Guest guest Posted January 18, 2005 Report Share Posted January 18, 2005 Selcome Charlotte,....this ia a wonderful group for support, and wonderful people, Tawny > > > Hi Everyone. I just recently joined the group. I've been looking got > a support group in my area but there are none. I have yet to meet > anyone my age(24) with this disease. It's been very difficult. I > hope I can find some comfort here. > Charlotte Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2005 Report Share Posted January 18, 2005 Welcome Charlotte YOu have came to a great place I am still a little new at this since I have just been diagnosed for about 7 months myself but everyone else is very helpful here I am 31 with a 9 year old plus work full time in a daycare Have any questions you need answered this is the place these people are great Again welcome Angie > > > Hi Everyone. I just recently joined the group. I've been looking got > a support group in my area but there are none. I have yet to meet > anyone my age(24) with this disease. It's been very difficult. I > hope I can find some comfort here. > Charlotte Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2005 Report Share Posted February 22, 2005 Is your husband seeing a rheumatologist? What medications has he already tried? Has he ever tried any of the new biologicals (Enbrel, Humira and Remicade)? I am on Enbrel, and it's working very well for me. It takes a while to get the right combination of meds to bring relief. Five years is a long time, though. Give us more details about his case. Sue On Tuesday, February 22, 2005, at 01:52 PM, kmerdaxxe wrote: > > My husband has RA for 5 years now he always seems to be ill none of > the medications he's on seem to work. When will he be better? We > never go out or do anything because he is always poorly. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2005 Report Share Posted February 22, 2005 Sorry to hear that you and your husband have had such a difficult time. Some of the meds can take time, but not 5 years. Give us a little more info so we could better answer your questions......Marina > > > My husband has RA for 5 years now he always seems to be ill none of > the medications he's on seem to work. When will he be better? We > never go out or do anything because he is always poorly. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2005 Report Share Posted February 22, 2005 I'm sorry about your husband's dx with RA. It's not easy for him, and not for the family either. I was dx a few years ago, but probably had it since childhood. I have had a tough time of it. I take the RA meds, and I am very fatiqued all the time. It's all I can do to get up out of bed, take a shower, and try to function around the house. Then to deal with the painful swollen joints, and have problems walking, dealing with pain, it's a lot to deal with. What meds is he on? Please, tell us more about him. It would be great if he could join the group also. I'm glad your here. There is great information here, and wonderful people. your new RA friend, Tawny > > > My husband has RA for 5 years now he always seems to be ill none of > the medications he's on seem to work. When will he be better? We > never go out or do anything because he is always poorly. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2005 Report Share Posted March 4, 2005 , I am sorry to hear that your off the RA meds right now. I hope that you can get back on them soon. I sure know you are not wanting to deal with surgery right now, but if it makes you better, then you need to get it done. I hope you have a speedy recovery, and you can get back on the meds. I will be praying for you , please keep in touch. God bless, Tawny > they took me off my ra meds on feb 1st and said there is nothing else they > can do for me. then a private ra doctor charge me 200 to tell me i have > fibromyalgia, i noticed since i stopped plaquenil and arava, my joints are > stiffer and i have even more pain. i am having surgery wed for several > tumors in the uterus and uterus wall is 10cm, its called hysteroscopy and > curettage. but i did get some good news last week, my breast tumors are > gone. > i have been busy with college, i still try to go to get out of the house. > A > > > Persian Gulf vet-USAF , proud to serve > America is no 1 thanks to its veterans! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2005 Report Share Posted March 4, 2005 Great news on your breast tumors! I'm glad your staying busy with college, take care T > they took me off my ra meds on feb 1st and said there is nothing else they > can do for me. then a private ra doctor charge me 200 to tell me i have > fibromyalgia, i noticed since i stopped plaquenil and arava, my joints are > stiffer and i have even more pain. i am having surgery wed for several > tumors in the uterus and uterus wall is 10cm, its called hysteroscopy and > curettage. but i did get some good news last week, my breast tumors are > gone. > i have been busy with college, i still try to go to get out of the house. > A > > > Persian Gulf vet-USAF , proud to serve > America is no 1 thanks to its veterans! