newbie intro

March 27, 2008

Rebekah--

I've a question about celiac-- I wonder if you might be able to help me. I've

been tested

and was told the test was negative, but have not yet seen the actual labs.

Is the test for celiac simply positive or negative, or is it a range and I might

possible be

close to gluten intolerance, but just not w/i the given positive range? Similar

to thyroid or

anemia tests?

I've been trying to find information about " subclinical " gluten intolerance, but

have had

little luck. Can you direct me to any? Perhaps the books you suggested adress

it-- I " ll

check them out, too. Thanks for speaking up, cos this has been on my mind given

my

absorption difficulties. I've been cutting it out as much as possible, just in

case, but would

like to get clearer on this piece.

ty.

Heidi

> Heidi

>

> Heidi, I would strongly consider evaluation for Celiac disease/gluten

intolerance. Many

people with gluten allergies have an increased rates of other autoimmune

conditions,

including thyroid problems, rheumatoid arthritis, lupus, diabetes, etc. An

excellent read

on this is " Dangerous Grains, " by Dr. Braly, or " Celiac Disease: A Hidden

Epidemic,

by Dr. Green. Often persons with Celiac have intestinal damage and

malabsorption

issues, which can lead to anemia. They also have tissue damage in other organs,

even in

neural tissue. Something to consider investigating.

>

> HTH

> Rebekah

>

March 27, 2008

for starters, look at http://www.drkalish.com/info/gluten/article1.htm

a recent scientific paper (look up PubMed using the PMID 17873753)

shows that celiac disease and gluten intolerance both lead to

subclinical neurological disorders in children. email me off list if

you want more info or if you want pointers to gluten-free lists - this

is an iodine list.

-jennifer

On Mar 27, 2008, at 12:59 PM, htbacon wrote:

> Rebekah--

>

> I've a question about celiac-- I wonder if you might be able to help

> me. I've been tested

> and was told the test was negative, but have not yet seen the

> actual labs.

>

> Is the test for celiac simply positive or negative, or is it a range

> and I might possible be

> close to gluten intolerance, but just not w/i the given positive

> range? Similar to thyroid or

> anemia tests?

>

> I've been trying to find information about " subclinical " gluten

> intolerance, but have had

> little luck. Can you direct me to any? Perhaps the books you

> suggested adress it-- I " ll

> check them out, too. Thanks for speaking up, cos this has been on my

> mind given my

> absorption difficulties. I've been cutting it out as much as

> possible, just in case, but would

> like to get clearer on this piece.

>

> ty.

> Heidi

>> Heidi

>>

>> Heidi, I would strongly consider evaluation for Celiac disease/

>> gluten intolerance. Many

> people with gluten allergies have an increased rates of other

> autoimmune conditions,

> including thyroid problems, rheumatoid arthritis, lupus, diabetes,

> etc. An excellent read

> on this is " Dangerous Grains, " by Dr. Braly, or " Celiac

> Disease: A Hidden Epidemic,

> by Dr. Green. Often persons with Celiac have intestinal

> damage and malabsorption

> issues, which can lead to anemia. They also have tissue damage in

> other organs, even in

> neural tissue. Something to consider investigating.

>>

>> HTH

>> Rebekah

>>

>

> ------------------------------------

>

March 27, 2008

Thanks for the link, and sorry for going off topic a little.

Heidi

>

> for starters, look at http://www.drkalish.com/info/gluten/article1.htm

>

> a recent scientific paper (look up PubMed using the PMID 17873753)

> shows that celiac disease and gluten intolerance both lead to

> subclinical neurological disorders in children. email me off list if

> you want more info or if you want pointers to gluten-free lists - this

> is an iodine list.

>

> -jennifer

>

March 27, 2008

Have you been screened for celiac disease? It can be at the root of all these problems you listed.If you want to get a diagnosis, do not go on the gluten free diet until after the testing. (Endoscopy) If you don't need a diagnosis for insurance or whatever, go on the gluten free diet and see if you feel better. You can still get a stool antibody test, and a genetic test.

If you feel dramatically better off gluten it is a pretty sure sign you have been under-absorbing key nutrients.-- Warmest Regards,Robin Little

Newbie Intro

Posted by: " htbacon "

htbacon@...

htbacon

Wed Mar 26, 2008 5:13 pm (PDT)

Hello--

Ten years ago I was diagnosed with severe anemia and they still don't really know why. I

know for certain I've got Hashimoto's, Sjogrens, out of whack hormones, possibly lupus. And I also know I'm still exhausted.

