Guest guest Posted August 2, 2009 Report Share Posted August 2, 2009 New symptom... My 2nd and third toe on my left foot are now starting to curve to the right... I almost always have sneakers or at least socks on, so I have no real clue when this started to happen. But yet, there they are plain as day. I also believe my right foot is beginning to show the beginning stages as well.. (or perhaps this is my imagination)... I thought my issues were being handled pretty well, up until I noticed this... Now I'm frightened beyond belief. Here I am taking all of these killer medications and apparently they aren't enough to stop my joints from being mutilated... I go back to see my Rhuem on the 20th.. Perhaps he'll be able to give me some sound advice... (not so convinced) I'm so down! Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2009 Report Share Posted August 2, 2009 Bonnie, If it's been awhile, your rheumy might take some x-rays of your feet. My rheumy does it once every two years, probably, unless something is going on. I had a bunch of x-rays on my last visit, so I'll know when I go back in. My toes are the same way. It's hard to paint my toe nails now they lap over, it's just BAD. I'm also having problems with my right pointing finger. When I try to grasp something, it's very painful. It's a different pain, and I really believe the joint is screwing up. I know how you feel, I swallow all these stupid meds. I guess without the meds, it can be worse. We just have to take what we can get, out of this horrible situation. Just really express how you feel to your rheumy. Ask for x-rays, they need to know what's going on. I'm sorry, but know your not alone in your battle, Tawny > > New symptom... My 2nd and third toe on my left foot are now starting to curve to the right... I almost always have sneakers or at least socks on, so I have no real clue when this started to happen. But yet, there they are plain as day. I also believe my right foot is beginning to show the beginning stages as well.. (or perhaps this is my imagination)... I thought my issues were being handled pretty well, up until I noticed this... Now I'm frightened beyond belief. Here I am taking all of these killer medications and apparently they aren't enough to stop my joints from being mutilated... I go back to see my Rhuem on the 20th.. Perhaps he'll be able to give me some sound advice... (not so convinced) > I'm so down! > Bonnie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2009 Report Share Posted August 2, 2009 Tawny, Thanks for being there... It really does help knowing that I'm not alone... Sometimes I feel very secluded as no one seems to understand. Yet, I have this board... Even though its only over the computer, it helps so much! Thanks again Bonnie > > > > New symptom... My 2nd and third toe on my left foot are now starting > to curve to the right... I almost always have sneakers or at least socks > on, so I have no real clue when this started to happen. But yet, there > they are plain as day. I also believe my right foot is beginning to show > the beginning stages as well.. (or perhaps this is my imagination)... I > thought my issues were being handled pretty well, up until I noticed > this... Now I'm frightened beyond belief. Here I am taking all of these > killer medications and apparently they aren't enough to stop my joints > from being mutilated... I go back to see my Rhuem on the 20th.. Perhaps > he'll be able to give me some sound advice... (not so convinced) > > I'm so down! > > Bonnie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2009 Report Share Posted August 2, 2009 Bonnie, This group has helped me so much. It's hard for people to understand what your going through. Here, no matter what health problem we have, all of us can feel the other's pain and anxiety. If you ever need a friend to email, or just to IM, just let me know. We all have times where we struggle, and we need someone to just lift us up from the bad energy. Let me know how your appointment goes, I know your worried right now. Have a bless night, Tawny > > Tawny, Thanks for being there... It really does help knowing that I'm not alone... Sometimes I feel very secluded as no one seems to understand. Yet, I have this board... Even though its only over the computer, it helps so much! > Thanks again > Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 Hi Bonnie - My 2nd toe on my right foot is curved to the right worse than it ever was at that top joint. Mine will feel like there's a string tied around it at times, too. Sometimes I wonder if all the years in high-heals when I was younger has contributed to this out-turn - although it has been turning more since I've stayed in flats or no shoes. X-rays didn't show anything in my toe joints, but the 1st MP joint and tarsal bones have degenerative changes in them. That probably explains why my foot feels like its broken when I've driven for any distance. I know how scary this all is - especially considering the mega meds we take to stop this kind of damage. Do you think it could be possible that the turning and curving would have been worse if we had done nothing to try and stop this disease? Just a thought. Best of luck on the 20th. Keep us posted. We care.....Doreen New symptom... My 2nd and third toe on my left foot are now starting to curve to the right... I almost always have sneakers or at least socks on, so I have no real clue when this started to happen. But yet, there they are plain as day. I also believe my right foot is beginning to show the beginning stages as well.. (or perhaps this is my imagination)... I thought my issues were being handled pretty well, up until I noticed this... Now I'm frightened beyond belief. Here I am taking all of these killer medications and apparently they aren't enough to stop my joints from being mutilated... I go back to see my Rhuem on the 20th.. Perhaps he'll be able to give me some sound advice... (not so convinced) I'm so down! Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 Mimi, Your probably right... I would more then likely be worse without the medicines. I'm just tired of feeling awful and continuously finding more problems. I have hurt immensely since Saturday night and I find that my temper (already pretty bad) is becoming much worse. I'm being short with everyone and I don't like it! I just can't seem to tolerate this crap any more. If one more person with " no issues " tells me that they know what I feel like, I just might start swinging a hammer at all their small joints to see if they can really grasp the concept. Then keep them awake for weeks at a time, with only 3-4 hours sleep at night. Then see how they handle it! I know it wont make me feel better and I know they're just trying to have something to say.... But I really can't stand it anymore! Comparing a twisted ankle to these diseases is like comparing a mud puddle to the ocean... Seriously people it just doesn't compare in the slightest. Anyway.... As far as high heels contributing to your toes turning, I doubt it.. I've been pretty much tom boyish since I could walk, and have tried my best to stay away from uncomfortable shoes. Yet here I am with the same issue... Sometimes I think its easier just to have something to blame. It seems easier then saying that it was just luck of the draw, poor genes or what ever other lame excuse someone can come up with. I'm suppose to have a doctors appointment Aug. 20th... If this keeps up, I think I'm gonna have to go in earlier... Another day off work, oh boy! Thanks for letting me whine... I'm normally not such a debbie downer, but I just can't take it at the moment. Perhaps next week will be better. Bonnie > > New symptom... My 2nd and third toe on my left foot are now starting to curve to the right... I almost always have sneakers or at least socks on, so I have no real clue when this started to happen. But yet, there they are plain as day. I also believe my right foot is beginning to show the beginning stages as well.. (or perhaps this is my imagination)... I thought my issues were being handled pretty well, up until I noticed this... Now I'm frightened beyond belief. Here I am taking all of these killer medications and apparently they aren't enough to stop my joints from being mutilated... I go back to see my Rhuem on the 20th.. Perhaps he'll be able to give me some sound advice... (not so convinced) > I'm so down! > Bonnie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2009 Report Share Posted August 4, 2009 Hi Bonnie - whine away - that's what we're all here for. Are you taking any prednisone? It sounds like you are in a flare. Call your Rheumy - you don't have to be in pain like this - don't wait until the 20th - you don't need to continue to suffer. Had to laugh at the visual you created about swinging a hammer at the small joints of those that claim to understand. Its true - they don't have a clue. Praying you get some relief soon and have pain free days ahead.....Doreen Mimi, Your probably right... I would more then likely be worse without the medicines. I'm just tired of feeling awful and continuously finding more problems. I have hurt immensely since Saturday night and I find that my temper (already pretty bad) is becoming much worse. I'm being short with everyone and I don't like it! I just can't seem to tolerate this crap any more. If one more person with " no issues " tells me that they know what I feel like, I just might start swinging a hammer at all their small joints to see if they can really grasp the concept. Then keep them awake for weeks at a time, with only 3-4 hours sleep at night. Then see how they handle it! I know it wont make me feel better and I know they're just trying to have something to say.... But I really can't stand it anymore! Comparing a twisted ankle to these diseases is like comparing a mud puddle to the ocean... Seriously people it just doesn't compare in the slightest. Anyway.... As far as high heels contributing to your toes turning, I doubt it.. I've been pretty much tom boyish since I could walk, and have tried my best to stay away from uncomfortable shoes. Yet here I am with the same issue... Sometimes I think its easier just to have something to blame. It seems easier then saying that it was just luck of the draw, poor genes or what ever other lame excuse someone can come up with. I'm suppose to have a doctors appointment Aug. 20th... If this keeps up, I think I'm gonna have to go in earlier... Another day off work, oh boy! Thanks for letting me whine... I'm normally not such a debbie downer, but I just can't take it at the moment. Perhaps next week will be better. Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2009 Report Share Posted August 4, 2009 Mimi, I haven't been off prednisone since my initial diagnosis almost 3 years ago. I can't help but think its not healthy to have this in my system constantly. Perhaps that's why I haven't gone back to see my Rhuemy yet... I'm afraid he's going to raise the dose again... I'm giving myself one more day to snap out of this. If I'm not feeling better by tomorrow, I'll call and get an emergency appointment. I still have five months to make it through this year with only 8 sick days left. God forbid if I actually get sick... Wishing you all pain free days Bonnie > > Mimi, > Your probably right... I would more then likely be worse without the medicines. I'm just tired of feeling awful and continuously finding more problems. > I have hurt immensely since Saturday night and I find that my temper (already pretty bad) is becoming much worse. I'm being short with everyone and I don't like it! I just can't seem to tolerate this crap any more. If one more person with " no issues " tells me that they know what I feel like, I just might start swinging a hammer at all their small joints to see if they can really grasp the concept. Then keep them awake for weeks at a time, with only 3-4 hours sleep at night. Then see how they handle it! > I know it wont make me feel better and I know they're just trying to have something to say.... But I really can't stand it anymore! Comparing a twisted ankle to these diseases is like comparing a mud puddle to the ocean... Seriously people it just doesn't compare in the slightest. Anyway.... > As far as high heels contributing to your toes turning, I doubt it.. I've been pretty much tom boyish since I could walk, and have tried my best to stay away from uncomfortable shoes. Yet here I am with the same issue... Sometimes I think its easier just to have something to blame. It seems easier then saying that it was just luck of the draw, poor genes or what ever other lame excuse someone can come up with. > I'm suppose to have a doctors appointment Aug. 20th... If this keeps up, I think I'm gonna have to go in earlier... Another day off work, oh boy! > Thanks for letting me whine... I'm normally not such a debbie downer, but I just can't take it at the moment. Perhaps next week will be better. > Bonnie > Quote Link to comment Share on other sites More sharing options...
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