K & Don

[Guest guest]

Hi and husband Don, Welcome to our little "air" family. Well, we are not quite so little anymore..... I just wanted to let you know that the cough was my first symptom too. I coughed for years before I was diagnosed. It wasn't until I walked up a flight of stairs and got real out of breath that they finally found something. My primary care doctor heard the crackling in my lungs and referred me to a pulmonologist. The pulmonologist had me walk up two flights of stairs with a pulse ox on my finger. We got to the top of the stairs and my saturation was 80. He said you need oxygen. I said no I don't. He said, I'm orderering you oxygen. It sat in my house for awhile then I started using it - This was five years ago. I've been on oxygen full time for four years now. I'm 49 years young and this disease sucks. Most of the time we are

writing how we HATE IT VERY MUCH. But, you have a wonderful group of supportive, caring, emphathatic people on this board, who do get it and understand what you are going through. You may want to check out the caregiver group for yourself. But, you are welcome here too. Hi Don. Leanne uip 1/03 Illinois Kennelly wrote: Thanks for responding. Naw! He won't post. He lets me do all the computer work. He can turn it on and get to email but

that is it. He is an old farmer who never learned new tech - now I say that tongue in cheek because computers are pretty old and I struggle to tape on the TV. We have two boys and yes they do know and are very concerned. The one that lives close is very helpful but they both have young families and they feel helpless. We are going to have to put a hand rail on the back door and he will do it for us. We have a wonderful pulmonologist, 2 hours away, who if I have a problem, can talk directly to. He told us initially that this is a treacherous disease but we are going to fight like crazy to save him. He continues to weaken. He has a cough that developed 6 months ago and that was the first real symptom that developed. The doc said that he has never had coughing be the first and primary symptom. 6 months of listen to him cough hard is tough. I am

a school teacher close to retirement and have had to take an indefinite leave of absence to finish out the year. I also had another job as a tutor of children with dyslexia and have stopped them both. To go from busy,busy,busy has been tough. Thanks for your interest and concern. I fear he is very very ill, but I'm not sure how much is the medicine he is on. One day scared to death and the next day confident that we are going to make this. Sorry to ramble. Kenn husband Don diagnosed fall 2006. Sher Bauman <bofuswbcable (DOT) net> wrote: ... there really aren't any "procedures" as such and you'll get used to everything as you read and post. Peggy named us the "Air-Family" and

it stuck. We post all different times...some are in Africa, Scotland, Australia....and all across the country. Yes, your email went out to about 600 members I think we are now. Not all post and some post only occasionally. There does seem to be quite a few of us who post regularly...you'll learn our names quickly. Does your husband have a good support group within his family? Do you have kids and do they know yet? Is he seeing a pulmonologist? Will he be posting himself? What is his name? Mama-Sher, age 69. IPF 3-06, OR. Don't fret about tomorrow, God is already there! Re: Hello Oh Thank you. I am reading a book about about a guy who has it and I sure wish I could talk to the author. I'm not sure of any procedures here. Is there a time when a bunch are online? Did my email go out to a bunch of people? Thanks Terry, I appreciate the hand of help. Terry Pennisi <terrypennisi> wrote: Hi , I am new to this myself, but I am sure you will be as happy as I've been that I found this group. You can cry, moan, get angry, or just be a little nuts and these people will still love you and be there for you! Ask any questions have, someone will have the answer, or point you in the right direction. Anytime you need me, I will be there. For now, I'll just send some hugs. Keep positive, Terry Kennelly <l_kennelly> wrote: My name is and my husband has been diagnosed with pulmonary fibrosis. Whoosh, I've had problems finding someone to talk to

me. He is 67 and we feel like we have been run over and tromped upon by this disease. Just wanted to say hello and introduce myself. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Terry Pennisi 11/07 IPF Nevada Never miss a thing. Make Yahoo your homepage. Looking for last minute shopping deals? Find them fast with Yahoo! Search. Looking for last minute shopping deals? Find them fast with Yahoo! Search.

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