Hello, I'm new

[Guest guest]

Hi Casey and welcome!!! I'm mom to Rudy (ds) & 14 and TJ 17.

Yes, I am the old lady on the block!! lol My son Rudy is a freshman in high

school. He is in a living skills class which focus' more on self help skills

than on academic. My Rudman is very outgoing and as cute as a button. As I

mentioned in another email, he is the Dancing Santa in their class Christmas

program. Such a ham!! lol

I look forward to hearing more about your kids.

[Guest guest]

Welcome Casey,

My name is and I have 2 1/2 year old boy/girl twins. (DS) & Sloan.

I know you will find ALOT of support and information from this great list of

Moms, because I know I sure have! I thought I was lost in the world before I

found this great group of people.

I look forward to getting to know you and your family.

~, moma to Vinnie (DS) & Sloan {31 months}

[Guest guest]

Hi Casey! Welcome to the List! I'm Judi, Mom to Sam

and . They are identical twins and will be

four on the 29th of this month. S & P were 26 weeker

preemies who spent 16 & 18 weeks in NICU. No major

health problems since then. They just had their

second set of ear tubes put in two weeks ago.

They are in school and just love it! Do you have

in Early Intervention?

Thanks for sharing your pictures of and

with us. They are just adorable!

Geez, as far as number of families, I know there's

over 50 members but not all participate. There's a

pretty good " core " group of about 10 or so who

participate pretty regularly. The others jump in and

out of conversations and topics that interest them.

Glad you found us and can't wait to hear more about

your family!

Judi-Mom to Sam and , almost 4! Identical Twins

__________________________________________________

[Guest guest]

Hi Casey, and welcome aboard! I'm Gail, from New Jersey, and Mom to

Bobby, 6 3/4, Jillian 4, and my twins and Tara{DS} who are going on

21 months! I've been on this list well over a year, and love it, love

it! Great info and support here. And esp we all share something very

special, and unique. My twins are doing well, Tara is on the verge of

walking, although this " verge " will last a while. Her greatest strength

is PT, then OT and speech are coming along the same. Tara is ib a school

just for children with Ds, and doing well, she is also self feeding with

a spoon from her bowl. I think it's a huge plus that she's watching

do the same thing across from her all day long! OK thats it for now...

Gail

>

> Hello all,

>

> I am new to this group. My name is Casey and I have 13 month old twins.

> has DS, does not. I am eager to get to know other families

> who are/will be dealing with some of the same issues, joys and challenges.

> This first year I have found DS to be mostly just a label, in that there

> haven't been many differences between the kids, except in when they reach

> certain developmental milestones. I imagine though, that as they get older,

> there will be more questions, uncertainties of ways to handle situations etc,

> that will be much easier if there are people to talk to who have been through

> similar things. I hope to write more later, and get to know each of you

> better. Do you know roughly how many families participate in this list? I

> really like the way you sign your messages, with your childrens names and

> ages. It will make it much easier to keep everybody straight in this

> " getting to know people " stage.

>

> I LOVED the pictures of Ashton, Landon , Sam and . I will attach a

> picture of each of my kids too, and hope to hear from people soon.

>

> Casey, mom to (DS) and 13 mo.

>

>

> http://DSyndrome.com/Multiples

[Guest guest]

Whoops, I knew the minute I hit the " send " button, I

mentioned the wrong child! I mean is

enrolled in Early Intervention.

Sorry about the mix up!!! Twin Mommy brain drain!

Judi

--- Judi Grossman <judig2@...> wrote:

> Hi Casey! Welcome to the List! I'm Judi, Mom to Sam

> and . They are identical twins and will be

> four on the 29th of this month. S & P were 26 weeker

> preemies who spent 16 & 18 weeks in NICU. No major

> health problems since then. They just had their

> second set of ear tubes put in two weeks ago.

> They are in school and just love it! Do you have

> in Early Intervention?

> Thanks for sharing your pictures of and

> with us. They are just adorable!

