RE: Need help with stiffness of limbs!

[Guest guest]

My neuro put me on that years ago (before I knew any better) and other than make

me feel drugged up all the time it didn't do a lot. OK my legs were less spastic

but I trade that against having a brain. I weaned myself off it. OK my legs are

stiff but I can do yoga exercises that would turn my legs to jelly on Baclofen.

MSM helps me. And my latest, Magnesium Oil - brilliant stuff. Thanks to the

person here who told me about it.

Janet

To: mscured

From: alansamston@...

stiffness in my limbs is getting so bad what I was wondering is if anyone has

tried the medicine Baclofen

_________________________________________________________________

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[Guest guest]

Hi Alan,

You might try reducing your dosage of LDN. For information about LDN side

effects and dosing, visit

http://tinyurl.com/ldn-side-effects

All the best,

Dudley Delany

http://profiles.yahoo.com/dudley_delany

[Guest guest]

Alan.

The best I've found for stiffness is

Vitamin B6, It helps to reduce night muscle spasms, leg cramps, hand numbness

and certain forms of Neuritis in the extremities.

Also Hemp oil capsules help with stiffness.

Remember Baclofen is a muscle relaxant, with out a map. It can weeken any muscle

not just the ones you want. Don't go there.

(England)

However, the stiffness in my limbs is getting so bad what I was wondering is if

anyone has tried the medicine Baclofen that is supposed to reduce stiffness in

MS. I would like to possibly try it and wonder if anyone could share their

experience if they have tried it. I do not want to use it if it will lead to

losing my mobility, but this tightness of the limbs is driving me nuts!

Thanks.

Alan.

[Guest guest]

Supplementing potassium helped me a lot with stiffness/spasticity. I can notice

the difference if I skip it. I just adjusted my dose until I found what worked

for me.

>

> Hi all,

> I know this is an alternative site, and I too am doing alternative and natural

support for my MS condition--NO CRABS. Only LDN, BBD, supplements, etc. ...

However, the stiffness in my limbs is getting so bad what I was wondering is if

anyone has tried the medicine Baclofen that is supposed to reduce stiffness in

MS. I would like to possibly try it and wonder if anyone could share their

experience if they have tried it. I do not want to use it if it will lead to

losing my mobility, but this tightness of the limbs is driving me nuts!

> Thanks.

> Alan.

>

[Guest guest]

Another thought, since mentioned hemp oil capsules, which I didn't even

know exist, is marijuana itself if you live somewhere it is allowed. It

certainly gets rid of stiffness and spasticity.

Janet

To: mscured

From: brosta@...

Date: Wed, 23 Jun 2010 13:46:11 +0100

Subject: Re: Need help with stiffness of limbs!

Also Hemp oil capsules help with stiffness.

_________________________________________________________________

Hotmail: Trusted email with Microsoft’s powerful SPAM protection.

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[Guest guest]

Thank you for the responses so far. There doesn't seem to be much consensus

though. I have tried pot for MS symptoms but it doesn't help me and in fact

makes me feel worse (I guess I am unusual in that regard). I am on 3.0 LDN. I

have tried being on and being off of this med for long periods of each and I

can't tell a difference either way, so it sure is confusing. I am still torn

about the Baclofen....Has anyone else tried it?

Thanks.Alan.

[Guest guest]

Pot makes my mind feel great and it makes me not have to urinate as often but it

makes me too weak to go when I need to. In fact, I fell a few weeks ago because

I was hot, weak and stoned. I thought that I sprained an ankle but it wasn't

healing as quickly as it should. I went to an osteopath yesterday and he

ordered x-rays. My leg is broken just above my ankle. As much as I enjoyed the

cannabis when I smoked it I do not want a repeat performance.

Have you ever tried hyaluronic acid? It is good for joint stiffness, speaking

of joints. Silica is good for that too.

>

> Thank you for the responses so far. There doesn't seem to be much consensus

though. I have tried pot for MS symptoms but it doesn't help me and in fact

makes me feel worse (I guess I am unusual in that regard). I am on 3.0 LDN. I

have tried being on and being off of this med for long periods of each and I

can't tell a difference either way, so it sure is confusing. I am still torn

about the Baclofen....Has anyone else tried it?

