Scared

[Guest guest]

Hi Barbara Ann,

It took me having a transplant to change my negative thoughts. Comming so

close to death helped me to appreciate life even more. I cherish every moment

to its fullest. Even bad and frustrating days don " t seem so bad anymore. One

CNA that I became friends with when in hospital told me she liked to laugh

and surrounded herself with happiness, and she always made a point to come in

my room every night even when I wasn " t on her care list just so we could

laugh together. I think of her every morning when I get out of bed. And life

to me has a whole new meaning. Now when I have to go back to inpatient I am

always admitted to same floor. We hug and laugh somemore.

Gayle

[Guest guest]

Hi Geri

I'm not letting depression get to me!!! (I think) sometimes I just

seem to get to the end of that rope sooner then before. My Job is still

very funny, but it's wearing since I'm picking up My 2 bosses work

load!! does it surprise anyone they are men!! (hey no offense to men in

this group)

The liver biopsy was this week and the results that I will not receive

until 19th, I'm not looking forward to. And I swear I always get the

days that it's take ur kid to work day and or co/op day. And I'm always

the one they ask if they can watch!! After I'm drugged?? lol Well the

kid had to sit down he almost got sick!!! lol After I offered to play

hangman with him lol and was very disappointed that he said no!! those

drugs!!! For some odd reason I wanted to play games after that. Oh and

this time I saw the sample yuck!!!!!!! And do all the rest of you have

the biopsy done in the prep room with just a shot of good drug and a

needle that stuck into ur body or is it just me???

Well I was so feeling good it did not bother me at all and I got

breakfast and lunch!!!

[Guest guest]

Dear ,

I just got back into town and sat down to read 88 e-mails from .

I hope today is a better day for you. I just wish I had the eloquence of

Geri, who makes us all feel better.

Let us know how work goes this week.

If it makes you feel any better, YOU have helped me a bunch.

thank you

[Guest guest]

Hi ,

I do remember when you had that one siege of depression and it made me sad,

worrying about you! You always make me smile and I'll bet that you have

the same effect on the people you're with everyday, at home and at

work. Your patients are lucky to have you in their lives.

From everything you've said over the months, your doctors are caring and

they are good doctors who are doing everything they can for you. Not only

that, but they keep their eyes open for new possibilities that they think

might help. That's as much as any of us can hope for!

Getting ready for another cold winter? The sun is shining here today and

the sky is clear and perfectly blue. But, I miss being able to sit indoors

and watch the snow fall during winter months.

Take care,

Geri

[Guest guest]

Geri

It has already snowed!!! alot, the day of my biopsy, one day we have

5cms -20cms of snow the next day it's 14!! lol

Work and it's responsibilities left for me are getting to me, we have

been having a huge turn over, due to staff being scared.

but I'm trying not to get to the point that it puts me in that place I

was before, I cannot change what is happening and this time I'm not

going to try.

thanks

[Guest guest]

Oh thanks

And I'm thinking of transferring from the house, I love the clients, I'm

having trouble working with an uncaring, no thinking staff!! including

the bosses who work a 3 day week!!

[Guest guest]

,

Last winter some of your snow stories totally cracked me up.

I think you're right. You can't let your job get to you but I don't think

it's in your nature to just ignore things that bother you. Your sense of

humor is your salvation. Above all, though, you have to take care of your

health. You've had some rough ups and downs this past year. Do take good

care of yourself.

Geri

[Guest guest]

Hello Geri

I'm not looking forward to snow this year!! Except when it leaves!! lol

I have to tell u about the phone call at work last night..

I had another highly respected primary from another house call me, and

ask if I had any business to but on the full time agenda.

Before I could reply he continued, anything except Mike(my boss) being a

lazy A hole and not doing his job!! I was taken back, but only could

laugh, he continued and said he was going to make a appendix a for the

agenda and call it 's crap!!! lol

And the first line would read Mike needs to but down his bible and his

guitar and do his f------ job, before brandy ends up in nickels lol

(physic ward) surprise they don't no it but all ready been there lol.

He continued to say that ben my big boss is going in for an

operation!!!??? I said oh no what for???? He said to get a spine

inserted!! lol

He ended the conversation with telling me that it is a known fact in the

agency that I do both mikes and my Job and I do them exceptionally

well. He also said that I should ask for a transfer, because your job

should not be your life!!!

He told me to take care and hoped he see me at the meeting!!!

I needed to here that!!!

[Guest guest]

,

You work with a funny (ha ha) bunch of people. What a conversation that

was! At least there's something to laugh about now and then. Wonder why

this other guy called you? Maybe he was hoping you'd ask for a job at his

facility?

Do take care of yourself.