My first question is..... is there some other piece I need to consider? I apologize for the

vagueness of the question, but each time one issue has been addressed ( iron or

horomones or thyroid or whatever) I thought the doc was getting to the core issue. No

one was considering the interplay of all the systems and treating them in tandem.

All input or ideas welcome--ty---

Heidi

March 28, 2008

I don't know which test(s) your doctor ordered. Most MDs order blood tests, which can have a false negative rate of between 30-50%. The true industry standard is still the old fashioned villi sampling by endoscopy. That will tell if you have the intestinal damage related to gluten intolerance, i.e., Celiac. The problem with this is that many people are now discovering that some gluten intolerance doesn't cause intestinal damage, but organ or tissue damage elsewhere in the body. After receiving no help or change from our conventional MD and his testing, we ordered tests through Dr. Fine's lab, Enterolab. We found out 3 members of our family had Celiac, 2 had gluten intolerance without gut damage, but damage elsewhere. Remember, gluten can damage many body systems, such as thyroid, adrenal, neural, etc. Feel free to contact me offlist for more information on this. rmd1019@... Rebekah Is the test for celiac simply positive or negative, or is it a range and I might possible be close to gluten intolerance, but just not w/i the given positive range? Similar to thyroid or anemia tests?I've been trying to find information about "subclinical" gluten intolerance, but have had little luck. Can you direct me to any? Perhaps the books you suggested adress it-- I"ll check them out, too. Thanks for speaking up, cos this has been on my mind given my absorption difficulties. I've been cutting it out as much as possible, just in case, but would like to get clearer on this piece.ty. :)Heidi

Looking for last minute shopping deals? Find them fast with Search.

March 28, 2008

There is some information about this at www.celiac.com. The field

is changing rapidly. " Celiac " is a narrowly defined disease: to

be " celiac " you have to have a certain degree of gut damage.

But you can have a fair amount of gluten-related gut damage

and it isn't " celiac " until it gets to a certain stage. Which

is more than a little odd when you think about it. It's like saying

you aren't diabetic until you get gangrene.

Dr. Fine's test shows if you are exhibiting a high level of

immune-reactivity to gluten ... which might cause celiac

later (like high blood sugar levels might cause heart

disease or poor circulation). People who react to gluten

are statistically more likely to get a whole range of diseases.

The book " Dangerous grains " talks about that a lot and in

depth.

So yeah, it is decidedly a range of values. But if you

have pretty severe problems, and malabsorption, there

is a good chance you DO have " classic celiac " which

at least makes diagnosis easier.

Also, the thyroid damage is probably caused not by the

gluten itself, but by the way gluten triggers zonulin release.

Zonulin opens the gut junctures and allows rogue proteins

into the blood, which triggers autoimmune diseases. Some

people don't close the juncture very fast, as has been shown

for celiacs, but it's likely there are other categories of people

with the same problem who are not celiac. What will be really

great is when you can get a " zonulin test " .

> Rebekah

>

> Is the test for celiac simply positive or negative, or is it a range and I

> might possible be

> close to gluten intolerance, but just not w/i the given positive range?

> Similar to thyroid or

> anemia tests?

>

> I've been trying to find information about " subclinical " gluten intolerance,

> but have had

> little luck. Can you direct me to any? Perhaps the books you suggested

> adress it-- I " ll

> check them out, too. Thanks for speaking up, cos this has been on my mind

> given my

> absorption difficulties. I've been cutting it out as much as possible, just

> in case, but would

> like to get clearer on this piece.

>

> ty.

> Heidi

>

> ________________________________

> Looking for last minute shopping deals? Find them fast with Search.

>

--

March 29, 2008

Gracia said--

" you might need a more therapeutic dose of HC too.

Gracia "

What is a more therapeutic dose? More than 20mg? Or using cortef instead?

Thank you all for the info and leads on Celiac. I was given a blood test for

celiac and now

see it's limitations so will pursue other testing.

I've ordered the iodoral so will start that soon.... hope it helps....

Heidi

--- In iodine , "

March 30, 2008

IMO a therapeutic dose of HC would be 5mg 4X a day. Just wanted to mention it b/c sometimes a poster will say s/he is taking HC, but then it turns out to be too little dose/wrong dosing schedule.

Gracia

Gracia said--" you might need a more therapeutic dose of HC too.Gracia"What is a more therapeutic dose? More than 20mg? Or using cortef instead?

..

June 30, 2008

HEy Leona!

well it will sure be different making M & P and selling

it there in Texas!