> Geez, as far as number of families, I know there's

> over 50 members but not all participate. There's a

> pretty good " core " group of about 10 or so who

> participate pretty regularly. The others jump in

> and

> out of conversations and topics that interest them.

> Glad you found us and can't wait to hear more about

> your family!

> Judi-Mom to Sam and , almost 4! Identical

> Twins

>

>

> __________________________________________________

>

[Guest guest]

Welcome Casey, my name is Janice and I believe I am the only Grandma so far

that belongs to this group. My daughter also belongs but with 5 kids,

7, 6, 4 and the boys and (ds) 17 months,

she is extremely busy with school, ot, pt, etc. so she does not get on much.

You will find this group to be very informative, the best support anyone

could ask for and just plain old great! I do not get on much myself but I

monitor everything and chime in now in then. My daughter and family live in

Great Falls Montana and I live in Santa Clarita California. My son-in-law

is in the Air Force so they travel where his career takes him. I sure miss

them though and have been to Montana 6 times this year since they moved

there middle of January. I will also be there for Christmas, as the kids

say " only 14 sleeps and you will be here " . I am an active part of their

lives even though I am here and they are there. To all who have

included pictures, WE sure do have some beautiful kids and I really enjoy

seeing who we are chatting about. Thanks and Happy Holidays to all.

hello, I'm new

>Hello all,

>

>I am new to this group. My name is Casey and I have 13 month old twins.

> has DS, does not. I am eager to get to know other

families

>who are/will be dealing with some of the same issues, joys and challenges.

>This first year I have found DS to be mostly just a label, in that there

>haven't been many differences between the kids, except in when they reach

>certain developmental milestones. I imagine though, that as they get

older,

>there will be more questions, uncertainties of ways to handle situations

etc,

>that will be much easier if there are people to talk to who have been

through

>similar things. I hope to write more later, and get to know each of you

>better. Do you know roughly how many families participate in this list?

I

>really like the way you sign your messages, with your childrens names and

>ages. It will make it much easier to keep everybody straight in this

> " getting to know people " stage.

>

>I LOVED the pictures of Ashton, Landon , Sam and . I will attach a

>picture of each of my kids too, and hope to hear from people soon.

>

>Casey, mom to (DS) and 13 mo.

>

>

>http://DSyndrome.com/Multiples

>

[Guest guest]

> Do you know roughly how many families participate in this list?

Welcome Casey! Your kids are sooooo cute! Tzvi already showed me them

earlier, so I cheated! )

64 members on the list!

Sara (Mom to no one yet! (

[Guest guest]

Hi ,

I'll sure say some prayers that this surgery does what it is suppose to and

that you don't have to go through it again. I'm also thinking of

and hope he feels better very soon and you treat yourself to something

special for all you've been through.

Marcia

Mom to Sara (DS) and 6 and Lucas 10

[Guest guest]

Hello Casey,

I am ...from Georgia. I am wife to Rusty of 7yrs and mom to

7yrs(DS) and Dayton 31months(DS).

is in 5K in school and LOVES every min of it. She is my reader and

loves to chat on the phone. She is healthy other than asthma.

Dayton is my little man. He loves to be with me at all times :) He has a

g-tube placement and some feeding issues.

I am here as much as possible but hard some weeks... Welcome to our

family.

mom to and Dayton

hello, I'm new

> Hello all,

>

> I am new to this group. My name is Casey and I have 13 month old twins.

> has DS, does not. I am eager to get to know other

families

> who are/will be dealing with some of the same issues, joys and challenges.

> This first year I have found DS to be mostly just a label, in that there

> haven't been many differences between the kids, except in when they reach

> certain developmental milestones. I imagine though, that as they get

older,

> there will be more questions, uncertainties of ways to handle situations

etc,

> that will be much easier if there are people to talk to who have been

through

> similar things. I hope to write more later, and get to know each of you

> better. Do you know roughly how many families participate in this list?

