Guest guest Posted February 26, 2009 Report Share Posted February 26, 2009 You're very welcome. Wishing you pain free days ahead. Hugs, Barbara > > > > > Hi Sue: > > > > I take 2 Leucovorin 12 hours after my MTX shot. It is Folic Acid, and > > it helps with Nausea too. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 Welcome to the group! I personally could not offer any advice that finishes up with " you'll be fine " . I am just a fellow flounderer, trying to find better choices and better answers for keeping myself capable of being a contributing member of society. You will find here, a great group of individuals that truly care about the concerns of its members. Feel free to jump in with questions, ideas and most anything that inspires you. Good luck and God bless, Lexie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 I am 51 yrs old I injured my back when I was 24 when a 20 " split rim on a truck blew apart and threw me 25' I have had reoccurring problems with my lower back and have learned that not to pick up things or objects too heavy or even turning a certain direction can throw my back out I now have a benign hemangioma and narrowing of disc spaces at L3,L4,L5-S1 and have nerve impingement and problems raising my legs off the floor when getting dressed I am now on Social Security Disability and am having to seek out education to find a career change. I am considering working in the legal field as a paralegal since I have experience and 13 college credits towards my associates degree till my condition got so severe I had to quit college in 2005 From: Mercurius Trismegistus <magisterium_magnum@...> Subject: Re: New here... spinal problems Date: Thursday, March 5, 2009, 11:49 PM Get some acupuncture, possibly an herb like yan hu suo. Learn some QiGong or Tai Chi. You'll be fine. You might look at the possibility of career change. New here... > Hi everyone, > I am new to the group and am just starting to go through the posts to see > what's what with everyone. I am here because I had surgery December 12 on > my cervical spine for stenosis, spondylosis and kephosis (?) which were > resulting in myelopathy. I had severe pain/numbness in my arms, legs, > hands and feet and by the time of the surgery was having difficulty > walking. The first surgeon I went to (neuro) was pretty grim about my long > term prognosis - did not feel that I would get better, that I could mostly > hope to halt the progression temporarily. The second opinion (ortho) was > much more positive and I went with him... > > The pain and numbness have significantly improved and I have been walking > and lifting weights to try to restore the muscle that has been lost over > the past couple of years. The problems started however when I returned to > work (9 weeks post surgery). I have a job that involves almost exclusively > sitting at a computer and I have had excruciating pain in my neck after > every day, as well as return of the other symptoms (though they are milder > than before the surgery). The opinion of the physician's assistant is that > I just need more time to heal, that I need to stick with the weights and > if I don't see significant improvement in the next few weeks, I will need > more physical therapy. I wondered if anyone else has had similar problems > and if you have eventually felt better? I am feeling pretty discouraged > right now - I've followed every piece of advice and am hoping that this is > not going to be a lifelong struggle (I'm 33). > > Thank you in advance! > > > > ------------ --------- --------- ------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 Get some acupuncture, possibly an herb like yan hu suo. Learn some QiGong or Tai Chi. You'll be fine. You might look at the possibility of career change. New here... > Hi everyone, > I am new to the group and am just starting to go through the posts to see > what's what with everyone. I am here because I had surgery December 12 on > my cervical spine for stenosis, spondylosis and kephosis (?) which were > resulting in myelopathy. I had severe pain/numbness in my arms, legs, > hands and feet and by the time of the surgery was having difficulty > walking. The first surgeon I went to (neuro) was pretty grim about my long > term prognosis - did not feel that I would get better, that I could mostly > hope to halt the progression temporarily. The second opinion (ortho) was > much more positive and I went with him... > > The pain and numbness have significantly improved and I have been walking > and lifting weights to try to restore the muscle that has been lost over > the past couple of years. The problems started however when I returned to > work (9 weeks post surgery). I have a job that involves almost exclusively > sitting at a computer and I have had excruciating pain in my neck after > every day, as well as return of the other symptoms (though they are milder > than before the surgery). The opinion of the physician's assistant is that > I just need more time to heal, that I need to stick with the weights and > if I don't see significant improvement in the next few weeks, I will need > more physical therapy. I wondered if anyone else has had similar problems > and if you have eventually felt better? I am feeling pretty discouraged > right now - I've followed every piece of advice and am hoping that this is > not going to be a lifelong struggle (I'm 33). > > Thank you in advance! > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2009 Report Share Posted March 6, 2009 I am a paralegal (and unless you go into real estate work as a paralegal)I sit at a chair in front of a computer most of the day and it's horrible on your neck and lower back. > > From: Mercurius Trismegistus <magisterium_magnum@...> > Subject: Re: New here... > spinal problems > Date: Thursday, March 5, 2009, 11:49 PM > > > > > > > Get some acupuncture, possibly an herb like yan hu suo. Learn some QiGong > or Tai Chi. You'll be fine. You might look at the possibility of career > change. > > New here... > > > Hi everyone, > > I am new to the group and am just starting to go through the posts to see > > what's what with everyone. I am here because I had surgery December 12 on > > my cervical spine for stenosis, spondylosis and kephosis (?) which were > > resulting in myelopathy. I had severe pain/numbness in my arms, legs, > > hands and feet and by the time of the surgery was having difficulty > > walking. The first surgeon I went to (neuro) was pretty grim about my long > > term prognosis - did not feel that I would get better, that I could mostly > > hope to halt the progression temporarily. The second opinion (ortho) was > > much more positive and I went with him... > > > > The pain and numbness have significantly improved and I have been walking > > and lifting weights to try to restore the muscle that has been lost over > > the past couple of years. The problems started however when I returned to > > work (9 weeks post surgery). I have a job that involves almost exclusively > > sitting at a computer and I have had excruciating pain in my neck after > > every day, as well as return of the other symptoms (though they are milder > > than before the surgery). The opinion of the physician's assistant is that > > I just need more time to heal, that I need to stick with the weights and > > if I don't see significant improvement in the next few weeks, I will need > > more physical therapy. I wondered if anyone else has had similar problems > > and if you have eventually felt better? I am feeling pretty discouraged > > right now - I've followed every piece of advice and am hoping that this is > > not going to be a lifelong struggle (I'm 33). > > > > Thank you in advance! > > > > > > > > ------------ --------- --------- ------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 Hi, Â Unfortunately your first doc was correct. You went with the doc who said what you wanted to hear, which isn't always the truth. Spinal stenosis is one of those spine disorders that does not carry a great prognosis. It does not respond well to medications, injections or surgery. Most docs in Boston won't operate on someone for stenosis unless it is severe, and even then won't think it will do much. I don't want to be the bearer of bad news, but after 16 years of back pain and surgeries, it believe in honesty and education. Â Your best bet for controlling your symptoms is to keep your weight down and keep a strong core. Â --- From: social_justice40 <social_justice40@...> Subject: New here... spinal problems Date: Thursday, March 5, 2009, 10:38 PM Hi everyone, I am new to the group and am just starting to go through the posts to see what's what with everyone. I am here because I had surgery December 12 on my cervical spine for stenosis, spondylosis and kephosis (?) which were resulting in myelopathy. I had severe pain/numbness in my arms, legs, hands and feet and by the time of the surgery was having difficulty walking. The first surgeon I went to (neuro) was pretty grim about my long term prognosis - did not feel that I would get better, that I could mostly hope to halt the progression temporarily. The second opinion (ortho) was much more positive and I went with him... The pain and numbness have significantly improved and I have been walking and lifting weights to try to restore the muscle that has been lost over the past couple of years. The problems started however when I returned to work (9 weeks post surgery). I have a job that involves almost exclusively sitting at a computer and I have had excruciating pain in my neck after every day, as well as return of the other symptoms (though they are milder than before the surgery). The opinion of the physician's assistant is that I just need more time to heal, that I need to stick with the weights and if I don't see significant improvement in the next few weeks, I will need more physical therapy. I wondered if anyone else has had similar problems and if you have eventually felt better? I am feeling pretty discouraged right now - I've followed every piece of advice and am hoping that this is not going to be a lifelong struggle (I'm 33). Thank you in advance! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2009 Report Share Posted March 11, 2009 In case it helps others, I stumbled into a gimmick which was helpful for me as I worked at a computer - all day and night. Sitting became a problem which I never noticed until I went to stand up and move. I had a kitchen stool which I used one day because it was there. Once I learned not to lean on my arms or put pressure on my wrists - it was a real treat. It was almost standing, but not quite, and it helped me very much. I also swapped between a normal chair and the stool, using both several times each per day. Always thought it odd that sitting would become a problem. Vince On Tue, Mar 10, 2009 at 5:51 PM, Babbitt <tpowell1977@...