Hello, I'm new

[Guest guest]

Hello and welcome! There have been many parents who didn't band their

babies until around 1 year of age and I'm sure that many of them will

chime in here and share their experience. My Daughter was banded

at 7mo, 1wk and wore her band for just 11 weeks. A lot of it depends

on the severity and their growth during the time banded. Hopefully

you can catch a nice growth spurt. As far as Adam tolerating the

band, babies usually don't even hardly seem to notice that the abnd

is there once they get used to it. The first week is the toughest

with the break in period and they have to adjust to the temperature

change, since they are wearing a " hat " all the time. Just make sure

that you clean it daily with 91% alchohol and use a nice smelling

shampoo on his head to keep away the " stinky head " .

Good luck and keep us updated on everything

Jen

(11 mo), tort resolved, Hanger Band Grad

(3 years)

--- In Plagiocephaly , " Greta & V " <gj1@a...>

wrote:

> Hello. I'm new to this group thanks to reading all the comments on

> plagio.org. I guess People magazine may have done one good thing,

> brining more parents w/plagio children together. My son Adam is

> turning 1yr old in a week. Unfortunately we are getting a late

start

> on treatment but are very hopeful. Initially we were sent for

> physical therapy because he was not sitting up yet at 9mo. It was

> his P.T. who suggested we consult about a helmet. Of course my

first

> thought was No, I'm not putting my son through that, but then I got

> right on the internet and learned more about positional plagio. In

a

> short time it was YES. It feels like we've been through a lot, but

> we keep in mind Adam doesn't need surgery so we are grateful. Adam

> was diagnosed w/severe plagiocephaly, severe torticolis, he has

> delayed gross motor and fine motor skills. I was shocked to hear

> the shape of his head was the major factor in all of this. We did

> get sent for genetic consultation to rule out the genetic factor &

> we got the all clear there. Physical therapy alone has already done

> wonders for Adam. He will get his helmet 7/12 & everyone is

hopeful.

> At first it was hard for me to imagine not seeing my beautiful boy

> w/o a helmet. He has such cute fly away hair but as I look at other

> kids in their helmets, they are so darn cute too & the helmets

don't

> look at all like I had imagined. I'm so glad they no longer have

> the straps. I actually can't wait to see how cute Adam will be

> w/his helmet on, a smile on his face, and his blue eyes sparkling!

> His helmet will be light blue to compliment his eyes! I can't tell

> you what a comfort it has already been to read the comments on the

> plagio website and how much more I have learned. Thank you all for

> sharing and you'll never know how much it means to us parents who

> are just getting into this. I hope Adam adjusts easily because it

is

> so hard not to do exactly what he wants. I would love to hear from

> anyone, but if there is someone who started their child as late as

> we are I'd love to hear your results and story. - Greta

[Guest guest]

Good morning Lacy & that you for the warm welcome. I will be sure to go to the files section & check that out so I'm prepared for our 1st week. Although only 1yr, Adam already seems to be pretty set in his ways, It's comical at times, so the more prepared I am the better! Our helmet was made by Hanger. They are located at OHSU in Portland Oregon. We live approx 1hr north in Longview WA.

Greta

mom

12mo

starts helmet 7/12!!

Re: Hello, I'm new

Welcome to our group Greta!! I'm glad you found us! Sounds like Adamis getting ready to start his journey to a much rounder head! I hopethat everything goes smooth for you. You should check out our "files"section "tips on helping a baby adjust to 1st helmet" if you need theextra help. I think you'll find this group to be very helpful duringthe next months of Adam wearing his helmet! I'm glad the PT has helped him! What facility are you getting hishelmet through? It might help if you post where you are located,someone might live near you that can share their experience if usingthe same provider. My son is currently in a DOCband and I too didn't like the fact atfirst of thinking about seeing him with a band on. But I looked atthe photos of all these cute babies smiling in their band/helmets andknew that it couldn't be all that bad. Now I think it's weird to seehim without it on during his hour off. lol!!!Good luck and keep us posted!LacyWaydon's mom 8monthsDOCband 1.5weeks> Hello. I'm new to this group thanks to reading all the comments on > plagio.org. I guess People magazine may have done one good thing, > brining more parents w/plagio children together. My son Adam is > turning 1yr old in a week. Unfortunately we are getting a late start > on treatment but are very hopeful. Initially we were sent for > physical therapy because he was not sitting up yet at 9mo. It was > his P.T. who suggested we consult about a helmet. Of course my first > thought was No, I'm not putting my son through that, but then I got > right on the internet and learned more about positional plagio. In a > short time it was YES. It feels like we've been through a lot, but > we keep in mind Adam doesn't need surgery so we are grateful. Adam > was diagnosed w/severe plagiocephaly, severe torticolis, he has > delayed gross motor and fine motor skills. I was shocked to hear > the shape of his head was the major factor in all of this. We did > get sent for genetic consultation to rule out the genetic factor & > we got the all clear there. Physical therapy alone has already done > wonders for Adam. He will get his helmet 7/12 & everyone is hopeful. > At first it was hard for me to imagine not seeing my beautiful boy > w/o a helmet. He has such cute fly away hair but as I look at other > kids in their helmets, they are so darn cute too & the helmets don't > look at all like I had imagined. I'm so glad they no longer have > the straps. I actually can't wait to see how cute Adam will be > w/his helmet on, a smile on his face, and his blue eyes sparkling! > His helmet will be light blue to compliment his eyes! I can't tell > you what a comfort it has already been to read the comments on the > plagio website and how much more I have learned. Thank you all for > sharing and you'll never know how much it means to us parents who > are just getting into this. I hope Adam adjusts easily because it is > so hard not to do exactly what he wants. I would love to hear from > anyone, but if there is someone who started their child as late as > we are I'd love to hear your results and story. - GretaFor more plagio info

[Guest guest]

Greta,

Welcome to our group,

You are right at least People brought you to us and that's a good

thing. I know it is a late start, but we have had many babies start

late and still receive excellent correction. We have a wealth of

information here in the files section. You may find interesting the

article on treatment of plagiocephaly in the older infant, it shows

results and helps you understand. If I had one piece of advice to

give you about starting the treatment at a later age, it would be

this: Try not to get down when reading post about younger babies

seeing correction quickly(they grow so much faster), the correction

comes it just takes a bit longer. I am guessing Adam will be getting

a Starband?? The blue color makes me think that. You can read the

files on " getting a good fit " and " helping baby adjust to the

helmet/Band " they will help you alot too. You will want to remember

to dress him very lightly while adjusting to the helmet, they will

sometimes sweat alot for the first couple of days, but soon the body

adjusts. The number one sleeping problem at the start is overheating.

A pair of very light short PJ's or just a onsie will be perfect. If

you need to crank up the AC or at least keep a fan in his room for a

couple nights.I understand about the other issues he has, my son

Dominick(the pic on the homepage of the site right now) was delayed

two months in gross motor skills and had other muscle weakness or

stiffness throughout his body from severe plagio. We did intensive PT

from Jan.(4mo) till May(8mo) with incredible results. We are having a

small set back in range of motion(ROM) but this can happen sometimes

and I am getting the pt back in here. If you would like I could e-

mail you Dominick's story for you to read. Let us know if you have

any questions and I am so happy that found us.

CAROLG

--- In Plagiocephaly , " Greta & V " <gj1@a...>

wrote:

> Hello. I'm new to this group thanks to reading all the comments on

> plagio.org. I guess People magazine may have done one good thing,

> brining more parents w/plagio children together. My son Adam is

> turning 1yr old in a week. Unfortunately we are getting a late

start

> on treatment but are very hopeful. Initially we were sent for

> physical therapy because he was not sitting up yet at 9mo. It was

> his P.T. who suggested we consult about a helmet. Of course my

first

> thought was No, I'm not putting my son through that, but then I got

> right on the internet and learned more about positional plagio. In

a

> short time it was YES. It feels like we've been through a lot, but

> we keep in mind Adam doesn't need surgery so we are grateful. Adam

> was diagnosed w/severe plagiocephaly, severe torticolis, he has

> delayed gross motor and fine motor skills. I was shocked to hear

> the shape of his head was the major factor in all of this. We did

> get sent for genetic consultation to rule out the genetic factor &

> we got the all clear there. Physical therapy alone has already done

> wonders for Adam. He will get his helmet 7/12 & everyone is

hopeful.