I

> really like the way you sign your messages, with your childrens names and

> ages. It will make it much easier to keep everybody straight in this

> " getting to know people " stage.

>

> I LOVED the pictures of Ashton, Landon , Sam and . I will attach a

> picture of each of my kids too, and hope to hear from people soon.

>

> Casey, mom to (DS) and 13 mo.

>

>

> http://DSyndrome.com/Multiples

>

>

[Guest guest]

I couldn't view the pics. I'm not sure what I am doing

wrong. mom to Landon (Ds) and Ashton 30

months

- stephaniesmom200@... wrote:

> Hello all,

>

> I am new to this group. My name is Casey and I have

> 13 month old twins.

> has DS, does not. I am eager to

> get to know other families

> who are/will be dealing with some of the same

> issues, joys and challenges.

> This first year I have found DS to be mostly just a

> label, in that there

> haven't been many differences between the kids,

> except in when they reach

> certain developmental milestones. I imagine though,

> that as they get older,

> there will be more questions, uncertainties of ways

> to handle situations etc,

> that will be much easier if there are people to talk

> to who have been through

> similar things. I hope to write more later, and get

> to know each of you

> better. Do you know roughly how many families

> participate in this list? I

> really like the way you sign your messages, with

> your childrens names and

> ages. It will make it much easier to keep everybody

> straight in this

> " getting to know people " stage.

>

> I LOVED the pictures of Ashton, Landon , Sam and

> . I will attach a

> picture of each of my kids too, and hope to hear

> from people soon.

>

> Casey, mom to (DS) and 13 mo.

>

__________________________________________________

[Guest guest]

Hi Casey, Welcome to the list. I'm , mom to

Landon (Ds) and Ashton. They are 30 months. We are

from South Carolina. This is a great support group to

belong to.

--- Rusty Medrano <rmedrano@...> wrote:

> Hello Casey,

> I am ...from Georgia. I am wife to Rusty of

> 7yrs and mom to

> 7yrs(DS) and Dayton 31months(DS).

>

> is in 5K in school and LOVES every min of

> it. She is my reader and

> loves to chat on the phone. She is healthy other

> than asthma.

> Dayton is my little man. He loves to be with me at

> all times :) He has a

> g-tube placement and some feeding issues.

> I am here as much as possible but hard some weeks...

> Welcome to our

> family.

>

> mom to and Dayton

>

>

> hello, I'm new

>

>

> > Hello all,

> >

> > I am new to this group. My name is Casey and I

> have 13 month old twins.

> > has DS, does not. I am eager to

> get to know other

> families

> > who are/will be dealing with some of the same

> issues, joys and challenges.

> > This first year I have found DS to be mostly just

> a label, in that there

> > haven't been many differences between the kids,

> except in when they reach

> > certain developmental milestones. I imagine

> though, that as they get

> older,

> > there will be more questions, uncertainties of

> ways to handle situations

> etc,

> > that will be much easier if there are people to

> talk to who have been

> through

> > similar things. I hope to write more later, and

> get to know each of you

> > better. Do you know roughly how many families

> participate in this list?

> I

> > really like the way you sign your messages, with

> your childrens names and

> > ages. It will make it much easier to keep

> everybody straight in this

> > " getting to know people " stage.

> >

> > I LOVED the pictures of Ashton, Landon , Sam and

> . I will attach a

> > picture of each of my kids too, and hope to hear

> from people soon.

> >

> > Casey, mom to (DS) and 13 mo.

> >

> >

> > http://DSyndrome.com/Multiples

> >

> >

>

>

__________________________________________________

[Guest guest]

Hellohellohello!

Hi Casey! My name is and my twins are only a month younger than

yours! They just had their first birthday last Saturday. I have two boys,

has down syndrome (and cleft lip and palate) and doesn't have

any medical issues. I read all the messages, but don't post nearly as often

as I'd like to. So glad you found this club/list! It's TERRIFIC! There are

lots of great people here with excellent advice and wonderful support.