>wrote: > Hi, > > Unfortunately your first doc was correct. You went with the doc who said > what you wanted to hear, which isn't always the truth. Spinal stenosis is > one of those spine disorders that does not carry a great prognosis. It does > not respond well to medications, injections or surgery. Most docs in Boston > won't operate on someone for stenosis unless it is severe, and even then > won't think it will do much. I don't want to be the bearer of bad news, but > after 16 years of back pain and surgeries, it believe in honesty and > education. > > Your best bet for controlling your symptoms is to keep your weight down and > keep a strong core. > > --- > > > > > From: social_justice40 <social_justice40@...<social_justice40%40> > > > Subject: New here... > To: spinal problems <spinal problems%40gro\ ups.com> > Date: Thursday, March 5, 2009, 10:38 PM > > Hi everyone, > I am new to the group and am just starting to go through the posts to see > what's what with everyone. I am here because I had surgery December 12 on my > cervical spine for stenosis, spondylosis and kephosis (?) which were > resulting in myelopathy. I had severe pain/numbness in my arms, legs, hands > and feet and by the time of the surgery was having difficulty walking. The > first surgeon I went to (neuro) was pretty grim about my long term prognosis > - did not feel that I would get better, that I could mostly hope to halt the > progression temporarily. The second opinion (ortho) was much more positive > and I went with him... > > The pain and numbness have significantly improved and I have been walking > and lifting weights to try to restore the muscle that has been lost over the > past couple of years. The problems started however when I returned to work > (9 weeks post surgery). I have a job that involves almost exclusively > sitting at a computer and I have had excruciating pain in my neck after > every day, as well as return of the other symptoms (though they are milder > than before the surgery). The opinion of the physician's assistant is that I > just need more time to heal, that I need to stick with the weights and if I > don't see significant improvement in the next few weeks, I will need more > physical therapy. I wondered if anyone else has had similar problems and if > you have eventually felt better? I am feeling pretty discouraged right now - > I've followed every piece of advice and am hoping that this is not going to > be a lifelong struggle (I'm 33). > > Thank you in advance! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2009 Report Share Posted March 11, 2009 Acupuncture, qigong and career change. Are you able to get up and move around periodically at work? I would encourage you to become more physically active, particularly stretching. Yoga, tai chi and qigong would be the best thing for you. New here... spinal problems Date: Thursday, March 5, 2009, 10:38 PM Hi everyone, I am new to the group and am just starting to go through the posts to see what's what with everyone. I am here because I had surgery December 12 on my cervical spine for stenosis, spondylosis and kephosis (?) which were resulting in myelopathy. I had severe pain/numbness in my arms, legs, hands and feet and by the time of the surgery was having difficulty walking. The first surgeon I went to (neuro) was pretty grim about my long term prognosis - did not feel that I would get better, that I could mostly hope to halt the progression temporarily. The second opinion (ortho) was much more positive and I went with him... The pain and numbness have significantly improved and I have been walking and lifting weights to try to restore the muscle that has been lost over the past couple of years. The problems started however when I returned to work (9 weeks post surgery). I have a job that involves almost exclusively sitting at a computer and I have had excruciating pain in my neck after every day, as well as return of the other symptoms (though they are milder than before the surgery). The opinion of the physician's assistant is that I just need more time to heal, that I need to stick with the weights and if I don't see significant improvement in the next few weeks, I will need more physical therapy. I wondered if anyone else has had similar problems and if you have eventually felt better? I am feeling pretty discouraged right now - I've followed every piece of advice and am hoping that this is not going to be a lifelong struggle (I'm 33). Thank you in advance! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2009 Report Share Posted March 23, 2009 Does anyone here have a child on the spectrum who has had NO vaccinations? It seems like my son,3, might possibly be on the spectrum and we are doing the biomedical route (acyclovir, vitamin injections), OT, ST. Our biggest issue is behavior..impulse. We have eye contact,does not stem, he points, is very social. We have major family history of delayed speech. Keep getting the same dx...SPD. I just wonder if it's because he has had no vaccines. Any thoughts? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2009 Report Share Posted April 21, 2009 welcome Liza!!! First thank you for your amazing story! I believe there is always a story behind the weight and it has a lot more to do with then simply eating to much! You can do this! I am actually doing this and Im one of those people who have failed at everything.. so I know if I can, you can! about me.. My name is Regina and Im 27, I have 4 babies age 8, 5, 3, and jayden will be 1 next month ={... I started this journey a tad over a month ago and I weighed in at 243lbs. The highest weight ever for me. I feel exactly like you and go almost no where because I dont want to be the fat person there. I mean the store and things yes but parties or things that its people I dont know, heck no! Its taken a lot from my life. Im finally doing better but I still have "fat" days where i just feel horrible. I think we are pretty similar as far as life and goals.. feel free to email me anytime! I would be happy to be your buddy! ReginaWalking into my weight loss success243/222/200 A Good Credit Score is 700 or Above. See yours in just 2 easy steps! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2009 Report Share Posted April 21, 2009 Hi Liza,I can relate to your weight issues. As a child I was extremely thin and was forced to eat because of their worry. Then when they didn't have to force me any more and I was gaining too much, their worry was to humiliate me and try to force me to lose the weight. I gave up control of the whole thing and got really angry about the whole issue, an anger I have carried around for years which I let control me and leave me obese. About a year ago I took it all back. I started letting go of the anger, realized how much I wanted to be "what I was meant to be" and I started taking my control back. I am taller than you (6 feet) so my goal weight is about 175 (will see how thing look when I get there and start firming it all up) when I started losing I was about 286 or more. I stopped weighing myself when it looked like I might hit 300. Zero confidence, hated myself and how I looked, all that goes along with carrying that much weight.I started very slowly to change things since too much change has been a problem for me. I started by cutting things out that I knew were bad like refined sugar, I switched to honey and stevia, maple syrup even. I cut white flour and I cut soda (yes I love coke but it is so full of not good for you -ness) but I also felt it was kind of addicting so I weaned off it until I could live with just water, iced tea, coffee, and occasional juice. I started exercising, making the commitment to myself. When that started to take hold I went on nutrisystem for long enough to "get" the portion control, regular eating schedule, and what I was supposed to eat in a day. I next increased how much cardio I was doing and how often, then started counting calories, keeping it low at about 1200-1500 a day. When my cardio increased so much I increased the calories to cover my energy needs. I began learning about holistic nutrition and eating whole food instead of processed foods and I cut the processed (in a box or can, refined) foods little by little. I journal my feelings, fears, thoughts out every day into my food journal, and I started taking life coaching classes which helped me to not only learn how to help others (giving me a purpose and direction) but helped me to release more of what I needed to release and understand more of what I am all about. Now I am at 207 lbs having lost 67 lbs so far, have gained a sense of confidence in myself that I can do this, and anything else I want to do, and the world is opening up to me in ways I never dreamed possible. And it was through gradually taking back my control, by wanting to change so badly I am willing to do about 1 1/2 hours of cardio 5 days a week, and exercise each time, weight train 3 of those days, whatever it takes. For me this is how I am doing it, I'm not saying this is what you have to do, but if you want to change, really want to change, then know that you have it in you to change. Start small with whatever you can manage. Don't not eat because your body will think it is starving and hold on to the fat. Eat the right amount of foods, smaller portions throughout the day amounting to what you need. If you have the desire for a food and the control to not overeat it, I say allow yourself a little bit of those foods. That way you don't feel deprived and end up eating too much of it. Take back control of your life by controlling what you eat the right way. If you can't join a gym, walk, use DVDs of whatever program you like, move. As the changes begin to happen you will see that it is possible and that will spur you on. If you cheat or have a bump in the road, know that you are human and pick yourself up and rededicate to the process. Just keep going and it will happen.I don't know if this makes sense to you or seems like something you can do, but if you can be a mother to 5 kids I suspect you are capable of doing it and more. Let us know what you are doing and we will help you and encourage you. We have all been somewhere similar in some way to where you are and can relate on some level. Be kind to yourself and know that wherever you are in the journey, that is a great place to start. G "It came to me that every time I lose a dog they take a piece of my heart with them. And every new dog who comes into my life gifts me with a piece of their heart. If I live long enough, all the components of my heart will be dog, and I will become as generous and loving as they are."