Geri

[Guest guest]

Geri

It was a nice phone call, and at the meeting this gentleman sat next to

me and we passed funny notes, and cracked jokes through out the meeting.

lol

Now lets not get the wrong idea (he is gay). The interesting thing

about this meeting was that there is to big meetings focused on how the

company is going and it will be attended by the managers/ directors and

the primary's. (darn I'm a primary's assistant!!) And then they

announced by no surprise to me!! all primary's are to attend

regardless except in the case of cumberland will be

attending!! What the hell is that??? All go it means no real

work and a nice change??? but I must remind them my pay is 10 000

dollars less then mt primary's??.

So I'm going to these " workshops " and all make sure when I go for my

review and for higher jobs that I have all ready been doing the job???

And I deserved the pay along time ago.

lol

I also after the meeting had a intense conversation with my big boss,

and surprise it was regarding my health!!

of course I shed tears, just don't ask me one question " how are you

feeling " ????

I reminded him that 7 months into my job, i got sick and I have risen up

the ladder, really fast! that I do my job and more and I do it well.

And that I don't want him thinking that I'm not able.

He reassured me even though many time we don't see eye to eye, that he

knows he can depend on me to be there and to get the job done, and that

i have the best interest at heart for the individuals I support. He

said u take hardly any sick days, that him understanding what I'm going

through gives him a better idea where I'm coming from especially when I

fight about pro active prn's??

He also said if you don't take care of your self then you won't be any

good to us!!

I hate talking about my health to my co-workers, especially upper

management.

What a struggle!! I'm sure they won't fire me?? they have a hard time

firing anybody lol.

[Guest guest]

,

You have an interesting life, that's for sure, and certainly know some

interesting people. I still laugh when I think about you racing all over

town trying to find your " lost " patient last year.

It's pretty upsetting when you make considerably less money than people who

have fewer responsibilities and accomplishments than you do. I drew the

line when my employer hired some guy who knew NOTHING about what I was

doing, and made him my boss. The guy had to ask me what to do and when I

would write new procedures, he'd try to put his name on them when they were

issued to the branches. Since I'd been writing shipping procedures for

years, all of the field offices knew they were my " babies " , and when they'd

call him with questions he'd have to ask me what to tell them. He made

about $50,000. a year more than I did. But the company paid for what they

did. Because of the new boss I quit and a month later this guy walked off

with corporate plans for the coming year and went to work for Fedex. That

left them with no one to do the job and no one who even had a clue about

how to do it. I've never regretted it though after I left the job, I never

again made that much money. Life isn't fair, but I wouldn't want to ever

be the kind of person who takes credit for other people's

accomplishments. There isn't enough money in the world to make me want to

do that.

I often think that job is what started my autoimmune reactions that led to

AIH. Ongoing stress can definitely make you sick, so take care of

yourself. Unlikely anyone else will.

Take care,

Geri

[Guest guest]

Geri

thanks for the support you givin, and now It'ss been over a year we have

chatted on the email!! your a good friend!

Thanks

[Guest guest]

Hi Guys,

I haven't been posting much lately...as some of you may have read, I was

dxd with Babesiosis and Ehrlichiosis, as well as Bb, tnrough IGeneX.

I have had a ''band-type " headache for over a month. My LLMD thinks it's

from the coinfections. He gave me Darvocet which helps a little.

Neurontin used to help the headaches, but not anymore... just the

neuropathies. He started me on Zith and Mepron along with the Flagyl

that I was already on. He's waiting until my next appt to treat the

Erhlic, since I had been previously treated for Lyme with Doxy...and I

wound up in the hospital due to the severe herx.

I am not improving and something really scary has happened...when I woke

up today, I couldn't get up. It was like my whole body wasn't receiving

any signals. I would try to move my arms and legs, but they were

extremely weak and just sort of flopped around. When I eventually was

able to get up, my legs felt like they weighed a ton, and my arms felt

heavy. It has subsided some, but not completely.

Has anybody else experienced this or have any clues as to what it is? My

EEG showed no problems last year...

I don't know how much more I can take...

Joan LI NY

[Guest guest]

Hi Joan -

Just want to say hang in there and yes I have experienced all of this

before. I know exactly what you meanabout the " no signals " feeling. I also

was positive for Ehrlichiosis, Babesiosis and Lyme. In the beginning I was

treated with Doxy and ended up in hospital from the doxy herxes - went on

and off of the doxy for a while as well as many other ABX over the past

year and a half - continually on abx the whole time (except when herxes are

too severe) and recent tests from Igenex show now that I have won against

the Ehrlichiosis - have almost beat the Babesiosis and still I get the

symptoms you describe but they are much milder than they used to be. The

first time I woke up like that, I went to the ER and it turned out I had no

potassium, am now on supplements. I had to spend a week in the hospital to

recover though. Maybe some testing of potassium and electrolyte levels

would be good? I guess with these conditions, anything can cause our

symptoms but just wanted to share what they found with me. Currently am on

Zith to continue to get rid of the babesiosis and Bb.