The heat can be quite a challenge at shows etc! Good

luck on your move... San is such a nice city -

at least to visit!! ;o)

Welcome,

Willow

--- Leona F <wahinepaddler4@...>

wrote:

> My name is Leona.I have been M & P soaping for 11

> years and CP soaping

> for 2 years.I have sold my M & P soaps and other

> sundries-oils,lotions

> and butters in the past though after the birth of my

> youngest son(I

> have 2 boys 10yo & 4yo)I took some time off from

> selling to spend some

> time being a mama..and to create stuff 'just

> because'.

>

> I have been selling candles for 3 years and within

> the past year I have started a jewelry company.I am

> looking forward to starting up my

> soaping business again but in due time as my family

> and I are moving to San ,TX from DC in late

> July..

>

> I look forward to learning tons from this group and

> hopefully I will

> get to give a little help when I can..

>

> thanks for letting me join

>

> Leona F

>

____________________________________________________________

> Enter for Your Chance to WIN*

> The TotalBeauty.com Summer Spa Sweepstakes!

>

http://thirdpartyoffers.netzero.net/TGL2241/fc/JKFkuJkEP31Q1ORrU3MP52pRn07mVV2Pr\

XL7rGZQqUQjL69WmpKnbj/

>

> ------------------------------------

>

> New Garden Seeds in! Don't miss the Sale page for

> great prices on herbs , tinctures, teas and more

> Flat Rate Shipping! Just $5.99 per order ( over

> $25.00)! No matter how heavy the order you pay just

> $5.99. See Site for details

>

> http://glenbrookfarm.com/store/specialsseeds_1.html

>

July 12, 2008

On Jul 12, 2008, at 4:32 AM, roberto gonzales wrote:

> Hello to all! I'm a newbie in perfume making and I wish to make a

> request if anybody can suggest a good book for the subject " perfume

> making " ? Any help will be much appreciated, thank you in advance!

Try Essence & Alchemy by Mandy Aftel (who also offers long-distance

courses). There are numerous long-distance classes you can take, many

offered by members of this group.

July 12, 2008

Adam Gottschalk wrote:

> On Jul 12, 2008, at 4:32 AM, roberto gonzales wrote:

>

>> Hello to all! I'm a newbie in perfume making and I wish to make a

>> request if anybody can suggest a good book for the subject " perfume

>> making " ? Any help will be much appreciated, thank you in advance!

>

> Try Essence & Alchemy by Mandy Aftel (who also offers long-distance

> courses). There are numerous long-distance classes you can take, many

> offered by members of this group.

>

Hi Adam, o...

Essence and Alchemy is a great book to get you started, o...

The book gives the history of, and the basic methodology of, Natural

Perfume making...

This isn't quite the same as mainstream perfumery, which makes extensive

use of man-made (synthetic) essences...

The book also offers lists of natural essences to get you on your way....

--

W. Bourbonais

L'Hermite Aromatique

A.J.P. (GIA)

November 11, 2008

Hi Karla and welcome to the group. Hope your daughter does well with the

mtx added to her meds. Did it take you long to get a diagnosis? Has your

daughter had her eyes checked yet for uveitis? That is a standard

question I ask of new folks. With your daughter's diagnosis, she should

have a slit lamp test done to check for inflammation in the eyes. You

cannot detect it just by looking at her. Just thought I would mention

it, in case the drs did not.

Feel free to ask any questions, or jump into the conversation. We offer

each other a lot of support here. Welcome! Michele ( 21, spondy)

________________________________

From: [mailto: ] On

Behalf Of Siti

Sent: Thursday, November 06, 2008 4:29 PM

Subject: newbie intro

Hi everyone! I just found this group. My 11 year old daughter was

very recently diagnosed with RF positive Polyarticular JIA. She has

been on Naptroxen for six weeks and just this week Methotrexate was

added. My daughter was diagnosed with Encopresis (chronic

constipation) when she was four years old. The JIA meds seem to be

making the Encopresis worse, and so we have increased her dosage for

the Encopresis meds.

I don't have any particular question or comment, just wanted to

say 'Hi.'

Karla

(from Canada)

November 11, 2008

Hi Karla

Just acknowledging your intro

Love

xxxxxxxxx

From: [mailto: ] On Behalf

Of Tepper, Michele

Sent: 11 November 2008 21:17

Subject: RE: newbie intro

Hi Karla and welcome to the group. Hope your daughter does well with the

mtx added to her meds. Did it take you long to get a diagnosis? Has your

daughter had her eyes checked yet for uveitis? That is a standard

question I ask of new folks. With your daughter's diagnosis, she should

have a slit lamp test done to check for inflammation in the eyes. You

cannot detect it just by looking at her. Just thought I would mention

it, in case the drs did not.