~Cheryl Zuccaro On Apr 20, 2009, at 8:40 PM, Liza Maya wrote:<stat105.jpg><stat9434.jpg>Hi everyone,I am new here, but definitely not new to dieting! It's been such a long and bumpy road I don't really know were to begin, but I am just going to start form the beginning and hope for the best (this could get long). I was never overweight as a child, tween, teen, in fact I was underweight. I wasn't "anorexic" or "bulimic" but teetered both. Without getting into vast detail, EVERY woman in my family, including my Grandmother, are obsessed with there figures, funny thing is they are all 5'7 + and 120lbs or less. Go figure. I think the obsession definitely rubbed off.I was 16 when I became pregnant, and married shortly there after. My husband's family's lives revolve around food. When they found out I was pregnant they would force me to eat until I cried, and slowly through the pregnancy they didn't have to force me anymore. I went from 99 lbs to 199 pounds in those 9 months. After having my son I assumed the weight would just disappear, I rounded off at about 150 and was so disgusted with myself, and then I was pregnant again, and again went up to around 200lbs before delivery.After my 2nd child I became obsessed with being 100 pounds again. I would eat nothing (at all) my diet consisted of 1 glass of ff milk, 1 glass of juice, and water. If I accidentally popped something in my mouth (as I often did when cooking) I ran to the bathroom and made myself throw it up.I lost about 75 pounds in a few months, and then I was pregnant again.This time I went over 200, and after delivery I put my "food" issues aside because I wanted so badly to nurse my new baby. By the time that was over and I began working out again, I was pregnant again... (I know), this time I went up to 240lbs, she was born with several health issues, and was in and out of the hospitals, ERs, ORs, and DRs, for the 1st year, I went up to 260lbs, and from the day she was born, never had another period.A year later, I found out I was pregnant again,,, total shock as I was not menstruating and was told I wouldn't be able to get pregnant.I went up to about 270 with that one.After she was born I joined weight watchers with my SIL. That was January of 2007. By October of 2007 I was down to 219, which was the lowest I'd been in years, I was finally getting some confidence back and buying new clothes, and the holidays struck. I gained about 30 pounds. I then went back to school the following spring (2008) and put on another 10-15 pounds, and then my husband lost his job, we almost lost our home, and WW was a luxury we just could not afford. So here I am, now 276lbs, starting all over.There is so much stacked against me, it seems like this is just impossible and might as well quit now, but I am so miserable. I hate the way I look, I feel, I'm embarrassed to go on field trips or class parties because I am so disgusting. I don't feel pretty or sexy, I have 0 self confidence, and I am on my own.Dieting has always been all or nothing for me, eat all I want or eat nothing at all. WW helped change that, but I had a program and points and people to guide me, now I am on my own and scared to death. This group caught my eye because it was for people with 100+ lbs to lose. I began my "new" journey last week, and lost 4 lbs. I WI on Wednesdays and according to my scale have gained 3lbs. I am just so frustrated and ready to give up, I keep giving myself reaons to give in! I can't and don't want this to be a diet. I know I have an abundance of weight to lose, but I also need to change my ENTIRE life, so that I can maintain a healthy weight and a healthy life.So here goes, My name is Liza. I am going to be 28 years old on the 29th of this month, I have 5 kids ages 2, 5, 7, 9, & 11. I have been married 11 years. I weighed in at 276lbs last week.I have no intention of being 100 pounds again, I don't really have a goal weight. I am 5'5 and just want to be healthy and feel good.Please help me.Liza Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2009 Report Share Posted April 21, 2009 Thanks ,It does make perfect sense, but I've learned that I am my own worst enemy! Things are always easier said than done! LoL. I did join a gym, it won't open until June, I'm a student and have been using the university gym, but it is too far of a drive to go more than once or twice a week.Did you also cut out diet pop? I have been allowing myself 1 can of diet soda per day, but maybe that should stop too? I am not at a point right now where I can allow myself to indulge to stop a craving. I will just not stop. I hope someday to be there, but I know it isn;t an option right now.Someone once told me that the best way to lose weight/eat healthy is to only shop on the out skirts of the grocery store, and to never go in between, so I try to do this. I do shop in the middle for the kids granola bars and what not but I try to eat well during the day and have made a commitment to making dinner with only "fresh" ingredients. But the convenience of the other foods is hard to resist sometimes!I decided not to give up last night, I can push through this, one day at a time, right?From: <seraphimtoo@...>100-plus Sent: Tuesday, April 21, 2009 10:57:29 AMSubject: Re: New Here... Hi Liza,I can relate to your weight issues. As a child I was extremely thin and was forced to eat because of their worry. Then when they didn't have to force me any more and I was gaining too much, their worry was to humiliate me and try to force me to lose the weight. I gave up control of the whole thing and got really angry about the whole issue, an anger I have carried around for years which I let control me and leave me obese. About a year ago I took it all back. I started letting go of the anger, realized how much I wanted to be "what I was meant to be" and I started taking my control back. I am taller than you (6 feet) so my goal weight is about 175 (will see how thing look when I get there and start firming it all up) when I started losing I was about 286 or more. I stopped weighing myself when it looked like I might hit 300. Zero confidence, hated myself and how I looked, all that goes along with carrying that much weight.I started very slowly to change things since too much change has been a problem for me. I started by cutting things out that I knew were bad like refined sugar, I switched to honey and stevia, maple syrup even. I cut white flour and I cut soda (yes I love coke but it is so full of not good for you -ness) but I also felt it was kind of addicting so I weaned off it until I could live with just water, iced tea, coffee, and occasional juice. I started exercising, making the commitment to myself. When that started to take hold I went on nutrisystem for long enough to "get" the portion control, regular eating schedule, and what I was supposed to eat in a day. I next increased how much cardio I was doing and how often, then started counting calories, keeping it low at about 1200-1500 a day. When my cardio increased so much I increased the calories to cover my energy needs. I began learning about holistic nutrition and eating whole food instead of processed foods and I cut the processed (in a box or can, refined) foods little by little. I journal my feelings, fears, thoughts out every day into my food journal, and I started taking life coaching classes which helped me to not only learn how to help others (giving me a purpose and direction) but helped me to release more of what I needed to release and understand more of what I am all about. Now I am at 207 lbs having lost 67 lbs so far, have gained a sense of confidence in myself that I can do this, and anything else I want to do, and the world is opening up to me in ways I never dreamed possible. And it was through gradually taking back my control, by wanting to change so badly I am willing to do about 1 1/2 hours of cardio 5 days a week, and exercise each time, weight train 3 of those days, whatever it takes. For me this is how I am doing it, I'm not saying this is what you have to do, but if you want to change, really want to change, then know that you have it in you to change. Start small with whatever you can manage. Don't not eat because your body will think it is starving and hold on to the fat. Eat the right amount of foods, smaller portions throughout the day amounting to what you need. If you have the desire for a food and the control to not overeat it, I say allow yourself a little bit of those foods. That way you don't feel deprived and end up eating too much of it. Take back control of your life by controlling what you eat the right way. If you can't join a gym, walk, use DVDs of whatever program you like, move. As the changes begin to happen you will see that it is possible and that will spur you on. If you cheat or have a bump in the road, know that you are human and pick yourself up and rededicate to the process. Just keep going and it will happen.I don't know if this makes sense to you or seems like something you can do, but if you can be a mother to 5 kids I suspect you are capable of doing it and more. Let us know what you are doing and we will help you and encourage you. We have all been somewhere similar in some way to where you are and can relate on some level. Be kind to yourself and know that wherever you are in the journey, that is a great place to start. G "It came to me that every time I lose a dog they take a piece of my heart with them. And every new dog who comes into my life gifts me with a piece of their heart. If I live long enough, all the components of my heart will be dog, and I will become as generous and loving as they are."