Hang in there - it can get better. Some days I thought I was dying and still

wonder. I don't know if the illness or herxes are worse - all of it is very

scary and I have been hospitalized many times during these battles. I think

it's especially hard when hit with all three of these infections.

Re: [ ] Scared

> Hi Guys,

> I haven't been posting much lately...as some of you may have read, I was

> dxd with Babesiosis and Ehrlichiosis, as well as Bb, tnrough IGeneX.

>

> I have had a ''band-type " headache for over a month. My LLMD thinks it's

> from the coinfections. He gave me Darvocet which helps a little.

> Neurontin used to help the headaches, but not anymore... just the

> neuropathies. He started me on Zith and Mepron along with the Flagyl

> that I was already on. He's waiting until my next appt to treat the

> Erhlic, since I had been previously treated for Lyme with Doxy...and I

> wound up in the hospital due to the severe herx.

>

> I am not improving and something really scary has happened...when I woke

> up today, I couldn't get up. It was like my whole body wasn't receiving

> any signals. I would try to move my arms and legs, but they were

> extremely weak and just sort of flopped around. When I eventually was

> able to get up, my legs felt like they weighed a ton, and my arms felt

> heavy. It has subsided some, but not completely.

>

> Has anybody else experienced this or have any clues as to what it is? My

> EEG showed no problems last year...

>

> I don't know how much more I can take...

> Joan LI NY

>

>

>

>

>

> ------------------------------------------------------------------------

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> ------------------------------------------------------------------------

>

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what it is today.

>

>

> Easy Reference:

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>

>

>

[Guest guest]

Hi Elfkin (sorry, I don't know your name),

Thanks so much for sharing your experiences...it helped. This has

been a really hard day for me. I appreciate your support. These diseases

s*ck!

Thanks,

Joan LI NY

[Guest guest]

HI Joan:

Hang in there. I hope you are feeling much better soon.

hugs,

lea

> Hi Guys,

> I haven't been posting much lately...as some of you may have read, I was

> dxd with Babesiosis and Ehrlichiosis, as well as Bb, tnrough IGeneX.

>

> I have had a ''band-type " headache for over a month. My LLMD thinks it's

> from the coinfections. He gave me Darvocet which helps a little.

> Neurontin used to help the headaches, but not anymore... just the

> neuropathies. He started me on Zith and Mepron along with the Flagyl

> that I was already on. He's waiting until my next appt to treat the

> Erhlic, since I had been previously treated for Lyme with Doxy...and I

> wound up in the hospital due to the severe herx.

>

> I am not improving and something really scary has happened...when I woke

> up today, I couldn't get up. It was like my whole body wasn't receiving

> any signals. I would try to move my arms and legs, but they were

> extremely weak and just sort of flopped around. When I eventually was

> able to get up, my legs felt like they weighed a ton, and my arms felt

> heavy. It has subsided some, but not completely.

>

> Has anybody else experienced this or have any clues as to what it is? My

> EEG showed no problems last year...

>

> I don't know how much more I can take...

> Joan LI NY

>

[Guest guest]

Joan,

I feel so bad to hear a fellow Long Islander in such pain. Sometimes

I think they should build a home for all us Lymies since we are the

only ones that seem to understand what it is like. You know what you

have now and you can take alot more. You will survive. Feel free to

email me if you would like to talk about our LI or anything.

Be Happy!

jim

[Guest guest]

Thanks for the support, Jim.

Yes, I now know that I have Babs as well as Ehrlic, and it explains why

my year of oral abx for Lyme wasn't making me better and why I was

getting worse...but not being abe to get out of bed yesterday really

scared me.

I see that you're a fellow LI'er, and we probably have more to talk

about...keep in touch.

Thanks,

Joan

[Guest guest]

Hi Lea,

I am feeling a little better today. I was able to get out of bed, but

I'm moving around in a " herky-jerky " fashion.

Are you feeling any better?

Hugs,

Joan

[Guest guest]

JOAN:

IN REFERENCE TO YOUR E-MAIL CONCERNING YOUR WEAK ARMS AND LEGS I

WOULD HAVE TO SUGGEST THAT A " POSSIBLE " CAUSE OF THAT MAY BE WHAT IS

KNOWN AS A SPINAL STENOSIS. THAT SIMPLY MEANS THAT THE SPINAL CORD

(USUALLY IN THE NECK AREA) IS BEING PINCHED BY THE BONES SURROUNDING

IT.