All of those pictures WERE awesome! I'm sorry, but COULD Ashton, Landon, Sam

and BE any cuter? Don't think so! They were all so adorable! I'm way

behind on reading my email, but when I saw that there were pictures, I had

to open those right away! I actually cried too! They are all getting so BIG!

I can't believe time has flown by like it has!

That goes for everyone elses pictures too! Like I said I don't post as often

as I'd like, but I ALWAYS check out the pictures. Everyone's munchkins are

getting so big so fast...keep the pics coming!

Just a quick update on ...he had his cleft palate repair surgery

done on Tuesday AM and we were 'sprung' from the hospital Wednesday

afternoon (couldn't stand it there any longer!). Apparently his palate was

so widely separated that the plastic surgeon had to take lots of tissue from

elsewhere on his palate to help cover things and it was very tight. The

doctor likened it to someone wearing a shirt with buttons on it that's too

small for them. Like the buttons were barely holding it together and there

were spaces between. He hopes that tissue will grow to cover the spaces, and

we won't know for about 6 weeks if it does, but he's not very optimistic. If

it doesn't close all the way, we're kinda back to square 1 with feeding and

speech issues and will have to redo the surgery again next year. I was very

much hoping that this would be the end and we could move forward with the

feeding and speech problems, so I'm absolutely bummed out that this doesn't

look like it's going to work out. I guess we just have to wait and see and

deal with whatever happens.

The boys enjoyed their birthday and got LOTS of presents. Hopefully,

will feel better enough to celebrate Christmas like we usually do.

He's a hurting unit right now and feedings are very slow like I remember

they were after he was born. We can't use his bottle anymore, so I'm using

syringes and we'll be graduating to a regular cup in a couple of weeks.

Messy messy messy...

Well,

have a good night.

http://sites.netscape.net/cabevizzo/homepage

______________________________________________

FREE Personalized Email at Mail.com

Sign up at http://www.mail.com/?sr=signup

[Guest guest]

Hi - Thanks for the update on Nicolas. I went to your

website....They are sooooooooooooooooo cute!! I love the pic where they are

hugging and looking up!! I'll keep ya'll in my prayers that the surgery

took. Can Nicolas drink from a straw? Just wondered if he could do that

when he heals more. Give him a big hug for me.

mom to Rudy (ds) & 14 & TJ 17

[Guest guest]

Pictures?

Where?

I wanna see....

mom to 7yr(DS) and Dayton 2yr(DS)

hello, I'm new

> Hello all,

>

> I am new to this group. My name is Casey and I have 13 month old twins.

> has DS, does not. I am eager to get to know other

families

> who are/will be dealing with some of the same issues, joys and challenges.

> This first year I have found DS to be mostly just a label, in that there

> haven't been many differences between the kids, except in when they reach

> certain developmental milestones. I imagine though, that as they get

older,

> there will be more questions, uncertainties of ways to handle situations

etc,

> that will be much easier if there are people to talk to who have been

through

> similar things. I hope to write more later, and get to know each of you

> better. Do you know roughly how many families participate in this list?

I

> really like the way you sign your messages, with your childrens names and

> ages. It will make it much easier to keep everybody straight in this

> " getting to know people " stage.

>

> I LOVED the pictures of Ashton, Landon , Sam and . I will attach a

> picture of each of my kids too, and hope to hear from people soon.

>

> Casey, mom to (DS) and 13 mo.

>

>

> http://DSyndrome.com/Multiples

>

>

[Guest guest]

At 09:08 AM 04/25/2001 -0700, you wrote:

>Hello to everyone,

>

>My name is and I am the mother of two children a

>4yrs. dd and 20mo. ds. My daughter is completely

>vaccinated for her age, my son is vaccinated up too a

>year. I question with my daughter but pediatrician

>talked me into it. The only one she had a reaction too

>was the varicella, which the ped. insisted she just

>had a bad virus and it was a coincidence that it

>happened within hours of the shot. But a friend of

>mine had the same thing happen after the vaccination

>and her dd now has problems, that her mother

>attributes too the vax. I'm still questioning what I

>want too do about my son stop all vaccinations,

>selective vaccinate? I'm not sure. I'm searching for

>information and hope this will help me make an

>informed decision.