> At first it was hard for me to imagine not seeing my beautiful boy

> w/o a helmet. He has such cute fly away hair but as I look at other

> kids in their helmets, they are so darn cute too & the helmets

don't

> look at all like I had imagined. I'm so glad they no longer have

> the straps. I actually can't wait to see how cute Adam will be

> w/his helmet on, a smile on his face, and his blue eyes sparkling!

> His helmet will be light blue to compliment his eyes! I can't tell

> you what a comfort it has already been to read the comments on the

> plagio website and how much more I have learned. Thank you all for

> sharing and you'll never know how much it means to us parents who

> are just getting into this. I hope Adam adjusts easily because it

is

> so hard not to do exactly what he wants. I would love to hear from

> anyone, but if there is someone who started their child as late as

> we are I'd love to hear your results and story. - Greta

[Guest guest]

Hi Greta,

Welcome to the group! So what kind of helmet is your son getting - a STARband? We have had older infants obtain good correction. My daughter was younger when banded (4 1/2 months). I'm sure other's will share their stories.

mom to na, DOC Grad & Kiersten, preventative repo

www.thefilyaws.comGreta & V <gj1@...> wrote:

Hello. I'm new to this group thanks to reading all the comments on plagio.org. I guess People magazine may have done one good thing, brining more parents w/plagio children together. My son Adam is turning 1yr old in a week. Unfortunately we are getting a late start on treatment but are very hopeful. Initially we were sent for physical therapy because he was not sitting up yet at 9mo. It was his P.T. who suggested we consult about a helmet. Of course my first thought was No, I'm not putting my son through that, but then I got right on the internet and learned more about positional plagio. In a short time it was YES. It feels like we've been through a lot, but we keep in mind Adam doesn't need surgery so we are grateful. Adam was diagnosed w/severe plagiocephaly, severe torticolis, he has delayed gross

motor and fine motor skills. I was shocked to hear the shape of his head was the major factor in all of this. We did get sent for genetic consultation to rule out the genetic factor & we got the all clear there. Physical therapy alone has already done wonders for Adam. He will get his helmet 7/12 & everyone is hopeful. At first it was hard for me to imagine not seeing my beautiful boy w/o a helmet. He has such cute fly away hair but as I look at other kids in their helmets, they are so darn cute too & the helmets don't look at all like I had imagined. I'm so glad they no longer have the straps. I actually can't wait to see how cute Adam will be w/his helmet on, a smile on his face, and his blue eyes sparkling! His helmet will be light blue to compliment his eyes! I can't tell you what a comfort it has already been to read the comments on the plagio website and how much more I have

learned. Thank you all for sharing and you'll never know how much it means to us parents who are just getting into this. I hope Adam adjusts easily because it is so hard not to do exactly what he wants. I would love to hear from anyone, but if there is someone who started their child as late as we are I'd love to hear your results and story. - GretaFor more plagio info

[Guest guest]

Jen, thank you for the welcome. We are hopeful as Adam's head circumference was below the 50th%, I think it was somewhere between 30-40% so he has not really had his large growth spurt for his head. . We're hoping this will happen soon after he gets his helmet so we can get the best results possible for his age! Have a good 4th - Greta

Re: Hello, I'm new

Hello and welcome! There have been many parents who didn't band their babies until around 1 year of age and I'm sure that many of them will chime in here and share their experience. My Daughter was banded at 7mo, 1wk and wore her band for just 11 weeks. A lot of it depends on the severity and their growth during the time banded. Hopefully you can catch a nice growth spurt. As far as Adam tolerating the band, babies usually don't even hardly seem to notice that the abnd is there once they get used to it. The first week is the toughest with the break in period and they have to adjust to the temperature change, since they are wearing a "hat" all the time. Just make sure that you clean it daily with 91% alchohol and use a nice smelling shampoo on his head to keep away the "stinky head". :)Good luck and keep us updated on everythingJen (11 mo), tort resolved, Hanger Band Grad (3 years) > Hello. I'm new to this group thanks to reading all the comments on > plagio.org. I guess People magazine may have done one good thing, > brining more parents w/plagio children together. My son Adam is > turning 1yr old in a week. Unfortunately we are getting a late start > on treatment but are very hopeful. Initially we were sent for > physical therapy because he was not sitting up yet at 9mo. It was > his P.T. who suggested we consult about a helmet. Of course my first > thought was No, I'm not putting my son through that, but then I got > right on the internet and learned more about positional plagio. In a > short time it was YES. It feels like we've been through a lot, but > we keep in mind Adam doesn't need surgery so we are grateful. Adam > was diagnosed w/severe plagiocephaly, severe torticolis, he has > delayed gross motor and fine motor skills. I was shocked to hear > the shape of his head was the major factor in all of this. We did > get sent for genetic consultation to rule out the genetic factor & > we got the all clear there. Physical therapy alone has already done > wonders for Adam. He will get his helmet 7/12 & everyone is hopeful. > At first it was hard for me to imagine not seeing my beautiful boy > w/o a helmet. He has such cute fly away hair but as I look at other > kids in their helmets, they are so darn cute too & the helmets don't > look at all like I had imagined. I'm so glad they no longer have > the straps. I actually can't wait to see how cute Adam will be > w/his helmet on, a smile on his face, and his blue eyes sparkling! > His helmet will be light blue to compliment his eyes! I can't tell > you what a comfort it has already been to read the comments on the > plagio website and how much more I have learned. Thank you all for > sharing and you'll never know how much it means to us parents who > are just getting into this. I hope Adam adjusts easily because it is > so hard not to do exactly what he wants. I would love to hear from > anyone, but if there is someone who started their child as late as > we are I'd love to hear your results and story. - GretaFor more plagio info

[Guest guest]

Jen, thank you for the welcome. We are hopeful as Adam's head circumference was below the 50th%, I think it was somewhere between 30-40% so he has not really had his large growth spurt for his head. . We're hoping this will happen soon after he gets his helmet so we can get the best results possible for his age! Have a good 4th - Greta

Re: Hello, I'm new

Hello and welcome! There have been many parents who didn't band their babies until around 1 year of age and I'm sure that many of them will chime in here and share their experience. My Daughter was banded at 7mo, 1wk and wore her band for just 11 weeks. A lot of it depends on the severity and their growth during the time banded. Hopefully you can catch a nice growth spurt. As far as Adam tolerating the band, babies usually don't even hardly seem to notice that the abnd is there once they get used to it. The first week is the toughest with the break in period and they have to adjust to the temperature change, since they are wearing a "hat" all the time. Just make sure that you clean it daily with 91% alchohol and use a nice smelling shampoo on his head to keep away the "stinky head". :)Good luck and keep us updated on everythingJen (11 mo), tort resolved, Hanger Band Grad (3 years) > Hello. I'm new to this group thanks to reading all the comments on > plagio.org. I guess People magazine may have done one good thing, > brining more parents w/plagio children together. My son Adam is > turning 1yr old in a week. Unfortunately we are getting a late start > on treatment but are very hopeful. Initially we were sent for > physical therapy because he was not sitting up yet at 9mo. It was > his P.T. who suggested we consult about a helmet. Of course my first > thought was No, I'm not putting my son through that, but then I got > right on the internet and learned more about positional plagio. In a > short time it was YES. It feels like we've been through a lot, but > we keep in mind Adam doesn't need surgery so we are grateful. Adam > was diagnosed w/severe plagiocephaly, severe torticolis, he has > delayed gross motor and fine motor skills. I was shocked to hear > the shape of his head was the major factor in all of this. We did > get sent for genetic consultation to rule out the genetic factor & > we got the all clear there. Physical therapy alone has already done > wonders for Adam. He will get his helmet 7/12 & everyone is hopeful. > At first it was hard for me to imagine not seeing my beautiful boy > w/o a helmet. He has such cute fly away hair but as I look at other > kids in their helmets, they are so darn cute too & the helmets don't > look at all like I had imagined. I'm so glad they no longer have > the straps. I actually can't wait to see how cute Adam will be > w/his helmet on, a smile on his face, and his blue eyes sparkling! > His helmet will be light blue to compliment his eyes! I can't tell > you what a comfort it has already been to read the comments on the > plagio website and how much more I have learned. Thank you all for > sharing and you'll never know how much it means to us parents who > are just getting into this. I hope Adam adjusts easily because it is > so hard not to do exactly what he wants. I would love to hear from > anyone, but if there is someone who started their child as late as > we are I'd love to hear your results and story. - GretaFor more plagio info

