Re: Lack of Sleep

[Guest guest]

Hi Edie

Yes, it is a real problem. I just wondered if it was caused by the

HepC. I think so, but about 5 years ago before I got on

anti-depressants I could sleep around the clock....but that was from

depression. Now I am just like you....I call myself the " walking

zombie " . I can, however, sleep in the afternoon if I have to cuz I'm on

disability. I can really feel for you having little or no sleep and

having to go to work. I honestly don't know how you do it....I can't

function at all without proper sleep. Starting as a kid....my doc told

my Mom I'd need at least 8 hours a night, and probably more. That never

changed. Sometimes I feel like going off the anti-depressants just to

sleep again....but I know that isn't the answer either. We need a

solution to this. Like I said before, my doc has had me on several

different sleeping pills....maybe works the first night...then

nothing....might as well take a placebo...in fact maybe that would work

LOL.

Thanks Edie

Carol

" E.D. " wrote:

> In a recent email to the list, Carol said:

>

> A general question for the forum: Do you have trouble sleeping?

> Either

> falling asleep, or staying alseep? How many hours sleep do u get

> everynight on the average? I've tried different types of sleeping

> pills

> and nothing seems to work. I had plans for the whole day and evening

> and had to cancel cuz when the alarm went off I'd only slept for an

> hour

> and felt terrrrrrrible. ARGGGGG. Talk about the quality of

> life....or

> lack of...lol.

>

> Gosh.....I have a hard time sleeping. When I was in my 20's, I slept

> like a rock. Then, I started sleeping really really light all the

> time. I blamed it on my age (in my early 30's).

>

> Then, I found out I had HepC. I still never mentioned the sleep

> disturbance to my dr. While on treatment, I walked around chronically

> sleep deprived. I couldn't fall asleep or stay asleep for very long.

> I was lucky to get 2 or 3 broken up hours each night. It seemed like

> every night about 1am I would wake up and pretty much stay awake until

> my day started at 5:30 am. At the very end of my treatment, my dr.

> gave me some Ambien to help.

>

> And, now that I am off treatment, I still can't sleep! I went to

> complain to my dr. the Friday before I noticed my thyroid was

> swollen. Now, I blame it on my thyroid. I can't fall asleep or stay

> asleep for very long. I long for the day when I can get a real solid

> 7 or 8 hours....that would be nice!

>

> Nowadays, I can't fall asleep no matter how tired I am. I have tried

> experiments on Friday nights, seeing if I stay up real late, get real

> tired, and try to fall asleep by myself. I don't. I usually give up

> about 4 or 5 am. I take my Ambien and go to bed.

>

> I think I sleep about 4 hours a night. It takes me all morning to

> shake off the tiredness at work. I have often wondered " what in the

> world is going on here " ? but, I have no answer.

>

> I sure would like to find out the solution to this problem. I am

> about out of Ambien and I guess I will have to go it without. I have

> tried Melatonin and all kinds of things...nothing works. I guess if I

> stay awake for 3 or 4 days, I will eventually get some sleep? Well, I

> guess my boss at work is going to have to put up with me being a space

> cadet again while I go thru this. One of these days, I am going to

> get fired or laid off...first it was the HepC treatment, then it was

> the emotional roller-coaster of the thyroid, and now lack of sleep.

>

> Edie

>

>

>

[Guest guest]

Hi Edie

Yes, it is a real problem. I just wondered if it was caused by the

HepC. I think so, but about 5 years ago before I got on

anti-depressants I could sleep around the clock....but that was from

depression. Now I am just like you....I call myself the " walking

zombie " . I can, however, sleep in the afternoon if I have to cuz I'm on

disability. I can really feel for you having little or no sleep and

having to go to work. I honestly don't know how you do it....I can't

function at all without proper sleep. Starting as a kid....my doc told

my Mom I'd need at least 8 hours a night, and probably more. That never

changed. Sometimes I feel like going off the anti-depressants just to

sleep again....but I know that isn't the answer either. We need a

solution to this. Like I said before, my doc has had me on several

different sleeping pills....maybe works the first night...then

nothing....might as well take a placebo...in fact maybe that would work

LOL.