>

>Thanks,

>

Start with my webiste

http://www.nccn.net/~wwithin/vaccine.htm

And do NOT ever allow your doctor to talk you into anything. You will deal

with the consequences, not him/her.

Its always a coincidence with them. If your child had gotten an antibiotic

and had a reaction within a few hours they would have no difficuly figuring

out it was the antibiotic. They absolutely are blind or lie when it comes

to vaccines. There is no other way to put this. Read about every disease

and the risk of death from that disease and ready about every vaccine and

the risk of injury or death from those vaccines. You have to look at each

and everyone. After 15 years of looking at this, I KNOW that all vaccines

are dangerous and you never know which one will do you in.

>

Sheri

moderator

--------------------------------------------------------

Sheri Nakken, R.N., MA

moderator

Vaccination Information & Choice Network, Nevada City CA & UK

530-478-1242 Voicemail in US

http://www.nccn.net/~wwithin/vaccine.htm

" All that is necessary for the triumph of evil is that good men ( &

women) do nothing " ...Edmund Burke

ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS MEDICAL OR LEGAL ADVICE. THE

DECISION TO VACCINATE IS YOURS AND YOURS ALONE.

Well Within's Earth Mysteries & Sacred Site Tours

http://www.nccn.net/~wwithin

International Tours, Homestudy Courses, ANTHRAX & OTHER Vaccine Dangers

Education, Homeopathic Education

CEU's for nurses, Books & Multi-Pure Water Filters

[Guest guest]

hello kate

i just wanted to welcome you to the list!

kd

member for about 3 weeks now

-- In bowel cleanse@y..., " lezoise " <k8ster@r...> wrote:

> I've been reading posts for about a week. What colon and liver

> cleanse programs do you recommend? Thanks, Kate

[Guest guest]

From my point of view the best liver and cleanse program that anyone can do is

to start eating lots of the right food along with lots of quality water,

supplementing it all with lecithin and other essential fatty acids of which are

also going to be in the vegetables and fruit eaten but not at a level that will

work with flushing the liver and gallbladder. The flushing is accomplished

because of the production and movement of bile out of the body.

Bile is perhaps the single most important thing produced by the liver among all

the other things it does in cleaning the blood and breaking down toxins to be

removed in the bile. The trick here is to produce the best quality bile possible

to get the loads of toxins out of the body as quickly as possible.

Avoiding particular foods such as sugar, hydrogenated oils, and saturated animal

fat will also help in getting the liver cleaned. Avoiding sugar, as in the case

of refined sugar and sugar substitutes, in particular aspartame, will most

certainly help. Sugar is addictive, so it is perhaps the hardest part of a

changing one's eating habit.

Supplementing with more essential fatty acids will help the liver to make the

HDL cholesterol that will help in the cleansing process of getting the liver and

gallbladder to function at an optimal level. The essential fatty acids of which

are provided in fruits, vegetables, along with supplements, help the liver

produce the High Density Lipoproteins that will help in the scouring from the

body the Low Density Lipoproteins, and especially while loosing weight from

eating better food, more often.

Other than the fore mentioned things to do there are various other things one

can do to hasten the cleansing and detoxifying. Such things as enemas will work

to clear the colon and stimulate the production of bile, which is the main

transport medium for the toxins being removed from the body. Using programs that

contain high fiber supplements and binders will also work to help in clearing

the intestines and colon. They often contain psyllium and bentonite clay which

adds soluble bulk to the diet. However, the vegetables and fruits will already

be providing soluble and insoluble fiber to help in the transport of bile out of

the body, this just gives more transport medium for more bile to be removed.