[Guest guest]

Carol,

Please email me your story. I really need to hear about others who are going thru the same thing we are. It has been a bit emotionally difficult for me. My daughter is 10. Breezed through the infant, toddler, and later years. My biggest worry w/her was keeping her from jumping off things because she fractured her arm when she jumped off a slide @ daycare once. She grew up & I followed her. Adam is so much different. I lumped a lot of guilt on myself at first & then decided we were just going to tackle all of his problems one day at a time. He also is just a tiny thing. He was only 16lbs 7oz 1wk ago & he'll be 1yr old on 7/8. He doesnt eat a whole lot. We're trying to add calories to his diet, like adding butter to all of his foods. If anyone has suggestions on this I would love help. It worries me so when he doesnt eat.

Adam had leg spazims when he was 2mo old. At first we thought he was having a seizure but they ruled that & everything else out. They couldn't explain it. It only lasted 4 days. They left as quickly as they came. His legs would just involuntarily jerk, but he was fine thru it. One time he looked up at me like, see what I can do mom?

Adam started P.T. in May & has done really well, but also has a long way to go. His P.T. says he may not walk for another year, but we think he'll suprise her. We all work w/him every day on his gross & fine motor skills.

Have a great 4th!

Greta

Re: Hello, I'm new

Greta,Welcome to our group,You are right at least People brought you to us and that's a good thing. I know it is a late start, but we have had many babies start late and still receive excellent correction. We have a wealth of information here in the files section. You may find interesting the article on treatment of plagiocephaly in the older infant, it shows results and helps you understand. If I had one piece of advice to give you about starting the treatment at a later age, it would be this: Try not to get down when reading post about younger babies seeing correction quickly(they grow so much faster), the correction comes it just takes a bit longer. I am guessing Adam will be getting a Starband?? The blue color makes me think that. You can read the files on "getting a good fit" and "helping baby adjust to the helmet/Band" they will help you alot too. You will want to remember to dress him very lightly while adjusting to the helmet, they will sometimes sweat alot for the first couple of days, but soon the body adjusts. The number one sleeping problem at the start is overheating. A pair of very light short PJ's or just a onsie will be perfect. If you need to crank up the AC or at least keep a fan in his room for a couple nights.I understand about the other issues he has, my son Dominick(the pic on the homepage of the site right now) was delayed two months in gross motor skills and had other muscle weakness or stiffness throughout his body from severe plagio. We did intensive PT from Jan.(4mo) till May(8mo) with incredible results. We are having a small set back in range of motion(ROM) but this can happen sometimes and I am getting the pt back in here. If you would like I could e-mail you Dominick's story for you to read. Let us know if you have any questions and I am so happy that found us. CAROLG> Hello. I'm new to this group thanks to reading all the comments on > plagio.org. I guess People magazine may have done one good thing, > brining more parents w/plagio children together. My son Adam is > turning 1yr old in a week. Unfortunately we are getting a late start > on treatment but are very hopeful. Initially we were sent for > physical therapy because he was not sitting up yet at 9mo. It was > his P.T. who suggested we consult about a helmet. Of course my first > thought was No, I'm not putting my son through that, but then I got > right on the internet and learned more about positional plagio. In a > short time it was YES. It feels like we've been through a lot, but > we keep in mind Adam doesn't need surgery so we are grateful. Adam > was diagnosed w/severe plagiocephaly, severe torticolis, he has > delayed gross motor and fine motor skills. I was shocked to hear > the shape of his head was the major factor in all of this. We did > get sent for genetic consultation to rule out the genetic factor & > we got the all clear there. Physical therapy alone has already done > wonders for Adam. He will get his helmet 7/12 & everyone is hopeful. > At first it was hard for me to imagine not seeing my beautiful boy > w/o a helmet. He has such cute fly away hair but as I look at other > kids in their helmets, they are so darn cute too & the helmets don't > look at all like I had imagined. I'm so glad they no longer have > the straps. I actually can't wait to see how cute Adam will be > w/his helmet on, a smile on his face, and his blue eyes sparkling! > His helmet will be light blue to compliment his eyes! I can't tell > you what a comfort it has already been to read the comments on the > plagio website and how much more I have learned. Thank you all for > sharing and you'll never know how much it means to us parents who > are just getting into this. I hope Adam adjusts easily because it is > so hard not to do exactly what he wants. I would love to hear from > anyone, but if there is someone who started their child as late as > we are I'd love to hear your results and story. - GretaFor more plagio info

[Guest guest]

Carol,

Please email me your story. I really need to hear about others who are going thru the same thing we are. It has been a bit emotionally difficult for me. My daughter is 10. Breezed through the infant, toddler, and later years. My biggest worry w/her was keeping her from jumping off things because she fractured her arm when she jumped off a slide @ daycare once. She grew up & I followed her. Adam is so much different. I lumped a lot of guilt on myself at first & then decided we were just going to tackle all of his problems one day at a time. He also is just a tiny thing. He was only 16lbs 7oz 1wk ago & he'll be 1yr old on 7/8. He doesnt eat a whole lot. We're trying to add calories to his diet, like adding butter to all of his foods. If anyone has suggestions on this I would love help. It worries me so when he doesnt eat.

Adam had leg spazims when he was 2mo old. At first we thought he was having a seizure but they ruled that & everything else out. They couldn't explain it. It only lasted 4 days. They left as quickly as they came. His legs would just involuntarily jerk, but he was fine thru it. One time he looked up at me like, see what I can do mom?

Adam started P.T. in May & has done really well, but also has a long way to go. His P.T. says he may not walk for another year, but we think he'll suprise her. We all work w/him every day on his gross & fine motor skills.

Have a great 4th!

