Guest guest Posted October 19, 2001 Report Share Posted October 19, 2001 Thanks Carolyn, Who manufactures your protein shakes? --- Carolyn <prov__31@...> wrote: > Tricia, > > How about Protein Drinks? I have one that is very > high in protein -- 26-27gms. It is YUMMY too! It > also comes with probiotics in it! > > Yogurt -- some say that is a bad thing -- I just > find > that I am going FAR and I am not a stickler for " the > diet, " although my base foods are meat and steamed > or > boiled veggies. > > How about some meat? Get your favorites -- even > precooked ham -- just keep some on hand that is > microwavable -- cook it ahead, freeze it in foil and > use it every morning during the week. > > I am not a sausage eater, but those little smokies > might me easy -- but any precooked thing that you > can > put in baggies. I find that PROTEIN gives me the > POWER to resist bad stuff like nothing else! > > Hot water with lemon (currently using a WHOLE LEMON > and I cut up the rhine (sp?) and use it in the hot > water too -- there are cleansing properties from the > stuff in the rhine. This gives me a HUGE amount of > strength not to eat the bad stuff. > > Another thing is chicken broth -- the canned stuff. > I > keep this at the office, along with protein shakes, > just in case. > > I certainly don't have all the answers -- I WELCOME > the other suggestions that may come in regard to > your > question. > > God bless you and your efforts to be candida Free! > > > Carolyn > > > > > --- Ruth Reul <ruthannreul@...> wrote: > > > > > > Hi Tricia, Is there any way you can do some > > oatmeal > > > in a microwave at work ? And I sometimes make > > > oatmeal like a rice pudding dessert that I LOVE > > but > > > can't have any more. I cook the oatmeal ( old > > > fashioned ) I add some rice milk a little > vanilla > > > sweet and low ( but I'm gonna buy the liquid > > stevia > > > that Helen suggested) plus i add cinnamon then I > > put > > > it in the fridge. So let it cool in a flat dish > > and > > > cut it up in sguares. I use it like a snack . > when > > I > > > was weight lifting we used oatmeal all the time > > > before we lifted I hope to get back to regular > > > weight lifting program very soon.IJN Ruth > > > Tricia Modeste <tmodes@...> wrote: Good > > > morning! > > > > > > I'm a little frustrated today because of the > > > breakfast > > > issue. I'm rarely able to make breakfast and > home > > > and > > > its difficult to find something that's not bad > for > > > candida. Every Wednesday and Friday my company > > > provides breakfast for us which consists of > bagel, > > > croissants, pastries, scones, donuts....all > > no-nos! > > > Oftentimes I can turn these goodies down and > when > > I > > > do > > > I starve myself until lunch because there isn't > > > anything healthy I can buy for breafast! > > > > > > Does anyone have any suggestions? I know its > bad > > > for > > > my body to not have breakfast, but what do I do? > > > > > > Tricia > > > > > > > __________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 This is JUST my two cents worth, but if you have any interest in seeing a specialist I think you should make your appointment sooner than later. At least in my area, it took us months to get in to see who we wanted. If you wait to even make an appointment until your child is 9 months, you might really be wasting time for banding or PT (if that is needed). You can always find the NS and then cancel your appointment if you change your mind. Sorry this is such an uphill struggle for you Stacey in NC --- In Plagiocephaly , " skytza05 " <skytza05@...> wrote: > > I took my son to the new pediatrician yesterday and he blew us off > even more than the first ped! He looked at the top of his head and he > said " Oh, it's not that bad " . I said, " Look at the back of his head! " > and he just says " Oh. " > > He then told me to put him on the other side of his head, as if I > haven't been doing this for the past 6 months! He told me to wait > until his 9 month well visit next month and see if it got any better. > I asked for the number for the neurosurgeon. He said " well, if you > want to go see if he needs one of those headgears.. " What kind of > doctor is he? > > My fiancee thinks going to the NS is a waste of money and that we > should listen to our ped. He thinks I'm stupid for looking everything > up on the internet. I'm getting no support from anyone and don't know > what to do next. Do I wait another month to see if it's any better or > do I call the NS? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 This is JUST my two cents worth, but if you have any interest in seeing a specialist I think you should make your appointment sooner than later. At least in my area, it took us months to get in to see who we wanted. If you wait to even make an appointment until your child is 9 months, you might really be wasting time for banding or PT (if that is needed). You can always find the NS and then cancel your appointment if you change your mind. Sorry this is such an uphill struggle for you Stacey in NC --- In Plagiocephaly , " skytza05 " <skytza05@...