~Cheryl Zuccaro On Apr 20, 2009, at 8:40 PM, Liza Maya wrote:<stat105.jpg><stat9434.jpg>Hi everyone,I am new here, but definitely not new to dieting! It's been such a long and bumpy road I don't really know were to begin, but I am just going to start form the beginning and hope for the best (this could get long). I was never overweight as a child, tween, teen, in fact I was underweight. I wasn't "anorexic" or "bulimic" but teetered both. Without getting into vast detail, EVERY woman in my family, including my Grandmother, are obsessed with there figures, funny thing is they are all 5'7 + and 120lbs or less. Go figure. I think the obsession definitely rubbed off.I was 16 when I became pregnant, and married shortly there after. My husband's family's lives revolve around food. When they found out I was pregnant they would force me to eat until I cried, and slowly through the pregnancy they didn't have to force me anymore. I went from 99 lbs to 199 pounds in those 9 months. After having my son I assumed the weight would just disappear, I rounded off at about 150 and was so disgusted with myself, and then I was pregnant again, and again went up to around 200lbs before delivery.After my 2nd child I became obsessed with being 100 pounds again. I would eat nothing (at all) my diet consisted of 1 glass of ff milk, 1 glass of juice, and water. If I accidentally popped something in my mouth (as I often did when cooking) I ran to the bathroom and made myself throw it up.I lost about 75 pounds in a few months, and then I was pregnant again.This time I went over 200, and after delivery I put my "food" issues aside because I wanted so badly to nurse my new baby. By the time that was over and I began working out again, I was pregnant again... (I know), this time I went up to 240lbs, she was born with several health issues, and was in and out of the hospitals, ERs, ORs, and DRs, for the 1st year, I went up to 260lbs, and from the day she was born, never had another period.A year later, I found out I was pregnant again,,, total shock as I was not menstruating and was told I wouldn't be able to get pregnant.I went up to about 270 with that one.After she was born I joined weight watchers with my SIL. That was January of 2007. By October of 2007 I was down to 219, which was the lowest I'd been in years, I was finally getting some confidence back and buying new clothes, and the holidays struck. I gained about 30 pounds. I then went back to school the following spring (2008) and put on another 10-15 pounds, and then my husband lost his job, we almost lost our home, and WW was a luxury we just could not afford. So here I am, now 276lbs, starting all over.There is so much stacked against me, it seems like this is just impossible and might as well quit now, but I am so miserable. I hate the way I look, I feel, I'm embarrassed to go on field trips or class parties because I am so disgusting. I don't feel pretty or sexy, I have 0 self confidence, and I am on my own.Dieting has always been all or nothing for me, eat all I want or eat nothing at all. WW helped change that, but I had a program and points and people to guide me, now I am on my own and scared to death. This group caught my eye because it was for people with 100+ lbs to lose. I began my "new" journey last week, and lost 4 lbs. I WI on Wednesdays and according to my scale have gained 3lbs. I am just so frustrated and ready to give up, I keep giving myself reaons to give in! I can't and don't want this to be a diet. I know I have an abundance of weight to lose, but I also need to change my ENTIRE life, so that I can maintain a healthy weight and a healthy life.So here goes, My name is Liza. I am going to be 28 years old on the 29th of this month, I have 5 kids ages 2, 5, 7, 9, & 11. I have been married 11 years. I weighed in at 276lbs last week.I have no intention of being 100 pounds again, I don't really have a goal weight. I am 5'5 and just want to be healthy and feel good.Please help me.Liza Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2009 Report Share Posted April 21, 2009 You're welcome Liza,Yes things are always easier said than done, but I find that if you do them enough they do become easier. Good for you for joining the gym! If you can't get to where you are working out, can you walk around the block or neighborhood on the off days, take the kids to the park or wherever, or walk the malls (if spending is a problem leave the cards at home and only carry 10-20$ with you)? There are ways around not having a gym when you are just starting out and need to just get moving. I'm glad you've already started cutting back on the soda! I never really drank the diet sodas as they have artificial sweetners which are worse in someways than refined sugar. I stay away from anything artificial. If you have to drink soda look for the natural kind, I know, not the same thing, but aren't you trying to change your life? Look at it this way, if you are even considering counting calories to at least know what amount you are eating, do you want to be drinking that many of your calories and not getting full or any benefit from them? Also all the sugar in soda is so way bad for you, not to mention all the other stuff. If you can cut the soda, eventually the craving for it will go away. I think they build that into them to hook us.It is smart knowing what your limits are, like not being able to indulge a little. If you have the control to say no in order not to overindulge, you have the strength to do this I think. Just take it step by step and eliminate something you know you should, or can, each week or two or whatever. Substitute a good version of a bad item. Read up on what you don't know that you think would be a help. IF you still eat white bread, try switching to whole wheat, if that is where you are, take it to no enriched breads, only completely whole wheat with no high fructose corn syrup or artificial ingredients. I eat Ezekial bread now and really enjoy it. It is sprouted whole grains and the best choice. Eventually I hope to not want bread at all but not there yet.Yes, in traditional supermarkets all the whole foods are on the outskirts of the store - fruit, vegetables, meats - and all the processed foods are on the aisles. It is healthier to chop on the outside so if you can stay there you are doing well. Yes the convenience is a temptation, but if you look at how much better for you the healthy foods are, how much better you and your family feel, with more energy and vitality, and ultimately how much healthier you all will be, do you really want to trade that for the convenience? If you want convenient think about cooking larger amounts of what you are making and then having the extra for the next night. Or freeze the extra for next week or when you need it. You can even make lunch size portions and store them in small containers to go. Think about options and ways that you can make the changes work for you!And yes you can do this! You have the right idea, one day at a time! When the next situation occurs stop and think - is this really what I want or is it something else that I really need, is there another way to deal with this emotion or whatever? Have a list of options handy of how you would prefer to handle what is going on so you can give yourself the chance to make a different choice - journalling, walking around, taking a bath, talking to the person involved, whatever could work for you. The fact that you decided to join the groups shows you are making the effort, making other choices, want to change and I applaud you for it! You are on your way! G "It came to me that every time I lose a dog they take a piece of my heart with them. And every new dog who comes into my life gifts me with a piece of their heart. If I live long enough, all the components of my heart will be dog, and I will become as generous and loving as they are."~Cheryl Zuccaro On Apr 21, 2009, at 8:54 AM, Liza Maya wrote:Thanks ,It does make perfect sense, but I've learned that I am my own worst enemy! Things are always easier said than done! LoL. I did join a gym, it won't open until June, I'm a student and have been using the university gym, but it is too far of a drive to go more than once or twice a week.Did you also cut out diet pop? I have been allowing myself 1 can of diet soda per day, but maybe that should stop too? I am not at a point right now where I can allow myself to indulge to stop a craving. I will just not stop. I hope someday to be there, but I know it isn;t an option right now.Someone once told me that the best way to lose weight/eat healthy is to only shop on the out skirts of the grocery store, and to never go in between, so I try to do this. I do shop in the middle for the kids granola bars and what not but I try to eat well during the day and have made a commitment to making dinner with only "fresh" ingredients. But the convenience of the other foods is hard to resist sometimes!I decided not to give up last night, I can push through this, one day at a time, right?From: <seraphimtoo@...>100-plus Sent: Tuesday, April 21, 2009 10:57:29 AMSubject: Re: New Here...Hi Liza,I can relate to your weight issues. As a child I was extremely thin and was forced to eat because of their worry. Then when they didn't have to force me any more and I was gaining too much, their worry was to humiliate me and try to force me to lose the weight. I gave up control of the whole thing and got really angry about the whole issue, an anger I have carried around for years which I let control me and leave me obese. About a year ago I took it all back. I started letting go of the anger, realized how much I wanted to be "what I was meant to be" and I started taking my control back. I am taller than you (6 feet) so my goal weight is about 175 (will see how thing look when I get there and start firming it all up) when I started losing I was about 286 or more. I stopped weighing myself when it looked like I might hit 300. Zero confidence, hated myself and how I looked, all that goes along with carrying that much weight.I started very slowly to change things since too much change has been a problem for me. I started by cutting things out that I knew were bad like refined sugar, I switched to honey and stevia, maple syrup even. I cut white flour and I cut soda (yes I love coke but it is so full of not good for you -ness) but I also felt it was kind of addicting so I weaned off it until I could live with just water, iced tea, coffee, and occasional juice. I started exercising, making the commitment to myself. When that started to take hold I went on nutrisystem for long enough to "get" the portion control, regular eating schedule, and what I was supposed to eat in a day. I next increased how much cardio I was doing and how often, then started counting calories, keeping it low at about 1200-1500 a day. When my cardio increased so much I increased the calories to cover my energy needs. I began learning about holistic nutrition and eating whole food instead of processed foods and I cut the processed (in a box or can, refined) foods little by little. I journal my feelings, fears, thoughts out every day into my food journal, and I started taking life coaching classes which helped me to not only learn how to help others (giving me a purpose and direction) but helped me to release more of what I needed to release and understand more of what I am all about. Now I am at 207 lbs having lost 67 lbs so far, have gained a sense of confidence in myself that I can do this, and anything else I want to do, and the world is opening up to me in ways I never dreamed possible. And it was through gradually taking back my control, by wanting to change so badly I am willing to do about 1 1/2 hours of cardio 5 days a week, and exercise each time, weight train 3 of those days, whatever it takes. For me this is how I am doing it, I'm not saying this is what you have to do, but if you want to change, really want to change, then know that you have it in you to change. Start small with whatever you can manage. Don't not eat because your body will think it is starving and hold on to the fat. Eat the right amount of foods, smaller portions throughout the day amounting to what you need. If you have the desire for a food and the control to not overeat it, I say allow yourself a little bit of those foods. That way you don't feel deprived and end up eating too much of it. Take back control of your life by controlling what you eat the right way. If you can't join a gym, walk, use DVDs of whatever program you like, move. As the changes begin to happen you will see that it is possible and that will spur you on. If you cheat or have a bump in the road, know that you are human and pick yourself up and rededicate to the process. Just keep going and it will happen.I don't know if this makes sense to you or seems like something you can do, but if you can be a mother to 5 kids I suspect you are capable of doing it and more. Let us know what you are doing and we will help you and encourage you. We have all been somewhere similar in some way to where you are and can relate on some level. Be kind to yourself and know that wherever you are in the journey, that is a great place to start.G "It came to me that every time I lose a dog they take a piece of my heart with them. And every new dog who comes into my life gifts me with a piece of their heart. If I live long enough, all the components of my heart will be dog, and I will become as generous and loving as they are."