Greta

Re: Hello, I'm new

Greta,Welcome to our group,You are right at least People brought you to us and that's a good thing. I know it is a late start, but we have had many babies start late and still receive excellent correction. We have a wealth of information here in the files section. You may find interesting the article on treatment of plagiocephaly in the older infant, it shows results and helps you understand. If I had one piece of advice to give you about starting the treatment at a later age, it would be this: Try not to get down when reading post about younger babies seeing correction quickly(they grow so much faster), the correction comes it just takes a bit longer. I am guessing Adam will be getting a Starband?? The blue color makes me think that. You can read the files on "getting a good fit" and "helping baby adjust to the helmet/Band" they will help you alot too. You will want to remember to dress him very lightly while adjusting to the helmet, they will sometimes sweat alot for the first couple of days, but soon the body adjusts. The number one sleeping problem at the start is overheating. A pair of very light short PJ's or just a onsie will be perfect. If you need to crank up the AC or at least keep a fan in his room for a couple nights.I understand about the other issues he has, my son Dominick(the pic on the homepage of the site right now) was delayed two months in gross motor skills and had other muscle weakness or stiffness throughout his body from severe plagio. We did intensive PT from Jan.(4mo) till May(8mo) with incredible results. We are having a small set back in range of motion(ROM) but this can happen sometimes and I am getting the pt back in here. If you would like I could e-mail you Dominick's story for you to read. Let us know if you have any questions and I am so happy that found us. CAROLG> Hello. I'm new to this group thanks to reading all the comments on > plagio.org. I guess People magazine may have done one good thing, > brining more parents w/plagio children together. My son Adam is > turning 1yr old in a week. Unfortunately we are getting a late start > on treatment but are very hopeful. Initially we were sent for > physical therapy because he was not sitting up yet at 9mo. It was > his P.T. who suggested we consult about a helmet. Of course my first > thought was No, I'm not putting my son through that, but then I got > right on the internet and learned more about positional plagio. In a > short time it was YES. It feels like we've been through a lot, but > we keep in mind Adam doesn't need surgery so we are grateful. Adam > was diagnosed w/severe plagiocephaly, severe torticolis, he has > delayed gross motor and fine motor skills. I was shocked to hear > the shape of his head was the major factor in all of this. We did > get sent for genetic consultation to rule out the genetic factor & > we got the all clear there. Physical therapy alone has already done > wonders for Adam. He will get his helmet 7/12 & everyone is hopeful. > At first it was hard for me to imagine not seeing my beautiful boy > w/o a helmet. He has such cute fly away hair but as I look at other > kids in their helmets, they are so darn cute too & the helmets don't > look at all like I had imagined. I'm so glad they no longer have > the straps. I actually can't wait to see how cute Adam will be > w/his helmet on, a smile on his face, and his blue eyes sparkling! > His helmet will be light blue to compliment his eyes! I can't tell > you what a comfort it has already been to read the comments on the > plagio website and how much more I have learned. Thank you all for > sharing and you'll never know how much it means to us parents who > are just getting into this. I hope Adam adjusts easily because it is > so hard not to do exactly what he wants. I would love to hear from > anyone, but if there is someone who started their child as late as > we are I'd love to hear your results and story. - GretaFor more plagio info

[Guest guest]

, Unfortuately I don't really know. His helmet is being made by Hanger. I looked through paperwork I have & it doesn't really say. I guess I'll find out when we pick it up on 7/12.

Have a good 4th

Greta

Mom to Adam ( and Meagan )

Re: Hello, I'm new

Hi Greta,

Welcome to the group! So what kind of helmet is your son getting - a STARband? We have had older infants obtain good correction. My daughter was younger when banded (4 1/2 months). I'm sure other's will share their stories.

mom to na, DOC Grad & Kiersten, preventative repo

www.thefilyaws.comGreta & V <gj1@...> wrote:

Hello. I'm new to this group thanks to reading all the comments on plagio.org. I guess People magazine may have done one good thing, brining more parents w/plagio children together. My son Adam is turning 1yr old in a week. Unfortunately we are getting a late start on treatment but are very hopeful. Initially we were sent for physical therapy because he was not sitting up yet at 9mo. It was his P.T. who suggested we consult about a helmet. Of course my first thought was No, I'm not putting my son through that, but then I got right on the internet and learned more about positional plagio. In a short time it was YES. It feels like we've been through a lot, but we keep in mind Adam doesn't need surgery so we are grateful. Adam was diagnosed w/severe plagiocephaly, severe torticolis, he has delayed gross motor and fine motor skills. I was shocked to hear the shape of his head was the major factor in all of this. We did get sent for genetic consultation to rule out the genetic factor & we got the all clear there. Physical therapy alone has already done wonders for Adam. He will get his helmet 7/12 & everyone is hopeful. At first it was hard for me to imagine not seeing my beautiful boy w/o a helmet. He has such cute fly away hair but as I look at other kids in their helmets, they are so darn cute too & the helmets don't look at all like I had imagined. I'm so glad they no longer have the straps. I actually can't wait to see how cute Adam will be w/his helmet on, a smile on his face, and his blue eyes sparkling! His helmet will be light blue to compliment his eyes! I can't tell you what a comfort it has already been to read the comments on the plagio website and how much more I have learned. Thank you all for sharing and you'll never know how much it means to us parents who are just getting into this. I hope Adam adjusts easily because it is so hard not to do exactly what he wants. I would love to hear from anyone, but if there is someone who started their child as late as we are I'd love to hear your results and story. - GretaFor more plagio info

[Guest guest]

, Unfortuately I don't really know. His helmet is being made by Hanger. I looked through paperwork I have & it doesn't really say. I guess I'll find out when we pick it up on 7/12.

Have a good 4th

Greta

Mom to Adam ( and Meagan )

Re: Hello, I'm new

Hi Greta,

Welcome to the group! So what kind of helmet is your son getting - a STARband? We have had older infants obtain good correction. My daughter was younger when banded (4 1/2 months). I'm sure other's will share their stories.

mom to na, DOC Grad & Kiersten, preventative repo

www.thefilyaws.comGreta & V <gj1@...> wrote:

Hello. I'm new to this group thanks to reading all the comments on plagio.org. I guess People magazine may have done one good thing, brining more parents w/plagio children together. My son Adam is turning 1yr old in a week. Unfortunately we are getting a late start on treatment but are very hopeful. Initially we were sent for physical therapy because he was not sitting up yet at 9mo. It was his P.T. who suggested we consult about a helmet. Of course my first thought was No, I'm not putting my son through that, but then I got right on the internet and learned more about positional plagio. In a short time it was YES. It feels like we've been through a lot, but we keep in mind Adam doesn't need surgery so we are grateful. Adam was diagnosed w/severe plagiocephaly, severe torticolis, he has delayed gross motor and fine motor skills. I was shocked to hear the shape of his head was the major factor in all of this. We did get sent for genetic consultation to rule out the genetic factor & we got the all clear there. Physical therapy alone has already done wonders for Adam. He will get his helmet 7/12 & everyone is hopeful. At first it was hard for me to imagine not seeing my beautiful boy w/o a helmet. He has such cute fly away hair but as I look at other kids in their helmets, they are so darn cute too & the helmets don't look at all like I had imagined. I'm so glad they no longer have the straps. I actually can't wait to see how cute Adam will be w/his helmet on, a smile on his face, and his blue eyes sparkling! His helmet will be light blue to compliment his eyes! I can't tell you what a comfort it has already been to read the comments on the plagio website and how much more I have learned. Thank you all for sharing and you'll never know how much it means to us parents who are just getting into this. I hope Adam adjusts easily because it is so hard not to do exactly what he wants. I would love to hear from anyone, but if there is someone who started their child as late as we are I'd love to hear your results and story. - GretaFor more plagio info

[Guest guest]

Carol, did you get your website done? If not, please send me your story. Adam doesnt eat as much as he should. At 1yr he should be taking in 1000 calories a day & we were lucky to get 500-600 in him. His dietician said he needs 750 a day to maintain his current weight of 16lbs 7oz. 850 to gain weight. So far the dietician and his pediatrican have tweeked his formula mix to add calories. They want me to add a tsp of butter to everything he eats, which gives him 33 extra calories per serving. We focus on the higher calorie baby foods such as the meats, large jars of fruit, & dinners at least 70-80 calories per dinner. He loves water but now we have to give him juice or formula in his cup just so he is able to get those extra few calories. So far we've been able to consistantly get 800-1000 calories in him each day. A few days he slips back down but I figure we all have days where we dont feel like eating. The next weigh in will tell if this is all working. Adam does gag on some certain textures. I started him a bit late on the #2 stage baby foods because they said he had to be sitting up. Because of his tort & delayed gross motor skills he wasn't sitting up. We are experimenting a bit more. He loves mashed potatoes & baked potatoes. We give him mashed bites here & there to see what he will do. Even in the beginning he was satisfied w/very little. Long story short I wasn't producing enough milk & he gave no indication he wasn't satsified. The only way we knew was because he wasn't gaining weight. After pumping I was only able to get maybe 12-15oz per day. We started to supplement w/formula & he went right up to drinking 24oz a day. I felt so bad but he wasn't fussy or lethargic. He was happy & seemed normal, but all the while he wasn't getting enough to drink! Anyway , that is the food story. I had not heard of ensure for children. someone at work had mentioned pedialyte shakes too. I'll have to check both out & we'll see how the weigh in goes.