Thanks Edie

Carol

" E.D. " wrote:

> In a recent email to the list, Carol said:

>

> A general question for the forum: Do you have trouble sleeping?

> Either

> falling asleep, or staying alseep? How many hours sleep do u get

> everynight on the average? I've tried different types of sleeping

> pills

> and nothing seems to work. I had plans for the whole day and evening

> and had to cancel cuz when the alarm went off I'd only slept for an

> hour

> and felt terrrrrrrible. ARGGGGG. Talk about the quality of

> life....or

> lack of...lol.

>

> Gosh.....I have a hard time sleeping. When I was in my 20's, I slept

> like a rock. Then, I started sleeping really really light all the

> time. I blamed it on my age (in my early 30's).

>

> Then, I found out I had HepC. I still never mentioned the sleep

> disturbance to my dr. While on treatment, I walked around chronically

> sleep deprived. I couldn't fall asleep or stay asleep for very long.

> I was lucky to get 2 or 3 broken up hours each night. It seemed like

> every night about 1am I would wake up and pretty much stay awake until

> my day started at 5:30 am. At the very end of my treatment, my dr.

> gave me some Ambien to help.

>

> And, now that I am off treatment, I still can't sleep! I went to

> complain to my dr. the Friday before I noticed my thyroid was

> swollen. Now, I blame it on my thyroid. I can't fall asleep or stay

> asleep for very long. I long for the day when I can get a real solid

> 7 or 8 hours....that would be nice!

>

> Nowadays, I can't fall asleep no matter how tired I am. I have tried

> experiments on Friday nights, seeing if I stay up real late, get real

> tired, and try to fall asleep by myself. I don't. I usually give up

> about 4 or 5 am. I take my Ambien and go to bed.

>

> I think I sleep about 4 hours a night. It takes me all morning to

> shake off the tiredness at work. I have often wondered " what in the

> world is going on here " ? but, I have no answer.

>

> I sure would like to find out the solution to this problem. I am

> about out of Ambien and I guess I will have to go it without. I have

> tried Melatonin and all kinds of things...nothing works. I guess if I

> stay awake for 3 or 4 days, I will eventually get some sleep? Well, I

> guess my boss at work is going to have to put up with me being a space

> cadet again while I go thru this. One of these days, I am going to

> get fired or laid off...first it was the HepC treatment, then it was

> the emotional roller-coaster of the thyroid, and now lack of sleep.

>

> Edie

>

>

>

[Guest guest]

Amen!!

Re: Lack Of Sleep

Hi Edie

Yes, it is a real problem. I just wondered if it was caused by the

HepC. I think so, but about 5 years ago before I got on

anti-depressants I could sleep around the clock....but that was from

depression. Now I am just like you....I call myself the " walking

zombie " . I can, however, sleep in the afternoon if I have to cuz I'm on

disability. I can really feel for you having little or no sleep and

having to go to work. I honestly don't know how you do it....I can't

function at all without proper sleep. Starting as a kid....my doc told

my Mom I'd need at least 8 hours a night, and probably more. That never

changed. Sometimes I feel like going off the anti-depressants just to

sleep again....but I know that isn't the answer either. We need a

solution to this. Like I said before, my doc has had me on several

different sleeping pills....maybe works the first night...then

nothing....might as well take a placebo...in fact maybe that would work

LOL.

Thanks Edie

Carol

" E.D. " wrote:

> In a recent email to the list, Carol said:

>

> A general question for the forum: Do you have trouble sleeping?

> Either

> falling asleep, or staying alseep? How many hours sleep do u get

> everynight on the average? I've tried different types of sleeping

> pills

> and nothing seems to work. I had plans for the whole day and evening

> and had to cancel cuz when the alarm went off I'd only slept for an

> hour

> and felt terrrrrrrible. ARGGGGG. Talk about the quality of

> life....or

> lack of...lol.

>

> Gosh.....I have a hard time sleeping. When I was in my 20's, I slept

> like a rock. Then, I started sleeping really really light all the

> time. I blamed it on my age (in my early 30's).

>

> Then, I found out I had HepC. I still never mentioned the sleep

> disturbance to my dr. While on treatment, I walked around chronically

> sleep deprived. I couldn't fall asleep or stay asleep for very long.