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2005 Report Share Posted May 9, 2005 Welcome to the group, Sussann. I'm sorry that you have RA, but you will find that this is a great place to get support and empathy. a and , our moderators, keep us well educated on RA and other related diseases by sending us pertinent articles. Are you seeing a rheumatologist? What meds are you currently on? It usually takes a while to find the right combination of meds to put the RA in remission. I was first on methotrexate, then Arava, and now Enbrel. Enbrel is working very well for me, and I hope you will soon get the same result. Sue On Monday, May 9, 2005, at 08:12 AM, sussannsandekvist wrote: > > Im a new member, so not sure of the procedure here. > > My name is Sussann, Im 33 and have been diagnosed with RA for jsut > over a year now. Im just starting to accept that this is not going > to go away. Have been on new meds for 4 months and whilst things are > better, there is still a lot of pain. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2005 Report Share Posted May 9, 2005 Hi there, I am 43 years old and have been diagnosed three years now. There are days still that I think if i eat differently or if i excercise more that i can get better. It is a horrible disease. I am starting to realize now that it wont go away , just hide for a while here and there. Trust me I love the days that it is hiding. I can not seem to get in remission at all. I am mostly in horrible pain. I am on arava, methotrexate injections and also enbrel injections. my husband says that they will have a cure soon. So I am opting to believe him. This is a wonderful group. Where are you from? I am from Canada. If you would like to email me back through my personal address pls go ahead. it is corinne@.... Corinne sussannsandekvist wrote: > Hi > > Im a new member, so not sure of the procedure here. > > My name is Sussann, Im 33 and have been diagnosed with RA for jsut > over a year now. Im just starting to accept that this is not going > to go away. Have been on new meds for 4 months and whilst things are > better, there is still a lot of pain. > > Hope to get to say hi to you all and that you are all feeling well at > the moment > > Sussann > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2005 Report Share Posted May 23, 2005 ....You seem to be having the same problem I have had. I was on two 100 mg Mino a day, everyday , for six months. Then tests showed I was in remission. Went on one pill mon-wed-fri for maintanance. This worked great for over three years. Last Christmas I started having feet problems again. Like you I felt they would go away. Slowly aches and pains started popping up here and there...I increased my mino to five times a week. After a few weeks I really started to get panicky. My knees were so swollen it was hard to get to work. Aspirin, my only pain med, was just not keeping me up and going. Panic time!!! I sent out inquirites to several on this board, and along with my doc, decided to go back on two pills everyday. I had eight weeks of constant herxing and had to take a course of prednisone to walk, but slowly I am getting much better. Off prednisone and only need an occasional aspirin. The last week things have quieted down to an occasional slight ache. I am so pleased. Plan to stay on the twice a day regimine for another two months and then do a complete blood work up. Getting up in the morning is pretty easy now. Have slept through the nights for the last month. Guess for some odd reason the mycoplasmas decided to show their faces and it was time for another round of Minocin. Thank goodness it still works very well. Odd to note my daughter also contracted RA during this time so possibly we were both somehow infected with the disease again. Since no one seems to know how infection starts who knows how it is transmitted. A scratch, touching something, eating something...we just do not know. I do know that many people are on the two a day regime and have done it for long periods. For me the larger dose is working once again....and for my daughter who was just diagnosed, the mon-wed-fri got rid of hers!!! We all need to tweak the meds occasionally and if you feel you need it, the two a day may be just your ticket to wellness once again. It certainly seems to be working that way for me. Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2005 Report Share Posted May 24, 2005 I want to thank all of you for your replies, on and off list. There were wonderful suggestions for me to consider---Increasing minocin, adding a second antibiotic (Zithromax), and x-rays to detect joint damage (despite being essentially symptom free and lab indicating remission). Appreciate the feedback! I plan to increase minocin to twice a day, 4 days a week and see what happens. I went into remission quickly initially, because I'd only had symptoms of disease 6 or 7 months. Hopefully it'll work again. If the pain persists I'll have to see Dr. and get x-rays. Don't see an AP Dr. so not sure how I'd manage to get Zithromax, too, but I'll cross that bridge if I get there! Thanks again! Should have come back a couple months ago!!! M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2006 Report Share Posted November 19, 2006 YEA!!!! wonderful news June.I also am there ,saw my AP doc last week and she thinks I may even reach the " CURE " poit if things keep going .I was bouncing off the walls after she told me this.For me the critical part was getting rid of heavy metals,vitaminD and avoiding all the foods to which I am sensitive.Never in my wildest dreams did I think that would make such a difference as to how AP works.As she said....if your immune system is fighting celiac and all the problems it caused,how can it possibly fight Csleroderma.One of these good day when I have time I will write up my story priceton57 wrote: > HELLO EVERYONE HOW'S IT GOING GOOD I HOPE. I MYSELF AM IN > REMISSION? IS THAT WHAT WE CALL IT???????? NOT FLARING UP!!!!!!! WEL > THAT'S NOTTTT EXCATLY TRUE, MY KNUCKLE ON THE RIGHT HAND HURTS BUT OH > WELL NOTHIN I CAN'T LIVE WITH!!!! HAHAHA TAKE CARE EVERYONE JUNE FROM > WISCONSIN > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2007 Report Share Posted February 11, 2007 Hi! i also have RA... I've searched the net for that particular concern that you have, but it doesn't seem like the antibiotic therapy has something to do with the worsening of your knee joint. and by the way, who prescribed you the antibiotics? did you inform the doctor of your health status? maybe you could get clearer answers from him/her. Rosselle --------------------------------- Everyone is raving about the all-new beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2007 Report Share Posted February 11, 2007 Hello CHI, It is not unusual to become worse for a while after starting antibiotics. You can read about " Herxheimer reaction " at http://www.rheumatic.org/ under " frequently asked questions " . #6 " What can I expect after starting antibiotics " Some of us see it as reassurance that the antibiotic protocol works when we experience a " herx " , unpleasant as it is. Although, some people get better without ever herxing. Taking natural or allopathic anti-inflammatory medicines help the antibiotics get to the sore joints. Let us know how you are getting on. Take care, Ute Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2007 Report Share Posted February 13, 2007 rheumatic RA .. I felt my left knee getting worse and more > pain as soon as I started Antibiotic therapy last November. (My left > knee has been the severest joint of me) > At first I thought it doesn't relate to antibiotic, but what do you > think? > > From the FAQ on www.rheumatic.org 6. EXPLAIN THE JARISCH HERXHEIMER REACTION. This drug-induced flare reaction may occur within hours, the next day or within the first weeks after the patient starts the antibiotics - or any time there is a change in antibiotic or dosage. It is caused by a die-off of organisms, which in turn create toxins that circulate in the body. This will often cause a temporary worsening of symptoms. Patients may experience a range of symptoms from mild fatigue and sleepiness to flu-like symptoms - chills, low grade fever, night sweats, muscle aches, aching and swollen joints, nausea, hives, skin rashes, depression and short term memory loss. Hives and rash are sometimes mistaken for an allergic reaction. If the Herxheimer reaction is severe, the medication may be stopped and a small dose of prednisone (no more than 10 mg.) may be prescribed. When the flare subsides, the medication is re-introduced at a slow rate. When this Herxheimer reaction occurs, it is a good indicator that the antibiotic is reaching its target - a very positive sign. The length of time for this reaction varies from patient to patient. About twenty percent of patients do not experience the Herxheimer reaction. Scleroderma patients seem to experience the Herxheimer reaction less often than RA patients. Oxidative therapy may be useful in reducing these symptoms. Garth Nicholson, M.D., director of The Institute for Molecular Medicine in Huntington Beach, California recommends peroxide baths (four 16 oz. bottles of 3% hydrogen peroxide in 20 inch bath or Jacuzzi, with 2 cups of Epsom salt. Patients soak in hot water plus the Epsom salt for five minutes until pores are open, then add the peroxide solution. This should be repeated three times a week at bedtime. No vitamins should be taken 8 hours before bath. The peroxide can also be directly applied to the skin after a hot shower/tub. The peroxide should be left on for 5 minutes and then washed off. Another useful suggestion from Dr. Nicholson - blend one whole lemon, then add 1 cup fruit juice or water and 1 tablespoon of olive oil. Strain and drink liquid. Far-infrared saunas have also been found helpful in removing toxins from the body. Instructions for building an inexpensive far-infrared sauna can be found at www.mercola.com or www.drlwilson.com. It is very important to drink adequate amounts of water to flush the toxins from the body - no less than two quarts a day. Water not only flushes the toxins out of the system, but lubricates the joints and carries nutrients to the cells. You also need to make sure you have two to three good size bowel movements daily. Should constipation be a problem, try taking a rounded teaspoon of pysillium (Metamucil or a generic) in 8 ounces of water, one to three times daily. Drinking warm prune juice on first arising in the morning is also helpful. If necessary, you may also add powdered vitamin C (to tolerance) to the prune juice. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2007 Report Share Posted February 13, 2007 Hello. Thank you all for the responses. That helps a lot! My symptom must be Herxheimer. I mistook Herxheimer before, I thought Herx would come after getting better once. I need to read more about it. Thanks a lot. CHI, Japan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2007 Report Share Posted March 11, 2007 > > > rheumatic RA > > > . I felt my left knee getting worse and more > > pain as soon as I started Antibiotic therapy last November. (My left > > knee has been the severest joint of me) > > At first I thought it doesn't relate to antibiotic, but what do you > > think? > > > > From the FAQ on www.rheumatic.org > 6. EXPLAIN THE JARISCH HERXHEIMER REACTION. > > This drug-induced flare reaction may occur within hours, the next day or > within the first weeks after the patient starts the antibiotics - or any > time there is a change in antibiotic or dosage. It is caused by a die-off of > organisms, which in turn create toxins that circulate in the body. This will > often cause a temporary worsening of symptoms. Patients may experience a > range of symptoms from mild fatigue and sleepiness to flu-like symptoms - > chills, low grade fever, night sweats, muscle aches, aching and swollen > joints, nausea, hives, skin rashes, depression and short term memory loss. > Hives and rash are sometimes mistaken for an allergic reaction. > > If the Herxheimer reaction is severe, the medication may be stopped and a > small dose of prednisone (no more than 10 mg.) may be prescribed. When the > flare subsides, the medication is re-introduced at a slow rate. > > When this Herxheimer reaction occurs, it is a good indicator that the > antibiotic is reaching its target - a very positive sign. The length of time > for this reaction varies from patient to patient. About twenty percent of > patients do not experience the Herxheimer reaction. Scleroderma patients > seem to experience the Herxheimer reaction less often than RA patients. > > Oxidative therapy may be useful in reducing these symptoms. Garth Nicholson, > M.D., director of The Institute for Molecular Medicine in Huntington Beach, > California recommends peroxide baths (four 16 oz. bottles of 3% hydrogen > peroxide in 20 inch bath or Jacuzzi, with 2 cups of Epsom salt. Patients > soak in hot water plus the Epsom salt for five minutes until pores are open, > then add the peroxide solution. This should be repeated three times a week > at bedtime. No vitamins should be taken 8 hours before bath. The peroxide > can also be directly applied to the skin after a hot shower/tub. The > peroxide should be left on for 5 minutes and then washed off. > > Another useful suggestion from Dr. Nicholson - blend one whole lemon, then > add 1 cup fruit juice or water and 1 tablespoon of olive oil. Strain and > drink liquid. > > Far-infrared saunas have also been found helpful in removing toxins from the > body. Instructions for building an inexpensive far-infrared sauna can be > found at www.mercola.com or www.drlwilson.com. > > It is very important to drink adequate amounts of water to flush the toxins > from the body - no less than two quarts a day. Water not only flushes the > toxins out of the system, but lubricates the joints and carries nutrients to > the cells. You also need to make sure you have two to three good size bowel > movements daily. Should constipation be a problem, try taking a rounded > teaspoon of pysillium (Metamucil or a generic) in 8 ounces of water, one to > three times daily. Drinking warm prune juice on first arising in the morning > is also helpful. If necessary, you may also add powdered vitamin C (to > tolerance) to the prune juice. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2009 Report Share Posted February 17, 2009 thanks for report. We are not sure what causes RA. in another case I saw electricity reduce the swelling and pain in an hour or so, no idea why this worked for one and not the other... bG > > My husband has Rheumatoid Arthritis and has not been able to use electricity because of the exacerbation of the pain associated with this condition. He has begun using low dose naltrexone and within 3 hours of the first dose, his hot and cold areas have normal temps, his pain and swelling are greatly reduced and his medication levels are waaay down. We are hoping that he will soon be able to begin whole body electrification to get the critters that are doing the damage. It may take more than one type of 'circuit' to get the job done. pj > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2011 Report Share Posted February 8, 2011 Hi Patty.  