Greta

mom to Adam - 1yr (starts Hanger 7/12) Meagan 10yrs

Re: Hello, I'm new

Greta,I have so much to share with you, but I'll do that when I send Dom's story. We have feeding issues, some sensory integration issue, and vision issues still at this time and we are now facing a small set back in ROM(this can happen), but Dominick threw all thier goals out the window when we really got going with PT. He was supposed to be able to sit up unassisted by June, well he did that in April,lol. I hope you get the same results. Why doesn't he eat, does he have problems with eating( gagging, crying,texture in food)? I would look more towards the toddler Ensure shakes or that sort of product rather than extra fats. I am trying to finish Dominick's website this weekend, so if I get it done I will send you the link, if not I will e-mail you his whole story. CAROLG > > Hello. I'm new to this group thanks to reading all the comments on > > plagio.org. I guess People magazine may have done one good thing, > > brining more parents w/plagio children together. My son Adam is > > turning 1yr old in a week. Unfortunately we are getting a late > start > > on treatment but are very hopeful. Initially we were sent for > > physical therapy because he was not sitting up yet at 9mo. It was > > his P.T. who suggested we consult about a helmet. Of course my > first > > thought was No, I'm not putting my son through that, but then I got > > right on the internet and learned more about positional plagio. In > a > > short time it was YES. It feels like we've been through a lot, but > > we keep in mind Adam doesn't need surgery so we are grateful. Adam > > was diagnosed w/severe plagiocephaly, severe torticolis, he has > > delayed gross motor and fine motor skills. I was shocked to hear > > the shape of his head was the major factor in all of this. We did > > get sent for genetic consultation to rule out the genetic factor & > > we got the all clear there. Physical therapy alone has already done > > wonders for Adam. He will get his helmet 7/12 & everyone is > hopeful. > > At first it was hard for me to imagine not seeing my beautiful boy > > w/o a helmet. He has such cute fly away hair but as I look at other > > kids in their helmets, they are so darn cute too & the helmets > don't > > look at all like I had imagined. I'm so glad they no longer have > > the straps. I actually can't wait to see how cute Adam will be > > w/his helmet on, a smile on his face, and his blue eyes sparkling! > > His helmet will be light blue to compliment his eyes! I can't tell > > you what a comfort it has already been to read the comments on the > > plagio website and how much more I have learned. Thank you all for > > sharing and you'll never know how much it means to us parents who > > are just getting into this. I hope Adam adjusts easily because it > is > > so hard not to do exactly what he wants. I would love to hear from > > anyone, but if there is someone who started their child as late as > > we are I'd love to hear your results and story. - Greta> > > > > For more plagio info

[Guest guest]

Hi Lynn,

Welcome to the group! I would start by calling Cranial Tech in

Chicago and asking them who they might suggest for a helmet friendly

specialist close to you. You can also make an appt for a free

consult with them where they will be able to tell you if your son is

a banding candidate. Of course if you are certain he is than

considering your travel distance you may wish to skip that. You can

also try just getting a script from your pediatrician, it doesn't

have to be from a specialist. The quicker you get that, the quicker

you can get the ball rolling with your insurance company. Sometimes

it takes weeks to get a precertification in place. I would

definitely do it ASAP so when you are ready, all the logistics will

already be in place. Don't feel like you had a hand in it either,

in some instances it can't be prevented and without the education

out there, parents simply don't know how to prevent it! Has Dylan

been evaluated for torticollis? You should make an appt w/your ped

to do this ASAP and get PT going if necessary. It's hard in the

beginning to think of your baby in a helmet, but it really isn't

bad. I'd band my daughter all over again if I needed to. She had

great results from her DOCbands.

, mom to Hannah, DOCgrad

Cape Cod, Ma

http://hannahsnoggin.typepad.com

> Hello, my name is Lynn and the other day I read the article in

> Parent's magazine " why wears a helmet " and immediately

> recognized my own son's [Dylan's] head. [and from the websites-

he

> really looks like a " before " picture] I've just been told by

> family/friends that it would round out or it wasn't that bad- and

my

> baby's dr told us we'd keep an eye on it (6 mo check up next

> month). I guess I was really in denial about it (don't want to

> think there's anything wrong with my son- much less believe that I

> had a hand in it). So today I'm looking up plagiocephaly (there's

> an amazing word to add into my vocabulary) on the web and getting

> myself informed.

>

> So- after hearing ravings about the folks on this site I'm seeking

> some advice...

> 1st- do I call my dr and make an appt or start seeking an

orthotist

> (sp?)? [my husband, a dr himself, says there's no specialists

here-

> and I see cranial tech is as close as chicago, a 2 hr drive]

>

> 2nd- do I need to go immediately or is this something that can

wait

> a month? we're going on vacation the first week of September and

> that's right when Dylan turns 6 months. I'm reading sooner is

> better- but I'm trying to think about appts, etc.

>

> 3rd- what do you do with all these mixed emotions?? feeling very

> perplexed right now.

>

> Well, thank you for letting me introduce myself- I hope to be

> getting to know you all soon.

>

> Lynn

[Guest guest]

Hi Lynn,

Welcome to the group! I would start by calling Cranial Tech in

Chicago and asking them who they might suggest for a helmet friendly

specialist close to you. You can also make an appt for a free

consult with them where they will be able to tell you if your son is

a banding candidate. Of course if you are certain he is than

considering your travel distance you may wish to skip that. You can

also try just getting a script from your pediatrician, it doesn't

have to be from a specialist. The quicker you get that, the quicker

you can get the ball rolling with your insurance company. Sometimes

it takes weeks to get a precertification in place. I would

definitely do it ASAP so when you are ready, all the logistics will

already be in place. Don't feel like you had a hand in it either,

in some instances it can't be prevented and without the education

out there, parents simply don't know how to prevent it! Has Dylan

been evaluated for torticollis? You should make an appt w/your ped

to do this ASAP and get PT going if necessary. It's hard in the

beginning to think of your baby in a helmet, but it really isn't

bad. I'd band my daughter all over again if I needed to. She had

great results from her DOCbands.

, mom to Hannah, DOCgrad

Cape Cod, Ma

http://hannahsnoggin.typepad.com

> Hello, my name is Lynn and the other day I read the article in

> Parent's magazine " why wears a helmet " and immediately

> recognized my own son's [Dylan's] head. [and from the websites-

he

> really looks like a " before " picture] I've just been told by

> family/friends that it would round out or it wasn't that bad- and

my

> baby's dr told us we'd keep an eye on it (6 mo check up next

> month). I guess I was really in denial about it (don't want to

> think there's anything wrong with my son- much less believe that I

> had a hand in it). So today I'm looking up plagiocephaly (there's

> an amazing word to add into my vocabulary) on the web and getting

> myself informed.

>

> So- after hearing ravings about the folks on this site I'm seeking

> some advice...

> 1st- do I call my dr and make an appt or start seeking an

orthotist

> (sp?)? [my husband, a dr himself, says there's no specialists

here-

> and I see cranial tech is as close as chicago, a 2 hr drive]

>

> 2nd- do I need to go immediately or is this something that can

wait

> a month? we're going on vacation the first week of September and

> that's right when Dylan turns 6 months. I'm reading sooner is

> better- but I'm trying to think about appts, etc.

>

> 3rd- what do you do with all these mixed emotions?? feeling very

> perplexed right now.

>

> Well, thank you for letting me introduce myself- I hope to be

> getting to know you all soon.

>

> Lynn

[Guest guest]

Hi Lynn,

Welcome to the group. I would get the ball rolling. Call you ped.

Make a special appt. Ask for a referral to CT in Chicago. CT will

check without but it's best to have one. Have him make it for ROM

(range of motion) and plagio check. The ROM is because about 80% of

plagio kids have some neck tightness and CT can't show you stretches

without request from Dr. You don't really need to see a specialist

unless ped feels uncofortable sending direct to CT. CT is very

ethical, honest, and experts in this. You would not be led astray.