> I was lucky to get 2 or 3 broken up hours each night. It seemed like

> every night about 1am I would wake up and pretty much stay awake until

> my day started at 5:30 am. At the very end of my treatment, my dr.

> gave me some Ambien to help.

>

> And, now that I am off treatment, I still can't sleep! I went to

> complain to my dr. the Friday before I noticed my thyroid was

> swollen. Now, I blame it on my thyroid. I can't fall asleep or stay

> asleep for very long. I long for the day when I can get a real solid

> 7 or 8 hours....that would be nice!

>

> Nowadays, I can't fall asleep no matter how tired I am. I have tried

> experiments on Friday nights, seeing if I stay up real late, get real

> tired, and try to fall asleep by myself. I don't. I usually give up

> about 4 or 5 am. I take my Ambien and go to bed.

>

> I think I sleep about 4 hours a night. It takes me all morning to

> shake off the tiredness at work. I have often wondered " what in the

> world is going on here " ? but, I have no answer.

>

> I sure would like to find out the solution to this problem. I am

> about out of Ambien and I guess I will have to go it without. I have

> tried Melatonin and all kinds of things...nothing works. I guess if I

> stay awake for 3 or 4 days, I will eventually get some sleep? Well, I

> guess my boss at work is going to have to put up with me being a space

> cadet again while I go thru this. One of these days, I am going to

> get fired or laid off...first it was the HepC treatment, then it was

> the emotional roller-coaster of the thyroid, and now lack of sleep.

>

> Edie

>

>

>

[Guest guest]

HI.When I was on treatment I was sleeping 2-3 hrs a night,usually between 2 and

5 am.Woke up had some warm milk,did some work,went back to bed at 7and was lucky

to get another hour.Off treatment I sleep a little longer but never more then

5hrs.I hve learned to live with it.The only thing I take for it is 5mg of

valium,it slows down my hyper-activity.Since a week I take MSM and

multi-vitamins.

Lack Of Sleep

In a recent email to the list, Carol said:

A general question for the forum: Do you have trouble sleeping? Either

falling asleep, or staying alseep? How many hours sleep do u get

everynight on the average? I've tried different types of sleeping pills

and nothing seems to work. I had plans for the whole day and evening

and had to cancel cuz when the alarm went off I'd only slept for an hour

and felt terrrrrrrible. ARGGGGG. Talk about the quality of life....or

lack of...lol.

Gosh.....I have a hard time sleeping. When I was in my 20's, I slept like a

rock. Then, I started sleeping really really light all the time. I blamed it

on my age (in my early 30's).

Then, I found out I had HepC. I still never mentioned the sleep disturbance

to my dr. While on treatment, I walked around chronically sleep deprived. I

couldn't fall asleep or stay asleep for very long. I was lucky to get 2 or 3

broken up hours each night. It seemed like every night about 1am I would wake

up and pretty much stay awake until my day started at 5:30 am. At the very end

of my treatment, my dr. gave me some Ambien to help.

And, now that I am off treatment, I still can't sleep! I went to complain to

my dr. the Friday before I noticed my thyroid was swollen. Now, I blame it on

my thyroid. I can't fall asleep or stay asleep for very long. I long for the

day when I can get a real solid 7 or 8 hours....that would be nice!

Nowadays, I can't fall asleep no matter how tired I am. I have tried

experiments on Friday nights, seeing if I stay up real late, get real tired, and

try to fall asleep by myself. I don't. I usually give up about 4 or 5 am. I

take my Ambien and go to bed.

I think I sleep about 4 hours a night. It takes me all morning to shake off

the tiredness at work. I have often wondered " what in the world is going on

here " ? but, I have no answer.

I sure would like to find out the solution to this problem. I am about out of

Ambien and I guess I will have to go it without. I have tried Melatonin and all

kinds of things...nothing works. I guess if I stay awake for 3 or 4 days, I

will eventually get some sleep? Well, I guess my boss at work is going to have

to put up with me being a space cadet again while I go thru this. One of these

days, I am going to get fired or laid off...first it was the HepC treatment,

then it was the emotional roller-coaster of the thyroid, and now lack of sleep.