Thanks for that great information..How wonderful that it worked so well for you, and you are pain free and have your life back. I hope this continues for you.  Enjoy your life!!!!!  Hugs,  Barbara From: Patti <patti1031@...> Subject: [ ] RA Date: Tuesday, February 8, 2011, 8:41 AM  Hello~ I do more reading than posting & over the course of the last few months I noticed how everyone suffers from stiffness & pain......so I want to share with you all something that has happened to me. I have RA since 2008. For the last two years I had very bad stiffness & pain. My Rheumy has been my best friend since I got this horrible disease. I was always wearing my pain patch besides taking other pain medicine..... like my Humira. Well back in October, I was reading about carbs & sugars & what they do do auto immune diseases. Boy, was I surprised. So I took this into my own hands & stopped eating all sugars & white flour foods. I can't begin to tell you that in 3 weeks the stiffness in my joints went away along with the pain. It's still gone & sometimes I feel that I don't even have RA. I was so amazed by this. I can actually run up & down stairs, squat, kneel etc.... I could not do any of this since 2008. Besides that.... I lost weight & have so much more energy than I did before. I tried this with the thought that I have nothing to loose by trying this & it sure worked. I feel absolutely wonderful. I just wanted to share this with you all. This worked for me & it may work for you all. Regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2011 Report Share Posted February 8, 2011 I have had a similar experience. I was diagnosed with celiac disease and gastroparesis. I have been severely anemic requiring transfusions. I kept taking nutrients not knowing my body was not absorbing them. I needed a walker to walk more than 20 feet or so. My RA pain was totally debilitating. Decades ago I lost 6 babies. I have sjorens, thyroid problems and several other autoimmune diseases. My son was diagnosed with Celiac disease and the light bulb went on.  I studied Celiac disease and learned it is frequently the umbrella under which many autoimmune disorders occur.including the miscarriages. I am obese even though I was consuming very little food. The gastroparesis made digestion most uncomfortable. If you google Celiac/obesity you will find many articles. Many Dr's do not realize fat people can be celiacs. Seems we hoard fat to avoid perceived starvation. I am now eating more and lost 17 pounds in 2 weeks. Incredible. January 17 I started the gluten free diet in the strictest manner (Not even licking glue on an envelope or stamp...glue has flour often) It has been a miracle for me.My. fatigue has lessened in an amazing manner. It is humerous trying to decide what to do with all the extra hours in a day. Morning stiffness is much easier to deal with. Mental fog has lessened. The constant stomach cramps are decreasing. Today I walked an entire store...amazing. It will take a few months for my gastroparesis to heal. I eat numerous small meals. Potatos,rice, sweet potatoes are all fine to eat. It is the flour found in almost all gravies, breading etc that my body reacts to. Statistics   1 in 133 have gluten sensitivity If anyone in the family has celiac disease the number changes to 1 in twenty No need for expensive tests. Study the diet online, go gluten free for 2 weeks and see how you respond. I am " hopeful " for the first time in years.  Blessings, love and light... Raniolo From: Patti <patti1031@...> Subject: [ ] RA Date: Tuesday, February 8, 2011, 8:41 AM  Hello~ I do more reading than posting & over the course of the last few months I noticed how everyone suffers from stiffness & pain......so I want to share with you all something that has happened to me. I have RA since 2008. For the last two years I had very bad stiffness & pain. My Rheumy has been my best friend since I got this horrible disease. I was always wearing my pain patch besides taking other pain medicine..... like my Humira. Well back in October, I was reading about carbs & sugars & what they do do auto immune diseases. Boy, was I surprised. So I took this into my own hands & stopped eating all sugars & white flour foods. I can't begin to tell you that in 3 weeks the stiffness in my joints went away along with the pain. It's still gone & sometimes I feel that I don't even have RA. I was so amazed by this. I can actually run up & down stairs, squat, kneel etc.... I could not do any of this since 2008. Besides that.... I lost weight & have so much more energy than I did before. I tried this with the thought that I have nothing to loose by trying this & it sure worked. I feel absolutely wonderful. I just wanted to share this with you all. This worked for me & it may work for you all. Regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2011 Report Share Posted February 8, 2011 , that's wonderful that you have found out that you have celiac disease and that your new eating plan makes you feel so much better. I knew that diabetes can cause gastroparesis, but I didn't know that celiac disease could, also. I am so glad that you now have hope. Sue On Feb 8, 2011, at 5:29 PM, CATHERINE RANIOLO wrote: > > I have had a similar experience. I was diagnosed with celiac > disease and gastroparesis. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2011 Report Share Posted February 8, 2011 Many celiacs have diabetes and I have it also. The major change for me is the level of inflamation. However it is measured in a blood test my Dr said mine is the highest he has ever seen. I am anxiously awaiting the next blood test. I am sure my number will be greatly improved. Raniolo > > I have had a similar experience. I was diagnosed with celiac > disease and gastroparesis. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2011 Report Share Posted February 8, 2011 Oh, I see. Cutting out wheat products should definitely help your diabetes, too. Good luck! Sue On Feb 8, 2011, at 6:32 PM, CATHERINE RANIOLO wrote: > Many celiacs have diabetes and I have it also. The major change for > me is the level of inflamation. However it is measured in a blood > test my Dr said mine is the highest he has ever seen. I am > anxiously awaiting the next blood test. I am sure my number will be > greatly improved. > > Raniolo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2011 Report Share Posted February 9, 2011 Very interesting, . Great that you have rediscovered hope. I wish you continued success. Not an MD On Tue, Feb 8, 2011 at 4:29 PM, CATHERINE RANIOLO <c.raniolo@...> wrote: > > > > > > I have had a similar experience. I was diagnosed with celiac disease and gastroparesis. > I have been severely anemic requiring transfusions. I kept taking nutrients not knowing my body was not absorbing them. I needed a walker to walk more than 20 feet or so. > My RA pain was totally debilitating. > Decades ago I lost 6 babies. I have sjorens, thyroid problems and several other autoimmune diseases. > My son was diagnosed with Celiac disease and the light bulb went on. > > I studied Celiac disease and learned it is frequently the umbrella under which many autoimmune disorders occur.including the miscarriages. I am obese even though I was consuming very little food. The gastroparesis made digestion most uncomfortable. If you google Celiac/obesity you will find many articles. Many Dr's do not realize fat people can be celiacs. Seems we hoard fat to avoid perceived starvation. I am now eating more and lost 17 pounds in 2 weeks. Incredible. > January 17 I started the gluten free diet in the strictest manner (Not even licking glue on an envelope or stamp...glue has flour often) It has been a miracle for me.My. fatigue has lessened in an amazing manner. It is humerous trying to decide what to do with all the extra hours in a day. Morning stiffness is much easier to deal with. Mental fog has lessened. The constant stomach cramps are decreasing. Today I walked an entire store...amazing. It will take a few months for my gastroparesis to heal. I eat numerous small meals. > Potatos,rice, sweet potatoes are all fine to eat. It is the flour found in almost all gravies, breading etc that my body reacts to. > Statistics   1 in 133 have gluten sensitivity > If anyone in the family has celiac disease the number changes to 1 in twenty > No need for expensive tests. Study the diet online, go gluten free for 2 weeks and see how you respond. > I am " hopeful " for the first time in years. > > Blessings, love and light... > > > Raniolo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2011 Report Share Posted February 9, 2011 Glad to hear that you are doing so well, ! Not an MD On Tue, Feb 8, 2011 at 7:41 AM, Patti <patti1031@...> wrote: > > Hello~ > > I do more reading than posting & over the course of the last few months > I noticed how everyone suffers from stiffness & pain......so I want to > share with you all something that has happened to me. > > I have RA since 2008. For the last two years I had very bad stiffness & > pain. My Rheumy has been my best friend since I got this horrible > disease. I was always wearing my pain patch besides taking other pain > medicine..... like my Humira. > > Well back in October, I was reading about carbs & sugars & what they do > do auto immune diseases. Boy, was I surprised. > > So I took this into my own hands & stopped eating all sugars & white > flour foods. > > I can't begin to tell you that in 3 weeks the stiffness in my joints > went away along with the pain. It's still gone & sometimes I feel that I > don't even have RA. > > I was so amazed by this. I can actually run up & down stairs, squat, > kneel etc.... I could not do any of this since 2008. > > Besides that.... I lost weight & have so much more energy than I did > before. > > I tried this with the thought that I have nothing to loose by trying > this & it sure worked. I feel absolutely wonderful. > > I just wanted to share this with you all. This worked for me & it may > work for you all. > > Regards, > > Quote Link to comment Share on other sites More sharing options...
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