Re: Experience with Ritxuximab (Rituxan) Help please

[Guest guest]

In a message dated 1/31/2010 2:26:06 A.M. Central Standard Time,

chris65peth@... writes:

Has been a long time since my last post , but once again coming to the

group asking on behalf of my friend for updates on people's experience with

Rituxan

...Did it 'work' and particularly how long before you noticed first signs

of improvement?

After much delay my friend eventually received the 2 infusions, and was

told it took some weeks before seeing any benefits.

However she is becoming increasingly despondent, as it is now 13 weeks,

and the RA still seems to be progressing painfully and remorselessly.However

she is becoming increasingly des

She would appreciate any feedback. Of course everyone is different, but

she is praying for a light at the end of the tunnel. >

I know nothing about Rituxan, but I missed you, Chris.

dd

[Guest guest]

I have gotten the Rituxin infusions for the last 4 years. 6 infusions all

together. It takes about 2 weeks for me to see any difference in the pain

and stiffness which never really goes away but just puts it at a point where

I can stand the pains. I am scheduled for 2 more infusions in March. I am

never in remission with this RA. The stiffness and pain did return for me

after about 6 months. My doctor just ups my Methotrexate.

Irish

[Guest guest]

Hi Chris:

     I am so sorry your friend is still suffering so much with her RA.  I

don't know anything about Rituxan, but I sure hope it ends up helping her.  RA

is a ugly, beast of a disease.

    I have missed your posts, and have thought about you and your friend. 

How are things with you?  Your friend is so lucky to have you as a great and

caring friend.  I sure hope she finds her " Cocktail " of meds. so she can have

some pain free days.

     I hope we hear from you again, and, I hope next time you have some good

news about your friend.  Take care.

     Hugs,

 

     Barbara

From: Petheram <chris65peth@...>

Subject: [ ] Experience with Ritxuximab (Rituxan) Help please

Date: Sunday, January 31, 2010, 3:25 AM

 

Has been a long time since my last post , but once again coming to the group

asking on behalf of my friend for updates on people's experience with Rituxan

...Did it 'work' and particularly how long before you noticed first signs of

improvement?

After much delay my friend eventually received the 2 infusions, and was told it

took some weeks before seeing any benefits.

However she is becoming increasingly despondent, as it is now 13 weeks, and the

RA still seems to be progressing painfully and remorselessly. She is due to see

her rheumy in 3 weeks.

She would appreciate any feedback. Of course everyone is different, but she is

praying for a light at the end of the tunnel.

Thanks, UK

[Guest guest]

I had been wondering what had happened to you. Sorry, I have no

experience with Rituxan. I hope your friend soon gets relief.

Sue

On Jan 31, 2010, at 3:25 AM, Petheram wrote:

> Has been a long time since my last post , but once again coming to

> the group asking on behalf of my friend for updates on people's

> experience with Rituxan

> ..Did it 'work' and particularly how long before you noticed first

> signs of improvement?

>

> After much delay my friend eventually received the 2 infusions, and

> was told it took some weeks before seeing any benefits.

> However she is becoming increasingly despondent, as it is now 13

> weeks, and the RA still seems to be progressing painfully and

> remorselessly.She is due to see her rheumy in 3 weeks.

> She would appreciate any feedback. Of course everyone is different,

> but she is praying for a light at the end of the tunnel.

> Thanks, UK

[Guest guest]

I've only had 2 infusions a little over a year ago and my RA went into

remission. I am unable to take MTX. However, I went into remission about 2

months after having the infusions. No problems with rituxan at all.

in SC

Sent from my iPhone

On Jan 31, 2010, at 11:33 AM, iafowl31260@... wrote:

I have gotten the Rituxin infusions for the last 4 years. 6 infusions all

together. It takes about 2 weeks for me to see any difference in the pain

and stiffness which never really goes away but just puts it at a point where

I can stand the pains. I am scheduled for 2 more infusions in March. I am

never in remission with this RA. The stiffness and pain did return for me

after about 6 months. My doctor just ups my Methotrexate.

Irish