> wrote: > > I took my son to the new pediatrician yesterday and he blew us off > even more than the first ped! He looked at the top of his head and he > said " Oh, it's not that bad " . I said, " Look at the back of his head! " > and he just says " Oh. " > > He then told me to put him on the other side of his head, as if I > haven't been doing this for the past 6 months! He told me to wait > until his 9 month well visit next month and see if it got any better. > I asked for the number for the neurosurgeon. He said " well, if you > want to go see if he needs one of those headgears.. " What kind of > doctor is he? > > My fiancee thinks going to the NS is a waste of money and that we > should listen to our ped. He thinks I'm stupid for looking everything > up on the internet. I'm getting no support from anyone and don't know > what to do next. Do I wait another month to see if it's any better or > do I call the NS? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 Hi there, I totally understand what you are going through. Our pediatrician says that "every" child's head rounds out on its own eventually. I don't believe this is the case, as is evidenced by the numerous cases of children with unresolved problems that we see every day! We too went to a NS and a specialist. Unfortunately, the NS was equally unconcerned about it, though I have seen from some of the postings that some parents have found supportive NSs that are pro-band or helmet. The plastic surgeon that we saw does see what I see, but wants us to wait until 8 months (Sydney is now 6 months) before we do anything to see if it improves or gets worse. Even then, she is not guaranteeing that she will help us with any sort of treatment, as she too has said that she really isn't into using the bands. I too can relate to the issue that you are having with your fiance. My husband totally believes the opinion of the Drs. and cannot understand my continued worry or need for concern. He has a lot more faith in just letting nature take its course with our daughter's head than I do based on the continued flattening I've seen. I'm going to take Sydney tomorrow to get a Starscan to quantify the severity of her situation. I've always wanted for someone to do measurements and see if how those would categorize her (mild, moderate, severe). I would be ecstatic if they put her in the mild range. I, like you, just want options. Is there a CT or Hanger clinic in your area where you could take your child to see an orthotist to get some cranial measurements? This is just one additional step that you could take. I think that you have to go with your gut on this, as I am, and as many of the parents have had to do. If you truly believe there is an issue and aren't seeing it resolve on its own, you will at least know that you've done all you could for your child and feel good about it. I wish you the best of luck! Best, (Mom to Sydney Lorrain, 6 months, flattening and asymmetry) tza05 <skytza05@...> wrote: I took my son to the new pediatrician yesterday and he blew us off even more than the first ped! He looked at the top of his head and he said "Oh, it's not that bad". I said, "Look at the back of his head!" and he just says "Oh."He then told me to put him on the other side of his head, as if I haven't been doing this for the past 6 months! He told me to wait until his 9 month well visit next month and see if it got any better. I asked for the number for the neurosurgeon. He said "well, if you want to go see if he needs one of those headgears.." What kind of doctor is he?My fiancee thinks going to the NS is a waste of money and that we should listen to our ped. He thinks I'm stupid for looking everything up on the internet. I'm getting no support from anyone and don't know what to do next. Do I wait another month to see if it's any better or do I call the NS? Use Photomail to share photos without annoying attachments. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 Hi there, I totally understand what you are going through. Our pediatrician says that "every" child's head rounds out on its own eventually. I don't believe this is the case, as is evidenced by the numerous cases of children with unresolved problems that we see every day! We too went to a NS and a specialist. Unfortunately, the NS was equally unconcerned about it, though I have seen from some of the postings that some parents have found supportive NSs that are pro-band or helmet. The plastic surgeon that we saw does see what I see, but wants us to wait until 8 months (Sydney is now 6 months) before we do anything to see if it improves or gets worse. Even then, she is not guaranteeing that she will help us with any sort of treatment, as she too has said that she really isn't into using the bands. I too can relate to the issue that you are having with your fiance. My husband totally believes the opinion of the Drs. and cannot understand my continued worry or need for concern. He has a lot more faith in just letting nature take its course with our daughter's head than I do based on the continued flattening I've seen. I'm going to take Sydney tomorrow to get a Starscan to quantify the severity of her situation. I've always wanted for someone to do measurements and see if how those would categorize her (mild, moderate, severe). I would be ecstatic if they put her in the mild range. I, like you, just want options. Is there a CT or Hanger clinic in your area where you could take your child to see an orthotist to get some cranial measurements? This is just one additional step that you could take. I think that you have to go with your gut on this, as I am, and as many of the parents have had to do. If you truly believe there is an issue and aren't seeing it resolve on its own, you will at least know that you've done all you could for your child and feel good about it. I wish you the best of luck! Best, (Mom to Sydney Lorrain, 6 months, flattening and asymmetry) tza05 <skytza05@...