They will send your ped a full report. Your ped would then write the

RX. If you really got the ball rolling and CT wasn't booked solid he

could have his band before vacation. Or maybe you would cast day

before then pick it up the day you get back. If you talk to ped and

determine that if CT recommends then he will write RX then maybe you

could do evaluation and cast same day. They could call ped with info

and he could fax RX.

Where are you going on vacation? Beach? If so I would go with the

cast before, band after Get one last carefree week.

mom to na, 2 yrs old (DOC Grad)

Kiersten, 2 months old (Preventative Repo)

www.thefilyaws.com

> Hello, my name is Lynn and the other day I read the article in

> Parent's magazine " why wears a helmet " and immediately

> recognized my own son's [Dylan's] head. [and from the websites- he

> really looks like a " before " picture] I've just been told by

> family/friends that it would round out or it wasn't that bad- and

my

> baby's dr told us we'd keep an eye on it (6 mo check up next

> month). I guess I was really in denial about it (don't want to

> think there's anything wrong with my son- much less believe that I

> had a hand in it). So today I'm looking up plagiocephaly (there's

> an amazing word to add into my vocabulary) on the web and getting

> myself informed.

>

> So- after hearing ravings about the folks on this site I'm seeking

> some advice...

> 1st- do I call my dr and make an appt or start seeking an orthotist

> (sp?)? [my husband, a dr himself, says there's no specialists here-

> and I see cranial tech is as close as chicago, a 2 hr drive]

>

> 2nd- do I need to go immediately or is this something that can wait

> a month? we're going on vacation the first week of September and

> that's right when Dylan turns 6 months. I'm reading sooner is

> better- but I'm trying to think about appts, etc.

>

> 3rd- what do you do with all these mixed emotions?? feeling very

> perplexed right now.

>

> Well, thank you for letting me introduce myself- I hope to be

> getting to know you all soon.

>

> Lynn

[Guest guest]

Hi Lynn,

Welcome to the group. I would get the ball rolling. Call you ped.

Make a special appt. Ask for a referral to CT in Chicago. CT will

check without but it's best to have one. Have him make it for ROM

(range of motion) and plagio check. The ROM is because about 80% of

plagio kids have some neck tightness and CT can't show you stretches

without request from Dr. You don't really need to see a specialist

unless ped feels uncofortable sending direct to CT. CT is very

ethical, honest, and experts in this. You would not be led astray.

They will send your ped a full report. Your ped would then write the

RX. If you really got the ball rolling and CT wasn't booked solid he

could have his band before vacation. Or maybe you would cast day

before then pick it up the day you get back. If you talk to ped and

determine that if CT recommends then he will write RX then maybe you

could do evaluation and cast same day. They could call ped with info

and he could fax RX.

Where are you going on vacation? Beach? If so I would go with the

cast before, band after Get one last carefree week.

mom to na, 2 yrs old (DOC Grad)

Kiersten, 2 months old (Preventative Repo)

www.thefilyaws.com

> Hello, my name is Lynn and the other day I read the article in

> Parent's magazine " why wears a helmet " and immediately

> recognized my own son's [Dylan's] head. [and from the websites- he

> really looks like a " before " picture] I've just been told by

> family/friends that it would round out or it wasn't that bad- and

my

> baby's dr told us we'd keep an eye on it (6 mo check up next

> month). I guess I was really in denial about it (don't want to

> think there's anything wrong with my son- much less believe that I

> had a hand in it). So today I'm looking up plagiocephaly (there's

> an amazing word to add into my vocabulary) on the web and getting

> myself informed.

>

> So- after hearing ravings about the folks on this site I'm seeking

> some advice...

> 1st- do I call my dr and make an appt or start seeking an orthotist

> (sp?)? [my husband, a dr himself, says there's no specialists here-

> and I see cranial tech is as close as chicago, a 2 hr drive]

>

> 2nd- do I need to go immediately or is this something that can wait

> a month? we're going on vacation the first week of September and

> that's right when Dylan turns 6 months. I'm reading sooner is

> better- but I'm trying to think about appts, etc.

>

> 3rd- what do you do with all these mixed emotions?? feeling very

> perplexed right now.

>

> Well, thank you for letting me introduce myself- I hope to be

> getting to know you all soon.

>

> Lynn

[Guest guest]

Hello Lynn,

You've already received informative replies, but I just wanted to

post to welcome you to the group. We heard earlier on the message

board that there was a helmet article in Parent's magazine, and I'm

so pleased it spurred you on to check out plagio info. Hopefully

we'll be able to help you out with information and support as far as

treatment for Dylan goes.

Would you keep us posted on how your appts./phone calls go?

Take care,

Christie (Mom to Repo'd Remy)

> Hello, my name is Lynn and the other day I read the article in

> Parent's magazine " why wears a helmet " and immediately

> recognized my own son's [Dylan's] head. [and from the websites-

he

> really looks like a " before " picture] I've just been told by

> family/friends that it would round out or it wasn't that bad- and

my

> baby's dr told us we'd keep an eye on it (6 mo check up next

> month). I guess I was really in denial about it (don't want to

> think there's anything wrong with my son- much less believe that I

> had a hand in it). So today I'm looking up plagiocephaly (there's

> an amazing word to add into my vocabulary) on the web and getting

> myself informed.

>

> So- after hearing ravings about the folks on this site I'm seeking

> some advice...

> 1st- do I call my dr and make an appt or start seeking an

orthotist

> (sp?)? [my husband, a dr himself, says there's no specialists

here-

> and I see cranial tech is as close as chicago, a 2 hr drive]

>

> 2nd- do I need to go immediately or is this something that can

wait

> a month? we're going on vacation the first week of September and

> that's right when Dylan turns 6 months. I'm reading sooner is

> better- but I'm trying to think about appts, etc.

>

> 3rd- what do you do with all these mixed emotions?? feeling very

> perplexed right now.

>

> Well, thank you for letting me introduce myself- I hope to be

> getting to know you all soon.

>

> Lynn

[Guest guest]

Hello Lynn,

You've already received informative replies, but I just wanted to

post to welcome you to the group. We heard earlier on the message

board that there was a helmet article in Parent's magazine, and I'm

so pleased it spurred you on to check out plagio info. Hopefully

we'll be able to help you out with information and support as far as

treatment for Dylan goes.

Would you keep us posted on how your appts./phone calls go?

Take care,

Christie (Mom to Repo'd Remy)

> Hello, my name is Lynn and the other day I read the article in

> Parent's magazine " why wears a helmet " and immediately

> recognized my own son's [Dylan's] head. [and from the websites-

he

> really looks like a " before " picture] I've just been told by

> family/friends that it would round out or it wasn't that bad- and

my

> baby's dr told us we'd keep an eye on it (6 mo check up next

> month). I guess I was really in denial about it (don't want to

> think there's anything wrong with my son- much less believe that I

> had a hand in it). So today I'm looking up plagiocephaly (there's

> an amazing word to add into my vocabulary) on the web and getting

> myself informed.

>

> So- after hearing ravings about the folks on this site I'm seeking

> some advice...

> 1st- do I call my dr and make an appt or start seeking an

orthotist

> (sp?)? [my husband, a dr himself, says there's no specialists

here-

> and I see cranial tech is as close as chicago, a 2 hr drive]

>

> 2nd- do I need to go immediately or is this something that can

wait

> a month? we're going on vacation the first week of September and

> that's right when Dylan turns 6 months. I'm reading sooner is

> better- but I'm trying to think about appts, etc.

>

> 3rd- what do you do with all these mixed emotions?? feeling very

> perplexed right now.

>

> Well, thank you for letting me introduce myself- I hope to be

> getting to know you all soon.