~Cheryl ZuccaroOn Apr 20, 2009, at 8:40 PM, Liza Maya wrote:<stat105.jpg><stat9434.jpg>Hi everyone,I am new here, but definitely not new to dieting! It's been such a long and bumpy road I don't really know were to begin, but I am just going to start form the beginning and hope for the best (this could get long). I was never overweight as a child, tween, teen, in fact I was underweight. I wasn't "anorexic" or "bulimic" but teetered both. Without getting into vast detail, EVERY woman in my family, including my Grandmother, are obsessed with there figures, funny thing is they are all 5'7 + and 120lbs or less. Go figure. I think the obsession definitely rubbed off.I was 16 when I became pregnant, and married shortly there after. My husband's family's lives revolve around food. When they found out I was pregnant they would force me to eat until I cried, and slowly through the pregnancy they didn't have to force me anymore. I went from 99 lbs to 199 pounds in those 9 months. After having my son I assumed the weight would just disappear, I rounded off at about 150 and was so disgusted with myself, and then I was pregnant again, and again went up to around 200lbs before delivery.After my 2nd child I became obsessed with being 100 pounds again. I would eat nothing (at all) my diet consisted of 1 glass of ff milk, 1 glass of juice, and water. If I accidentally popped something in my mouth (as I often did when cooking) I ran to the bathroom and made myself throw it up.I lost about 75 pounds in a few months, and then I was pregnant again.This time I went over 200, and after delivery I put my "food" issues aside because I wanted so badly to nurse my new baby. By the time that was over and I began working out again, I was pregnant again... (I know), this time I went up to 240lbs, she was born with several health issues, and was in and out of the hospitals, ERs, ORs, and DRs, for the 1st year, I went up to 260lbs, and from the day she was born, never had another period.A year later, I found out I was pregnant again,,, total shock as I was not menstruating and was told I wouldn't be able to get pregnant.I went up to about 270 with that one.After she was born I joined weight watchers with my SIL. That was January of 2007. By October of 2007 I was down to 219, which was the lowest I'd been in years, I was finally getting some confidence back and buying new clothes, and the holidays struck. I gained about 30 pounds. I then went back to school the following spring (2008) and put on another 10-15 pounds, and then my husband lost his job, we almost lost our home, and WW was a luxury we just could not afford. So here I am, now 276lbs, starting all over.There is so much stacked against me, it seems like this is just impossible and might as well quit now, but I am so miserable. I hate the way I look, I feel, I'm embarrassed to go on field trips or class parties because I am so disgusting. I don't feel pretty or sexy, I have 0 self confidence, and I am on my own.Dieting has always been all or nothing for me, eat all I want or eat nothing at all. WW helped change that, but I had a program and points and people to guide me, now I am on my own and scared to death. This group caught my eye because it was for people with 100+ lbs to lose. I began my "new" journey last week, and lost 4 lbs. I WI on Wednesdays and according to my scale have gained 3lbs. I am just so frustrated and ready to give up, I keep giving myself reaons to give in! I can't and don't want this to be a diet. I know I have an abundance of weight to lose, but I also need to change my ENTIRE life, so that I can maintain a healthy weight and a healthy life.So here goes, My name is Liza. I am going to be 28 years old on the 29th of this month, I have 5 kids ages 2, 5, 7, 9, & 11. I have been married 11 years. I weighed in at 276lbs last week.I have no intention of being 100 pounds again, I don't really have a goal weight. I am 5'5 and just want to be healthy and feel good.Please help me.Liza Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2009 Report Share Posted April 21, 2009 Thank you for that, it does help to know there are people out there with similar struggles who are actually succeeding! I have made up my mind, I am sticking to it. My son, my oldest, asked me today to sign up for a field trip to an amusement park / water park. He is a conflict manager at school and they are taking them as a thank you. I signed my husband up. It is just killing me that because of my weight I am missing this opportunity. He will be 12 this summer, I am not entirely sure how many more things like this he'll even want me to "tag" along to. But I also think that it would be even more humiliating for him to have a 276lb mom in a bathing suit who most likely exceeds the weight limits for the rides. There is no reason or excuse for this anymore, I am not happy and as wonderful a comfort that food has turned into, it is only comforting my because I am miserable because I am so over weight... it's like a useless circle.From: "antyroro@..." <antyroro@...>100-plus Sent: Tuesday, April 21, 2009 12:26:12 PMSubject: Re: New Here... welcome Liza!!! First thank you for your amazing story! I believe there is always a story behind the weight and it has a lot more to do with then simply eating to much! You can do this! I am actually doing this and Im one of those people who have failed at everything.. so I know if I can, you can! about me.. My name is Regina and Im 27, I have 4 babies age 8, 5, 3, and jayden will be 1 next month ={... I started this journey a tad over a month ago and I weighed in at 243lbs. The highest weight ever for me. I feel exactly like you and go almost no where because I dont want to be the fat person there. I mean the store and things yes but parties or things that its people I dont know, heck no! Its taken a lot from my life. Im finally doing better but I still have "fat" days where i just feel horrible. I think we are pretty similar as far as life and goals.. feel free to email me anytime! I would be happy to be your buddy! ReginaWalking into my weight loss success243/222/200 A Good Credit Score is 700 or Above. See yours in just 2 easy steps! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2009 Report Share Posted May 22, 2009 In a message dated 4/21/2009 2:45:20 AM Pacific Daylight Time, lizamaya5@... writes: So here goes, My name is Liza. I am going to be 28 years old on the 29th of this month, I have 5 kids ages 2, 5, 7, 9, & 11. I have been married 11 years. I weighed in at 276lbs last week.I have no intention of being 100 pounds again, I don't really have a goal weight. I am 5'5 and just want to be healthy and feel good. Hi Liza- Welcome to the group (yes, I know - a month late - OMG!) I am , 40something single mom of 3 boys (13-next week, 15-in July and 16.5) I've been puttering around with this weight loss for almost 5 years and have lost about 50-60 lbs. I am refusing to get on the scale right now because TOM is due and I just got back from a mini-vacation and am sleep-deprived and stressed-out this week, all pointing to a 10-lb gain, surely! Hang in there and good luck on your journey. I would say most of all, find time for you, so you can move your body a little bit and make good choices eating. Hugs, Stay connected and tighten your budget with a great mobile device for under $50. Take a Peek! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2009 Report Share Posted August 6, 2009 Welcome to the group. I am new as well and asking vincent a ton of questions. I hope you get the help you need to recover. Â I don't have cancer, but found a lump and a family hx of B CA. Â What diet have you been on the past 6 years and what if any supplements have you taken? Â Did any of your doctors tell you to take more vitamin D? Did you ever try the budwig, bill henderson, or gerson diet? Essiac Tea or Apricot seeds? I am just curious if they helped or if you had tried them. Â Blessings to you! McCollum wrote: > I am new to this group. I am looking for alternatives to taking care > of Tall Cell Papillary carcinoma (a type of thyroid cancer). I have > had a total thyroidectomy and neck dissection 6 years ago and now I > have more tumors that are not taking up the radiation (radioactive > iodine). I hope to get to meet everyone and hopefully find other > options here. I will start by looking in the archive to see what might > be helpful without me asking a lot of questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2009 Report Share Posted August 7, 2009 Hello , I thought I might make your search a bit easier. I may and may not have cancer myself, I am only starting making the diagnostics rounds, but I have gone through a lot of materials in the last 6 weeks and pulled a lot of relevant information on my computer. If you are interested, I can zip what I have and Email it to you. It is a pile, but definitely a much smaller pile than the internet at large. With kind regards, Slavek McCollum wrote: > I am new to this group. I am looking for alternatives to taking care > of Tall Cell Papillary carcinoma (a type of thyroid cancer). I have > had a total thyroidectomy and neck dissection 6 years ago and now I > have more tumors that are not taking up the radiation (radioactive > iodine). I hope to get to meet everyone and hopefully find other > options here. I will start by looking in the archive to see what might > be helpful without me asking a lot of questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2009 Report Share Posted August 7, 2009 Hi " Customer Service " , I hope the lump turns out to be a benign finding and not cancer. Sorry to hear about the family history of cancer. I am the only one in my family that has cancer. As far as diet, I am embarrassed to say that I never really changed my diet after my diagnosis. I am not a terrible eater, but maybe some of the things I eat should be cut out. The doctor said it would not really make a difference on the cancer, so I believed that. Needless to say, I never added anything more than calcium to my diet and that was only due to the fact I lost 3 out of the 4 parathyroid due to cancer, so I need more calcium now. Other than that, they never had me take anything else to help, that is why I am here looking for other options. It seems my doctors just rely on their drugs that seem to cause me more problems than help me. From: Customer Service ....What diet have you been on the past 6 years and what if any supplements have you taken? Did any of your doctors tell you to take more vitamin D? Did you ever try the budwig, bill henderson, or gerson diet? Essiac Tea or Apricot seeds? I am just curious if they helped or if you had tried them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2009 Report Share Posted August 7, 2009 Sorry for the name " Customer Service " , this is the business email I use.  