> wrote: I took my son to the new pediatrician yesterday and he blew us off even more than the first ped! He looked at the top of his head and he said "Oh, it's not that bad". I said, "Look at the back of his head!" and he just says "Oh."He then told me to put him on the other side of his head, as if I haven't been doing this for the past 6 months! He told me to wait until his 9 month well visit next month and see if it got any better. I asked for the number for the neurosurgeon. He said "well, if you want to go see if he needs one of those headgears.." What kind of doctor is he?My fiancee thinks going to the NS is a waste of money and that we should listen to our ped. He thinks I'm stupid for looking everything up on the internet. I'm getting no support from anyone and don't know what to do next. Do I wait another month to see if it's any better or do I call the NS? Use Photomail to share photos without annoying attachments. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 I went thru hell and back regarding banding my son. He has tort and plagio. I noticed this soon after birth -mentioned it to my ped and she kept blowing me off. I new something was wrong so I did all the research on my own with no help and support from anyone. My husband just kept saying he's fine, my family oh nothings wrong-your paranoid. I went to every specialist in MA and all blew me off. It took me from birth to 10 mths to get my son banded. I went to see a specialist in CT and got my letter of medical ness and go to cranialtech for treatment. Its @ a 6 hr total drive every 2 weeks but worth it. My husband never supported me. In fact he was 100% against me getting a band. To the point that I said hes getting one and if you dont like it leave me because I will do what I feel is best for my son regardless. Now he agrees with me and that it was the best for Daeson but I went thru prue hell. My son is one his second band, and has 1 1/2 mths left. He wont be 100% perfect because he got in a band so late but he has had tremendous improvement and I'm very happy with the results. So all I can say is if in your heart you feel that he needs a band and that if you dont band him you will regret it in the future go ahead and call NS. Listen to your heart and guts -moms really do know best. I can say the only regret I have is not going straight to CT first and getting his treatment early on. Let me know if I can assist any further. Louise Soyscentials " Because it pays to light the way to a " soot free " future! " For a FREE votive go to www.Familysoycandles.com and enter my candle drawing Frustrated! >I took my son to the new pediatrician yesterday and he blew us off > even more than the first ped! He looked at the top of his head and he > said " Oh, it's not that bad " . I said, " Look at the back of his head! " > and he just says " Oh. " > > He then told me to put him on the other side of his head, as if I > haven't been doing this for the past 6 months! He told me to wait > until his 9 month well visit next month and see if it got any better. > I asked for the number for the neurosurgeon. He said " well, if you > want to go see if he needs one of those headgears.. " What kind of > doctor is he? > > My fiancee thinks going to the NS is a waste of money and that we > should listen to our ped. He thinks I'm stupid for looking everything > up on the internet. I'm getting no support from anyone and don't know > what to do next. Do I wait another month to see if it's any better or > do I call the NS? > > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 I went thru hell and back regarding banding my son. He has tort and plagio. I noticed this soon after birth -mentioned it to my ped and she kept blowing me off. I new something was wrong so I did all the research on my own with no help and support from anyone. My husband just kept saying he's fine, my family oh nothings wrong-your paranoid. I went to every specialist in MA and all blew me off. It took me from birth to 10 mths to get my son banded. I went to see a specialist in CT and got my letter of medical ness and go to cranialtech for treatment. Its @ a 6 hr total drive every 2 weeks but worth it. My husband never supported me. In fact he was 100% against me getting a band. To the point that I said hes getting one and if you dont like it leave me because I will do what I feel is best for my son regardless. Now he agrees with me and that it was the best for Daeson but I went thru prue hell. My son is one his second band, and has 1 1/2 mths left. He wont be 100% perfect because he got in a band so late but he has had tremendous improvement and I'm very happy with the results. So all I can say is if in your heart you feel that he needs a band and that if you dont band him you will regret it in the future go ahead and call NS. Listen to your heart and guts -moms really do know best. I can say the only regret I have is not going straight to CT first and getting his treatment early on. Let me know if I can assist any further. Louise Soyscentials " Because it pays to light the way to a " soot free " future! " For a FREE votive go to www.Familysoycandles.com and enter my candle drawing Frustrated! >I took my son to the new pediatrician yesterday and he blew us off > even more than the first ped! He looked at the top of his head and he > said " Oh, it's not that bad " . I said, " Look at the back of his head! " > and he just says " Oh. " > > He then told me to put him on the other side of his head, as if I > haven't been doing this for the past 6 months! He told me to wait > until his 9 month well visit next month and see if it got any better. > I asked for the number for the neurosurgeon. He said " well, if you > want to go see if he needs one of those headgears.. " What kind of > doctor is he? > > My fiancee thinks going to the NS is a waste of money and that we > should listen to our ped. He thinks I'm stupid for looking everything > up on the internet. I'm getting no support from anyone and don't know > what to do next. Do I wait another month to see if it's any better or > do I call the NS? > > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 Follow your gut! My ped said things were fine too and guess what..she was wrong. No one knows your baby better than you do. It can't hurt to put your mind at ease to see a helment or band provider. As you know..it's better to band at 6 mos rather than 9 or 10mos due to head growth/spurts. Good luck and please keep us posted --- In Plagiocephaly , " skytza05 " <skytza05@...> wrote: > > I took my son to the new pediatrician yesterday and he blew us off > even more than the first ped! He looked at the top of his head and he > said " Oh, it's not that bad " . I said, " Look at the back of his head! " > and he just says " Oh. " > > He then told me to put him on the other side of his head, as if I > haven't been doing this for the past 6 months! He told me to wait > until his 9 month well visit next month and see if it got any better. > I asked for the number for the neurosurgeon. He said " well, if you > want to go see if he needs one of those headgears.. " What kind of > doctor is he? > > My fiancee thinks going to the NS is a waste of money and that we > should listen to our ped. He thinks I'm stupid for looking everything > up on the internet. I'm getting no support from anyone and don't know > what to do next. Do I wait another month to see if it's any better or > do I call the NS? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 Follow your gut! My ped said things were fine too and guess what..she was wrong. No one knows your baby better than you do. It can't hurt to put your mind at ease to see a helment or band provider. As you know..it's better to band at 6 mos rather than 9 or 10mos due to head growth/spurts. Good luck and please keep us posted --- In Plagiocephaly , " skytza05 " <skytza05@...> wrote: > > I took my son to the new pediatrician yesterday and he blew us off > even more than the first ped! He looked at the top of his head and he > said " Oh, it's not that bad " . I said, " Look at the back of his head! " > and he just says " Oh. " > > He then told me to put him on the other side of his head, as if I > haven't been doing this for the past 6 months! He told me to wait > until his 9 month well visit next month and see if it got any better. > I asked for the number for the neurosurgeon. He said " well, if you > want to go see if he needs one of those headgears.. " What kind of > doctor is he? > > My fiancee thinks going to the NS is a waste of money and that we > should listen to our ped. He thinks I'm stupid for looking everything > up on the internet. I'm getting no support from anyone and don't know > what to do next. Do I wait another month to see if it's any better or > do I call the NS? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 I think you have to go with your mommy instincts here. If you feel there is a problem push farther. Are you near a Cranial Technologies? www.cranialtech.com , they offer free evaluations, so your fiancee can't give you any grief about the money. Bring him along as well so they can educate him too and help him understand more. You will need his support. Good Luck! CAROLG > > I took my son to the new pediatrician yesterday and he blew us off > even more than the first ped! He looked at the top of his head and he > said " Oh, it's not that bad " . I said, " Look at the back of his head! " > and he just says " Oh. " > > He then told me to put him on the other side of his head, as if I > haven't been doing this for the past 6 months! He told me to wait > until his 9 month well visit next month and see if it got any better. > I asked for the number for the neurosurgeon. He said " well, if you > want to go see if he needs one of those headgears.. " What kind of > doctor is he? > > My fiancee thinks going to the NS is a waste of money and that we > should listen to our ped. He thinks I'm stupid for looking everything > up on the internet. I'm getting no support from anyone and don't know > what to do next. Do I wait another month to see if it's any better or > do I call the NS? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 I think you have to go with your mommy instincts here. If you feel there is a problem push farther. Are you near a Cranial Technologies? www.cranialtech.com , they offer free evaluations, so your fiancee can't give you any grief about the money. Bring him along as well so they can educate him too and help him understand more. You will need his support. Good Luck! CAROLG > > I took my son to the new pediatrician yesterday and he blew us off > even more than the first ped! He looked at the top of his head and he > said " Oh, it's not that bad " . I said, " Look at the back of his head! " > and he just says " Oh. " > > He then told me to put him on the other side of his head, as if I > haven't been doing this for the past 6 months! He told me to wait > until his 9 month well visit next month and see if it got any better. > I asked for the number for the neurosurgeon. He said " well, if you > want to go see if he needs one of those headgears.. " What kind of > doctor is he? > > My fiancee thinks going to the NS is a waste of money and that we > should listen to our ped. He thinks I'm stupid for looking everything > up on the internet. I'm getting no support from anyone and don't know > what to do next. Do I wait another month to see if it's any better or > do I call the NS? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 I also understand what you're going through. I love my pediatrician but she kept telling me not to worry. My gut told me something was wrong with his head and the way he slept but I kept listening to the doctor. She told me not to expect him to be perfect - but I didn't want him to be abnormal either! I regret I didn't contact Cranial Tech sooner - they gave Jake a free evaluation and pointed out a lot of things I hadn't seen - misalignment of facial features, a bulge, etc. See if you can get a free evaluation. There are better results the younger they are - and I waited until Jake was just under twelve months to even get started. Now I learned to trust my mommy instinct! I'm not angry at her - she actually admitted she didn't know a lot about plagiocephaly seemed willing to learn for future patients. Good luck. /NY Jake - DOC banded on 3/10/06 --- In Plagiocephaly , " skytza05 " <skytza05@...> wrote: > > I took my son to the new pediatrician yesterday and he blew us off > even more than the first ped! He looked at the top of his head and he > said " Oh, it's not that bad " . I said, " Look at the back of his head! " > and he just says " Oh. " > > He then told me to put him on the other side of his head, as if I > haven't been doing this for the past 6 months! He told me to wait > until his 9 month well visit next month and see if it got any better. > I asked for the number for the neurosurgeon. He said " well, if you > want to go see if he needs one of those headgears.. " What kind of > doctor is he? > > My fiancee thinks going to the NS is a waste of money and that we > should listen to our ped. He thinks I'm stupid for looking everything > up on the internet. I'm getting no support from anyone and don't know > what to do next. Do I wait another month to see if it's any better or > do I call the NS? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 I also understand what you're going through. I love my pediatrician but she kept telling me not to worry. My gut told me something was wrong with his head and the way he slept but I kept listening to the doctor. She told me not to expect him to be perfect - but I didn't want him to be abnormal either! I regret I didn't contact Cranial Tech sooner - they gave Jake a free evaluation and pointed out a lot of things I hadn't seen - misalignment of facial features, a bulge, etc. See if you can get a free evaluation. There are better results the younger they are - and I waited until Jake was just under twelve months to even get started. Now I learned to trust my mommy instinct! I'm not angry at her - she actually admitted she didn't know a lot about plagiocephaly seemed willing to learn for future patients. Good luck. /NY Jake - DOC banded on 3/10/06 --- In Plagiocephaly , " skytza05 " <skytza05@...> wrote: > > I took my son to the new pediatrician yesterday and he blew us off > even more than the first ped! He looked at the top of his head and he > said " Oh, it's not that bad " . I said, " Look at the back of his head! " > and he just says " Oh. " > > He then told me to put him on the other side of his head, as if I > haven't been doing this for the past 6 months! He told me to wait > until his 9 month well visit next month and see if it got any better. > I asked for the number for the neurosurgeon. He said " well, if you > want to go see if he needs one of those headgears.. " What kind of > doctor is he? > > My fiancee thinks going to the NS is a waste of money and that we > should listen to our ped. He thinks I'm stupid for looking everything > up on the internet. I'm getting no support from anyone and don't know > what to do next. Do I wait another month to see if it's any better or > do I call the NS? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 Hi, What state are you in? Someone here may know of a ped or a NS who is plagio educated in your area. I wouldn't wait. The younger a baby is banded the better and faster the correction! It usually takes 6-8 weeks to get an appointment w/a NS. Keep us posted. > > I took my son to the new pediatrician yesterday and he blew us off > even more than the first ped! He looked at the top of his head and he > said " Oh, it's not that bad " . I said, " Look at the back of his head! " > and he just says " Oh. " > > He then told me to put him on the other side of his head, as if I > haven't been doing this for the past 6 months! He told me to wait > until his 9 month well visit next month and see if it got any better. > I asked for the number for the neurosurgeon. He said " well, if you > want to go see if he needs one of those headgears.. " What kind of > doctor is he? > > My fiancee thinks going to the NS is a waste of money and that we > should listen to our ped. He thinks I'm stupid for looking everything > up on the internet. I'm getting no support from anyone and don't know > what to do next. Do I wait another month to see if it's any better or > do I call the NS? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 Hi, What state are you in? Someone here may know of a ped or a NS who is plagio educated in your area. I wouldn't wait. The younger a baby is banded the better and faster the correction! It usually takes 6-8 weeks to get an appointment w/a NS. Keep us posted. > > I took my son to the new pediatrician yesterday and he blew us off > even more than the first ped! He looked at the top of his head and he > said " Oh, it's not that bad " . I said, " Look at the back of his head! " > and he just says " Oh. " > > He then told me to put him on the other side of his head, as if I > haven't been doing this for the past 6 months! He told me to wait > until his 9 month well visit next month and see if it got any better. > I asked for the number for the neurosurgeon. He said " well, if you > want to go see if he needs one of those headgears.. " What kind of > doctor is he? > > My fiancee thinks going to the NS is a waste of money and that we > should listen to our ped. He thinks I'm stupid for looking everything > up on the internet. I'm getting no support from anyone and don't know > what to do next. Do I wait another month to see if it's any better or > do I call the NS? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 Hi! I understand your frustration. We saw 4 pediatricians before one understood the problem. And actually the first time we saw Dr. , we were there for Braden's two month check-up. She walked into the room and immediately commented on his head shape and recommended the helmet. Unfortunately, it seems that most peds are not educated on this problem or they don't beleive in the helmets. Either way, if you feel your son needs help then I say just keep looking. The best thing we ever did was put Braden in his helmet. He is wearing a Starband and will be in it a month tomorrow. His head is already rounding out and looks so good. Best of luck to you. If you need anything or just someone to talk to, you are welcome to email me off the board. Heidi Mom to Braden - Starband 02/17/06skytza05 <skytza05@...> wrote: I took my son to the new pediatrician yesterday and he blew us off even more than the first ped! He looked at the top of his head and he said "Oh, it's not that bad". I said, "Look at the back of his head!" and he just says "Oh."He then told me to put him on the other side of his head, as if I haven't been doing this for the past 6 months! He told me to wait until his 9 month well visit next month and see if it got any better. I asked for the number for the neurosurgeon. He said "well, if you want to go see if he needs one of those headgears.." What kind of doctor is he?My fiancee thinks going to the NS is a waste of money and that we should listen to our ped. He thinks I'm stupid for looking everything up on the internet. I'm getting no support from anyone and don't know what to do next. Do I wait another month to see if it's any better or do I call the NS?For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 Hi! I understand your frustration. We saw 4 pediatricians before one understood the problem. And actually the first time we saw Dr. , we were there for Braden's two month check-up. She walked into the room and immediately commented on his head shape and recommended the helmet. Unfortunately, it seems that most peds are not educated on this problem or they don't beleive in the helmets. Either way, if you feel your son needs help then I say just keep looking. The best thing we ever did was put Braden in his helmet. He is wearing a Starband and will be in it a month tomorrow. His head is already rounding out and looks so good. Best of luck to you. If you need anything or just someone to talk to, you are welcome to email me off the board. Heidi Mom to Braden - Starband 02/17/06skytza05 <skytza05@...> wrote: I took my son to the new pediatrician yesterday and he blew us off even more than the first ped! He looked at the top of his head and he said "Oh, it's not that bad". I said, "Look at the back of his head!" and he just says "Oh."He then told me to put him on the other side of his head, as if I haven't been doing this for the past 6 months! He told me to wait until his 9 month well visit next month and see if it got any better. I asked for the number for the neurosurgeon. He said "well, if you want to go see if he needs one of those headgears.." What kind of doctor is he?My fiancee thinks going to the NS is a waste of money and that we should listen to our ped. He thinks I'm stupid for looking everything up on the internet. I'm getting no support from anyone and don't know what to do next. Do I wait another month to see if it's any better or do I call the NS?For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 I am sorry to hear that you are so frustrated. You may not have any support from your fiance but just know that you have all of us women here to support you and your decisions. I think that you should follow your gut like everyone else said. If you think your baby would benifit from wearing a band and you haven't noticed any improvment with repostioning then call the neurosurgeon and get their opinion. Best of luck with your decision. Isabelle 7 mos STARband 1/31/06 > > > > I took my son to the new pediatrician yesterday and he blew us off > > even more than the first ped! He looked at the top of his head and > he > > said " Oh, it's not that bad " . I said, " Look at the back of his > head! " > > and he just says " Oh. " > > > > He then told me to put him on the other side of his head, as if I > > haven't been doing this for the past 6 months! He told me to wait > > until his 9 month well visit next month and see if it got any > better. > > I asked for the number for the neurosurgeon. He said " well, if you > > want to go see if he needs one of those headgears.. " What kind of > > doctor is he? > > > > My fiancee thinks going to the NS is a waste of money and that we > > should listen to our ped. He thinks I'm stupid for looking > everything > > up on the internet. I'm getting no support from anyone and don't > know > > what to do next. Do I wait another month to see if it's any better > or > > do I call the NS? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 I am sorry to hear that you are so frustrated. You may not have any support from your fiance but just know that you have all of us women here to support you and your decisions. I think that you should follow your gut like everyone else said. If you think your baby would benifit from wearing a band and you haven't noticed any improvment with repostioning then call the neurosurgeon and get their opinion. Best of luck with your decision. Isabelle 7 mos STARband 1/31/06 > > > > I took my son to the new pediatrician yesterday and he blew us off > > even more than the first ped! He looked at the top of his head and > he > > said " Oh, it's not that bad " . I said, " Look at the back of his > head! " > > and he just says " Oh. " > > > > He then told me to put him on the other side of his head, as if I > > haven't been doing this for the past 6 months! He told me to wait > > until his 9 month well visit next month and see if it got any > better. > > I asked for the number for the neurosurgeon. He said " well, if you > > want to go see if he needs one of those headgears.. " What kind of > > doctor is he? > > > > My fiancee thinks going to the NS is a waste of money and that we > > should listen to our ped. He thinks I'm stupid for looking > everything > > up on the internet. I'm getting no support from anyone and don't > know > > what to do next. Do I wait another month to see if it's any better > or > > do I call the NS? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2006 Report Share Posted March 17, 2006 Trust your instincts!!!!!! You are the mother here and we moms know stuff about our children that no one else can possibly know, even dads. I am sorry your family and fiance are not more supportive but you have absolutely come to the right place for support here! Take the referral to the neurosurgeon. if your fiance says anything, just smile and nod, and go ahead to the appointment. He will eat his words if your child does need a band. ANother way to try and convince the Doubting 's woudl be to join this other group called OlderPlag. it is a group for parents of older children with unresolved plagio and they have photos in their photos section that are very striking and eye opening. Don't wait another month to see if it is going to correct. i think you already know that. I think you already feel like nothing is going to change in a month, so go ahead and do what you know is best. Good luck and please let us know how things are going. Becky , repo grad Pittsburgh, PA --- In Plagiocephaly , " skytza05 " <skytza05@...> wrote: > > I took my son to the new pediatrician yesterday and he blew us off > even more than the first ped! He looked at the top of his head and he > said " Oh, it's not that bad " . I said, " Look at the back of his head! " > and he just says " Oh. " > > He then told me to put him on the other side of his head, as if I > haven't been doing this for the past 6 months! He told me to wait > until his 9 month well visit next month and see if it got any better. > I asked for the number for the neurosurgeon. He said " well, if you > want to go see if he needs one of those headgears.. " What kind of > doctor is he? > > My fiancee thinks going to the NS is a waste of money and that we > should listen to our ped. He thinks I'm stupid for looking everything > up on the internet. I'm getting no support from anyone and don't know > what to do next. Do I wait another month to see if it's any better or > do I call the NS? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2006 Report Share Posted March 17, 2006 Trust your instincts!!!!!! You are the mother here and we moms know stuff about our children that no one else can possibly know, even dads. I am sorry your family and fiance are not more supportive but you have absolutely come to the right place for support here! Take the referral to the neurosurgeon. if your fiance says anything, just smile and nod, and go ahead to the appointment. He will eat his words if your child does need a band. ANother way to try and convince the Doubting 's woudl be to join this other group called OlderPlag. it is a group for parents of older children with unresolved plagio and they have photos in their photos section that are very striking and eye opening. Don't wait another month to see if it is going to correct. i think you already know that. I think you already feel like nothing is going to change in a month, so go ahead and do what you know is best. Good luck and please let us know how things are going. Becky , repo grad Pittsburgh, PA --- In Plagiocephaly , " skytza05 " <skytza05@...