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Ekaterina,

I would love more info on what supplements your daughter was given.  I am going

to see a homeopathic doctor next week.  Anthing you think will help would be

greatly appreciated!...

Name some of the supplements so I could write them down and run by this woman.

Thanks a lot.

 

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I would love more info. on what supplements and kinda of Dr you are seeing and

any other info.  Still looking for answer on what is wrong with my daughter. 

Mitzi

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I would also love to know about any alternative supplements. Thanks!

On Fri Oct 9th, 2009 1:04 PM EDT Borini wrote:

>Ekaterina,

>I would love more info on what supplements your daughter was given.  I am going

to see a homeopathic doctor next week.  Anthing you think will help would be

greatly appreciated!...

>Name some of the supplements so I could write them down and run by this woman.

>Thanks a lot.

>

>

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I would also love to know about any alternative supplements. Thanks!

On Fri Oct 9th, 2009 1:04 PM EDT Borini wrote:

>Ekaterina,

>I would love more info on what supplements your daughter was given.  I am going

to see a homeopathic doctor next week.  Anthing you think will help would be

greatly appreciated!...

>Name some of the supplements so I could write them down and run by this woman.

>Thanks a lot.

>

>

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The name of the supplement is HRF-THALAMIC (glandular product) by Ecological

Formulas, I buy them through Vitamin Shoppe.  When my daughter was smaller (4-5

years old) i divided the capsule in half (by buying empty capsules), now I give

her the whole capsule.  In addition she takes multi vitamins Tiny Tabs Multi by

New Chapter, half of the adult dose.  This has been our routine for the past 3-4

years.  The fevers gradually stopped, after I started giving her this

supplement  I also give Oregano oil when she has a cold, or would start her

episode. 

Good luck.  Please let me know if this helps or any other info that you would

like to know.

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  • 1 month later...

I went through all that pain management for over a year and it worked for a day

or so...mainly in the recovery room. Sorry you are in so much pain. Loratab

takes the edge off. I am 51 and had my first surgery in 1996, second a year

later and the last one in 2005. Take care and know that we all support you,

Dereise....

>

> Hi all.Recently my partner has been talking to his friends mum,she uses

epidurals for her back problems,she swears by them and she says they give her

around 3 months out of pain...I was wondering if anyone else has used them.Also

Ive been thinking about cortizone injections...does anyone have any experiences

with either?With my added problems (my twisted pelvis,rotated vertabre & a Tarlov

cyst growing) the hospital have told me there is nothing else they can do for

me...I just now have to wait again until it gets worse before they will look at

me again so Im looking into alternative therapy...has anyone tried anything like

accupuncture etc? Im at my wits end now so anything is worth a shot! Ive also

been diagnosed with arthritis in my knees because of the way I have to walk

now,also been told I have depression which doesnt suprise me,what did suprise me

though is how long Ive managed to cope without being to down,just lately,Ive

been crying every day & wanting to be on my own.I had some blood tests last week

to find out what else-if anything-is causing my exhaustion and Im also being

checked for Fibromyalgia.But,still I try to think how many people are a lot

worse off than me and I shouldnt feel sorry for myself!

>

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Derise - How are you doing? I haven't posted in awhile or seen you on - hope

your pain is less and all is well. Sara

From: Dereise <dereise1958@...>

Subject: Re: Alternatives

Scoliosis Treatment

Date: Monday, November 30, 2009, 1:24 AM

 

I went through all that pain management for over a year and it worked for a day

or so...mainly in the recovery room. Sorry you are in so much pain. Loratab

takes the edge off. I am 51 and had my first surgery in 1996, second a year

later and the last one in 2005. Take care and know that we all support you,

Dereise....