I used to work in a clinic and the hospital. I was the only person pushing for diet because I've seen it turn around my health many times. The drugs they were putting me on as well was only causing me to get worse.  I have been talking to so many people who have said the FOCC diet (budwig) is helping them so much! And I myself am starting more vitamin d and iodine drops.  Doctors don't emphasize the importance of diet because they were not taught that in school. They must push drugs. Some work and some don't and some cause more harm so we all have to do our best to keep our body in the best shape possible to fight of disease IMO.  Hi " Customer Service " , I hope the lump turns out to be a benign finding and not cancer. Sorry to hear about the family history of cancer. I am the only one in my family that has cancer. As far as diet, I am embarrassed to say that I never really changed my diet after my diagnosis. I am not a terrible eater, but maybe some of the things I eat should be cut out. The doctor said it would not really make a difference on the cancer, so I believed that. Needless to say, I never added anything more than calcium to my diet and that was only due to the fact I lost 3 out of the 4 parathyroid due to cancer, so I need more calcium now. Other than that, they never had me take anything else to help, that is why I am here looking for other options. It seems my doctors just rely on their drugs that seem to cause me more problems than help me. From: Customer Service ....What diet have you been on the past 6 years and what if any supplements have you taken? Did any of your doctors tell you to take more vitamin D? Did you ever try the budwig, bill henderson, or gerson diet? Essiac Tea or Apricot seeds? I am just curious if they helped or if you had tried them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2010 Report Share Posted October 1, 2010 There are many here who can give you advice on the supplements and Nutriveda.Speech therapy is the important part seeing progress.Its frustrating when it comes slow. My 9yo Early Intervention SLP suggested we start signing at 1yo. That got us thru the next four years. She started putting two words together just after 5yo in K, our school district uses Kaufman, Prompt and whatever works!! My daughter also has a genetic deletion. She had Febrile Seizures till two years ago and her receptive language has always been close to age-level while her expressive has been far behind. Her dx of severe verbal apraxia came at 4yo. Do you have a Pediatric Neurologist? What our genetics doctor in NYC has said is what they used to think of as a rare genetic finding is now easier to connect to other parents because of the internet and groups like this. My daughters deletion is also thought to be very rare but we are still looking for other parents with kid that have the same issues. There is an organization called Chromosome Disorder Outreach or CDO. If you join thier group and submit your daughters information, they will than give you access to the group for CDO. I just looked on the group and there are actually quite a few parents there with a 9q34 deletion. Speaking to them might help you compare stories. The genetics doctor was amazed at organizations like this that can help parents find each ohter! http://www.chromodisorder.org/CDO/ chromosomedeletionoutreach/msearch?query=9q\ 34 & submit=Search & charset=windows-1252 Maureen > > Hi everyone! I am new to this group and had a few questions. My daughter is 3 years old. She has a genetic disorder (a deletion of part of her 9q34.11 chromosome). She is the only one missing this exact piece, so the doctors can't give us much insight into the future. She also has a history of infantile spasms, although she has been seizure free for over 2 years (knock on wood). We are finding that she seems to be cognitively close to age appropriate, but both her physical therapist and speech therapist believe she has motor dispraxia and speech apraxia, respectively. Her receptive language is good, and each day we discover that she understands more and more. My questions are these: > > Are there any suppliments and/or vitamins that we can give her to boost her speech? > > Do kids with speech apraxia ever just get it? I mean, I keep hoping that as long as we keep exposing her and giving her the best opportunities we can, one of these days it will click for her and the speech will come out. Am I crazy to think this? > > Thanks for any insight. I am looking forward to being part of this group. > > Colleen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2010 Report Share Posted October 1, 2010 Thank you for sending the information about your daughter. you had asked some question regarding vitamins. i really suggest u can not give any vitamins to your daughter because u can not get benefit for speech. Plz consult with speech language pathologist (pediatric) as early as possible. Thank You Raj Kumar Audiologist and Voice Therapist. Medica ENT Institute Mukundapur Kolkata India ________________________________ From: Colleen <cedando@...> Sent: Fri, 24 September, 2010 6:19:40 PM Subject: [ ] New here... Hi everyone! I am new to this group and had a few questions. My daughter is 3 years old. She has a genetic disorder (a deletion of part of her 9q34.11 chromosome). She is the only one missing this exact piece, so the doctors can't give us much insight into the future. She also has a history of infantile spasms, although she has been seizure free for over 2 years (knock on wood). We are finding that she seems to be cognitively close to age appropriate, but both her physical therapist and speech therapist believe she has motor dispraxia and speech apraxia, respectively. Her receptive language is good, and each day we discover that she understands more and more. My questions are these: Are there any suppliments and/or vitamins that we can give her to boost her speech? Do kids with speech apraxia ever just get it? I mean, I keep hoping that as long as we keep exposing her and giving her the best opportunities we can, one of these days it will click for her and the speech will come out. Am I crazy to think this? Thanks for any insight. I am looking forward to being part of this group. Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2010 Report Share Posted October 2, 2010 Hi Raj and Colleen, Interesting and cutting edge question. It appears you are both new here so wanted to answer both of you. This group consists primarily of parents and professionals that care for those that have some sort of communication issue which may or may not be linked to any one diagnosis. Raj if you check the archives over the past decade you will find that for the most part the parents represented here consist of a higher educated parent who has their child in therapy overseen by at least one if not various professionals. That's pretty much a given. It's very rare that any of us have to give basic " your first step is a speech and hearing evaluation " and I can very easily provide all the first step info as I am one of the co authors of the book The Late Talker (St. 's Press) One of my other co authors is a neurodevelopmental pediatrician who was medical director for NYC EI for a decade, and was an SLP for 7 years prior to medical school. My other co author is an international investigative journalist/author who was editor in chief of the London Mirror at one point. The book has high praise from distinguished medical, speech and educational professionals as well as parents- and even though I'm one of the co authors I want to add -it deserves it. The book has a view of " late talking " from the eyes of both a parent and a doctor, and I believe the three of us worked harder than we knew possible to make that book possible. What this group, and the Cherab organization has consistently provided beyond support over the years is information on all ways to help one with a communication issue of some sort in all ways- both traditional as well as cutting edge. As far as cutting edge goes, good nutrition in my opinion shouldn't even be there as it should be a given, and perhaps you are not from the US and for you and those you know good nutrition is a given...but unfortunately due to diets in the west rich in fast, over-processed, genetically altered, artificially flavored, synthetically created " foods " the words " good nutrition " have become warped in definition. In this group parents, as well educated as they are, if from the west are more likely to Google every single ingredient in say NV which is helping our group today http://pursuitofresearch.org/ingredients.html while it appears the rule is if you can buy it at a store no reason to question it -so not even think about what chemicals are in the popcorn they just served their child (here's one article for those that never looked at popcorn which of course is just one of many examples http://www.defendingscience.org/Diacetyl-Background.cfm ) But can food help neurological function? Of course it can! Good nutrition is vital for all functions of the living body! So should one take their child to a pediatrician or therapist? Now here in the west that's pretty much a given -and yes of course they should. And while I agree that vitamins just supplemented alone may or may not benefit one -whole food nutrition rich in the essential nutrients -I fully believe they can and do help, and science is catching up with my belief. In