>

> Lynn

[Guest guest]

HI LYNN.....THIS IS CAROL..AND THIS IS ALL NEW TO ME TOO!! AND MY SON IS 4

MOS OLD AND HIS NAME IS DYLAN TOO! MY PEDI TOLD ME NOT TO WORRY....IT WILL

GET BETTER ON ITS OWN.....THE SPECIALIST EVEN TOLD ME TO WAIT AND SEE HIM

BACK IN 6 WKS WHICH DYLAN WOULD BE ABOUT 5 1/2 MOS OLD....BUT I WENT TO

CRANIAL TECHNOLOGIES ANYWAYS.....THEY SAY HE IS MODERATE FOR FLATNESS....HIS

HEAD LOOKS LIKE THE BEFORE IN THAT ARTICLE TOO....SO I AM SEEING MY PEDI

AGAIN THIS FRIDAY FOR DYLAN'S 4 MO CHECK...AND INSISTING I WANT TO BAND

HIM...AND I NEED A LETTER OF NECESSITY AND A SCRIPT FOR IT....I THINK??? I

CAN TALK HIM INTO IT....HE HAS TORTICOLLIS TOO...SO I AM TRYING TO STRETCH

HIM TOO....AND I AM GOING TO A PT TODAY THAT DOES CRANIOSACRAL

THERAPY.....THERE ARE SO MANY APPROACHES....AND EVERYONE ON THIS SITE IS

GREAT! ME MYSELF....I JUST DONT WANT TO WAIT TOO LONG.....WANT HIM TO WEAR

THE HELMET THE LEAST AMOUNT OF TIME THAT HE NEEDS WITH THE BEST RESULTS HE

CAN GET FROM IT.....CAROL

hello, I'm new

> Hello, my name is Lynn and the other day I read the article in

> Parent's magazine " why wears a helmet " and immediately

> recognized my own son's [Dylan's] head. [and from the websites- he

> really looks like a " before " picture] I've just been told by

> family/friends that it would round out or it wasn't that bad- and my

> baby's dr told us we'd keep an eye on it (6 mo check up next

> month). I guess I was really in denial about it (don't want to

> think there's anything wrong with my son- much less believe that I

> had a hand in it). So today I'm looking up plagiocephaly (there's

> an amazing word to add into my vocabulary) on the web and getting

> myself informed.

>

> So- after hearing ravings about the folks on this site I'm seeking

> some advice...

> 1st- do I call my dr and make an appt or start seeking an orthotist

> (sp?)? [my husband, a dr himself, says there's no specialists here-

> and I see cranial tech is as close as chicago, a 2 hr drive]

>

> 2nd- do I need to go immediately or is this something that can wait

> a month? we're going on vacation the first week of September and

> that's right when Dylan turns 6 months. I'm reading sooner is

> better- but I'm trying to think about appts, etc.

>

> 3rd- what do you do with all these mixed emotions?? feeling very

> perplexed right now.

>

> Well, thank you for letting me introduce myself- I hope to be

> getting to know you all soon.

>

> Lynn

>

>

>

>

>

>

>

>

> For more plagio info

[Guest guest]

HI LYNN.....THIS IS CAROL..AND THIS IS ALL NEW TO ME TOO!! AND MY SON IS 4

MOS OLD AND HIS NAME IS DYLAN TOO! MY PEDI TOLD ME NOT TO WORRY....IT WILL

GET BETTER ON ITS OWN.....THE SPECIALIST EVEN TOLD ME TO WAIT AND SEE HIM

BACK IN 6 WKS WHICH DYLAN WOULD BE ABOUT 5 1/2 MOS OLD....BUT I WENT TO

CRANIAL TECHNOLOGIES ANYWAYS.....THEY SAY HE IS MODERATE FOR FLATNESS....HIS

HEAD LOOKS LIKE THE BEFORE IN THAT ARTICLE TOO....SO I AM SEEING MY PEDI

AGAIN THIS FRIDAY FOR DYLAN'S 4 MO CHECK...AND INSISTING I WANT TO BAND

HIM...AND I NEED A LETTER OF NECESSITY AND A SCRIPT FOR IT....I THINK??? I

CAN TALK HIM INTO IT....HE HAS TORTICOLLIS TOO...SO I AM TRYING TO STRETCH

HIM TOO....AND I AM GOING TO A PT TODAY THAT DOES CRANIOSACRAL

THERAPY.....THERE ARE SO MANY APPROACHES....AND EVERYONE ON THIS SITE IS

GREAT! ME MYSELF....I JUST DONT WANT TO WAIT TOO LONG.....WANT HIM TO WEAR

THE HELMET THE LEAST AMOUNT OF TIME THAT HE NEEDS WITH THE BEST RESULTS HE

CAN GET FROM IT.....CAROL

hello, I'm new

> Hello, my name is Lynn and the other day I read the article in

> Parent's magazine " why wears a helmet " and immediately

> recognized my own son's [Dylan's] head. [and from the websites- he

> really looks like a " before " picture] I've just been told by

> family/friends that it would round out or it wasn't that bad- and my

> baby's dr told us we'd keep an eye on it (6 mo check up next

> month). I guess I was really in denial about it (don't want to

> think there's anything wrong with my son- much less believe that I

> had a hand in it). So today I'm looking up plagiocephaly (there's

> an amazing word to add into my vocabulary) on the web and getting

> myself informed.

>

> So- after hearing ravings about the folks on this site I'm seeking

> some advice...

> 1st- do I call my dr and make an appt or start seeking an orthotist

> (sp?)? [my husband, a dr himself, says there's no specialists here-

> and I see cranial tech is as close as chicago, a 2 hr drive]

>

> 2nd- do I need to go immediately or is this something that can wait

> a month? we're going on vacation the first week of September and

> that's right when Dylan turns 6 months. I'm reading sooner is

> better- but I'm trying to think about appts, etc.

>

> 3rd- what do you do with all these mixed emotions?? feeling very

> perplexed right now.

>

> Well, thank you for letting me introduce myself- I hope to be

> getting to know you all soon.

>

> Lynn

>

>

>

>

>

>

>

>

> For more plagio info

[Guest guest]

thanks , I appreciate the practical advice. And yes, it's the

beach, Puerto Rico to be exact- I think I really would like to wait

until after the vacation for the band.

thanks again,

Lynn

[Guest guest]

thanks , I appreciate the practical advice. And yes, it's the

beach, Puerto Rico to be exact- I think I really would like to wait

until after the vacation for the band.

thanks again,

Lynn

[Guest guest]

definitely thanks.

Lynn

> > Hello, my name is Lynn and the other day I read the article in

> > Parent's magazine " why wears a helmet " and immediately

> > recognized my own son's [Dylan's] head. [and from the websites-

> he

> > really looks like a " before " picture] I've just been told by

> > family/friends that it would round out or it wasn't that bad-

and

> my

> > baby's dr told us we'd keep an eye on it (6 mo check up next

> > month). I guess I was really in denial about it (don't want to

> > think there's anything wrong with my son- much less believe that

I

> > had a hand in it). So today I'm looking up plagiocephaly

(there's

> > an amazing word to add into my vocabulary) on the web and

getting

> > myself informed.

> >

> > So- after hearing ravings about the folks on this site I'm

seeking

> > some advice...

> > 1st- do I call my dr and make an appt or start seeking an

> orthotist

> > (sp?)? [my husband, a dr himself, says there's no specialists

> here-

> > and I see cranial tech is as close as chicago, a 2 hr drive]

> >

> > 2nd- do I need to go immediately or is this something that can

> wait

> > a month? we're going on vacation the first week of September and

> > that's right when Dylan turns 6 months. I'm reading sooner is

> > better- but I'm trying to think about appts, etc.

> >

> > 3rd- what do you do with all these mixed emotions?? feeling very

> > perplexed right now.

> >

> > Well, thank you for letting me introduce myself- I hope to be

> > getting to know you all soon.

> >

> > Lynn

[Guest guest]

definitely thanks.