>

> Thanks.Alan.

>

[Guest guest]

Hi

Sounds to me you do not know how to take cannabis for medicinal use. Two puffs

(I do not know the American for this) on a spiff is all you need. Not a full

cigarette. I've been taking Cannabis now for 16 years, only had one high and

that was in the first year before I knew how much was required. I can feel my

legs relaxing whilst smoking it. I have also found that by digesting cannabis it

can take up to two hours to get into my system.

(England)

Pot makes my mind feel great and it makes me not have to urinate as often but it

makes me too weak to go when I need to. In fact, I fell a few weeks ago because

I was hot, weak and stoned.

[Guest guest]

I only smoked a small bowl (I didn't have much more in my possesion) but I want

to try a liquid cannabis product that a woman who came into our store told my

dad about. Her husband with MS had been in a wheelchair for five years and is

now walking and has been for two years after using this product. Heard of it?

The days of recreational use are far behind me. I feel a high now after one

hit.

>

> Hi

> Sounds to me you do not know how to take cannabis for medicinal use. Two puffs

(I do not know the American for this) on a spiff is all you need. Not a full

cigarette. I've been taking Cannabis now for 16 years, only had one high and

that was in the first year before I knew how much was required. I can feel my

legs relaxing whilst smoking it. I have also found that by digesting cannabis it

can take up to two hours to get into my system.

> (England)

[Guest guest]

Sorry, I forgot to tell you the name of it. Sativex. It is made in the UK.

>

> I only smoked a small bowl (I didn't have much more in my possesion) but I

want to try a liquid cannabis product that a woman who came into our store told

my dad about. Her husband with MS had been in a wheelchair for five years and

is now walking and has been for two years after using this product. Heard of

it?

>

> The days of recreational use are far behind me. I feel a high now after one

hit.

>

>

[Guest guest]

Here is a website to check out.  I don't know if this is what you are looking

for.  http://www.phoenixtears.ca/make.php

________________________________

To: mscured

Sent: Wed, June 23, 2010 4:42:14 PM

Subject: Re: Need help with stiffness of limbs!

 

I only smoked a small bowl (I didn't have much more in my possesion) but I want

to try a liquid cannabis product that a woman who came into our store told my

dad about. Her husband with MS had been in a wheelchair for five years and is

now walking and has been for two years after using this product. Heard of it?

The days of recreational use are far behind me. I feel a high now after one hit.

>

> Hi

> Sounds to me you do not know how to take cannabis for medicinal use. Two puffs

(I do not know the American for this) on a spiff is all you need. Not a full

cigarette. I've been taking Cannabis now for 16 years, only had one high and

that was in the first year before I knew how much was required. I can feel my

legs relaxing whilst smoking it. I have also found that by digesting cannabis it

can take up to two hours to get into my system.

> (England)

[Guest guest]

Received the magnesium oil in the mail today and put it on all day. It did not

help at all, and I put lots on. Once again it seems to be an indiviudal thing, I

suppose. ..The search continues. I do use a benzo for the stiffness, as someone

mentioned it helps, but lately it does not seem to be helping anymore the way it

used to.

[Guest guest]

Sativex has just been licensed in the UK. I was to be on their trial but

declined after the manufacturers wouldn't tell me exactly what was in it. After

a bit of research I discovered - a few e-numbers (colourants I seem to remember,

tartrazine which I wouldn't touch), a grain alcohol, and the herb itself.

It is much preferrable (to me) to go for the real stuff, you know what is in it

and its strength and if you use it wisely it provides relaxation, help with

pain, incontinence relief, spasms stop, and spasticity disappears. If however

you overdo it, you render yourself, like everyone, legless. As someone who is

like that anyway (staggering with mental confusion), although nice to see those

around you without MS becoming like us, you have to remember we don't need as

much as we have a head start

Janet

To: mscured

From: alpdesigns1@...

Date: Wed, 23 Jun 2010 23:42:14 +0000

Subject: Re: Need help with stiffness of limbs!

I only smoked a small bowl (I didn't have much more in my possesion) but I want

to try a liquid cannabis product that a woman who came into our store told my

dad about. Her husband with MS had been in a wheelchair for five years and is

now walking and has been for two years after using this product. Heard of it?

