Guest guest Posted December 7, 2009 Report Share Posted December 7, 2009 As I progressed with my Humira treatment, I got as bad as when I was becoming bed-ridden. It took all the improvement of MTX away, so I quit taking it after about 2 months. I quickly went back to my normal self and won't touch Humira again! It sounds like you're reacting badly to it, maybe it'll be good to not use it any more. Dennis in eastexas On Mon, Dec 7, 2009 at 10:01 PM, mbdomby <mbdomby@...> wrote: > > > Hi all, > I started Humira a few weeks ago. After the first injection I was feeling > pretty good. After the second, I seem to be thrown into the flare from hell. > I called the dr. today and was told to continue with Humira because its too > soon to tell if it's not working. > > Has anyone else experienced this when starting Humira, and if so what was > the outcome? > > thanks. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2009 Report Share Posted December 8, 2009 Good morning , I read your post this morning and wanted to put in my two cents. I've been on Humira treatments for 21 months. I do remember when I started it took about five months to recognize any changes. I inject myself every 2 weeks but can completely tell when the Humira is wearing off because I feel like I am falling apart and just want to crawl in bed and hide. I don't even know if I would describe it as a flare anymore because it is much different now being on Humira as it was before. It has become a different kind of pain...like muscle cramps and bruising feeling....everywhere....and the tips of my fingers turn almost black.... I have had RA for 20 years now and I just have to say that I never knew what costocrondritis was until about 4 months ago. I don't know if it was caused from the progression of RA, or if it was caused from Humira....or from previously taking Arava....I lean toward blaming the drugs, only because of the number of years I had RA. Arava I wish I would have NEVER tried, and if you haven't - don't. As far as Humira goes, for me, I look forward to giving myself a shot...tomorrow actually....every other Wednesday...just must make it through today. Thank you for listening, in Michigan From: mbdomby <mbdomby@...> Subject: [ ] Humira flare up Date: Monday, December 7, 2009, 11:01 PM  Hi all, I started Humira a few weeks ago. After the first injection I was feeling pretty good. After the second, I seem to be thrown into the flare from hell. I called the dr. today and was told to continue with Humira because its too soon to tell if it's not working. Has anyone else experienced this when starting Humira, and if so what was the outcome? thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2009 Report Share Posted December 8, 2009 It only took a couple of weeks to get back to tolerable. I was surprised it was that quick. I surely hope you have that same luck. I was already taking 1cc injected MTX, 10mg Pred, 500mg Lodine twice daily, Morphine Sulfate, and a few other helpers. The strange thing I'm puzzling over is that I had to stop MTX 2 months ago, just weeks after stopping Humera, for the radiation and haven't had any consequences so far. My lower spine is much worse because I haven't had any spine treatments. This radiation only takes 20 minutes in the middle of the day, but driving there and back every day, recovering from the 'torture', and the little else to try to do take the day away from me. Dennis in eastexas On Tue, Dec 8, 2009 at 9:20 AM, Domby <mbdomby@...> wrote: > > > > Dennis, do you remember how long it took to get over that flare up after > you > quit the Humira? Did you get a dose of prednisone or anything to help? I > am finding myself pretty much bed ridden for two days now and I need to get > back to work. > > Thanks. > > > Re: [ ] Humira flare up > > As I progressed with my Humira treatment, I got as bad as when I was > becoming bed-ridden. It took all the improvement of MTX away, so I quit > taking it after about 2 months. I quickly went back to my normal self and > won't touch Humira again! It sounds like you're reacting badly to it, maybe > it'll be good to not use it any more. > > Dennis in eastexas > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2009 Report Share Posted December 8, 2009 Dennis, I know what you mean about the radiation treatments messing up your entire day. Mine were in the middle of the day, too, but at least we had to drive only 15 miles to get to the center. Mine was far from " torture, " though. Or do you mean the torture of having to drive there and back every day? I'm sorry that Betty is having so much pain. I hope you two can catch a break soon. Sue On Dec 8, 2009, at 4:44 PM, Dennis W wrote: > It only took a couple of weeks to get back to tolerable. I was > surprised it > was that quick. I surely hope you have that same luck. > > I was already taking 1cc injected MTX, 10mg Pred, 500mg Lodine twice > daily, > Morphine Sulfate, and a few other helpers. The strange thing I'm > puzzling > over is that I had to stop MTX 2 months ago, just weeks after stopping > Humera, for the radiation and haven't had any consequences so far. > My lower > spine is much worse because I haven't had any spine treatments. This > radiation only takes 20 minutes in the middle of the day, but > driving there > and back every day, recovering from the 'torture', and the little > else to > try to do take the day away from me. > Quote Link to comment Share on other sites More sharing options...
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