Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 I have psoriatic arthritis never heard of it Jolene In a message dated 12/30/2009 2:04:03 P.M. Eastern Standard Time, jhoorm01@... writes: Has anyone been on this one? I wonder if it is approved for psoriatic arthritis as well. I got some stuff in the mail about it. ~~~~~~~~~~Joy~~~~~~~~~ ________________________________ From: <_Rheumatoid.ArthritiRheumatoidRheumatoi_ (mailto:Rheumatoid.Arthritis.Support@...) > _ @groRA-SUPP_ (mailto: ) Sent: Wed, December 30, 2009 12:51:54 PM Subject: Re: [ ] A new biologic - Simboni??? Hi, OKD. There have been a few posts previously about Simponi, but mostly under its generic name, golimumab. Simponi is another anti-TNF biologic. It was approved by the FDA 24 Apr 2009 for RA. _http://www.simponi.http_'>http://www.simponi.http_ (http://www.simponi.com/) Simponi is expensive.. I saw one quote of $18,900 per year, but there is patient assistance available. _http://www.centocorhttp://wwwhttp://www.centohttp://www.chttp://www.centoht'>http://www.centocorhttp://wwwhttp://www.centohttp://www.chttp://www.centoht tp://www.cenhttp://www.http://wwhtt_ (http://www.centocoraccessone.com/centocoraccessone/pages/simponi/patientassist/\ patient_assistance_programs.jsp) Not an MD On Wed, Dec 30, 2009 at 8:51 AM, OKD <_Cofade_2000@Cofade_20_ (mailto:Cofade_2000@...) > wrote: > Hi Group: > > I saw a commercial last night for a new RA drug called Simboni? Anyways, its once a month as opposed to once a week (with Enbrel). Does anyone have any info on it? > > I would much rather take it once than 4 times (I am hoping its cheaper too).?? > > OKD ------------------------------------ This is a private list. Should you wish to forward any mail to nonsubscribers, you must first obtain the writer's permission. We are NOT physicians. Information on this list is not to be construed as medical advice, and we cannot guarantee the accuracy and currency of the information provided. For archives or to change subscription options: _http://health.http://healthhttp://heahttp://health._ ( ) ! Groups Links [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 Hello, Joy. So far, Cimzia (certolizumab pegol) is approved for only Crohn's disease and RA (approved May 2009 for RA). Cimzia is yet another TNF inhibitor. http://cimzia.com Not an MD On Wed, Dec 30, 2009 at 1:03 PM, Joy <jhoorm01@...> wrote: > Has anyone been on this one? I wonder if it is approved for psoriatic arthritis as well. > I got some stuff in the mail about it. > ~~~~~~~~~~Joy~~~~~~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 I have tried, arava, prednisone, enbrel, humira and plaquenil. plaquenil i was allergic too enbrel, humira I had to go off of because of repeated sinus and upper respiratory infec. Arava worked for me but my hair kept thinning. So I was thinking of trying to go back on something because the psoriasis is coming back. I have been off the pred and arava for about a year. Was just taking Voltaren for swelling and pain. Any suggestions? ~~~~~~~~~~Joy~~~~~~~~~ ________________________________ From: " Jolenefive@... " <Jolenefive@...> Sent: Wed, December 30, 2009 3:06:59 PM Subject: Re: [ ] Cimzia I have psoriatic arthritis never heard of it Jolene In a message dated 12/30/2009 2:04:03 P.M. Eastern Standard Time, jhoorm01@... writes: Has anyone been on this one? I wonder if it is approved for psoriatic arthritis as well. I got some stuff in the mail about it. ~~~~~~~~~~Joy~~~~~~~~~ ________________________________ From: <_Rheumatoid..ArthritiRheumatoidRheumatoi_ (mailto:Rheumatoid.Arthritis.Support@...) > To: _ @groRA-SUPP_ (mailto: ) Sent: Wed, December 30, 2009 12:51:54 PM Subject: Re: [ ] A new biologic - Simboni??? Hi, OKD. There have been a few posts previously about Simponi, but mostly under its generic name, golimumab. Simponi is another anti-TNF biologic. It was approved by the FDA 24 Apr 2009 for RA. _http://www.simponi.http_'>http://www.simponi.http_ (http://www.simponi.com/) Simponi is expensive.. I saw one quote of $18,900 per year, but there is patient assistance available. _http://www.centocorhttp://wwwhttp://www.centohttp://www.chttp://www.centoht'>http://www.centocorhttp://wwwhttp://www.centohttp://www.chttp://www.centoht tp://www.cenhttp://www.http://wwhtt_ (http://www.centocoraccessone.com/centocoraccessone/pages/simponi/patientassist/\ patient_assistance_programs.jsp) Not an MD On Wed, Dec 30, 2009 at 8:51 AM, OKD <_Cofade_2000@Cofade_20_ (mailto:Cofade_2000@...) > wrote: > Hi Group: > > I saw a commercial last night for a new RA drug called Simboni? Anyways, its once a month as opposed to once a week (with Enbrel). Does anyone have any info on it? > > I would much rather take it once than 4 times (I am hoping its cheaper too).?? > > OKD ------------------------------------ This is a private list. Should you wish to forward any mail to nonsubscribers, you must first obtain the writer's permission. We are NOT physicians. Information on this list is not to be construed as medical advice, and we cannot guarantee the accuracy and currency of the information provided. For archives or to change subscription options: _http://health.http://healthhttp://heahttp://health._ ( ) ! Groups Links [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 Hi people I thought I would post about this new drug Cimzia, I have been on it for afew months now and I think its starting to help me alot before my hands and feet were swollen and in bad pain, it took awhile but I think its working for me the only concern I have I seem to get a rash on my face soon after the injection but not real bad