The days of recreational use are far behind me. I feel a high now after one hit.

>

> Hi

> Sounds to me you do not know how to take cannabis for medicinal use. Two puffs

(I do not know the American for this) on a spiff is all you need. Not a full

cigarette. I've been taking Cannabis now for 16 years, only had one high and

that was in the first year before I knew how much was required. I can feel my

legs relaxing whilst smoking it. I have also found that by digesting cannabis it

can take up to two hours to get into my system.

> (England)

_________________________________________________________________

Hotmail: Powerful Free email with security by Microsoft.

https://signup.live.com/signup.aspx?id=60969

[Guest guest]

Sativex has just been licensed in the UK. I was to be on their trial but

declined after the manufacturers wouldn't tell me exactly what was in it. After

a bit of research I discovered - a few e-numbers (colourants I seem to remember,

tartrazine which I wouldn't touch), a grain alcohol, and the herb itself.

It is much preferrable (to me) to go for the real stuff, you know what is in it

and its strength and if you use it wisely it provides relaxation, help with

pain, incontinence relief, spasms stop, and spasticity disappears. If however

you overdo it, you render yourself, like everyone, legless. As someone who is

like that anyway (staggering with mental confusion), although nice to see those

around you without MS becoming like us, you have to remember we don't need as

much as we have a head start

Janet

To: mscured

From: alpdesigns1@...

Date: Wed, 23 Jun 2010 23:42:14 +0000

Subject: Re: Need help with stiffness of limbs!

I only smoked a small bowl (I didn't have much more in my possesion) but I want

to try a liquid cannabis product that a woman who came into our store told my

dad about. Her husband with MS had been in a wheelchair for five years and is

now walking and has been for two years after using this product. Heard of it?

The days of recreational use are far behind me. I feel a high now after one hit.

>

> Hi

> Sounds to me you do not know how to take cannabis for medicinal use. Two puffs

(I do not know the American for this) on a spiff is all you need. Not a full

cigarette. I've been taking Cannabis now for 16 years, only had one high and

that was in the first year before I knew how much was required. I can feel my

legs relaxing whilst smoking it. I have also found that by digesting cannabis it

can take up to two hours to get into my system.

> (England)

_________________________________________________________________

Hotmail: Powerful Free email with security by Microsoft.

https://signup.live.com/signup.aspx?id=60969

[Guest guest]

Sativex has just been licensed in the UK. I was to be on their trial but

declined after the manufacturers wouldn't tell me exactly what was in it.

After a bit of research I discovered - a few e-numbers (colorants I seem to

remember, tartrazine which I wouldn't touch), a grain alcohol, and the herb

itself.

Hi Janet,

Yes licensed, but I tried this morning to get a prescription and was told

that the Strategic Health Authority had not given the go ahead so it cannot

be used yet. It looks as thought it will be another " post code " lottery

item. I know a lot of people who have been using it on Private prescription

for up to 5 years. One ish pal used Sativex but stopped because he

found the real thing better.

(England)

[Guest guest]

.. Her husband with MS had been in a wheelchair for five years and is now walking

and has been for two years after using this product. Heard of it? I forgot to

tell you the name of it. Sativex.

,

I would take that story with a pinch of salt. If cannabis was that good I would

have been running years ago, not still in this wheelchair.

(England)

[Guest guest]

And I would not have had stress induced symptoms! I'm sure there was more to

the story.

> ,

> I would take that story with a pinch of salt. If cannabis was that good I

would have been running years ago, not still in this wheelchair.

> (England)

>

>

[Guest guest]

Sativex is licensed in Canada. The real thing is more readily available and is

much less expensive, even free if you can grow your own. The spray averages to

be $11/day. Pot is legal in New Mexico if used medicinally and you qualify,

which I do. I have not applied for a membership card but I printed out an

application online today. After my fall I will be more judicious with it in the

future.

>

> Sativex has just been licensed in the UK. I was to be on their trial but

> declined after the manufacturers wouldn't tell me exactly what was in it.