Edie

[Guest guest]

HI.When I was on treatment I was sleeping 2-3 hrs a night,usually between 2 and

5 am.Woke up had some warm milk,did some work,went back to bed at 7and was lucky

to get another hour.Off treatment I sleep a little longer but never more then

5hrs.I hve learned to live with it.The only thing I take for it is 5mg of

valium,it slows down my hyper-activity.Since a week I take MSM and

multi-vitamins.

Lack Of Sleep

In a recent email to the list, Carol said:

A general question for the forum: Do you have trouble sleeping? Either

falling asleep, or staying alseep? How many hours sleep do u get

everynight on the average? I've tried different types of sleeping pills

and nothing seems to work. I had plans for the whole day and evening

and had to cancel cuz when the alarm went off I'd only slept for an hour

and felt terrrrrrrible. ARGGGGG. Talk about the quality of life....or

lack of...lol.

Gosh.....I have a hard time sleeping. When I was in my 20's, I slept like a

rock. Then, I started sleeping really really light all the time. I blamed it

on my age (in my early 30's).

Then, I found out I had HepC. I still never mentioned the sleep disturbance

to my dr. While on treatment, I walked around chronically sleep deprived. I

couldn't fall asleep or stay asleep for very long. I was lucky to get 2 or 3

broken up hours each night. It seemed like every night about 1am I would wake

up and pretty much stay awake until my day started at 5:30 am. At the very end

of my treatment, my dr. gave me some Ambien to help.

And, now that I am off treatment, I still can't sleep! I went to complain to

my dr. the Friday before I noticed my thyroid was swollen. Now, I blame it on

my thyroid. I can't fall asleep or stay asleep for very long. I long for the

day when I can get a real solid 7 or 8 hours....that would be nice!

Nowadays, I can't fall asleep no matter how tired I am. I have tried

experiments on Friday nights, seeing if I stay up real late, get real tired, and

try to fall asleep by myself. I don't. I usually give up about 4 or 5 am. I

take my Ambien and go to bed.

I think I sleep about 4 hours a night. It takes me all morning to shake off

the tiredness at work. I have often wondered " what in the world is going on

here " ? but, I have no answer.

I sure would like to find out the solution to this problem. I am about out of

Ambien and I guess I will have to go it without. I have tried Melatonin and all

kinds of things...nothing works. I guess if I stay awake for 3 or 4 days, I

will eventually get some sleep? Well, I guess my boss at work is going to have

to put up with me being a space cadet again while I go thru this. One of these

days, I am going to get fired or laid off...first it was the HepC treatment,

then it was the emotional roller-coaster of the thyroid, and now lack of sleep.

Edie

[Guest guest]

Lack of sleep....what lack of sleep <she writes as she is up for the

fourth time so far tonight>

" E.D. " wrote:

> Amen!!

> ----- Original Message -----

> --

" It is in the shelter of each other that the people live. " ~Irish

proverb~

[Guest guest]

Recently I was reading an article that some sleep issues could

be related to an Endocrine problem ie: Thyroid, Adrenal glands, Diabetes.

Its worth checking these out.

The fact your child is waking up thristy, is it from drainage? or some

antihistaime med? or something else?

What about keeping a glass of water by his bed at night, and show him

the first few times at night so he knows where to get it.

Also the diet as well, sugars, milk, casien, etc..

Melatonin has been helpful for a lot of kids another option.

[Guest guest]

Thyroid problems definitely affect sleep. I have hypothyroidism.

My medication was upped last year because my blood tests came back

normal, but I was still having symptoms. One of my major symptoms

is insomnia. After my medication was upped, I started sleeping

better.

> Recently I was reading an article that some sleep issues could

> be related to an Endocrine problem ie: Thyroid, Adrenal glands,

Diabetes.

> Its worth checking these out.

> The fact your child is waking up thristy, is it from drainage? or

some

> antihistaime med? or something else?

> What about keeping a glass of water by his bed at night, and show

him

> the first few times at night so he knows where to get it.

> Also the diet as well, sugars, milk, casien, etc..

> Melatonin has been helpful for a lot of kids another option.

