointed out, he highlighted the elimination of nightshade vegetables. Said that his father developed a painful skeletal condition and didn't want to go on drugs - went off nightshades and within 2 weeks his pain was gone. (Not sure how I could live without tomatoes, though - they're almost a staple in our house, especially this time of the year. If they're not in my salads, they're often in whatever I cook.) You are right to be concerned but also correct in researching and making an informed decision since this is a major issue with potential long-term consequences whichever path you choose. Joanna Hoelscher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2008 Report Share Posted September 20, 2008 Hello I have just started on Humira and have only had 3 injections. The first one I had an ulcerated throat, but the 2nd. And 3rd. were symptom free and my knees are not so swollen so I am keeping my fingers crossed that it is going to be of help. Good luck if you decide to take it. Best wishes Joan U.K. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2008 Report Share Posted September 20, 2008 Hello I have just started on Humira and have only had 3 injections. The first one I had an ulcerated throat, but the 2nd. And 3rd. were symptom free and my knees are not so swollen so I am keeping my fingers crossed that it is going to be of help. Good luck if you decide to take it. Best wishes Joan U.K. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2008 Report Share Posted September 20, 2008 Hello I have just started on Humira and have only had 3 injections. The first one I had an ulcerated throat, but the 2nd. And 3rd. were symptom free and my knees are not so swollen so I am keeping my fingers crossed that it is going to be of help. Good luck if you decide to take it. Best wishes Joan U.K. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2008 Report Share Posted September 21, 2008 Stillsdisease writes: Thanks for sharing- I was felling like the lone ranger and that is pretty scary! I just read up on it and it sounds like it may work. Kineret worked for a short time but I am dealing with a pretty bad flare now and had to go up on Pred. I get my Humira in a week. I'll let you know how it works. Thanks >Hello > >I have just started on Humira and have only had 3 injections. The first one >I had an ulcerated throat, but the 2nd. And 3rd. were symptom free and my >knees are not so swollen so I am keeping my fingers crossed that it is going >to be of help. > >Good luck if you decide to take it. > >Best wishes > >Joan U.K. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2008 Report Share Posted September 21, 2008 Stillsdisease writes: Thanks for sharing- I was felling like the lone ranger and that is pretty scary! I just read up on it and it sounds like it may work. Kineret worked for a short time but I am dealing with a pretty bad flare now and had to go up on Pred. I get my Humira in a week. I'll let you know how it works. Thanks >Hello > >I have just started on Humira and have only had 3 injections. The first one >I had an ulcerated throat, but the 2nd. And 3rd. were symptom free and my >knees are not so swollen so I am keeping my fingers crossed that it is going >to be of help. > >Good luck if you decide to take it. > >Best wishes > >Joan U.K. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2008 Report Share Posted October 11, 2008 Oh, Yes. Very normal for me, and I've been on it for 2 years. But it WORKS!!! I was on Enbrel for 1 1/2 years, but it quit working the last 6 months and I was miserable. Felt relief within two weeks with Humira. I hope it works as well for you. Good luck Job in CT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2008 Report Share Posted October 11, 2008 I've been on Humira for a couple of months now. Every now and again I'll get one that burns a little. It doesn't always happen, at least not for me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2008 Report Share Posted October 11, 2008 I'm curious as to how many have had similar experiences with the biologics, i.e. you go on one and it works well but all of a sudden it just doesn't work! Do doctors have an explanation for this? Joanna Hoelscher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2008 Report Share Posted October 11, 2008 The burning when injecting is normal. Every time I do my Humira injection it feels like the longest 10-20 seconds of my life. I must say after 3 months I am getting used to it. Still hurts like hell but the results are worth it. Good luck! Kohler <meganleigh713@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2008 Report Share Posted October 11, 2008 That happened to me until I learned to: 1) take the Humira out of the refrigerator about 40 minutes before doing the injection. 2) ice the site down for 3-4 minutes before injecting. Now I don't get the burning at all. best regards, sherry z Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2008 Report Share Posted October 11, 2008 Sherry is absolutely right. The only thing I would add (and I don't know if it applies to Humira but it certainly does for Enbrel) is to inject it very slowly. I can really feel the burn if I push the plunger too quickly. Joanna Hoelscher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2008 Report Share Posted October 12, 2008 Humira has been a blessing for me. Once I got over the nervousness of having to inject myself. I have a cousin who has RA and she led me through the first injection I did by myself. I think that I had noticeable relief within 2 - 4 weeks of the first injection. I take mine with methotrexate, which my rheumy just lowered from 10 pills total a week to 8. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2008 Report Share Posted October 12, 2008 I didn't have much of a burn with the Enbrel but do have a bad burn with the Humira. I inject slowly and also don't move. I have to stay put for a few minutes because if I move, even with the needle out, I can feel it traveling with a burn. The burn for me is bad and even after years on Humira makes me dread my injections. With Enbrel, I used to get a welt, sometimes a bruise and it would itch. Gilchrist <gilchrist414@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2008 Report Share Posted October 12, 2008 Hi , you are doing well. That is always such a relief. While I have your " ear " , does your Humira burn when it is going in? Libby in NM Quote Link to comment Share on other sites More sharing options...
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