The liver is in a constant motion of produce and remove, and what we try to do

here is to get it so that the production has more quality bile. You can look at

this as like having a glass filled with a blue dye and then try rinsing it out

with just a flow of clean water, with it holding the water and the dye, and not

being tipped out. It takes a lot of water to get the glass to be just clear

clean water and especially if a little dye is still being introduced into the

glass while being rinsed. This is very much like what is happening on a daily

basis with the human body. Toxins are constantly being made by the body and

having it introduced into it from various other sources. So, the water must keep

flowing, metaphorically speaking, as well as factually.

The essential fatty acid, lecithin, is perhaps one of the most important of the

grouping in that it works to help keep bile able to hold more LDL cholesterol

fat in an emulsified state to get it flushed out of the body. This is an

important process it is much the same as the use of a quality dish detergent is

in getting pots, pans and dishes clean. If a poor quality detergent is used or

the load of fat is too high for the detergent used fat will precipitate on the

sides of the sink. This is what happens in the body to make cholesterol stones.

If there is any particular publication to which I would point you to consider

reading it would be " The Liver Cleansing Diet " by Dr. Cabot

http://www.liverdoctor.com/. You will learn quite a bit from the information she

provides along with some very helpful food preparations to help you get an idea

of how you can eat and still be quite satisfied that you're not starving

yourself to loose weight and clean out the liver.

Welcome to the group

Dale

[Guest guest]

In a message dated 2/18/02 1:05:17 AM Eastern Standard Time, k8ster@...

writes:

> I've been reading posts for about a week. What colon and liver

> cleanse programs do you recommend? Thanks, Kate

>

Hi Kate

I just wanted to say " welcome " . Dale gave you some EXCELLENT advice (he's

good at that) in his post. Beyond that it's really an individual thing as

far as if you want to use a supplement of some type to aid in the cleansing

(in addition to the dietary cleansing). There are SO many products on the

market and there's no way for one person to say what will work well for

another. Each body is different.

For me, personally, I've used Schulze's Intestinal Formulas for bowel

cleansing and have used different variations of the gallbladder/liver

cleanse. Right now I'm on a parasite cleanse while trying to focus on

creating cleansing dietary habits. I'm intrigued to actually be

experiencing somewhat of a " craving " for salad today! That's a big switch

for me and I'm going to enjoy it while it lasts (hoping it will last a long

time!).

What brought you to the cleansing world and what goals do you have in mind?

glad you found us -

in health,

[Guest guest]

Hi. I just wanted to say welcome. I do not have a CI, however my mother,

Alice, has bilateral CI's and she's also the person who runs this list. I wish

you all the best with your decisions. I know these will be tough ones for

you, but in the end I am sure you'll be happy with the outcome.

[Guest guest]

Dear Anlowe74,

Welcome to the group!

Does not sound like you will be learning much at that class. So WHAT are they

teahcing you?

I will be here with the TEXPERTS and resident Pharmacist to help you with your

questions .... so just ask away!

Jeanetta Mastron CPhT BS Chem

Pharm Tech Educator

F/O

anlowe74 <lprnjerry@...> wrote:

Hi all,

I'm so glad I found this group. I'm going to take an exam in

November. Today in the morning I sent my application. I'm from

Chicago, IL. I take the PhT course at local community college and I

will finish it in October. But this course has only 52 hours, no lab

course, no experiental training. It's not good anyway. I'm doing

lots on my own because I like what I learn. I would like to find

people with similar interests and concerns possibly from Chicago.

Also, I'm going to search for a job asa I get my license.

I have so many questions to ask! I read your files and messages and

I found lots of useful info. Thank you! This group is very helpful!

Anastasia

[Guest guest]

Well I was diagnosed when I was 11 (60 % curve) and I had my first surgery at

12. A few days after the first surgery the bone broke and the rod came loose so

I had to wear a corset for a year and then they removed half of the rods. Later

when I was 16 by body rejected the rods all together and I had to have all of

them removed. I did really well for a long time up until about 3 years ago. I'm

now 26 years old and I have to have the surgery done all over again. Not only

has my spine curved (65% and increasing) worse then what it was to begin with, I

have 2 discs at the bottom of my back that are pretty much gone. I'm in constant

pain all the time.....My next surgery date is coming up on June 21st. They have

to put all the rods back in me and fuse me all the way down. It will be total of

3 surgeries. The first surgery they will open me up from the back and take apart

the portion that is fused and get it ready for the next surgery. On July 1st I

they will open me up from the front to

get me realigned better and then turn me over and open up the back again and

fuse all of it and put the rods back in place and fix the discs.......