this group we've known about the benefits of the essential fatty acids to accelerate speech for years. The essential fatty acids or EFAs, or DHA, EPA, GLA, or Omega 3 and 6, or PUFAs or to translate for most -the fish oils...one doesn't have to go far to find numerous studies linking these essential nutrients to benefiting numerous functions in the human body including but not limited to cardiovascular, neurological, circulatory, psychological, digestive etc. May want to look at http://efaeducation.nih.gov for one site, and to see some of the work our group has done in this area you can find an entire chapter in The Late Talker book and here is information from our First Apraxia Conference http://www.cherab.org/news/scientific.html or http://www.cherabfoundation.org/2001/cherab-foundations-first-apraxia-conference and here is a page from our http://www.apraxia.org site http://www.facebook.com/topic.php?uid=115029735601 & topic=7401 We are currently in the middle of a fundraiser to validate the benefits of the PUFAs on accelerating speech and because God has a sense of humor who knew that our fundraiser which offers products formulated and endorsed by Dr. Deepak Chopra and other world renowned medical doctors would contain all the essential amino acids and nutrients are bodies also need daily in a pure and natural whole food form which is also reported to help accelerate speech as well as many other areas http://pursuitofresearch.org/pursuit.html and that includes we have a number of members now who have children, teens and one adult child who has had seizure medications lowered or eliminated just from adding NV as part of a daily diet. And you may want to read some of the theories why here http://pursuitofresearch.org/science.html The " side effects " if any of providing essential nutrients tend to be temporary behavioral changes which most of our group manages to work through by lowering dosage or just coping with these changes as again they are temporary...but just the fact there are changes in behavior to me clearly demonstrates that these essential nutrients are passing the blood brain barrier! And as far as cutting edge science catching up to theory and validating that nutrients can and do help neurological function as well as damage -may want to read this I also have here and in our apraxia.org group discussion board area. Here it is: To me one of the most profound bits of research for TBI may have slipped past most in the world -but there were two recent studies on traumatic brain injury and a discovery on neuro repair. Up till recently there was no treatment. In the study from December of 2009 " Neurology researchers have shown that feeding amino acids to brain-injured animals restores their cognitive abilities and may set the stage for the first effective treatment for cognitive impairments suffered by people with traumatic brain injuries. " http://www.sflorg.com/comm_center/medical/p974_99.html And a few months later the study just published found " Drug therapy that combines a derivative of the antibiotic tetracycline and a synthetic derivative of an amino acid may help patients suffering from traumatic brain injury, a new study in animals suggests " http://www.drugs.com/news/combo-may-brain-injury-animal-study-suggests-26851.htm\ l#ixzz10cWvTmlc So why would you want the added drugs and synthetic forms of essential amino acids when diet worked? The good news again is that if the body is provided all the essential nutrients -it is able to produce the non essential nutrients of which there are thousands. Some of these non essential nutrients are used today as individual supplements as treatment by biomedical doctors to treat autism (as just one example) If your body is able to now produce them as they should be able to because you supply all it needs that is essential in a form that is easily digestible....that alone 'may' be the answer or a large part of why NV appears to be working for so many conditions and ages across the board and with such dramatic results in most cases. Both fish oil and NV contain essential nutrients. Essential nutrients are those that the body needs all of every day but can't produce itself, which just means we need to consume them in our diet daily. All of them. There is an issue however probably due to a combination of poor diet and weakened metabolic systems that either we don't get all the essential nutrients into our body that we need daily, and/or our body can't digest and utilize all that is consumed. NV contains per serving ALL of the essential amino acids and nutrients needed daily. It is typically difficult to get all of the essential amino acids and nutrients in one meal. if the body is provided all the essential nutrients it is able to produce the non essential nutrients of which there are thousands. Some of these non essential nutrients are used today as individual supplements as treatment by biomedical doctors to treat autism (as just one example) If your body is able to now produce them as they should be able to because you supply all it needs that is essential in a form that is easily digestible....that alone 'may' be the answer or a large part of why NV appears to be working for so many conditions and ages across the board and with such dramatic results in most cases. For example as Alyssa from our group pointed our recently about her son Matt who is now seizure free after years of various medications, it's just amazing and beautiful that there is something that is so simple, just a whole food, that can help so much! Her 10 year old son had been scheduled at Kennedy Krieger to have a portion of his brain removed to try to stop his medication resistant seizures, and from day one of being on NV they stopped and one of Matt's seizure meds was completely eliminated and the other one is on a very low dosage his doctor wants to keep him on a bit longer...but he's 8 months (EIGHT MONTHS!!) seizure free since being on NV. And also great news is that Matt's full brain is intact! You can read Alyssa's testimony here which was written a few months back now http://pursuitofresearch.org/testimonials.html And then there is Dawn's 14 year old son who is off ALL seizure medications now after 9 months of medication -also seizure free for the first time, and for the first time in his life since being on NV a normal EEG. Her 10 year old daughter will be off all seizure meds as of January..and there are many other stories just like this now. But it's not just working for seizures, we have testimonies for autism, apraxia and other conditions that are just as incredible. I've seen it with my own eyes in my boys (I co authored the book The Late Talker due to my boys who were both " late talkers " ) The best way to sum this product up is that is somehow appears to " normalize " the body. If you are looking for more information on NV or to purchase this whole food product which contains in each serving all of the essential amino acids and nutrients please visit http://www.pursuitofresearch.org/ however there are other ways to purchase as I have here http://www.facebook.com/topic.php?uid=115029735601 & topic=14809 Again please read more here as to why NV may be helping just about all that have tried it- and dramatically so in most cases http://pursuitofresearch.org/science.html http://www.facebook.com/topic.php?topic=15272 & uid=115029735601 So to answer both of you -yes to therapy and yes to good nutrition for helping those with any sort of neurologically based communication impairment- but clearly not limited to just helping in that area of the body! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2010 Report Share Posted October 2, 2010 Hi , I'm so glad you answered this question so well (as usual!). My stomoach flipped a bit when i read the answer Raj gave to colleen because had we listened to our slp " s (and over the years we've had a lot) i don't know where we would be with . my guess is we would have kept getting the " he'll never talk " speech. While i HIGHLY recommend speech therapy and seeing ped's doctors, i feel the ONLY thing that tipped over to edge to speech was a combo of speech therapy and fish oils. As i'm sure many here can attest to, we saw amazing improvements with both and now the NV is in the mix...wow. has it been easy?...no, we've been in therapy for years and has worked his little bum off getting to where he is now. And had i not seen what the fish oils can do personally, I would have rolled my eyes just like every doctor and therapist has done since we started this journey. All these things work in harmony together and I don't know why professionals poo poo me the way they do. I don't want to seem against Raj, but i just wanted to put my experience out there because I'm living it and have seen amazing things when everyone works together and keeps an open mind. sandy ________________________________ From: kiddietalk <kiddietalk@...> Sent: Sat, October 2, 2010 10:22:24 AM Subject: [ ] Re: New here...  Hi Raj and Colleen, Interesting and cutting edge question. It appears you are both new here so wanted to answer both of you. This group consists primarily of parents and professionals that care for those that have some sort of communication issue which may or may not be linked to any one diagnosis. Raj if you check the archives over the past decade you will find that for the most part the parents represented here consist of a higher educated parent who has their child in therapy overseen by at least one if not various professionals. That's pretty much a given. It's very rare that any of us have to give basic " your first step is a speech and hearing evaluation " and I can very easily provide all the first step info as I am one of the co authors of the book The Late Talker (St. 