[Guest guest]

A state trooper told me that you have to be careful of the source. They have

discovered methamphetimine laced pot on the street. I looked it up and there

have been other reports of the same claim! Is nothing sacred?!

> It is much preferrable (to me) to go for the real stuff, you know what is in

it and its strength and if you use it wisely it provides relaxation, help with

pain, incontinence relief, spasms stop, and spasticity disappears. If however

you overdo it, you render yourself, like everyone, legless. As someone who is

like that anyway (staggering with mental confusion), although nice to see those

around you without MS becoming like us, you have to remember we don't need as

much as we have a head start

>

> Janet

>

>

>

> To: mscured

> From: alpdesigns1@...

> Date: Wed, 23 Jun 2010 23:42:14 +0000

> Subject: Re: Need help with stiffness of limbs!

>

>

>

>

>

> I only smoked a small bowl (I didn't have much more in my possesion) but I

want to try a liquid cannabis product that a woman who came into our store told

my dad about. Her husband with MS had been in a wheelchair for five years and is

now walking and has been for two years after using this product. Heard of it?

>

> The days of recreational use are far behind me. I feel a high now after one

hit.

>

>

>

>

> >

> > Hi

> > Sounds to me you do not know how to take cannabis for medicinal use. Two

puffs (I do not know the American for this) on a spiff is all you need. Not a

full cigarette. I've been taking Cannabis now for 16 years, only had one high

and that was in the first year before I knew how much was required. I can feel

my legs relaxing whilst smoking it. I have also found that by digesting cannabis

it can take up to two hours to get into my system.

> > (England)

>

>

>

>

>

> _________________________________________________________________

> Hotmail: Powerful Free email with security by Microsoft.

> https://signup.live.com/signup.aspx?id=60969

>

>

[Guest guest]

That is why you should use Grass. Pure as grown.

(England)

[Guest guest]

God put it here on the earth. Move somewhere you can grow your own. Use a

vaporiser or make cake.

, why were you out of your wheelchair?! I never have any unless I am

firmly ensconced in my chair. People might think (in extremes) that they can

fly: we think we can walk. Wrong

Janet

To: mscured

From: alpdesigns1@...

Date: Thu, 24 Jun 2010 15:58:10 +0000

Subject: Re: Need help with stiffness of limbs!

A state trooper told me that you have to be careful of the source. They have

discovered methamphetimine laced pot on the street. I looked it up and there

have been other reports of the same claim! Is nothing sacred?!

_________________________________________________________________

Hotmail: Powerful Free email with security by Microsoft.

https://signup.live.com/signup.aspx?id=60969

[Guest guest]

> I have not applied for a membership card but I printed out an application

online today. After my fall I will be more judicious with it in the future.

>

I think right before bed is best. Then we can't get in too much trouble,

falling and stuff.

Crystal

[Guest guest]

I was in the bathroom and I was hot. My legs just collapsed. I didn't fall far

or hard but my ankle was turned backwards and I landed on it. I usually have

some kind of pain in my feet and I didn't realize that my ankle was worse than I

thought. I'll heal without a cast. The bones have already started to mesh

correctly.

>

>

> God put it here on the earth. Move somewhere you can grow your own. Use a

vaporiser or make cake.

>

> , why were you out of your wheelchair?! I never have any unless I am

firmly ensconced in my chair. People might think (in extremes) that they can

fly: we think we can walk. Wrong

>

> Janet

>

>

>

>

>

>

>

> To: mscured

> From: alpdesigns1@...

> Date: Thu, 24 Jun 2010 15:58:10 +0000

> Subject: Re: Need help with stiffness of limbs!

>

>

>

>

>

>

> A state trooper told me that you have to be careful of the source. They have

discovered methamphetimine laced pot on the street. I looked it up and there

have been other reports of the same claim! Is nothing sacred?!

>

>

>

> _________________________________________________________________

> Hotmail: Powerful Free email with security by Microsoft.

> https://signup.live.com/signup.aspx?id=60969

>

>

[Guest guest]

Good point!

> > I have not applied for a membership card but I printed out an application

online today. After my fall I will be more judicious with it in the future.

> >

>

> I think right before bed is best. Then we can't get in too much trouble,

falling and stuff.

>

> Crystal

>