Any suggestions?

[Guest guest]

Sharon wrote:

The only thing I haven't tried is essential fatty acids as I cannot

get them

down him.

Sharon, you can break open the fish oil/borage oil/flax oil capsules

and spread the oil on your son's back at bedtime-- then put his

jammies on him and let it soak into his skin. He will get some

benefits from it this way. It will stain the clothing though.

I'm sorry I can't help with your other issues.

W

[Guest guest]

> Has anyone

> got a kid who is like mine and would a break help? I find enzymes

are

> expensive in terms of only having slightly better stools and I

probably need

> to try something else. I am keen to chelate as my son's hair test

results

> from DDI meets Andy Cutlers' counting rules (just borderline though)

but

> will then need to add back in many, many supplements.

Well I don't know if my son will be like yours, but I can tell you

about my son and you can decide.

Right now, my son is using HNI enzymes, but if I gave him gluten or a

few other foods, or most supplements, it would not look like the

enzymes were helping him. So he requires certain food removals as

well as enzymes.

Also, I am chelating him, and the food issues are improving, meaning

he needs less enzyme to eat the foods he eats, and in fact I have

already been able to add back some foods which the enzymes previously

did not help.

I was not able to give him ANY supplements when I started chelating,

but now he tolerates several supplements which I added back one at a

time to see if they would help and he would now tolerate them.

Bottom line, for my son, nothing would have appeared to have worked,

if I was giving even ONE item which he did not tolerate.

I would definitely recommend for your child, that you do seriously

consider chelating.

Dana

[Guest guest]

How about <A HREF= " http://www.feingold.org/ " >Feingold Association - Feingold

diet for ADHD</A>

K

> So, my question is - can

> anyone direct me to any specifically or mainly ADHD/ADD and diet sites??

>

[Guest guest]

You might try this one also. Feingold-Program4us/

This is an on-line support group for families who are implementing the Feingold

Program ® instead of medication to treat their children's ADD/ADHD and other

emotional, behavorial, and physiological special needs. Also for those seeking

information about the Feingold Program. Rose

Re: [ ] Any suggestions?

How about <A HREF= " http://www.feingold.org/ " >Feingold Association - Feingold

diet for ADHD</A>

K

> So, my question is - can

> anyone direct me to any specifically or mainly ADHD/ADD and diet sites??

>

[Guest guest]

Angie

First let me tell you I'm thinking of you and hope you are feeling wonderful.

Secondly, at 3.5, Jordan said VERY LITTLE.....and what he DID say was

intelligible only to me. At 4.6, he's speaking the encyclopedia. (not everyone

can understand him, but it's clearer.)

HTH

~K

[ ] any suggestions?

Hey guys........I've had this on my mind for some time and hoped it would be

figured out or get better. Sydnie is 3.5yr old with Down syndrome (just to let

the apraxia group know) and I feel that her speech delay is more than the ds.

Her speech therapist before starting school said she could really decide because

it was so borderline as to whether Sydnie may have apraxia or not. Sydnie

doesnt repeat alot. The words she does have are very clear, mama, da, ok, bye,

hey (all spontanious), backpack (amagine that....if you say " say backpack " , the

first time she heard us talking and said it), what, why, even " i want that or I

dont want " , huh uh, pappaw (pretty clear when asked to say it)etc. She also

uses signs for thank you, eat, drink (gink), boat, book, more, cracker, cookie,

etc. But she doesnt name things when asked what is that? But receptively can

show you anything when asked where is......

I'm starting to get frustrated, not at the fact that her speech is delayed as

much as I THINK THERE IS MORE! I think what brought me to where I am now is her

friend that is 5 mths younger repeats alot (when he wants to). This is when I

realized my suspicions werent crazy. There is something more and I want help

for it. Is there anybody out there that can tell me what your child is saying

at this age and how things are progressing............

I cant even begin to tell you what this little girl is doing..... She is

soooooo smart and her receptive is so unreal that if we could just get past this

" hump " to even get a diagnosis (she's getting speech in public preschool)

somewhere else and maybe get outside therapy so much more would come.

Help me!