> wrote: > > I took my son to the new pediatrician yesterday and he blew us off > even more than the first ped! He looked at the top of his head and he > said " Oh, it's not that bad " . I said, " Look at the back of his head! " > and he just says " Oh. " > > He then told me to put him on the other side of his head, as if I > haven't been doing this for the past 6 months! He told me to wait > until his 9 month well visit next month and see if it got any better. > I asked for the number for the neurosurgeon. He said " well, if you > want to go see if he needs one of those headgears.. " What kind of > doctor is he? > > My fiancee thinks going to the NS is a waste of money and that we > should listen to our ped. He thinks I'm stupid for looking everything > up on the internet. I'm getting no support from anyone and don't know > what to do next. Do I wait another month to see if it's any better or > do I call the NS? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 Hi, I would call your insurance company and ask for written policy stating this as well as the appeals process. Many people have won appeals. Hopefully even if you have to pay up front, they will cover it on appeal. No guarantee, but definitely worth fighting for. -christine mom to sydney/ 15 mo/ starband grad > > I am really not sure what to do. My 8 month son went from 7mm of > assymetry to 8mm in just two weeks. He is also has some facial > assymetry and his ears are obviously not equal at all. Our physical > therapist sent an e-mail to our pedi. and we are waiting for a > referal to the local orthotic group. Problem is I called my insurance > company today to get some information on coverage and they told me the > bands are only covered after surgery for the diagnosis of plagiocephaly. > > I know that 8mm is not as severe as a lot of children on here but to > me it is noticeable. I really don't have $3,000 to fork over for > helmet treatment. Last time I talked to my pedi. he didn't seem to be > a firm believer in the band. He did refer us to PT for the tort but > was not that concerned about the plagiocephaly and said it would get > better over time. I am not sure that he will be a good advocate to > fight the insurance company. Part of my says to just leave it > alone--it eill resolve but the other part of me says to continue to > look into our options for paying for the band as soon possible. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 Please know that you are not alone! Post who your ins. company is and someone out there may be able to help with specifics. Get a referal to a cranio-facial specialist. They can give you a rx for a band if needed. If you have a CT near you they can do a free evaluation and if a band is needed you can take that info to your Ped. We were frustrated and gave up in the beginning to but deep down I felt I needed to keep pushing - and I'm glad I did. I would be kicking myself if I had not pursued treatment for my dd. Jen and Luli (15mo) Left Tort - Right Plagio - Hanger Band Grad - CA Tallulah Jayne http://www.babiesonline.com/babies/j/jens5th/ Frustrated! I am really not sure what to do. My 8 month son went from 7mm of assymetry to 8mm in just two weeks. He is also has some facial assymetry and his ears are obviously not equal at all. Our physical therapist sent an e-mail to our pedi. and we are waiting for a referal to the local orthotic group. Problem is I called my insurance company today to get some information on coverage and they told me the bands are only covered after surgery for the diagnosis of plagiocephaly. I know that 8mm is not as severe as a lot of children on here but to me it is noticeable. I really don't have $3,000 to fork over for helmet treatment. Last time I talked to my pedi. he didn't seem to be a firm believer in the band. He did refer us to PT for the tort but was not that concerned about the plagiocephaly and said it would get better over time. I am not sure that he will be a good advocate to fight the insurance company. Part of my says to just leave it alone--it eill resolve but the other part of me says to continue to look into our options for paying for the band as soon possible. AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 Thanks for the support. It just seems so easy to throw in the towel. I have CIGNA and live in NH. It seems that from what I have researched my policy has a very explicit clause related to cranial remodeling orthotics. Some CIGNA plans seem a lot more felxible than ours. -Crystal Mom to Raden- 8 months with plagio and tort Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 I wrote my appeal to my insurance company last week and actually used a brand new CIGNA policy that was released March 15, 2007 that outlined coverage for the helmet. Check it out. It was on the CIGNA website. http://www.cigna.com/customer_care/healthcare_professional/coverage_posi tions/medical/mm_0056_coveragepositioncriteria_cranial_orthotic_devices. pdf > > Thanks for the support. It just seems so easy to throw in the towel. > > I have CIGNA and live in NH. It seems that from what I have researched > my policy has a very explicit clause related to cranial remodeling > orthotics. Some CIGNA plans seem a lot more felxible than ours. > > -Crystal > Mom to Raden- 8 months with plagio and tort > Quote Link to comment Share on other sites More sharing options...
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