>

> Hi all.Recently my partner has been talking to his friends mum,she uses

epidurals for her back problems,she swears by them and she says they give her

around 3 months out of pain...I was wondering if anyone else has used them.Also

Ive been thinking about cortizone injections.. .does anyone have any experiences

with either?With my added problems (my twisted pelvis,rotated vertabre & a Tarlov

cyst growing) the hospital have told me there is nothing else they can do for

me...I just now have to wait again until it gets worse before they will look at

me again so Im looking into alternative therapy...has anyone tried anything like

accupuncture etc? Im at my wits end now so anything is worth a shot! Ive also

been diagnosed with arthritis in my knees because of the way I have to walk

now,also been told I have depression which doesnt suprise me,what did suprise me

though is how long Ive managed to cope without being to down,just lately,Ive

been crying every

day & wanting to be on my own.I had some blood tests last week to find out what

else-if anything-is causing my exhaustion and Im also being checked for

Fibromyalgia. But,still I try to think how many people are a lot worse off than

me and I shouldnt feel sorry for myself!

>

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  • 4 weeks later...

I think all of us who suffer pain have those feelings of guilt because there are

others worse off than we are. But the bottom line is, pain is pain and it takes

its toll. I've been in pain for nearly 17 years with very little relief. I take

meds, I've had surgery--which did help but also has it's downside--and sometimes

I feel like I'm 82 rather than 52. I think that I wish I'd die because I want to

do things and I don't have the energy anymore. I used to have hope that I'd get

better but now I hope for my way of thinking to change. I guess I need to be

grateful for what I can do rather than depressed for all that I can no longer

do. Even that wouldn't seem so bad if not for the relentless pain. I get scared

of not being able to care for myself. But I think if we practice being in the

moment and not think about what might happen in the future maybe the depression

would go away. I understand how you feel.

________________________________

From: Sara Dolan <mollymol6@...>

Scoliosis Treatment

Sent: Wed, December 2, 2009 4:45:44 AM

Subject: Re: Re: Alternatives

 

Derise - How are you doing? I haven't posted in awhile or seen you on - hope

your pain is less and all is well. Sara

From: Dereise <dereise1958>

Subject: Re: Alternatives

Scoliosis Treatment

Date: Monday, November 30, 2009, 1:24 AM

 

I went through all that pain management for over a year and it worked for a day

or so...mainly in the recovery room. Sorry you are in so much pain. Loratab

takes the edge off. I am 51 and had my first surgery in 1996, second a year

later and the last one in 2005. Take care and know that we all support you,

Dereise....

>

> Hi all.Recently my partner has been talking to his friends mum,she uses

epidurals for her back problems,she swears by them and she says they give her

around 3 months out of pain...I was wondering if anyone else has used them.Also

Ive been thinking about cortizone injections.. .does anyone have any experiences

with either?With my added problems (my twisted pelvis,rotated vertabre & a Tarlov

cyst growing) the hospital have told me there is nothing else they can do for

me...I just now have to wait again until it gets worse before they will look at

me again so Im looking into alternative therapy...has anyone tried anything like

accupuncture etc? Im at my wits end now so anything is worth a shot! Ive also

been diagnosed with arthritis in my knees because of the way I have to walk

now,also been told I have depression which doesnt suprise me,what did suprise me

though is how long Ive managed to cope without being to down,just lately,Ive

been crying every

day & wanting to be on my own.I had some blood tests last week to find out what

else-if anything-is causing my exhaustion and Im also being checked for

Fibromyalgia. But,still I try to think how many people are a lot worse off than

me and I shouldnt feel sorry for myself!

>

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with our condition we have 2 accept it & move on live life with all its

advantages & disadvantages although we may be in pain sometimes we can still

make a difference in others life

________________________________

From: Randie Meyer <taknitlite@...>

Scoliosis Treatment

Sent: Sun, December 27, 2009 11:50:28 PM

Subject: Re: Re: Alternatives

I think all of us who suffer pain have those feelings of guilt because there are

others worse off than we are. But the bottom line is, pain is pain and it takes

its toll. I've been in pain for nearly 17 years with very little relief. I take

meds, I've had surgery--which did help but also has it's downside--and sometimes

I feel like I'm 82 rather than 52. I think that I wish I'd die because I want to

do things and I don't have the energy anymore. I used to have hope that I'd get

better but now I hope for my way of thinking to change. I guess I need to be

grateful for what I can do rather than depressed for all that I can no longer

do. Even that wouldn't seem so bad if not for the relentless pain. I get scared

of not being able to care for myself. But I think if we practice being in the

moment and not think about what might happen in the future maybe the depression

would go away. I understand how you feel.