>

>

>

[Guest guest]

Not only did prednisone hype me up and cause me not to sleep it precipitated

a psychotic episode in my case. I was literally out of my mind for a

weekend paranoid, psychotic and probably should have been hospitalized.

Many DRs are not aware of these severe reactions because they haven't ever

seen one. I saw a psychiatrist who told me horror stories of people

committing violent acts, giving away their homes, and even suicides

immediately after taking prednisone. More people are sensitive to it than

most of the medical establishment seem to admit. I now have a not in my

medical files that I can't take it.

[ ] Lack of sleep

Suzy wrote: I have been put on prednisone for an intense several days

tapering down.

When I was on prednisone, I was the walking dead! It made me very hyper and

I could not sleep either. Hated that feeling. It just might be the

prednisone is making you unable to get a decent nights rest. Once you are

off it, the problem may go away. Hang in there! in Poulsbo, Wa.

[Guest guest]

I'm not on prednisone now, just for a few days to get the pain under

control. I haven't been on for a couple of months....

Thanks for the support

Suzy

I have been put on prednisone for an intense several

days tapering down.

>

> When I was on prednisone, I was the walking dead! It made me very

hyper and I could not sleep either. Hated that feeling. It just

might be the prednisone is making you unable to get a decent nights

rest. Once you are off it, the problem may go away. Hang in there!

in Poulsbo, Wa.

>

>

>

>

[Guest guest]

Has anyone found a permanent solution to these kids sleep problems? Something works for a while and then quits working. Karac didn't have any sleep problems at my house until age 10. I wonder what causes it? I think maybe my Melatonin is too old. It says use by 1/05. I think I'll reorder some. His mother wants to just quit giving him anything. LOL, Pat K

[Guest guest]

If the melatonin has quit working for him, quit giving it for awhile. That is what an article said that I read about melatonin a long time ago. I use a generic Unisom for Evan at times but also rotate it so that he does not get to where it will not work. There are times when nothing works for Evan. I assume that is because he has gotten enough sleep. Sometimes giving zinc or magnesiun helps if the child is low on either.

Evan's new thing the past couple of days in going nude again. At least at home and in the house. One good reason I like the 6 foot fence in the back yard. LOL

Betty

[Guest guest]

That's funny. I remember when Karac use to like to run around nude, but it has been a long time ago. I had a friend with an autistic son who would go to his living room windows and moon the people who drove down their busy street. LOL, Pat K

[Guest guest]

Did he have this sleep problem before all of these vitamins/supplements?

My dd never sleeps. She said her brain is on fire!!! It was painful

to watch her. Things are a bit better since treating the yeast

problem. At least she is calmer and not trying to run into the

street, but she still doesn't EVER get tired. Not even a yawn.

Houston enzymes and magnesium citrate made her more wild and the

insomnia was even worse. my 2 cents. Hope it helps.

On Oct 17, 2008, at 9:56 PM, Tammy Kuhn wrote:

> My 8.10 PDD-NOS high functioning guy has a hard time falling to

> sleep at night. His mind does not turn off. It keeps going, and

> going and going and last night at 10:45 while I was checking on him

> before I got to bed, he said he couldn't turn his mind off. We read

> and at 8:30 he gets a 1/2 hour of reading time in bed and lights

> off at 9:00. Many times he's awake yet until 10:00 and beyond. I

> get him up at 7:00 for school. It can be a battle but amazing on

> the weekend he has no problem getting up at 7:00.

>

> He's on Brainchild, BC yeast protocol rotation, Custom probiotics,

> Houston enzymes, magnesium. This is about all I can get down him

> until he can swallow a pill. Anything has to be liquid of chewable.

> We bath every other day and so epson salt and I have mag cream I

> should work harder putting on every night.

>

> I'd like to do a parasite cleanse. But until swallowing unless

> someone has an idea there of something great tasting. Hard enough

> getting his liquid vit/min down twice a day.

>

> Thanks in advance!