So if you want my opinion wait as long as you can. It is rarely just a surgery

and then you’re all better. So many things can happen after surgery you just

never know. It is a lot for anyone to go through. I wish my parents would have

waited to have my done but there is nothing that I can do about it now. I will

say that things have improved since I've had my previous surgeries so I really

hope this is the LAST surgery I have to ever have. I thought after the 3 surgery

I was all done and I was devastated when I was told that I to do this all over

again and do even more then before.

Please don't get the wrong impression....I don't want to scare you but read

other peoples stories because everyone’s is different..

Good luck to you whatever you decide to do.

LaDonna <hallofgold@...> wrote:

hi all. i was wondering if some of you could tell me your story of having

scoliosis. i just found out today that i have it. have been looking on the net

to find more about it. do surgeries help? thanks!!!

najera # 21

[Guest guest]

Hi Lorilyn...

While I agree in principle to what you've said, I have to disagree

with the statement below. The vast majority of scoliosis surgery

patients have good outcomes. I have links to abstracts from outcomes

studies here:

http://www.scoliosislinks.com/Outcomes.htm

Regards,

:-)

>

It is rarely just a surgery and then you're all better.

[Guest guest]

Hi ,

I think thats awesome that your left eye is green and your right eye is brown, my left eye is blue and my right eye is brown. I have only met one person other then myself face to face with heterochromia but i havent kept in close contact with them because they moved out of the state.

Hope too hear from you,

Caitdavid4516 <4516@...> wrote:

Hi,My left eye is green and my right is brown. For years I thought I wasthe only one on the planet with eyes like this. After doing someresearch, I found that I was not alone. I've never meet anyone elsewith Heterochromia face to face, but now I can at least chat with youguys online :)Anyway, I should probably tell you a little about myself. I'm acollege student, I live in Oregon, and I'm 23. Not sure what else Ishould add, it's really late here (4:30 AM) and I'm kinda sleepy, soI'm not thinking too clearly at the moment...-

Stay connected, organized, and protected. Take the tour

[Guest guest]

Welcome to our group Greta!! I'm glad you found us! Sounds like Adam

is getting ready to start his journey to a much rounder head! I hope

that everything goes smooth for you. You should check out our " files "

section " tips on helping a baby adjust to 1st helmet " if you need the

extra help. I think you'll find this group to be very helpful during

the next months of Adam wearing his helmet!

I'm glad the PT has helped him! What facility are you getting his

helmet through? It might help if you post where you are located,

someone might live near you that can share their experience if using

the same provider.

My son is currently in a DOCband and I too didn't like the fact at

first of thinking about seeing him with a band on. But I looked at

the photos of all these cute babies smiling in their band/helmets and

knew that it couldn't be all that bad. Now I think it's weird to see

him without it on during his hour off. lol!!!

Good luck and keep us posted!

Lacy

Waydon's mom

8months

DOCband 1.5weeks

> Hello. I'm new to this group thanks to reading all the comments on

> plagio.org. I guess People magazine may have done one good thing,

> brining more parents w/plagio children together. My son Adam is

> turning 1yr old in a week. Unfortunately we are getting a late start

> on treatment but are very hopeful. Initially we were sent for

> physical therapy because he was not sitting up yet at 9mo. It was

> his P.T. who suggested we consult about a helmet. Of course my first

> thought was No, I'm not putting my son through that, but then I got

> right on the internet and learned more about positional plagio. In a

> short time it was YES. It feels like we've been through a lot, but

> we keep in mind Adam doesn't need surgery so we are grateful. Adam

> was diagnosed w/severe plagiocephaly, severe torticolis, he has

> delayed gross motor and fine motor skills. I was shocked to hear

> the shape of his head was the major factor in all of this. We did

> get sent for genetic consultation to rule out the genetic factor &

> we got the all clear there. Physical therapy alone has already done

> wonders for Adam. He will get his helmet 7/12 & everyone is hopeful.