____________ _________ _________ __

From: Sara Dolan <mollymol6 (DOT) com>

Scoliosis Treatment

Sent: Wed, December 2, 2009 4:45:44 AM

Subject: Re: Re: Alternatives

Derise - How are you doing? I haven't posted in awhile or seen you on - hope

your pain is less and all is well. Sara

From: Dereise <dereise1958>

Subject: Re: Alternatives

Scoliosis Treatment

Date: Monday, November 30, 2009, 1:24 AM

I went through all that pain management for over a year and it worked for a day

or so...mainly in the recovery room. Sorry you are in so much pain. Loratab

takes the edge off. I am 51 and had my first surgery in 1996, second a year

later and the last one in 2005. Take care and know that we all support you,

Dereise....

>

> Hi all.Recently my partner has been talking to his friends mum,she uses

epidurals for her back problems,she swears by them and she says they give her

around 3 months out of pain...I was wondering if anyone else has used them.Also

Ive been thinking about cortizone injections.. .does anyone have any experiences

with either?With my added problems (my twisted pelvis,rotated vertabre & a Tarlov

cyst growing) the hospital have told me there is nothing else they can do for

me...I just now have to wait again until it gets worse before they will look at

me again so Im looking into alternative therapy...has anyone tried anything like

accupuncture etc? Im at my wits end now so anything is worth a shot! Ive also

been diagnosed with arthritis in my knees because of the way I have to walk

now,also been told I have depression which doesnt suprise me,what did suprise me

though is how long Ive managed to cope without being to down,just lately,Ive

been crying every

day & wanting to be on my own.I had some blood tests last week to find out what

else-if anything-is causing my exhaustion and Im also being checked for

Fibromyalgia. But,still I try to think how many people are a lot worse off than

me and I shouldnt feel sorry for myself!

>

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  • 8 months later...

....not looking for hope Chuck. I'm here to help others. Others to feel better

who have HypoT-Type 2 or Sub-clinical or whatever you choose to call it. I do

take Vitamin D supplements and a few other things.

Have you tried any of the alternative solutions yourself? Tested on your body?

I'm not saying everything but even some of it...don't do it through Cure Zone if

you don't want to. There are a lot of people making crap I'm sure and I'm sure

there are more things than selenium, vitamin D and valerian root. That's just

ridiculous! Perhaps I should do some finger pointing and some supposition...do

you work for the drug companies? How much do you make by sending them people?

Are you just spamming everyone on this subject?

Some of the alternatives may only make subtle differences but you probably

wouldn't know that. The Chinese have been using herb therapy for 1,000s of

years...long before your small mind happened upon the thyroid.

And, exactly how old, fat and bald are you? Sorry you guys started the name

calling...

Tami

________________________________

From: Chuck B <gumboyaya@...>

hypothyroidism

Sent: Tue, September 7, 2010 6:12:21 PM

Subject: Alternatives

Valerian root helps with getting to sleep. Many people could probably

benefit from more vitamin D, among others. Selenium helps with T4 to T3

conversion. Most of the other junk listed in the list invitation does

not work as advertised, although the (retired) list owner works for Cure

Zone, a company that stands ready to sell you any of it. Several of the

things listed are outright frauds and have been involved with arrests

and lawsuits.

And yes, most alternative notions have been discussed at least a couple

of times on this list in recent memory. If you want positive

endorsements, please visit Cure Zone. They will be glad to sell you hope.

Chuck

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Since I'm one of " you guys " I'll address the " ...old, fat and bald... "

part first. Old: I'm a few months shy of three score and ten, so

guilty as charged. Fat: 190 lbs male, 5'- 11 " ; unfortunately too much

of it in my belly. Bald: Not really. Thin up front if that pleases

you; otherwise falling past my shoulders. I play bass guitar from time

to time with local musical groups. None of which has any bearing on the

subject; no one has called you " old, fat, bald " or any other name.