Feel free to ask any questions, or jump into the conversation. We offer

each other a lot of support here. Welcome! Michele ( 21, spondy)

________________________________

From: <mailto: %40>

[mailto: <mailto: %40> ] On

Behalf Of Siti

Sent: Thursday, November 06, 2008 4:29 PM

<mailto: %40>

Subject: newbie intro

Hi everyone! I just found this group. My 11 year old daughter was

very recently diagnosed with RF positive Polyarticular JIA. She has

been on Naptroxen for six weeks and just this week Methotrexate was

added. My daughter was diagnosed with Encopresis (chronic

constipation) when she was four years old. The JIA meds seem to be

making the Encopresis worse, and so we have increased her dosage for

the Encopresis meds.

I don't have any particular question or comment, just wanted to

say 'Hi.'

Karla

(from Canada)

November 25, 2008

Bernie,

Welcome to Natural Perfumery !

This is a world of wonder and the combinations never end.

Have fun and ask away too.

Organically Yours,

tp://organicgiftsbydiana.mybisi.com/

December 31, 2008

Welcome ! I am (owner of the group and moderator of the professional iodine group) and a 9 year thyroid cancer survivor. I have been on 100 mgs or more for over a year. I am doing fine - actually better than fine. My cancer markers are down and I feel wonderful. I too have a symporter issue. I had 3 rounds of RAI for thyroid cancer and we think this damaged my symporters. Are you taking a b2/b3 or are you doing the ATP CoFactors product. Did Dr Flechas recommend taking high doses of Vit C with that?

You may also want to consider testing for the MTHFR defect. It will cause a lot of issues in utilization of nutrients (B12, Folate are the big ones) along with being able to detoxify your body. It is also tied to low thyroid. Have you had thyroid levels checked? Low thyroid is common in BC patients. How about your sex hormones. It is a balancing act and it all needs to "balance" to get you well.

www.naturalthyroidchoices.com

Newbie Intro

Hi Everyone,I'm new to this list and thought I would introduce myself. I was dx w/metastatic breast cancer (peritoneal mets and now bones) in Mar '97. Have ben doing alternative treatment the whole time but have recently agreed to Zometa for my bones. I started iodine a little over 2 months ago, at 50mg/day. No problems at all. Had a phone consult w/Dr Flechas and, after reviewing my loading test results, he thinks I have a symporter issue cuz my results were darn near normal, so he thinks I'm probably peeing it all out. So I have just started increasing my dose and adding the B2/B3 as he recommended. He wants me at 100mg/day. Is anyone here doing doses this high and, if so, have you had any problems with it? I added 25mg, yesterday, to my 50 for a total of 75. Thought I'd ease up to 100. I hope each of you has a wonderful New Year!!xxoo

December 31, 2008

>

> Welcome ! I am (owner of the group and moderator of the

professional iodine group) and a 9 year thyroid cancer survivor. I have been on

100 mgs

or more for over a year. I am doing fine - actually better than fine. My

cancer markers are

down and I feel wonderful. I too have a symporter issue. I had 3 rounds of RAI

for thyroid

cancer and we think this damaged my symporters. Are you taking a b2/b3 or are

you

doing the ATP CoFactors product. Did Dr Flechas recommend taking high doses of

Vit C

with that?

>

> You may also want to consider testing for the MTHFR defect. It will cause a

lot of issues

in utilization of nutrients (B12, Folate are the big ones) along with being able

to detoxify

your body. It is also tied to low thyroid. Have you had thyroid levels

checked? Low

thyroid is common in BC patients. How about your sex hormones. It is a

balancing act

and it all needs to " balance " to get you well.

>

Hi ! Yes, I have my thyroid numbers checked regularly ... please see

my last post

that I forgot to add to my first one ... Graves Disease since '03, which is kind

of opposite of

my breast cancer types! I am also in the process of balancing my hormones!

xoo

>

December 31, 2008

hi

I am taking 100mg Iodoral for almost a year now, plus B2/B3 2X a day with B vitamins. I have never been Dxed with cancer but have been untreated hypothyroid my whole life. I had a partial thyroidectomy at age 22 for "hyperthyroidism" and then no meds for 30 years. if you read the info at http://www.optimox.com you will see that Graves/hyper used to be treated with iodine. hypo/hyper are the same illness to me.