's Press) One of my other co authors is a neurodevelopmental pediatrician who was medical director for NYC EI for a decade, and was an SLP for 7 years prior to medical school. My other co author is an international investigative journalist/author who was editor in chief of the London Mirror at one point. The book has high praise from distinguished medical, speech and educational professionals as well as parents- and even though I'm one of the co authors I want to add -it deserves it. The book has a view of " late talking " from the eyes of both a parent and a doctor, and I believe the three of us worked harder than we knew possible to make that book possible. What this group, and the Cherab organization has consistently provided beyond support over the years is information on all ways to help one with a communication issue of some sort in all ways- both traditional as well as cutting edge. As far as cutting edge goes, good nutrition in my opinion shouldn't even be there as it should be a given, and perhaps you are not from the US and for you and those you know good nutrition is a given...but unfortunately due to diets in the west rich in fast, over-processed, genetically altered, artificially flavored, synthetically created " foods " the words " good nutrition " have become warped in definition. In this group parents, as well educated as they are, if from the west are more likely to Google every single ingredient in say NV which is helping our group today http://pursuitofresearch.org/ingredients.html while it appears the rule is if you can buy it at a store no reason to question it -so not even think about what chemicals are in the popcorn they just served their child (here's one article for those that never looked at popcorn which of course is just one of many examples http://www.defendingscience.org/Diacetyl-Background.cfm ) But can food help neurological function? Of course it can! Good nutrition is vital for all functions of the living body! So should one take their child to a pediatrician or therapist? Now here in the west that's pretty much a given -and yes of course they should. And while I agree that vitamins just supplemented alone may or may not benefit one -whole food nutrition rich in the essential nutrients -I fully believe they can and do help, and science is catching up with my belief. In this group we've known about the benefits of the essential fatty acids to accelerate speech for years. The essential fatty acids or EFAs, or DHA, EPA, GLA, or Omega 3 and 6, or PUFAs or to translate for most -the fish oils...one doesn't have to go far to find numerous studies linking these essential nutrients to benefiting numerous functions in the human body including but not limited to cardiovascular, neurological, circulatory, psychological, digestive etc. May want to look at http://efaeducation.nih.gov for one site, and to see some of the work our group has done in this area you can find an entire chapter in The Late Talker book and here is information from our First Apraxia Conference http://www.cherab.org/news/scientific.html or http://www.cherabfoundation.org/2001/cherab-foundations-first-apraxia-conference and here is a page from our http://www.apraxia.org site http://www.facebook.com/topic.php?uid=115029735601 & topic=7401 We are currently in the middle of a fundraiser to validate the benefits of the PUFAs on accelerating speech and because God has a sense of humor who knew that our fundraiser which offers products formulated and endorsed by Dr. Deepak Chopra and other world renowned medical doctors would contain all the essential amino acids and nutrients are bodies also need daily in a pure and natural whole food form which is also reported to help accelerate speech as well as many other areas http://pursuitofresearch.org/pursuit.html and that includes we have a number of members now who have children, teens and one adult child who has had seizure medications lowered or eliminated just from adding NV as part of a daily diet. And you may want to read some of the theories why here http://pursuitofresearch.org/science.html The " side effects " if any of providing essential nutrients tend to be temporary behavioral changes which most of our group manages to work through by lowering dosage or just coping with these changes as again they are temporary...but just the fact there are changes in behavior to me clearly demonstrates that these essential nutrients are passing the blood brain barrier! And as far as cutting edge science catching up to theory and validating that nutrients can and do help neurological function as well as damage -may want to read this I also have here and in our apraxia.org group discussion board area. Here it is: To me one of the most profound bits of research for TBI may have slipped past most in the world -but there were two recent studies on traumatic brain injury and a discovery on neuro repair. Up till recently there was no treatment. In the study from December of 2009 " Neurology researchers have shown that feeding amino acids to brain-injured animals restores their cognitive abilities and may set the stage for the first effective treatment for cognitive impairments suffered by people with traumatic brain injuries. " http://www.sflorg.com/comm_center/medical/p974_99.html And a few months later the study just published found " Drug therapy that combines a derivative of the antibiotic tetracycline and a synthetic derivative of an amino acid may help patients suffering from traumatic brain injury, a new study in animals suggests " http://www.drugs.com/news/combo-may-brain-injury-animal-study-suggests-26851.htm\ l#ixzz10cWvTmlc So why would you want the added drugs and synthetic forms of essential amino acids when diet worked? The good news again is that if the body is provided all the essential nutrients -it is able to produce the non essential nutrients of which there are thousands. Some of these non essential nutrients are used today as individual supplements as treatment by biomedical doctors to treat autism (as just one example) If your body is able to now produce them as they should be able to because you supply all it needs that is essential in a form that is easily digestible....that alone 'may' be the answer or a large part of why NV appears to be working for so many conditions and ages across the board and with such dramatic results in most cases. Both fish oil and NV contain essential nutrients. Essential nutrients are those that the body needs all of every day but can't produce itself, which just means we need to consume them in our diet daily. All of them. There is an issue however probably due to a combination of poor diet and weakened metabolic systems that either we don't get all the essential nutrients into our body that we need daily, and/or our body can't digest and utilize all that is consumed. NV contains per serving ALL of the essential amino acids and nutrients needed daily. It is typically difficult to get all of the essential amino acids and nutrients in one meal. if the body is provided all the essential nutrients it is able to produce the non essential nutrients of which there are thousands. Some of these non essential nutrients are used today as individual supplements as treatment by biomedical doctors to treat autism (as just one example) If your body is able to now produce them as they should be able to because you supply all it needs that is essential in a form that is easily digestible....that alone 'may' be the answer or a large part of why NV appears to be working for so many conditions and ages across the board and with such dramatic results in most cases. For example as Alyssa from our group pointed our recently about her son Matt who is now seizure free after years of various medications, it's just amazing and beautiful that there is something that is so simple, just a whole food, that can help so much! Her 10 year old son had been scheduled at Kennedy Krieger to have a portion of his brain removed to try to stop his medication resistant seizures, and from day one of being on NV they stopped and one of Matt's seizure meds was completely eliminated and the other one is on a very low dosage his doctor wants to keep him on a bit longer...but he's 8 months (EIGHT MONTHS!!) seizure free since being on NV. And also great news is that Matt's full brain is intact! You can read Alyssa's testimony here which was written a few months back now http://pursuitofresearch.org/testimonials.html And then there is Dawn's 14 year old son who is off ALL seizure medications now after 9 months of medication -also seizure free for the first time, and for the first time in his life since being on NV a normal EEG. Her 10 year old daughter will be off all seizure meds as of January..and there are many other stories just like this now. But it's not just working for seizures, we have testimonies for autism, apraxia and other conditions that are just as incredible. I've seen it with my own eyes in my boys (I co authored the book The Late Talker due to my boys who were both " late talkers " ) The best way to sum this product up is that is somehow appears to " normalize " the body. If you are looking for more information on NV or to purchase this whole food product which contains in each serving all of the essential amino acids and nutrients please visit http://www.pursuitofresearch.org/ however there are other ways to purchase as I have here http://www.facebook.com/topic.php?uid=115029735601 & topic=14809 Again please read more here as to why NV may be helping just about all that have tried it- and dramatically so in most cases http://pursuitofresearch.org/science.html http://www.facebook.com/topic.php?topic=15272 & uid=115029735601 So to answer both of you -yes to therapy and yes to good nutrition for helping those with any sort of neurologically based communication impairment- but clearly not limited to just helping in that area of the body! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2010 Report Share Posted December 27, 2010 Hi Russ, Where in RI do you live ? I grew up there Diane CO > > > Hi my name is Russ and I live in Rhode Island USA. I have never tried real > kombucha tea before but I have been curious about it for many years. I have > been somewhat accustomed in the past to keeping cultures alive, a regular > sourdough bread baker and have also kept kefir in the past. I did have a > small cup of some commercial kombucha tea someone shared with me a few years > ago and liked it, but I imagine it was heavily flavored,highly sweetened, > and not much like the real thing, and I would really like to try making it > on my own. Once I am able to aquire a culture I hope to learn from all of > you about how to get the best out of it. > > Nice to meet you all, > > Russ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2010 Report Share Posted December 28, 2010 Warwick, and I grew up in walking distance from what used to be Rocky Point Amusement Park (which went bankrupt and sold off all the rides but hopefully will be a public access city park soon). > > > > > > > Hi my name is Russ and I live in Rhode Island USA. I have never tried real > > kombucha tea before but I have been curious about it for many years. I have > > been somewhat accustomed in the past to keeping cultures alive, a regular > > sourdough bread baker and have also kept kefir in the past. I did have a > > small cup of some commercial kombucha tea someone shared with me a few years > > ago and liked it, but I imagine it was heavily flavored,highly sweetened, > > and not much like the real thing, and I would really like to try making it > > on my own. Once I am able to aquire a culture I hope to learn from all of > > you about how to get the best out of it. > > > > Nice to meet you all, > > > > Russ > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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