~Angie

May God Bless You As He Has Us

www.babiesonline.com/babies/s/sydniebrooke

mom to Sydnie (3, Ds),

Our second Baby Girl ~ EDD 4/30/04

3 angels in Heaven

[Guest guest]

I was hoping her vocab would explode and maybe its not time..........but I

knowwwwww its there!!!

By the way, Im doing well thanks for thinking of me.

~Angie

May God Bless You As He Has Us

www.babiesonline.com/babies/s/sydniebrooke

mom to Sydnie (3, Ds),

Our second Baby Girl ~ EDD 4/30/04

3 angels in Heaven

[Guest guest]

Lynda, that is an awful long time to be in misery while you're waiting

to see the rheumatologist. Unfortunately, that is typical, since there

are not enough rheumatologists to go around.

I was in the same situation a couple of years ago waiting for my first

appointment with a rheumy. I looked him up on the Internet, found an

email address for him, and sent him a message asking for tips on how to

cope with the pain while waiting to see him. Two days later he called

me and said he was going to get me in to see him sooner. So I wound up

seeing him in one month instead of three. No doctor had ever called me

like that, out of the blue. He is such a compassionate person; I just

loved him. Unfortunately, he relocated to Atlanta recently.

I do sympathize with you; I know just how you feel. Sometimes

prednisone is prescribed to tide people over and can relive pain

tremendously. But it has so many bad side effects if used over a long

period.

It's too bad that people in great pain cannot get in sooner to see a

rheumy. Keep us informed. Sue

On Thursday, February 24, 2005, at 12:03 PM, hazelmyst66 wrote:

>

> My name is Lynda and I live in Dayton, OH. I was wondering if anyone

> has any suggestions on how to get some relief for my RA symptoms? I

> cannot get into the rheumatologist until April 26th (it is my first

> appointment) and my hands/wrists (especially) are killing me.

>

[Guest guest]

I am SO sorry you are having to cope with this for so long till your

appt.

For me in the begginning, I had a hard time getting relief for my

hands, wrists. At that time I could not tolerate much, mostly I

relied far too heavily on Ibuprofen. Ibuprofen can be hard on some

peoples stomachs. I could NOT use ice back then, and water soaks

also were intolerable for me. (Now ice or water soaks work nicely)

I know on bad days I wear wrist splints or these glove type things

(by ace bandages etc at the store) - you might want to ask a doc,

whether you ask your GP or rheumy......it is possible they might give

you some relief. Some days warmth helps me with stiffness, some days

ice is better for numbing and reducing swelling. I think I had to

just kinda grow some kind of intuition to help me figure out which

days I want the glove things or splints and which days I want ice or

heat. I also use Aspercream, Ben Gay, Vicks Vapo rub, Tiger

Balm..........yeesh, LOL. And yes some days I just cry and get

emotional r just give in to pain, some days I get angry.......some

days I just sit and stare off with my hands (of feet) propped on

pillows and stare into outter space.......other days I grit my teeth

and try to push......(usually I regret that)

I did learn how to fold laundry using my elbows. LOL, sounds weird.

The good news is my rheumy was able to help me massively. For me,

it was simple enough, every person is going to need different meds,

different ideas etc. I take methotrexate, Ibuprofen and Folic acid,

and am lucky enough my MTX is oral and the Ibuprofen does not bother

me either.

Hang in there.

>

>

> Hello everyone,

> My name is Lynda and I live in Dayton, OH. I was wondering if

anyone

> has any suggestions on how to get some relief for my RA symptoms?

I

> cannot get into the rheumatologist until April 26th (it is my first

> appointment) and my hands/wrists (especially) are killing me. It's

> hard to type, hard to do anything, but I knew I could come here to

> you all. My doctor prescribed Ultraset for me this week and I've

> been using a rub that's similar to Ben-Gay. I'm so depressed and

> worried. I just got married (for the second time) in September and

> my new husband is so sweet, tries to do all he can, but gets upset

> because I cry. I looked up some RA stuff online and showed him

some

> of the things that go along with it. Fortunately, it mentioned

> crying. I just don't want him to think I hate being married. I'm

so

> thankful for you all. I try to talk to my sister and she tells me

> to " dry up " and to be thankful I'm alive. Well, I've gotten way

off

> track of my question, sorry. Any suggestions would be greatly

> appreciated! Thanks!