Lynn

> > Hello, my name is Lynn and the other day I read the article in

> > Parent's magazine " why wears a helmet " and immediately

> > recognized my own son's [Dylan's] head. [and from the websites-

> he

> > really looks like a " before " picture] I've just been told by

> > family/friends that it would round out or it wasn't that bad-

and

> my

> > baby's dr told us we'd keep an eye on it (6 mo check up next

> > month). I guess I was really in denial about it (don't want to

> > think there's anything wrong with my son- much less believe that

I

> > had a hand in it). So today I'm looking up plagiocephaly

(there's

> > an amazing word to add into my vocabulary) on the web and

getting

> > myself informed.

> >

> > So- after hearing ravings about the folks on this site I'm

seeking

> > some advice...

> > 1st- do I call my dr and make an appt or start seeking an

> orthotist

> > (sp?)? [my husband, a dr himself, says there's no specialists

> here-

> > and I see cranial tech is as close as chicago, a 2 hr drive]

> >

> > 2nd- do I need to go immediately or is this something that can

> wait

> > a month? we're going on vacation the first week of September and

> > that's right when Dylan turns 6 months. I'm reading sooner is

> > better- but I'm trying to think about appts, etc.

> >

> > 3rd- what do you do with all these mixed emotions?? feeling very

> > perplexed right now.

> >

> > Well, thank you for letting me introduce myself- I hope to be

> > getting to know you all soon.

> >

> > Lynn

[Guest guest]

Carol,

totally with you on the most effective/least time approach... and my

Dylan so looks like a before picture too! that's how I knew that's

what was going on... good luck convincing your ped

Lynn

> HI LYNN.....THIS IS CAROL..AND THIS IS ALL NEW TO ME TOO!! AND MY

SON IS 4

> MOS OLD AND HIS NAME IS DYLAN TOO! MY PEDI TOLD ME NOT TO

WORRY....IT WILL

> GET BETTER ON ITS OWN.....THE SPECIALIST EVEN TOLD ME TO WAIT AND

SEE HIM

> BACK IN 6 WKS WHICH DYLAN WOULD BE ABOUT 5 1/2 MOS OLD....BUT I

WENT TO

> CRANIAL TECHNOLOGIES ANYWAYS.....THEY SAY HE IS MODERATE FOR

FLATNESS....HIS

> HEAD LOOKS LIKE THE BEFORE IN THAT ARTICLE TOO....SO I AM SEEING

MY PEDI

> AGAIN THIS FRIDAY FOR DYLAN'S 4 MO CHECK...AND INSISTING I WANT TO

BAND

> HIM...AND I NEED A LETTER OF NECESSITY AND A SCRIPT FOR IT....I

THINK??? I

> CAN TALK HIM INTO IT....HE HAS TORTICOLLIS TOO...SO I AM TRYING TO

STRETCH

> HIM TOO....AND I AM GOING TO A PT TODAY THAT DOES CRANIOSACRAL

> THERAPY.....THERE ARE SO MANY APPROACHES....AND EVERYONE ON THIS

SITE IS

> GREAT! ME MYSELF....I JUST DONT WANT TO WAIT TOO LONG.....WANT HIM

TO WEAR

> THE HELMET THE LEAST AMOUNT OF TIME THAT HE NEEDS WITH THE BEST

RESULTS HE

> CAN GET FROM IT.....CAROL

> hello, I'm new

>

>

> > Hello, my name is Lynn and the other day I read the article in

> > Parent's magazine " why wears a helmet " and immediately

> > recognized my own son's [Dylan's] head. [and from the websites-

he

> > really looks like a " before " picture] I've just been told by

> > family/friends that it would round out or it wasn't that bad-

and my

> > baby's dr told us we'd keep an eye on it (6 mo check up next

> > month). I guess I was really in denial about it (don't want to

> > think there's anything wrong with my son- much less believe that

I

> > had a hand in it). So today I'm looking up plagiocephaly

(there's

> > an amazing word to add into my vocabulary) on the web and getting

> > myself informed.

> >

> > So- after hearing ravings about the folks on this site I'm

seeking

> > some advice...

> > 1st- do I call my dr and make an appt or start seeking an

orthotist

> > (sp?)? [my husband, a dr himself, says there's no specialists

here-

> > and I see cranial tech is as close as chicago, a 2 hr drive]

> >

> > 2nd- do I need to go immediately or is this something that can

wait

> > a month? we're going on vacation the first week of September and

> > that's right when Dylan turns 6 months. I'm reading sooner is

> > better- but I'm trying to think about appts, etc.

> >

> > 3rd- what do you do with all these mixed emotions?? feeling very

> > perplexed right now.

> >

> > Well, thank you for letting me introduce myself- I hope to be

> > getting to know you all soon.

> >

> > Lynn

> >

> >

> >

> >

> >

> >

> >

> >

> > For more plagio info

[Guest guest]

Carol,

totally with you on the most effective/least time approach... and my

Dylan so looks like a before picture too! that's how I knew that's

what was going on... good luck convincing your ped

Lynn

> HI LYNN.....THIS IS CAROL..AND THIS IS ALL NEW TO ME TOO!! AND MY

SON IS 4

> MOS OLD AND HIS NAME IS DYLAN TOO! MY PEDI TOLD ME NOT TO

WORRY....IT WILL

> GET BETTER ON ITS OWN.....THE SPECIALIST EVEN TOLD ME TO WAIT AND

SEE HIM

> BACK IN 6 WKS WHICH DYLAN WOULD BE ABOUT 5 1/2 MOS OLD....BUT I

WENT TO

> CRANIAL TECHNOLOGIES ANYWAYS.....THEY SAY HE IS MODERATE FOR

FLATNESS....HIS

> HEAD LOOKS LIKE THE BEFORE IN THAT ARTICLE TOO....SO I AM SEEING

MY PEDI

> AGAIN THIS FRIDAY FOR DYLAN'S 4 MO CHECK...AND INSISTING I WANT TO

BAND

> HIM...AND I NEED A LETTER OF NECESSITY AND A SCRIPT FOR IT....I

THINK??? I

> CAN TALK HIM INTO IT....HE HAS TORTICOLLIS TOO...SO I AM TRYING TO

STRETCH

> HIM TOO....AND I AM GOING TO A PT TODAY THAT DOES CRANIOSACRAL

> THERAPY.....THERE ARE SO MANY APPROACHES....AND EVERYONE ON THIS

SITE IS

> GREAT! ME MYSELF....I JUST DONT WANT TO WAIT TOO LONG.....WANT HIM

TO WEAR

> THE HELMET THE LEAST AMOUNT OF TIME THAT HE NEEDS WITH THE BEST

RESULTS HE

> CAN GET FROM IT.....CAROL

> hello, I'm new

>

>

> > Hello, my name is Lynn and the other day I read the article in

> > Parent's magazine " why wears a helmet " and immediately

> > recognized my own son's [Dylan's] head. [and from the websites-

he

> > really looks like a " before " picture] I've just been told by

> > family/friends that it would round out or it wasn't that bad-

and my

> > baby's dr told us we'd keep an eye on it (6 mo check up next

> > month). I guess I was really in denial about it (don't want to

> > think there's anything wrong with my son- much less believe that

I

> > had a hand in it). So today I'm looking up plagiocephaly

(there's

> > an amazing word to add into my vocabulary) on the web and getting

> > myself informed.

> >

> > So- after hearing ravings about the folks on this site I'm

seeking

> > some advice...

> > 1st- do I call my dr and make an appt or start seeking an

orthotist

> > (sp?)? [my husband, a dr himself, says there's no specialists

here-

> > and I see cranial tech is as close as chicago, a 2 hr drive]

> >

> > 2nd- do I need to go immediately or is this something that can

wait

> > a month? we're going on vacation the first week of September and

> > that's right when Dylan turns 6 months. I'm reading sooner is

> > better- but I'm trying to think about appts, etc.

> >

> > 3rd- what do you do with all these mixed emotions?? feeling very

> > perplexed right now.

> >

> > Well, thank you for letting me introduce myself- I hope to be

> > getting to know you all soon.

> >

> > Lynn

> >

> >

> >

> >

> >

> >

> >

> >

> > For more plagio info