Gracia

Hi Everyone,I'm new to this list and thought I would introduce myself. I was dx w/metastatic breast cancer (peritoneal mets and now bones) in Mar '97. Have ben doing alternative treatment the whole time but have recently agreed to Zometa for my bones. I started iodine a little over 2 months ago, at 50mg/day. No problems at all. Had a phone consult w/Dr Flechas and, after reviewing my loading test results, he thinks I have a symporter issue cuz my results were darn near normal, so he thinks I'm probably peeing it all out. So I have just started increasing my dose and adding the B2/B3 as he recommended. He wants me at 100mg/day. Is anyone here doing doses this high and, if so, have you had any problems with it? I added 25mg, yesterday, to my 50 for a total of 75. Thought I'd ease up to 100. I hope each of you has a wonderful New Year!!xxoo

No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.176 / Virus Database: 270.10.1/1870 - Release Date: 12/31/2008 8:44 AM

May 21, 2009

So what happens when you correct the low T3 and speed up your metabolism a little? On May 21, 2009, at 6:14 PM, "horrordiet" <horrordiet@...> wrote:

Hi folks! I'm new, head spinning with all I've to read on iodine

therapy. I've low T3, fibro breasts, adrenal fatigue, Celiac disease,

chemical sensitivities, high mercury levels, and 100lbs. of stubborn

weight to lose. I've tried many diets, cleanses, products and

modalities....even tried drinking my own pee at one point! This gives

you a heads-up on my desperation and desire to get better. So far,

nothing has made any sort of dent.

I do think iodine deficiency is part of the picture. I'm thinking of

trying Trapper's SSKI w/iodine (from Curezone). A ND long ago had tried

a treatment of iodine painting on the cervix coupled with an IV of Mg,

C, B vitamins, etc. to reduce the fibrocystic breast lumps, but I

swelled up really bad and we assumed I had an allergy to it. I do have

a lot of food allergies, but I'm led to think it might have been a

detox reaction or fluoride/bromide flush.

If anyone has any testimonials or feedback on weight loss, adrenal

fatigue, or iodine allergy, I'd love to hear it.

Melle

May 21, 2009

> Hi folks! I'm new, head spinning with all I've to read on iodine

> therapy. I've low T3, fibro breasts, adrenal fatigue, Celiac disease,

> chemical sensitivities, high mercury levels, and 100lbs. of stubborn

> weight to lose. I've tried many diets, cleanses, products and

> modalities....even tried drinking my own pee at one point! This gives

> you a heads-up on my desperation and desire to get better. So far,

> nothing has made any sort of dent.

>

> I do think iodine deficiency is part of the picture. I'm thinking of

> trying Trapper's SSKI w/iodine (from Curezone). A ND long ago had tried

> a treatment of iodine painting on the cervix coupled with an IV of Mg,

> C, B vitamins, etc. to reduce the fibrocystic breast lumps, but I

> swelled up really bad and we assumed I had an allergy to it. I do have

> a lot of food allergies, but I'm led to think it might have been a

> detox reaction or fluoride/bromide flush.

>

> If anyone has any testimonials or feedback on weight loss, adrenal

> fatigue, or iodine allergy, I'd love to hear it.

>

> Melle

>

May 24, 2009

So do the naturopaths say you are hypo? Why don't they want to treat the low T3? What is your TSH, your free T3 and free T4? Do you have antibodies?From: horrordiet <horrordiet@...>iodine Sent: Thursday, May 21, 2009 8:46:53 PMSubject: Re: Newbie intro

> Hi folks! I'm new, head spinning with all I've to read on iodine

> therapy. I've low T3, fibro breasts, adrenal fatigue, Celiac disease,

> chemical sensitivities, high mercury levels, and 100lbs. of stubborn

> weight to lose. I've tried many diets, cleanses, products and

> modalities.. ..even tried drinking my own pee at one point! This gives

> you a heads-up on my desperation and desire to get better. So far,

> nothing has made any sort of dent.

>

> I do think iodine deficiency is part of the picture. I'm thinking of

> trying Trapper's SSKI w/iodine (from Curezone). A ND long ago had tried

> a treatment of iodine painting on the cervix coupled with an IV of Mg,

> C, B vitamins, etc. to reduce the fibrocystic breast lumps, but I

> swelled up really bad and we assumed I had an allergy to it. I do have

> a lot of food allergies, but I'm led to think it might have been a

> detox reaction or fluoride/bromide flush.