[Guest guest]

Hey Lynda, welcome to the group, and also congratulations on your

marriage! I'm sorry to hear about your dx, I know it's tough on

you. It's hard to take it all in. I'm glad you found the group, you

will find out so much info here, and find wonderful support, and

friends. When I first was dx, I didn't know what to do, or what to

expect. I found this group, and it has been my life line.

With the crying, it's natural. A lot of people with RA, and other

chronic diseases have depression. You might need to go on a anti-

depressant of some kind to help with that. I would see the doctor,

and see if he can't help you, until you can get into the rheumy.

Sometimes, a family doctor will put you on Prednisone, or a DMARD

until you can get to the rheumy. Also, he can help you with your

depression, you need to talk with him.

It is hard for family to understand what were going through. I would

get some information, and give it to her. Or, maybe she can go with

you on your rheumy visit. Maybe, with the rheumy explaining might

help her to understand it better. I still have problems with my

family, so I have just stopped trying. I have the support I need

right here, and I'm so thankful for everyone here.

So, just know were all here for you. If you would like to email me

anytime, please feel free.

Big hug,

Tawny

>

>

> Hello everyone,

> My name is Lynda and I live in Dayton, OH. I was wondering if

anyone

> has any suggestions on how to get some relief for my RA symptoms?

I

> cannot get into the rheumatologist until April 26th (it is my first

> appointment) and my hands/wrists (especially) are killing me. It's

> hard to type, hard to do anything, but I knew I could come here to

> you all. My doctor prescribed Ultraset for me this week and I've

> been using a rub that's similar to Ben-Gay. I'm so depressed and

> worried. I just got married (for the second time) in September and

> my new husband is so sweet, tries to do all he can, but gets upset

> because I cry. I looked up some RA stuff online and showed him

some

> of the things that go along with it. Fortunately, it mentioned

> crying. I just don't want him to think I hate being married. I'm

so

> thankful for you all. I try to talk to my sister and she tells me

> to " dry up " and to be thankful I'm alive. Well, I've gotten way

off

> track of my question, sorry. Any suggestions would be greatly

> appreciated! Thanks!

[Guest guest]

Lynda, I forgot to mention that I used Aleve while waiting to see the

rheumy. It gave me a bleeding ulcer. So be careful with whatever you

take. Sue

On Thursday, February 24, 2005, at 03:15 PM, Enxing wrote:

>

> Hi, Lynda. I know how you feel. Before I could get in

> to see my Rheumy I was using extra strength aleve in

> the mornings

[Guest guest]

Lynda, that is an awfully long time to have to waite. Would you

consider going to Columbus to see a rheumatologist. The Columbus

Arthritis Center has a great group of rheumatologist in it. I see

one there as well. They have come highly recommened by my

orthopedist and I also recommend them. Email me if you want more

info....Marina in Ohio

>

>

> Hello everyone,

> My name is Lynda and I live in Dayton, OH. I was wondering if

anyone

> has any suggestions on how to get some relief for my RA symptoms?

I

> cannot get into the rheumatologist until April 26th (it is my

first

> appointment) and my hands/wrists (especially) are killing me.

It's

> hard to type, hard to do anything, but I knew I could come here to

> you all. My doctor prescribed Ultraset for me this week and I've

> been using a rub that's similar to Ben-Gay. I'm so depressed and

> worried. I just got married (for the second time) in September

and

> my new husband is so sweet, tries to do all he can, but gets upset

> because I cry. I looked up some RA stuff online and showed him

some

> of the things that go along with it. Fortunately, it mentioned

> crying. I just don't want him to think I hate being married. I'm

so

> thankful for you all. I try to talk to my sister and she tells me

> to " dry up " and to be thankful I'm alive. Well, I've gotten way

off

> track of my question, sorry. Any suggestions would be greatly

> appreciated! Thanks!