> At first it was hard for me to imagine not seeing my beautiful boy

> w/o a helmet. He has such cute fly away hair but as I look at other

> kids in their helmets, they are so darn cute too & the helmets don't

> look at all like I had imagined. I'm so glad they no longer have

> the straps. I actually can't wait to see how cute Adam will be

> w/his helmet on, a smile on his face, and his blue eyes sparkling!

> His helmet will be light blue to compliment his eyes! I can't tell

> you what a comfort it has already been to read the comments on the

> plagio website and how much more I have learned. Thank you all for

> sharing and you'll never know how much it means to us parents who

> are just getting into this. I hope Adam adjusts easily because it is

> so hard not to do exactly what he wants. I would love to hear from

> anyone, but if there is someone who started their child as late as

> we are I'd love to hear your results and story. - Greta

[Guest guest]

Welcome to our group Greta!! I'm glad you found us! Sounds like Adam

is getting ready to start his journey to a much rounder head! I hope

that everything goes smooth for you. You should check out our " files "

section " tips on helping a baby adjust to 1st helmet " if you need the

extra help. I think you'll find this group to be very helpful during

the next months of Adam wearing his helmet!

I'm glad the PT has helped him! What facility are you getting his

helmet through? It might help if you post where you are located,

someone might live near you that can share their experience if using

the same provider.

My son is currently in a DOCband and I too didn't like the fact at

first of thinking about seeing him with a band on. But I looked at

the photos of all these cute babies smiling in their band/helmets and

knew that it couldn't be all that bad. Now I think it's weird to see

him without it on during his hour off. lol!!!

Good luck and keep us posted!

Lacy

Waydon's mom

8months

DOCband 1.5weeks

> Hello. I'm new to this group thanks to reading all the comments on

> plagio.org. I guess People magazine may have done one good thing,

> brining more parents w/plagio children together. My son Adam is

> turning 1yr old in a week. Unfortunately we are getting a late start

> on treatment but are very hopeful. Initially we were sent for

> physical therapy because he was not sitting up yet at 9mo. It was

> his P.T. who suggested we consult about a helmet. Of course my first

> thought was No, I'm not putting my son through that, but then I got

> right on the internet and learned more about positional plagio. In a

> short time it was YES. It feels like we've been through a lot, but

> we keep in mind Adam doesn't need surgery so we are grateful. Adam

> was diagnosed w/severe plagiocephaly, severe torticolis, he has

> delayed gross motor and fine motor skills. I was shocked to hear

> the shape of his head was the major factor in all of this. We did

> get sent for genetic consultation to rule out the genetic factor &

> we got the all clear there. Physical therapy alone has already done

> wonders for Adam. He will get his helmet 7/12 & everyone is hopeful.

> At first it was hard for me to imagine not seeing my beautiful boy

> w/o a helmet. He has such cute fly away hair but as I look at other

> kids in their helmets, they are so darn cute too & the helmets don't

> look at all like I had imagined. I'm so glad they no longer have

> the straps. I actually can't wait to see how cute Adam will be

> w/his helmet on, a smile on his face, and his blue eyes sparkling!

> His helmet will be light blue to compliment his eyes! I can't tell

> you what a comfort it has already been to read the comments on the

> plagio website and how much more I have learned. Thank you all for

> sharing and you'll never know how much it means to us parents who

> are just getting into this. I hope Adam adjusts easily because it is

> so hard not to do exactly what he wants. I would love to hear from

> anyone, but if there is someone who started their child as late as

> we are I'd love to hear your results and story. - Greta