You're dealing with adults; may we have the same privilege?

As for the effectiveness of alternatives treatments many have been

tested. A heck of a lot of them can demonstrate no benefit above chance

or placebo in any properly controlled study. Quite a few of them

[homeopathy, for example] directly violate well established physical

principles and have nothing to support them whatsoever even

theoretically beyond basically magic. Chuck is certainly the person on

the list who is the most cognizant of the procedures of such tests,

since he personally is involved in original credible research.

Why are you attacking Chuck with charges of working for drug companies,

sending them people and spamming? He hasn't said anything like that to you.

..

..

> Posted by: " Tami " tamijmoore@...

> <mailto:tamijmoore@...?Subject=%20Re%3A%20Alternatives>

> tamijmoore <tamijmoore>

>

>

> Tue Sep 7, 2010 5:22 pm (PDT)

>

>

>

> ...not looking for hope Chuck. I'm here to help others. Others to feel

> better

> who have HypoT-Type 2 or Sub-clinical or whatever you choose to call

> it. I do

> take Vitamin D supplements and a few other things.

>

> Have you tried any of the alternative solutions yourself? Tested on

> your body?

> I'm not saying everything but even some of it...don't do it through

> Cure Zone if

> you don't want to. There are a lot of people making crap I'm sure and

> I'm sure

> there are more things than selenium, vitamin D and valerian root.

> That's just

> ridiculous! Perhaps I should do some finger pointing and some

> supposition.

> ..do

> you work for the drug companies? How much do you make by sending them

> people?

> Are you just spamming everyone on this subject?

>

> Some of the alternatives may only make subtle differences but you

> probably

> wouldn't know that. The Chinese have been using herb therapy for

> 1,000s of

> years...long before your small mind happened upon the thyroid.

>

> And, exactly how old, fat and bald are you? Sorry you guys started the

> name

> calling...

>

> Tami

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  • 3 months later...

Has anyone tried the electro zappers for their RA? I know that there are so many

" snake oil " sellers out there. But, I researched and the legit doctors are

having good results with electro magnetic therapy for osteoarthritis.

Personally, I have had some good results wearin magnet bracelets at night. It

has helped the night hand pain & the carpal tunnel disappeared. I don't know if

it the magnets, or just having something on my wrists. -Betty

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Any specific place to find the hemotite beads?

Sent from my iPhone

On Dec 29, 2010, at 8:17 PM, " b " <stubbornscot1@...> wrote:

> I just have the inexpensive magnetic hemotite beads on elastic as a stretchy

bracelet ($5). I started wearing them about a year ago. They were in my way

during the day every time I'd wash my hands, so I started wearing them at night

figuring if it works, okay, if not okay, plus more wearing time. When I go to

bed they are loose, but are snug when I wake up, due to swelling in the wrists.

About 3 months later my carpal tunnel disappeared. It might just be from having

something snug on my wrists as that is what the carpal tunnel gloves do. My one

wrist has no mobility due to the RA freezing up the joints.

>

> Another thing that I do is when my hands are extra sore at night or if I have

chores that involve a lot of hand movement I relieve a lot of pain by wearing

rubber gloves or the thin latex gloves. The medical gloves do not work, as they

allow your hand to breathe. I found that the latex ones that you get at

hardware, paint stores, etc. work great. They have flexibility yet make your

hands sweaty & warm to help loosen up the joints.

>

> I ran into one of those vendors at the mall that sells the electric zapper. He

claims that it loosens up the calcium with the zaps. I'm not very sure, but

seeing that the legit medical community is using electro magnetic zapping, maybe

a little relief might be achieved. The pain in my shoulder is getting unbearable

at night. As we know, there are no cures, but little things help relieve pain.

-Betty

>

>

> >

> > Hi Betty,

> > Where do you get magnetic bracelets? I have a lot & I mean SEVERE pain in my

left wrist & several fingers almost every night in the wee hours of the AM. I

currently am waiting to have a neurologist do some tests in Feb to determine the

cause if the pain so I'm willing to try anything!

> > Thx!

> > in SC

>

>

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