[Guest guest]

Hi Lynda,

I think Sue's idea is worth a try - nothing to lose after all. I live in

France and my rheumatologist has a 13-month waiting list, but every time I have

a problem I e-mail him and he e-mails me back by return with an appointment

within a week. He's a real sweetheart.

Let us all know how you get on.

n

[ ] any suggestions?

Hello everyone,

My name is Lynda and I live in Dayton, OH. I was wondering if anyone

has any suggestions on how to get some relief for my RA symptoms? I

cannot get into the rheumatologist until April 26th (it is my first

appointment) and my hands/wrists (especially) are killing me. It's

hard to type, hard to do anything, but I knew I could come here to

you all. My doctor prescribed Ultraset for me this week and I've

been using a rub that's similar to Ben-Gay. I'm so depressed and

worried. I just got married (for the second time) in September and

my new husband is so sweet, tries to do all he can, but gets upset

because I cry. I looked up some RA stuff online and showed him some

of the things that go along with it. Fortunately, it mentioned

crying. I just don't want him to think I hate being married. I'm so

thankful for you all. I try to talk to my sister and she tells me

to " dry up " and to be thankful I'm alive. Well, I've gotten way off

track of my question, sorry. Any suggestions would be greatly

appreciated! Thanks!

[Guest guest]

> Hi Lynda,

I'm Tracie and I was diagnosed with RA last November. I waited

three months for that appointment in total misery. I finally have

learned some tricks of the trade that help me trememdously. First

thing in the morning to help get going and ease that pain, I get

into a nice hot bath and soak my hands and feet especially. (Since

starting my meds I no longer need to do this daily, just on bad

days). It really helps. Also, rest often and don't overdo it. Ask

for help. I know how hard it can be to just pick up a pan or clip

your nails or the simplest things, but ask for help. Don't overbook

yourself with errands or appointments, one or two stops at a time is

all I can handle. Otherwise, I end up in tears and just miserable.

Try to have a day " off " in between these appointment and errand days

just so you can rest when you want to. I finally gave up my job in

November as I could no longer do it. Good luck and I know what you

mean about the tears, but that will ease as you start to feel better

honest. It is hard for our husbands to watch us suffer. Take care

and email me if you need to talk to someone. I was lucky to find a

wonderful rheumy who is fantastic and takes great care of me. I am

not pain free yet, but definitely making progress which is more than

I could say last November!!! Hugs and Prayers - Tracie

>

> Hello everyone,

> My name is Lynda and I live in Dayton, OH. I was wondering if

anyone

> has any suggestions on how to get some relief for my RA symptoms?

I

> cannot get into the rheumatologist until April 26th (it is my

first

> appointment) and my hands/wrists (especially) are killing me.

It's

> hard to type, hard to do anything, but I knew I could come here to

> you all. My doctor prescribed Ultraset for me this week and I've

> been using a rub that's similar to Ben-Gay. I'm so depressed and

> worried. I just got married (for the second time) in September

and

> my new husband is so sweet, tries to do all he can, but gets upset

> because I cry. I looked up some RA stuff online and showed him

some

> of the things that go along with it. Fortunately, it mentioned

> crying. I just don't want him to think I hate being married. I'm

so

> thankful for you all. I try to talk to my sister and she tells me

> to " dry up " and to be thankful I'm alive. Well, I've gotten way

off

> track of my question, sorry. Any suggestions would be greatly

> appreciated! Thanks!

[Guest guest]

How long has he been on the enzymes? If he's been on them daily for a while I

would suggest upping the dose. If he's only on them for an infraction, that

won't work to well. I would continue to give the enzymes with every meal and

snack for awhile before I tried another infraction. Maybe someone else will have

more suggestions also.

HTH

Rhonda in CA

[Guest guest]

> My son has been GF/CF for 6 months and we just completed dive 20 with

> HBOT. I tried a few diet infractions this week (with 1 AFP and 1 Zyme

> Pryme with each meal and treat)and the enzymes didn't help. He woke

> up stimmy at 5:30 am 3 days following the infraction.

Which food did you challenge, and was it " pure " food or could it have

been another ingredient in the food you challenged? [This is what it

was the first time I tried a challenge with my kids.]

