Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 Yes, I've had this Jill. About 4 weeks ago, I couldn't open my mouth for almost a week! Great weight loss plan though. This disease is sooooooo weird. I was on a the 5 day pred pack a few weeks ago. Slowly but surely, the pain is growing and growing. I find after the pred packs, the pain comes back in totally different spots. But the weirdest thing is that is has manifested to my jaw. I can't close my jaw all the way. When I eat, I have to push all the food to the front of my mouth, otherwise it's too painful. I does come and go, so I am pretty sure it's the RA and not TMJ (which I had as a kid). Anyone else ever get this? I really hate RA... it sucks. Jill No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.0.237 / Virus Database: 270.11.4/1976 - Release Date: 02/27/09 13:27:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 Oh yeah! My jaw has hurt all the time, it is usually dull but I will get flares where I can hardly open my mouth. Lovely disease. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2009 Report Share Posted March 6, 2009 I get jaw pain too. I have noticed that I am having more and more pain with my jaws. Funny because that was the clincher for my Rheumy when I got my diagnosis in Oct. I just came off a Prednisone Taper about 3 weeks ago. First time I felt normal in weeks! Unfortunately, I over did it: had a lot of stress due to to my mother having two mini strokes this week (She and I live 1500 miles away from each other and I couldn't get there), a large work project that was due last Friday, and us literally building a house ourslves. By Monday I had a head ache, then my eyes started, the jaw, the neck, and so on, and so on, and so on! Got to the point I couldn't do anything and was in tears. Hubby got me some soup with a straw because I couldn't open my mouth. Spent the next two days at home in bed trying to recoup. I have the jaws back, but the rest is slow coming. I have noticed that if I start to over due it, the glands in my neck and under my jaw start to swell and become painful. Does anyone else get this? I'm still just on Plaquinil and OTC Motrin (I eat way too much of this!). Betsy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2009 Report Share Posted March 6, 2009 I just went through this Jill, and let me tell you it really stinks! I ultimately needed prednisone to work my way through the worst of it, but I was really miserable. I hope that you feel better soon! Lori http://home.comcast.net/~queenstitcher/ http://stitchingqueen.multiply.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2009 Report Share Posted March 6, 2009 About a month ago I got terrible jaw pain and went to the dentist and no problem there...and then it got so bad it was hard to swallow sometimes, so I was sent to the throat specialist... it eventually just went away and I never ever related it to RA........so others of you have had this problem........I should have known!! Barbara Jean ________________________________ From: Stitching Queen <queenstitcher@...> Sent: Friday, March 6, 2009 1:45:01 PM Subject: Re: [ ] Anyone ever had their jaw hurt? I just went through this Jill, and let me tell you it really stinks! I ultimately needed prednisone to work my way through the worst of it, but I was really miserable. I hope that you feel better soon! Lori http://home. comcast.net/ ~queenstitcher/ http://stitchingque en.multiply. com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 Hi All and Welcome to Beth and any other newbies out there! I've been lurking for awhile as I've been too busy to respond to each post but wanted you to know I'm reading them and saying prayers for healing for all of us dealing with RA and similar diseases! I thought I'd share that I have had, and continue to have, intermittant jaw problems. They usually only last a few days then all is ok again with the jaw. For you newbies, lean on this group as you need to for moral support and for answers to questions that we can answer. I'm off to my Rheummy soon as I've been having problems with my feet and I finally saw a foot doc who says my toes are really screwed up and I should see what meds my Rheummy can add to my metho and medrol to help! I'm on rest for the next two weeks and am not supposed to be on my feet more than about 30 min a day! Yuk!! My 17 1/2 yo son is being really helpful now that he knows I really do need help from him these days! My daughter would help but she's off at college! Elly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2009 Report Share Posted March 18, 2009 Thank you, Elly, for the welcome message. I have had problems with my big toes; sometimes it hurts to walk. I am an exercise nut and I keep exercising because it is one of few things that makes me feel better. I do hope you get some help / answers. > > Hi All and Welcome to Beth and any other newbies out there! > > I've been lurking for awhile as I've been too busy to respond to each post but wanted you to know I'm reading them and saying prayers for healing for all of us dealing with RA and similar diseases! > > I thought I'd share that I have had, and continue to have, intermittant jaw problems. They usually only last a few days then all is ok again with the jaw. > > For you newbies, lean on this group as you need to for moral support and for answers to questions that we can answer. > > I'm off to my Rheummy soon as I've been having problems with my feet and I finally saw a foot doc who says my toes are really screwed up and I should see what meds my Rheummy can add to my metho and medrol to help! I'm on rest for the next two weeks and am not supposed to be on my feet more than about 30 min a day! Yuk!! My 17 1/2 yo son is being really helpful now that he knows I really do need help from him these days! My daughter would help but she's off at college! > > Elly > > > Quote Link to comment Share on other sites More sharing options...
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