>

> If anyone has any testimonials or feedback on weight loss, adrenal

> fatigue, or iodine allergy, I'd love to hear it.

>

> Melle

>

July 7, 2009

Lucia - I'm sorry to hear that your child has been diagnosed with Selective IgA.

How old is he? It is fortunate that you have such a reputable Children's

Hospital to go there for an opinion.

You say there isn't anything you can do to prevent his health issues, but there

is. There are broad spectrum antibiotics that provide a good range of coverage

for his condition. Some doctors like to alternate to a different one every

month and do a range of 3 different ones. Our daughter is 14 and has been off

and on prophylactic antibiotics since she was 2. She has no antibiotic

resistance and has no antibiotic allergies.

Preventing lung damage and sinus disease is probably your biggest task right

now. Has he had a baseline CT scan of either? Has he had a Prevnar vaccination

and did they test his response to it? Does he mount any response to his baby

vaccinations (MMR, HiB, DtP)?

Testing his antibody function will be just as important as knowing the IgA

level. Have they given you an IgG number?

It can all seem overwhelming in the beginning but with good specialists and a

good primary doctor things should improve soon hopefully.

Ursula Holleman

mom to (16) and Macey (14)

www.caringbridge.org/visit/maceyholleman

July 7, 2009

HI Lucia, My son Lucas ( now 13) started out with IgA deficiency but then

progressed into CVID. He also has severe allergies. Have they tested his

response to a Pneumovaccine? Does he develop antibodies? How about to his other

vaccines? I would caution you a little bit with annual pneumonias. They can scar

the lungs and cause long term problems. I was also concerned about the

prophylactic antibiotics but the organ damage can be worse than some resistance

issues. How is his overall quality of life?? I think that is what you look at.

My son got to the point that he was NEVER well and caught everything out there.

Lucas has been on IVIg ( gamma globulin since he was 3 and started Sub Q at age

10 and he is doing VERY WELL! Just keep in mind you will want to watch him

closely and make sure you look at changes as he goes along. Welcome to the

group there are some WONDERFUL people here with LOADS of info and experiences to

share.

BARBIE

From: Lucia <thistledewbaby@...>

Subject: Newbie intro

Date: Tuesday, July 7, 2009, 8:09 PM

Hi everyone,

I'm Lucia and I'm the mother of 3 1/2 kids (new baby on the way). My eldest has

Selective IgA deficiency and was officially dxed this past spring although we

suspected something was up early on. He was hospitalized at 2 weeks old with

bronciolitis even though the Drs and Nurses all assured me that new babies NEVER

get sick from their mothers, esp when they are breastfed. Not my little guy.

We went on to find he had severe peanut and cat allergies as well as some nut

and milk allergies. At age two he got his first pneumonia and soon after was

dxed with asthma. He has chronic ear infections and usually a yearly pneumonia

episode. We had him tested for Serum IgA because I was dxed with some Gluten

intolerance and his came back showing next to no IgA. It was relieving in a way

to know what was going on and that there probably isn't anything we could do to

prevent his health issues, although it's always tough when he gets sick because

he gets SOOO

sick. We seen an immunologist at Children's Boston, although we have decided

to not give prophylactic antibiotics since he could develop resistant bacterial

infections.. . and he's not needing hospitalization for his illnesses. Luckily

my twin daughters seem to be perfectly healthy although one does have some

marginal IgA deficiency but is not symptomatic. We've got everything crossed in

hopes that the new baby is healthy! I look forward to " meeting " you all and

giving/recieving support with this.

Lucia

July 8, 2009

Elliott is 3 1/2 and has a very good quality of life. All of his IgGs were

normal or elevated and his IgM is a little high. His IgE is very elevated due

to allergies. The Dr seemed to think things were fine with this, perhaps he's

overcompensating for the lack of IgA. His immunity for DTaP, MMR, and Polio

were all completely normal so he seems to hold his immunity thank goodness.

When I said we couldn't do anything I meant more that this wasn't anything we

had any control over, he just got the short straw. For a long time I blamed

myself for causing his allergies (I ate peanuts while pregnant and breastfeeding

for example) and health issues (we have a running joke that I have a welcome

center instead of an immune system) but this tends to be a random occurance

according to the Dr and what I've read about it. We may do some antibiotics

during flu season, but I think we're just playing it by ear for now. He has

only had one bad pnumonia and as soon as we hear a crackle we go right to the

meds. Most of his ear infections have been caught very early too, which is

lucky because he never complains of ear pain! Thanks for the warm welcome.

July 8, 2009