Guest guest Posted September 6, 2000 Report Share Posted September 6, 2000 Anne and Eva, I think Eva is talking about another help site somewhat like Charmayne's at: http://freepages.health.rootsweb.com/~charmayn/links.html or Jeff's at: http://www.wenet.net/%7Eccjm/shy-drager/ Eva might want to look at them or helping Pam Bower with the one at egroups. We need to look at all the links and decide which ones give the best info on MSA. There is still a need for the anecdotal stuff we have come up with (some of which is now mentioned on medical websites like the exercise). Things like raising the head of the bed 6-8 inches to lower reclining BP for OH; hydration before surgery or anesthesia; and other ideas we use regularly, need to be documented on a website. I was going to do it on my website last year, but got sidetracked when Mitch came to live with us. Maybe one of our support groups with medical contacts could get someone to look it over. Or we could just put a disclaimer on it that we feel that these things help MSA patients. Let us know more about your experience and what you want to do, and we will help you out with ideas on what is still needed Eva. Take care, Bill and Charlotte ----------------------------------------------------------------------- Pledger wrote: > Hi Eva > Sounds like a good idea perhaps, but for myself I couldn't be happier than > with this group. Sorry. Love Anne > The best and most beautiful things in the world cannot be seen nor touched > but are felt in the heart. Helen Keller > > > I am toying with the idea of putting my own site together for MSA, more > > Quote Link to comment Share on other sites More sharing options...
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