my next dose is Saturday if I get it again I will call my Dr and let them no. Has anybody else had this experience with cimzia. Is your Dr thinking about starting you on this?.. Thanks Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2010 Report Share Posted January 3, 2010 I took MTX for awhile and it made me queasy so they switched me the injections which I did better on but didn't seem to find a lot of relief while on it. I did take prednisone for awhile too and found myself packing on the pounds so finally weaned off that. I do need to make an appt with my rheumie. I have not seen her now in about a year. I had to have a hysterectomy and went off all meds for awhile, just thought I would try taking a break from all the meds for awhile but I guess I need to get back on track again. Joy ~~~~~~~~~~Joy~~~~~~~~~ ________________________________ From: Barbara Creedon <bcreedon@...> Sent: Wed, December 30, 2009 5:17:09 PM Subject: Re: [ ] Cimzia Hi Joy: Have you ever been on Methatrexate? Could you take Prednisone? It is awful to have those allergies to the meds. you were on. When I got diagnosed 6 years ago, I started right off with Pred. and MTX. I was on high doses of Pred., plus, getting the shots from my Rheumy. I started with the .6 of MTX with the needles, as the pills made me deathly sick, 24/7. I have taken as much as 60 mg. a day of Pred. as she was trying to get me under control. It took awhile for these 2 meds. to start to work on me. I am not familiar with a lot of RA drugs, just what I take, and what I read here that our members take. I know you must be hurting, as well as frustrated that you can't take a lot of the drugs successfully. I hope your Rheumy can try some things for you so you can begin to feel better. Everyone here takes what works for them. As you know, what works for one, might not work for someone else. We search and search for that " magic cocktail " of meds. that works for us. Please rest when you can, and I hope you see your Rheumy soon. You don't want to get so bad that it takes a long time to get under some control. I wish you good luck and hope you feel better soon. hugs, Barbara > Hi Group: > > I saw a commercial last night for a new RA drug called Simboni? Anyways, its once a month as opposed to once a week (with Enbrel). Does anyone have any info on it? > > I would much rather take it once than 4 times (I am hoping its cheaper too).?? > > OKD ------------ --------- --------- ------ This is a private list. Should you wish to forward any mail to nonsubscribers, you must first obtain the writer's permission. We are NOT physicians. Information on this list is not to be construed as medical advice, and we cannot guarantee the accuracy and currency of the information provided. For archives or to change subscription options: _http://health. http://healthhtt p://heahttp: //health. _ (http://health. groups.. com/group/ ) ! Groups Links [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2010 Report Share Posted September 8, 2010 ME! I have been on Cimzia since late May with excellent results and minimal side effects, the only one being watery eyes. Feel free to ask me any questions! It has been a lifesaver for me! Kami [ ] CIMZIA Hello All, Is there anyone on Cimzia? I went to the Rheumatologist today and he opted for Cymzia instead of the Enbrel. According to him my inflammation markers are higher and the Cimzia is stronger than the Enbrel. I have Lupus and RA and I think these RA drugs are a catch 22 with my Lupus. Let me know how you are doing with Cimzia and how long have you taken it. Thanks Vivian Cone I would rather live my life as if there is a God, And die to find out there isn't, than live my life As if there isn't, and die to find out there is. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2010 Report Share Posted September 8, 2010 Kami, Thanks. I just took the first dose yesterday. Last night I got a numb and tingling tongue (better today). I am having some neck stiffness and pain - sort of like when you are about to get a cold but I must say the pain in my right hip is better. I am going to give this a try although the side effects listed are pretty scary but I need to start feeling better for my little boys. Thanks again Kami God Bless - Vivian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2010 Report Share Posted September 9, 2010 Vivian, Come to think of it.... I had the same reaction during the loading phase. Once I went down to 200mg every 2 weeks, it stopped. I must say I did feel better on 400mg every 2 weeks, though! Before RA, I used to let listed side effects scare me from taking medications. I thought Tylenol was evil at one point! Now I view things soooooo differently. Sometimes the benefits outweigh the risks! Keep in touch, Kami RE: [ ] CIMZIA Kami, Thanks. I just took the first dose yesterday. Last night I got a numb and tingling tongue (better today). I am having some neck stiffness and pain - sort of like when you are about to get a cold but I must say the pain in my right hip is better. I am going to give this a try although the side effects listed are pretty scary but I need to start feeling better for my little boys. Thanks again Kami God Bless - Vivian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2010 Report Share Posted September 10, 2010 Hi Kami,  My Rheumy wants me to switch over to Cimzia.  Currently I am on Enbrel 25mg/weekly injection with some result.   Q: were you on any medication before Cimzia?   Thank you. Mike  Quote Link to comment Share on other sites More sharing options...
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