You may need to wait longer, or it may have been another issue entirely.

Dana

[Guest guest]

I am sure others have posted, but I am always a little behind.

Don't apologize for asking for help. Your questions are not bombarding

at all. Believe me, I have had posts in the past (I think in the past

*Grin*) that were WAAAYYYY to long for comfort. (Stress days)

That's what we are all here for. Give support, ask for support, and

just help each other.

As far as what you have gone through, I definitely see some sensory

intergration disorder here.

Does your son have any occupational therapy at all? Has he been

evaluated at all?

He needs lots of HUGS because of his sensory issues (Sounds like to

me) and I bet he might like it if you wrap him tightly (Ok, not too

tighly) with a blanket and give him a hug several times a day. (OK,

Head out too< Maybe??)

Also he might like it if you take a pillow (or two) and squish him in

the middle. (yeah, don't squeeze him this he pops *grin*)

He might not have the feel that he is 'feeling' things so he needs to

be squeezed really tightly (I hope that makes sense to you ;-)

As far as his sister signing, the sound may bother him, so perhaps if

she is signing you can distract him and bring him to another room. Or

perhaps, since she is so young, you can have her go with you to

another room.

When it is calm, (before the situation starts) maybe you can talk to

him about her singing.

When my youngest would sing, and it irritated my oldest, I said someth

ing like, " I wonder if he is singing to you, do you think he is? Isn't

that neat? " When he said no I would aks him what bothers him about

his brothers signing. He may say " It hurts " or someth ing. This is

when we knew it was sensory integration issues and we have found ways

to work it out a bit.

I hope that helps! I also hope I didn't confuse you more!

*smiles*

B

>

> I really could use suggestions on how to deal with my newly diagnosed

> 9 year old son. He hugs constantly. Its not really a loving hug,a

> tight hes has to have now or he throws a fit hug. Also,he constantly

> hums and sings, but when his 3 year old sister starts singing he

> starts screaming shes driving him crazy. His tantrums are so

> frustrating because he has gotten so big that I feel as if I

> physically have no control on the situation. I am sorry to bombard

> everyone with questions I just have no clue what to do.

> Thanks,

>

>

[Guest guest]

Hi ,

Welcome! Have you tried using weighted vests, blankets or any kind of

weighted product with your son? It could be that he's needing deep pressure

input that he might be able to get with some weighted products. I'm also a

member of the sensory processing disorder group for kids & their recommend a

site for these things is www.sensorycritters.com

Good luck.

Liz

Houston

nicksmom25 <nicksmom25@...> wrote:

I really could use suggestions on how to deal with my newly diagnosed

9 year old son. He hugs constantly. Its not really a loving hug,a

tight hes has to have now or he throws a fit hug. Also,he constantly

hums and sings, but when his 3 year old sister starts singing he

starts screaming shes driving him crazy. His tantrums are so

frustrating because he has gotten so big that I feel as if I

physically have no control on the situation. I am sorry to bombard

everyone with questions I just have no clue what to do.

Thanks,

---------------------------------

Looking for earth-friendly autos?

Browse Top Cars by " Green Rating " at Autos' Green Center.

[Guest guest]

THANK YOU!!!!! This is the first time someone has actually taken the time to

give me some doable ideas. My sons Autism specialist said we could give him

occupational theraphy but he said that there really isnt any good therpists that

any of his parents of AS have been happy with. We live in a town were basically

any form of autism is new to everyone. Awareness here is something that needs to

be worked on. The schools arent equipped to handle AS children and they provide

the minimum of what they have to. Me homeschooling while great is an everyday

challenge. Sometimes I feel so alone in this! We are trying to get him on

disability to get him more help. Its like pulling teeth with these government

workers! I mean its obvious my son has a disability but they dont see it that

way. Sorry I got long winded! Thanks agian!

---------------------------------

Never miss an email again!

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[Guest guest]

Thanks! Ill check out the site! That might just work! Do you let them wear the

vests just when the feel they need it or throughout the day?

---------------------------------

Any questions? Get answers on any topic at Answers. Try it now.

