Actimmune, Jane, , & Zena

[Guest guest]

Is this subject line better? Is it ok when I write to a

bunch of you to put them under one subject like

" replies to many " or something like that? Whadya think?

I aim to participate in this inventory. :-)

Bruce, if I have an urgent need or plea, I'll specify it.

BTW, my subject line of my previous post actually

did read " fighting to live " .

Jane,

I took Actimmune for a year, prescribed by a doctor

who led one of the clinical studies at my transplant

clinic. That was in 2004. She has since moved back

to Washington to work, I believe, with her mentor

Dr. Raghu. I have no respect whatsoever for

Intermmune. I don't think the drug made me worse,

because I was stable for a year, but maybe it had

some long-term ill effects. I don't know. All these

meds we take are scary.

,

Thank you for your honest sharing of your deepest

emotions at this time. While I hope you keep

fighting, you must be so exhausted and weary

battling this latest infection and having to wear

additional oxygen again.

I do hope your family will give you permission to

go whenever the time for that comes. You are a

beacon of light to so many of us, and you honor

us by posting such an intimate portrayal of what

your present situation is like. I'm so glad you and

Kathie got to visit. God bless you.

Zena,

It probably seems like forever before the date when

you meet with the transplant team. Waiting ranks as

one of my LEAST character-building exercises! I have

good vibes about you getting listed, but I know you'll

make the best of whatever situation you are meant to

deal with. I wish you nothing but the best of everything.

Viking helmet: -)(]:-o

Hugs and blessings,

Gwynne 56 (for just a bit longer) IPF 7/04 listed for

transplant 3/07 and 2/08 Texas