THIS LEADS TO A CUT OFF OF SIGNALS FROM THE BRAIN AND ONE SYMPTOM OF

THIS IS A GROSS WEAKNESS OF THE MUSCLES. AN MRI OF THAT AREA IS

PROBABLY

THE BEST WAY TO SEE THE STENOSIS. A NEUROLOGIST OR NEUROSURGEON IS

THE

BEST TYPE OF DOCTOR TO SEE CONCERNING THIS PROBLEM. IF AN INFECTION

OCCURS IN THIS AREA AND EATS AWAY AT THE BONE THE BODY WILL ATTEMPT

TO

REPLACE THE BONE AND IN DOING SO THE REPLACEMENT WILL NOT BE EXACTLY

THE

SAME SHAPE OF THE ORIGINAL BONE. THE IRREGULARITIES IN THE

REPLACEMENT

BONE COULD POSSIBLY PRESS AGAINST THE SPINAL CORD THUS CAUSING THE

STENOSIS. IF YOU FIND THAT YOU DO HAVE THIS PROBLEM I WOULD LIKE TO

KNOW

IF I WAS RIGHT ABOUT THIS.

BOB

Namkrats3@... wrote:

>

> Hi Guys,

> I haven't been posting much lately...as some of you may have read, I was

> dxd with Babesiosis and Ehrlichiosis, as well as Bb, tnrough IGeneX.

>

> I have had a ''band-type " headache for over a month. My LLMD thinks it's

> from the coinfections. He gave me Darvocet which helps a little.

> Neurontin used to help the headaches, but not anymore... just the

> neuropathies. He started me on Zith and Mepron along with the Flagyl

> that I was already on. He's waiting until my next appt to treat the

> Erhlic, since I had been previously treated for Lyme with Doxy...and I

> wound up in the hospital due to the severe herx.

>

> I am not improving and something really scary has happened...when I woke

> up today, I couldn't get up. It was like my whole body wasn't receiving

> any signals. I would try to move my arms and legs, but they were

> extremely weak and just sort of flopped around. When I eventually was

> able to get up, my legs felt like they weighed a ton, and my arms felt

> heavy. It has subsided some, but not completely.

>

> Has anybody else experienced this or have any clues as to what it is? My

> EEG showed no problems last year...

>

> I don't know how much more I can take...

> Joan LI NY

>

> ------------------------------------------------------------------------

> Get a NextCard Visa, in 30 seconds!

> 1. Fill in the brief application

> 2. Receive approval decision within 30 seconds

> 3. Get rates as low as 2.9% Intro or 9.9% Fixed APR

> 1/6630/11/_/484634/_/963602804/

> ------------------------------------------------------------------------

>

> Many thanks to our founder and friend, Marta McCoy, for making what

it is today.

>

> Easy Reference:

> Send a blank email message to:

>

> -Subscribeegroups - Subscribe to the list through email

> -Unsubscribeegroups - Unsubscribe from the list

> -Digestegroups - Switch your subscription to a digest format

> -Normalegroups - Switch your subscription to normal

>

> Please send messages not related to Lyme disease to

-Offtopicegroups

>

> Archives can be accessed at lyme-aid

>

> Please visit the chat room at chat/lyme-aid

[Guest guest]

Hey Pepi,

that is really great news! I am glad the surgery was very successful

elizabeth

<<

I had cervicle Fusion , C6-7 because of pinched spinal chord. I can tell

you now at 4 weeks post-op I feel 99% better. No more migraines, Carpul

tunnel symptoms are gone an >>

[Guest guest]

Hey Bob , Joan and All,

I had cervicle Fusion , C6-7 because of pinched spinal chord. I can tell

you now at 4 weeks post-op I feel 99% better. No more migraines, Carpul

tunnel symptoms are gone and the numbness in from hips down is gone. Dr said

that I had a bone that chipped and the fragment was what was giving me the

majority of the problem. I had no injury, other than normal horse riding

stuff, so I have no clue what made the chip. Just thought I would pass that

on. Pepi

[Guest guest]

Dear Bob,

Thanks for the info and suggestions. It is appreciated.

Joan LI NY

[Guest guest]

Thanks, Pepi. Glad to hear of your improvements.

Joan LINY

[Guest guest]

hi all especilly melissa;

i'm only new to group so hope you don't mind my input, i couldn't believe how

reading your messages felt like looking in the mirror,y es even your's

melissa,oh the degrees of lowness,and isolation, those closest to us feel so far

away,pain is ours alone.but melissa,please believe you will find strength, from

places you don't know now,i have,only a week ago i was feeling very much the

same ,and getting the same partner responses,but then days passed and things

improved,i still have the pain but ,i don't know maybe the sun shone or i saw a

bird or something,

rest,sleep then get up.

i found this group when i got up,

markncharn kennel's markncharn@...