[Guest guest]

:

My son also needs these " hugs. " I think kids with Autism need a lot of

pressure on their bodies to help stimulate their senses. My OT has

suggested a weighted vest -- a vest he can wear under his clothes

which constantly presses on him in this way. We haven't done it yet,

because theyr'e expensive and I want to make it instead, but perhaps

that would help?

I don't know what to say about him screaming when his sister sings.

Does he have head phones? My son often wears head phones and listens

to Jazz to shut out distracting noises, or he'll move to another room

and shut the door.

-- Haddayr

[Guest guest]

My son gets this kid of input (proprioceptive) with a mini trampoline

and a big therapy ball that I keep in the family room near the TV. My

son is almost 7 now and uses them when he needs them. He still wants

to wrestle and pillow fight. Sometimes I have a catch with him with a

heavy ball or therapy ball. It really helps.

Debbie

[Guest guest]

My daughter has finally learned that she needs hugs and back rubs

and can now ask for them. She has a much better morning if I go in

and rub her back and arms for a few minutes when she is in bed. As

for the weighted vest, it can irritate kids also so look for other

alternatives too. My daughter slept in a sleeping bag to give her

deep pressure and keep her from thrashing around at daycare.

Jen

>

> :

> My son also needs these " hugs. " I think kids with Autism need a

lot of

> pressure on their bodies to help stimulate their senses. My OT has

> suggested a weighted vest -- a vest he can wear under his clothes

> which constantly presses on him in this way. We haven't done it

yet,

> because theyr'e expensive and I want to make it instead, but

perhaps

> that would help?

>

> I don't know what to say about him screaming when his sister sings.

> Does he have head phones? My son often wears head phones and

listens

> to Jazz to shut out distracting noises, or he'll move to another

room

> and shut the door.

>

> -- Haddayr

>

[Guest guest]

Does he have a " sensory diet " throughout his day? Opportunities where he

can receive deep pressure, bounce, or run? This may help to keep him calm. If

you haven't read the book " The Out of Sync Child " , I highly recommend it.

Pam

[Guest guest]

My SLP diagnosed my son with apraxia and the developmental ped. agreed. We went

to St. Louis Childrens Hospital and we see Dr. Carriga. Where are you at? You

may be close to me, I live in Southern IL and drive almost 3 hours to get my son

to the right place. Please feel free to call me if you have any questions (618)

201-8831. We are new to the diagnosis, but I am determined to get my son the

best help I can as are you!

Please call if you need to talk,

Gillian

>

> My son has so far been diagnosed with a severe language impairment. (He is 4

years old). I recently took him to Duke University seeking out help as he also

has behavior problems as well. A developmental ped. has suggested he might have

dyspraxia. Can anyone advise me on what type of MD. that he needs to be taken to

in order to get a true diagnose or to rule out. Thanks in advance. I want to be

able to understand and my child, I beleive he deserves at least a chance to grow

up strong healthy and well rounded.

> I have been expressing my concerns with him since he was approx. 1 1/2 to 2

years old.

> Thanks in advance.

> Debbie (Corys mom)

>

[Guest guest]

Last Nov I found out that my drs office hadn't sent medical records in like

requested so my disability payments were put on hold. So I haven't been paid

since then because it has been so hard getting everyone on the same page.  So

everything was turned in last Tuesday.  Last Thurseday I heard back from the

review.  I was denied.  I was heart broken until I realized the most important

visits to the dr wasn't sent to the Insurance company to review, now I am

pissed. 

I am going to loss everything!!!  My house, everything.  I will have to fins

homes for my pets and place for my daughter and I to live.  Just because the

medical records person is imcompantent.  I have had no money since Nov, No bills

have been paid.  I have lost my COBRA coverage because it wasn't paid today.  I

have been eating just because my parents bought us food.

I have an appointment with a lawyer and do plan on appealling but that will take

45 days just for insurance company to make a decision.  So by the time they make

a decision I will have been on the streets for a month.

Does aanyone have any suggestion.  I did go sign up for food stamps and

medicaid, so I will have food and medicine but nothing else.

Suw