Need some help and advise. Thanks

[Guest guest]

Hello my name is I was told I had RA one year ago and I'm 25 years old.

Me and my husband has been up in the air because we want more babies and I have

been to two Ra doctors and they keep telling me in like five years and then all

they want to tell me is that I need to try the Bio drugs and I just don't feel

comfortable yet taking them because I do want to have another baby. Can anyone

help me understand Why it would or would'nt be a good Idea to have another

baby?????? I know I take my risk of having pain during being prego and then

there is a chance where I won't have any pain. I just need to hear from my

friends on here because it seems like somedays I go to the drs all they want to

do is what they want to do and I want another baby and my dr doesn't understand

why? Please help me understand prengnacy and RA together.

[Guest guest]

Hi ! Chin up! There is much good news in this area. I have an RA baby

named Tommy who will be two in June. This group was a marvelous source of

support while we grew our famili and juggled RA. I have many thoughts that

aren't easy to express tapping on an iPhone but I would encourage you to call

OTIS (google OTIS pregnancy) and they can give you a run down on what we know

about pg and RA drugs. Some are a big no no like methotrexate but others, like

humira and enbrel are thought to be safe in pg and lactation. Your

rheumatologist and OB need to work together and be comfortable with your

treatment plan. I'd advise getting the RA as stable as possible before

conception. Up that folic acid too! But don't worry, plenty of us have great

pregnancies, deliveries, and kiddos! Kate f

Sent from my iPhone

On Apr 2, 2010, at 8:35 AM, " shannon m " <shannonmendez@...> wrote:

Hello my name is I was told I had RA one year ago and I'm 25 years old.

Me and my husband has been up in the air because we want more babies and I have

been to two Ra doctors and they keep telling me in like five years and then all

they want to tell me is that I need to try the Bio drugs and I just don't feel

comfortable yet taking them because I do want to have another baby. Can anyone

help me understand Why it would or would'nt be a good Idea to have another

baby?????? I know I take my risk of having pain during being prego and then

there is a chance where I won't have any pain. I just need to hear from my

friends on here because it seems like somedays I go to the drs all they want to

do is what they want to do and I want another baby and my dr doesn't understand

why? Please help me understand prengnacy and RA together.

[Guest guest]

Hello all my name is , and I too have had a hard time with my RA doc

accepting that I want to have a baby. I wonder if anyone can share their

pregnancy experience

Thanks ......

Sent via BlackBerry by AT & T

[ ] Need some help and advise. Thanks

Hello my name is I was told I had RA one year ago and I'm 25 years old.

Me and my husband has been up in the air because we want more babies and I have

been to two Ra doctors and they keep telling me in like five years and then all

they want to tell me is that I need to try the Bio drugs and I just don't feel

comfortable yet taking them because I do want to have another baby. Can anyone

help me understand Why it would or would'nt be a good Idea to have another

baby?????? I know I take my risk of having pain during being prego and then

there is a chance where I won't have any pain. I just need to hear from my

friends on here because it seems like somedays I go to the drs all they want to

do is what they want to do and I want another baby and my dr doesn't understand

why? Please help me understand prengnacy and RA together.

[Guest guest]

Hi , did you see my earlier post? Babies are great! Kate f

Sent from my iPhone

On Apr 2, 2010, at 11:35 AM, mbar613909@... wrote:

Hello all my name is , and I too have had a hard time with my RA doc

accepting that I want to have a baby. I wonder if anyone can share their

pregnancy experience

Thanks ......

Sent via BlackBerry by AT & T

[ ] Need some help and advise. Thanks

Hello my name is I was told I had RA one year ago and I'm 25 years old.

Me and my husband has been up in the air because we want more babies and I have

been to two Ra doctors and they keep telling me in like five years and then all

they want to tell me is that I need to try the Bio drugs and I just don't feel

comfortable yet taking them because I do want to have another baby. Can anyone

help me understand Why it would or would'nt be a good Idea to have another

baby?????? I know I take my risk of having pain during being prego and then

there is a chance where I won't have any pain. I just need to hear from my

friends on here because it seems like somedays I go to the drs all they want to

do is what they want to do and I want another baby and my dr doesn't understand

why? Please help me understand prengnacy and RA together.

[Guest guest]

Hi everyone, I've made it to a computer and can add a bit more. and

, you may have to visit a few rheums and even OBs before you find a team

that can help you with family building. I went thru a couple of rheums who

didn't want me to stay on Enbrel (a class B drug) and preferred I go up on pred.

I had talked to OTIS and read the animal studies as well as the few human

observational studies that suggested there may not be harmful effects on the

baby from biologics like Enbrel and I was more comfortable staying on Enbrel

than going way up on pred. My current rheum may have put it best when she said,

" I can't tell you that Enbrel is safe, but neither can I say it's harmful. " I

had two children with RA. The first pregnancy, I didn't know I had RA and had

scorching DeQuervain's tensynovitis in my hands afterward. The second pg, of

course I took Enbrel, and did just great. I was on low dose pred too and I went

up to 10mg on my two delivery

days (Tommy didn't want to come out on the first day, we had to evict him on

day 2 of induction). I registered with OTIS and they flew a ped from San Diego

out to examine Tommy when he was 6 mos old. He's going to be followed long

term, but I like that he's a datum point for the safety of biologics in pg. So

I think you have to read the studies, talk to OTIS, find a good rheumatologist

and a good OB and go from there. I was even doing infertility treatment trying

to get pg with Tommy and all concerned were very supportive about a woman with

RA having a baby. When I miscarried in 2007 my rheumatologist was marvelous and

the whole dept supported me trying again. So don't give up ladies! This crummy

disease can be a big downer and having babies despite it all can be very

empowering! Of course good control pre baby is always a good idea. Try to get

those symptoms as quiet as possible before conception. Take lots of folic acid,

rest, exercise, get

in the water if you can. Pg is generally a quiet time for RA. I did fine both

times. After Tommy I had a mild flare but just did a burst of pred and I was

fine. For lactation info, check out Dr. Hale who is considered the authority on

medications and mother's milk. He has written that enbrel and remicaide are

both considered safe for lactating moms as the drug is destroyed by the baby's

gut.

Feel free to write me with any additional questions,

Kate F

________________________________

From: " mbar613909@... " <mbar613909@...>

Sent: Fri, April 2, 2010 11:35:41 AM

Subject: Re: [ ] Need some help and advise. Thanks

Hello all my name is , and I too have had a hard time with my RA doc

accepting that I want to have a baby. I wonder if anyone can share their

pregnancy experience

Thanks ......

Sent via BlackBerry by AT & T

[ ] Need some help and advise. Thanks

Hello my name is I was told I had RA one year ago and I'm 25 years old.

Me and my husband has been up in the air because we want more babies and I have

been to two Ra doctors and they keep telling me in like five years and then all

they want to tell me is that I need to try the Bio drugs and I just don't feel

comfortable yet taking them because I do want to have another baby. Can anyone

help me understand Why it would or would'nt be a good Idea to have another

baby?????? I know I take my risk of having pain during being prego and then

there is a chance where I won't have any pain. I just need to hear from my

friends on here because it seems like somedays I go to the drs all they want to

do is what they want to do and I want another baby and my dr doesn't understand

why? Please help me understand prengnacy and RA together.