>

> Tammy

>

>

[Guest guest]

Did you try melatonin? It actually has a relatively bland taste & I

used to crush the tablets & put them into my girl's

bottles...ultimately, part of figuring out how much she " needed " was

seeing how many milk bottles she was asking for, at which point during

her migraines...more than once, watched her go thru a couple bottles -

looking for the melatonin one, I am sure - before I " got it " and put

some in a bottle for her

As she got older, crushing them into her glass of milk worked(s) just

as well. wishing you the best answers, elizabeth

>

> My 8.10 PDD-NOS high functioning guy has a hard time falling to

sleep at night. His mind does not turn off. It keeps going, and

going and going and last night at 10:45 while I was checking on him

before I got to bed, he said he couldn't turn his mind off. We read

and at 8:30 he gets a 1/2 hour of reading time in bed and lights off

at 9:00. Many times he's awake yet until 10:00 and beyond. I get him

up at 7:00 for school. It can be a battle but amazing on the weekend

he has no problem getting up at 7:00.

>

> He's on Brainchild, BC yeast protocol rotation, Custom probiotics,

Houston enzymes, magnesium. This is about all I can get down him

until he can swallow a pill. Anything has to be liquid of chewable.

We bath every other day and so epson salt and I have mag cream I

should work harder putting on every night.

>

> I'd like to do a parasite cleanse. But until swallowing unless

someone has an idea there of something great tasting. Hard enough

getting his liquid vit/min down twice a day.

>

> Thanks in advance!

>

> Tammy

>

>

>

[Guest guest]

Hi - we've used a liquid melatonin for my son (age 5) and it doesn't

taste bad at all, and worked like a charm until he reached a point

where he could fall asleep well on his own. Also, we used a liquid

herbal tincture for parasite cleanse and applied it to his skin

(soles of feet) and had good results. Now he'll drink the herbs in

pear juice, because after the first month he felt so much better, he

wanted to take them.

>

> My 8.10 PDD-NOS high functioning guy has a hard time falling to

sleep at night. His mind does not turn off. It keeps going, and

going and going and last night at 10:45 while I was checking on him

before I got to bed, he said he couldn't turn his mind off. We read

and at 8:30 he gets a 1/2 hour of reading time in bed and lights off

at 9:00. Many times he's awake yet until 10:00 and beyond. I get

him up at 7:00 for school. It can be a battle but amazing on the

weekend he has no problem getting up at 7:00.

>

> He's on Brainchild, BC yeast protocol rotation, Custom probiotics,

Houston enzymes, magnesium. This is about all I can get down him

until he can swallow a pill. Anything has to be liquid of chewable.

We bath every other day and so epson salt and I have mag cream I

should work harder putting on every night.

>

> I'd like to do a parasite cleanse. But until swallowing unless

someone has an idea there of something great tasting. Hard enough

getting his liquid vit/min down twice a day.

>

> Thanks in advance!

>

> Tammy

>

>

>

[Guest guest]

Hi Gwen - Seems like Kaleigh and Caleb are in the same boat. I suggested to

Kaleigh's doc this morning that we do an alternating type thing too so that she

won't have time to grow tolerant. I'm not a big fan of trazodone, mainly because

of the side-effects, and as large as a dose that Kaleigh takes, it's not even

working for her. So, I'll let you know what we come up with and maybe it'll work

for Caleb (love the name Caleb. We picked that name in case Kaleigh was a boy).

>

>

> I haven't been online in a really long time. I just read that Kaleigh isn't

sleeping well. Been there done that and still doing that. Caleb's doctor

recommended benadryl at night. I have been alternating melatonin, clinodine,

and benadryl. It seems as though Caleb gets immune to all of them. Hope things

get better for y'all.

>

>

>

> Gwen

>

[Guest guest]

I find that taking it in the am and then using .5 lorazepam at bedtime helps me,

feel better, Kate f

Sent from my iPhone

On Mar 17, 2011, at 2:03 PM, " Amy " <pikesridge@...> wrote:

> I've been on prednisone for about 10 days now and I'm finding that I can't

sleep very well. This is a side effect of the drug. Does anybody have a safe

solution?

> Amy

>

>

[Guest guest]

If you aren't taking it in the morning, then try that. I haven't had trouble

sleeping. I have always made sure to eat something and then gone ahead and

taken it before I get ready for work.

Janice in GA

>

> I've been on prednisone for about 10 days now and I'm finding that I can't

sleep very well. This is a side effect of the drug. Does anybody have a safe

solution?

> Amy

>